Guest guest Posted July 9, 2003 Report Share Posted July 9, 2003 Marcy, Congrats. Actuually I got pregnant unexpectedly at only 7 weeks post-op. I never gained but lost dramatically thru my pregnancy. was born weighing 7lbs 13oz and healthy! Open RNY 2-18-02 down 198lbs Mommy to: 1-16-03 andra Marie( my angel in heaven, born stillborn at 36 weeks gestation following a car accident on 3-14-98) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2003 Report Share Posted October 1, 2003 welcome! i am new also, and am just thinking of ttc, so I can't help you with your questions. I just wanted to say Congratulations on your pregnancy and I am sure all will be well.. Just think you breezed through the morning sickness part! Korta Independant Consultant Southern Living at HOME From the publishers of Southern Living® magazine ***visit my website www.southernlivingathome.com/melissakorta For more information about our growing company, call me at or email me at momkorta@... New to group Hi all: I am new to the group & just wanted to share my experience with you in hopes of gaining support from those who are in a similar situation. I was only 3 weeks post-op when I got pregnant. I Had my WLS on 4-28-03.I didn't find out about the pregnancy until 3 weeks ago (I'm now 18weeks) because I thought the symptoms I was having were surgery related .I didn't concider using birth control because both my husband & myself have battled infertility problems for the last 15 years.I conceived 3 children (son age 5,twins 31/2 son & daughter) using in-vitro fertilization so I thought there was no way I could get pregnant.Finally after 4 months of not getting my period I took a pregnancy test & it was positive.I think my husband & I are still in shock for 1) because I got pregnant without in-vitro & 2) we were done having children.I gave all my baby things away. Although this pregnancy was not planned we are just as thrilled to be having a baby,hoping it is healthy is our main concern.I am trying to eat a little something every couple of hours.I can't stand sugar or fat so I am probably healthier now than before.I am actually 100 pounds lighter than when I delivered my twins 31/2 years ago.I am having trouble getting enough fluid in & am trying harder each day.I am still losing weight,only a pound here & there but hope the baby is thriving & growing. I am going to have an ultrasound on Tuesday & am hoping to see what we are having as I have to buy everything all over again.As long as it is healhty it doesn't matter what sex it is,as I have both already but another daughter would be ideal as I only have 3 bedrooms & 2 boys already share a room.My daughter would love to share her room with a baby sister. I just pray every day that the baby is o.k. I haven't felt movement yet but hopefully soon I will start to feel it. It doesn't seem like weight gain is going to be an issue for me during the pregnancy but I hope after the baby comes I can continue to lose again,as I would like to lose 80 more pounds.I have lost 70 so far. If anyone else has gone through this similar situation I would love to hear from you just to feel more secure with this pregnancy. I have alot of faith in god & have left it up to him to see me through this.I hope my baby will be of average weight & doesn't come early. Hope to talk with any of you soon, Vicki Moreis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2003 Report Share Posted October 22, 2003 Next september?!?!? (Or you are pregnant?!) Welcome to the group!! New to group Hello I am new to the group I was wondering would it be safe If I was thinking of getting pregnant in Sep if I had my surgery this past April Thanks Take care, Lolly Lap RNY 4-9-03 (proximal) Dr. Reyes Mc, TX. 4-9-03= 291 5-12-03= 259 6-9-03= 244 7-9-03= 230 8-9-03= 216 9-9-03= 206 http://hometown.aol.com/precious9545/myhomepage/profile.htmlhttp://h ometown.aol.com/precious9545/myhomepage/profile.html *Until you love a poodle, a part of your soul remains unawakened.* " If God brought you to it, he will bring you through it. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2003 Report Share Posted October 22, 2003 Lolly - They recommend that you wait 12-18 months before getting pregnant. There is no reason to put any additional stress on your body if you can avoid it right now. People have gotten pregnant and carried successfully, but I have heard that it is more enjoyable (and safer) to wait. Good Luck! New to group Hello I am new to the group I was wondering would it be safe If I was thinking of getting pregnant in Sep if I had my surgery this past April Thanks Take care, Lolly Lap RNY 4-9-03 (proximal) Dr. Reyes Mc, TX. 4-9-03= 291 5-12-03= 259 6-9-03= 244 7-9-03= 230 8-9-03= 216 9-9-03= 206 http://hometown.aol.com/precious9545/myhomepage/profile.html " >http ://hometown.aol.com/precious9545/myhomepage/profile.html *Until you love a poodle, a part of your soul remains unawakened.* " If God brought you to it, he will bring you through it. