Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Hi , You daughter is a real cutie, and looks like she loves to be on the go! It sounds like you have a doctor who is very responsive to your concerns; that is terrific. I don't know if you have seen Dr. Ponseti before, but if you haven't, you have so much to look forward to. He and his staff are not only knowledgable but warmly supportive. You will also find a responsive attitude toward your questions and concerns. There is now a printed booklet available detailing the Ponseti technique. The link is http://www.global- help.org/publications/pdfs/PonsetiBook.pdf You can order or download from this site, but if you ask Dr. Ponseti about this at your visit, he may have one to give you. Caroline > Hello again! > > My doctor has always told me that it was 4 months in the DBB. I > went back to Dr Ponseti's website to find the 4 month info, and to > my surprise it said 2-3 months! According to our Dr, who has > trained with Dr Ponseti, but is not listed on his website, he has > been taught 4 months in the DBB following the tenotomy. I am > emailing our doctor to find out where I can get the information in > print. If it is in fact only 3 months, then maybe we can go back to > our walking shoes after our next appointment! > > We were just about ready to begin another round of casts last fall, > when we took a trip to see my mom in Iowa. At our appointment right > before we left, Dr said to keep her in the bar 23/7 and > when we got back we would cast. We went in for the appointment > expecting to be casted and since she was " surfing " and " cruising " in > the bar, he suggested gong to nights and naps for 3 months and then > we would re-evaluate. So that's when I got a script for the Markell > straightlast boots and she did well in them. She was walking within > 3-4 days after the bar came off during the day. We went back the > first part of February and I was concerned about her leaning too > much on the outside of her right foot. Her feet were pretty severe > when she was born,but the right one is the once continuing to give > us problems. At that appt. we casted only the right foot. After > the two weeks were up at the next appt, I told him I wanted both > feet casted so as to not compromise the progress of the left foot. > So then we did 2 sets of double casts, lasting 2 weeks each, then we > had our second tenotomy 3/25. Her feet are doing great now. She is > in the bar for probably 21-22 hours/day. We take it off when we get > home at night, around 630p, she plays for awhile, has dinner, and > has her bath, then right back in the bar for bed. She is usually in > bed by 830-900. I am hoping to get the go-ahead for nights/naps > only at our next appointment on 6/18. We are going on vacation the > following week and will be in Iowa for 3 weeks with my family. I am > going to see Dr Ponseti while we are there. I am so excited. > > As far as the length of time in the DBB following the tenotomy, I > will let you know as soon as I hear back from our doctor. You can > see a picture of Emma on our foundation's website at www.pediatric- > orthopedic-foundation.org. There is a picture of Emma in her one- > legged cast in February. > > Thanks for bringing that to my attention! I am interested in > finding out if things have changed one way or the other! > > > www.pediatric-orthopedic-foundation.org > Quote Link to comment Share on other sites More sharing options...
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