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2003 Report Share Posted October 22, 2003 NEXT September (since this is October already)?? That would be great timeing... if you were wanting to get pregnant before at least 12 months out, I would be holding up red flags all over the place... You need at least 12 months before your weight stabilizes enough to not have a very worrisome pregnancy, IMHO and I am NOT a doctor. You need to talk to your doc and nutritionist and they will go into great detail as to why you really need to wait. I was 18 months post op when I got pregnant and had some problems with eating. A friend of mine was only 9 months post op (we got pregnant at about the same time), and she has had to be on IV protein feedings because she can not eat enough to stay healthy. Now, this won't happen to everyone, but... it is best to wait!! Sharon Precious9545@... said: > Hello > I am new to the group I was wondering would it be safe If I was thinking > of > getting pregnant in Sep if I had my surgery this past April > Thanks > > > > Take care, > Lolly > > Lap RNY 4-9-03 (proximal) > Dr. Reyes Mc, TX. > > 4-9-03= 291 > 5-12-03= 259 > 6-9-03= 244 > 7-9-03= 230 > 8-9-03= 216 > 9-9-03= 206 > HREF= " http://hometown.aol.com/precious9545/myhomepage/profile.htmlhttp://homet\ own.aol.com/precious9545/myhomepage/profile.html > > > *Until you love a poodle, a part of your soul remains unawakened.* > > " If God brought you to it, he will bring you through it. " > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2003 Report Share Posted October 22, 2003 Wow ! I didn't catch that! Good question! New to group Hello I am new to the group I was wondering would it be safe If I was thinking of getting pregnant in Sep if I had my surgery this past April Thanks Take care, Lolly Lap RNY 4-9-03 (proximal) Dr. Reyes Mc, TX. 4-9-03= 291 5-12-03= 259 6-9-03= 244 7-9-03= 230 8-9-03= 216 9-9-03= 206 http://hometown.aol.com/precious9545/myhomepage/profile.html " >http ://h ometown.aol.com/precious9545/myhomepage/profile.html *Until you love a poodle, a part of your soul remains unawakened.* " If God brought you to it, he will bring you through it. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2003 Report Share Posted October 23, 2003 ok, so it has to be next September unless she is already pg....lol **duh** me lol > > NEXT September (since this is October already)?? That would be great > timeing... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 YOUR BABY STILL HAS 9 WEEKS OF GROWING AND WILL GROW MORE RAPIDLY TOWARD THE END. I THINK YOU ARE DOING FINE YOU HAVE DONE AWESOME IN YOUR WEIGHT LOSS, CONGRATULATIONS I THINK YOUR DOCTOR JUST NEEDS TO DEAL WITH MORE GASTRIC BYPASS PEOPLE TO REALIZE YOU ARE VERY NORMAL WITH YOUR WEIGHT RIGHT NOW, IT'S ALL YOU CAN DO SO THEY WILL HAVETO DEAL WITH THAT. JUST MAKE SURE YOU ARE EATING HEALTHY FOODS, THERE IS NOTHING MORE YOU CAN DO THAN EAT WELL, TAKE YOUR VITAMINS AND GET PLENTY OF REST GOOD LUCK, YOU CAME TO THE RIGHT GROUP, THESE WOMEN ARE LOADED WITH INFO AND I AM SURE YOU WILL GET THE ANSWERS YOU NEED. HUGS, ROBIN, NY Age- 41 TTC#4 - OPEN RNY 10-18-02 378/246/170??? DR.EDWARD HIXSON SARANAC LAKE, NY Mom to: & 7 1/2 year twin boys and Madison age 4 1/2 yrs. Miscarraige August 2001 Miscarraige August 2003 Married to Pup: 15 years this Halloween : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 Hello and Welcome! I'm pretty new too, hope these informative ladies can give you some good suggestions. It sounds to me like your baby is growing nicely and just because you haven't gained alot of weight...doesn't mean the baby isn't healthy. But I'm no doc....best of luck on the continued pregnancy. HUGS~ Jackie in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 , YOur doctor needs educated about gastric bypass patients. Has she spoken to your surgeon " ? if not DEMAND that she contact your surgeon and get information. I would not change doctors at this point. However realize that " NORMAL " women gain weight during pregnancy. Dont be too upset that she is being extra careful. She has not seen this instance before and doesn't know how to react. As our numbers swell, more OBs will become familiar with the needs of gb patients. But someone has to be an OBs first gb patient. I was mine. My Ob was in contact with my PCP (who was well aware of GB by the time I got pregnant) and my surgeon. She also asked me questions about what tests I could or could not do. I refused the glucose tolerance test and explained to her the reasons why. She had no problem giving me a fasting test once she realized there was a legitimate reason for my refusal and i wasn't just being difficult. Normally the glucose tolerance test is better for pregnant women but not for us. HTH. Rasley mailto: drasley@... BTC, Columbus, 10/7/98 New to group > Hello everyone! I just joined today because I realized that I really > needed to hear from other women that had gastric bypass and are now > pregnant. I am almost 31 weeks now. My ob has never had a bypass > patient before and is very stressed about my not gaining weight. At > my first appt with her, I weighed 163 lbs and then by my next appt, > it had dropped to 150 lbs. I am up to 158. She has sent me to a > fetal-maternal med doc due to my advanced age (I am 36) and now she > wants me to go back due checking the growth of the baby. I just had > an ultra sound on Friday and they said the baby was at three pounds > and 6 ounces. At this point I am ready to scream. I really want to > change obs but I don't think that I can at this point. This is my > first child and first pregnancy. I had my surgery 4/18/02 and > weighed 320 lbs. at that time. Is there anyone that is going through > this too? > > Thanks > Kingsley > > > > > Children are a blessing, and a gift from the Lord. -Psalm 127:3 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 How old is your baby? My son had the tendon release surgery when he was 2 yrs old. s. new to group > > > Hi my name is and I have a son with Bi-lateral club feet. > His name is Tyler. He is now 18 months and we have been through 3 > surgeries, countless castings, braces and dennis brown shoes with > bar. His doc says if he is not walking this month he is thinking of > doing another surgery. I looked on the internet and found a place > here that helps kids with special needs and found that they came to > the house and now has started physical therepy. In my searches on > the internet I also found Shriner's hospital. I have gotten him an > appt. hoping to get a second opinion. This last pair of shoes his > doc put him in knowing that his heel did not fit into the bottom of > the shoe. His doc even took xrays and seen that his heel was not > fitting into the shoe and he said to just let it go for a month and > hope that the shoes with the bar would help. I didn't think this > was right. Tyler has not wore the shoes in the past couple of weeks > cause they do not fit right. I am hoping that not too much damage > will have been done. He goes to the Shriner's hospital the 27th of > this month. I just don't want to go back to his regular orthopedic > doc cause I don't want him to do surgery on Tyler. He is an > pediatric orthopedic surgeon so I think that his first thought is > surgery and I am hoping maybe correction can be obtained in another > way. I was just wondering if anyone else has had probs with docs > like this? I also thought it would be good to know that we are not > alone in going through what we have and will go through. > > > thanks > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 You mentioned suspecting his leg muscles are weak - try getting him to play in a sand pile in your yard, the beach, where ever. It really strengthens their legs quickly - wading in water, too, anything liek that to offer strength through gentle resistance. s. new to group > > > > > > Hi my name is and I have a son with Bi-lateral club feet. > > His name is Tyler. He is now 18 months and we have been through 3 > > surgeries, countless castings, braces and dennis brown shoes with > > bar. His doc says if he is not walking this month he is thinking > of > > doing another surgery. I looked on the internet and found a place > > here that helps kids with special needs and found that they came > to > > the house and now has started physical therepy. In my searches on > > the internet I also found Shriner's hospital. I have gotten him > an > > appt. hoping to get a second opinion. This last pair of shoes his > > doc put him in knowing that his heel did not fit into the bottom > of > > the shoe. His doc even took xrays and seen that his heel was not > > fitting into the shoe and he said to just let it go for a month > and > > hope that the shoes with the bar would help. I didn't think this > > was right. Tyler has not wore the shoes in the past couple of > weeks > > cause they do not fit right. I am hoping that not too much damage > > will have been done. He goes to the Shriner's hospital the 27th of > > this month. I just don't want to go back to his regular > orthopedic > > doc cause I don't want him to do surgery on Tyler. He is an > > pediatric orthopedic surgeon so I think that his first thought is > > surgery and I am hoping maybe correction can be obtained in > another > > way. I was just wondering if anyone else has had probs with docs > > like this? I also thought it would be good to know that we are > not > > alone in going through what we have and will go through. > > > > > > thanks > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 I'm betting Tyler is young enough to be corrected by the Ponseti method despite the bad treatments he's had thus far. s. new to group Hi my name is and I have a son with Bi-lateral club feet. His name is Tyler. He is now 18 months and we have been through 3 surgeries, countless castings, braces and dennis brown shoes with bar. His doc says if he is not walking this month he is thinking of doing another surgery. I looked on the internet and found a place here that helps kids with special needs and found that they came to the house and now has started physical therepy. In my searches on the internet I also found Shriner's hospital. I have gotten him an appt. hoping to get a second opinion. This last pair of shoes his doc put him in knowing that his heel did not fit into the bottom of the shoe. His doc even took xrays and seen that his heel was not fitting into the shoe and he said to just let it go for a month and hope that the shoes with the bar would help. I didn't think this was right. Tyler has not wore the shoes in the past couple of weeks cause they do not fit right. I am hoping that not too much damage will have been done. He goes to the Shriner's hospital the 27th of this month. I just don't want to go back to his regular orthopedic doc cause I don't want him to do surgery on Tyler. He is an pediatric orthopedic surgeon so I think that his first thought is surgery and I am hoping maybe correction can be obtained in another way. I was just wondering if anyone else has had probs with docs like this? I also thought it would be good to know that we are not alone in going through what we have and will go through. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 The heel cord release is very standard and done when they're just infants, it's just a little prick to their heel done in the office - this other thing we refer to as the Tendon Transfer or ATTT is major surgery and generally reserved for severe relapses on older kids. That is the operation my first baby ended up having...... I really think at 18 months old, unless something really funky is going on, a good doctor should be able to correct your son's feet through casting alone followed by correct use of the DBB. I would check it out before I agreed to letting them do that at this young age. new to group > > > > > > Hi my name is and I have a son with Bi-lateral club feet. > > His name is Tyler. He is now 18 months and we have been through 3 > > surgeries, countless castings, braces and dennis brown shoes with > > bar. His doc says if he is not walking this month he is thinking > of > > doing another surgery. I looked on the internet and found a place > > here that helps kids with special needs and found that they came > to > > the house and now has started physical therepy. In my searches on > > the internet I also found Shriner's hospital. I have gotten him > an > > appt. hoping to get a second opinion. This last pair of shoes his > > doc put him in knowing that his heel did not fit into the bottom > of > > the shoe. His doc even took xrays and seen that his heel was not > > fitting into the shoe and he said to just let it go for a month > and > > hope that the shoes with the bar would help. I didn't think this > > was right. Tyler has not wore the shoes in the past couple of > weeks > > cause they do not fit right. I am hoping that not too much damage > > will have been done. He goes to the Shriner's hospital the 27th of > > this month. I just don't want to go back to his regular > orthopedic > > doc cause I don't want him to do surgery on Tyler. He is an > > pediatric orthopedic surgeon so I think that his first thought is > > surgery and I am hoping maybe correction can be obtained in > another > > way. I was just wondering if anyone else has had probs with docs > > like this? I also thought it would be good to know that we are > not > > alone in going through what we have and will go through. > > > > > > thanks > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 My baby is 18 months. He had his first tendon release when he was about 3 months old. mom of Tyler > > Actually, ALOT of people have this problem. Some have had to go > thru several doctors before finding the right one for them. There > are surgery doctors and there are non-surgery doctors and if you > have a surgery doc nothing will convince them otherwise most of the > time. It is very sad, because they refuse to admit that there is > another way. > > > > You said that he has had 3 surgeries already (amazing at such a > young age, IMO) What were the surgeries/what was done? > > > > Angel > > > > new to group > > > > > > Hi my name is and I have a son with Bi-lateral club feet. > > His name is Tyler. He is now 18 months and we have been through 3 > > surgeries, countless castings, braces and dennis brown shoes with > > bar. His doc says if he is not walking this month he is thinking > of > > doing another surgery. I looked on the internet and found a place > > here that helps kids with special needs and found that they came > to > > the house and now has started physical therepy. In my searches on > > the internet I also found Shriner's hospital. I have gotten him > an > > appt. hoping to get a second opinion. This last pair of shoes his > > doc put him in knowing that his heel did not fit into the bottom > of > > the shoe. His doc even took xrays and seen that his heel was not > > fitting into the shoe and he said to just let it go for a month > and > > hope that the shoes with the bar would help. I didn't think this > > was right. Tyler has not wore the shoes in the past couple of > weeks > > cause they do not fit right. I am hoping that not too much damage > > will have been done. He goes to the Shriner's hospital the 27th of > > this month. I just don't want to go back to his regular > orthopedic > > doc cause I don't want him to do surgery on Tyler. He is an > > pediatric orthopedic surgeon so I think that his first thought is > > surgery and I am hoping maybe correction can be obtained in > another > > way. I was just wondering if anyone else has had probs with docs > > like this? I also thought it would be good to know that we are > not > > alone in going through what we have and will go through. > > > > > > thanks > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Dr Mosca and Dr Ponseti both told me the same thing. They both also said that just because it is imballanced now (18 mo) doesnt mean it wont straighten out. Dr M said to stimulate the outside of the foot/ankle by tickling it to try to get him to stretch is foot in that direction. Both doc's said to use high-tops for everyday shoes to help keep the ankle straight, thereby stretching the inside tendon. Both also concurred that it would be some time yet before it was known if he would need the ATTT. Angel > Hi Angel and , > > I just wanted to drop in here and tell you what I found out recently. At Rose's last appointment with Dr. Mosca, he explained to me that we have two major tendons on the tops of our foot and in a normal foot, they work together to raise the foot. In about 30% of club foot children, one tendon is stronger than the other and this causes the foot to be raised sideways instead of straight up and down. That is were the ATTT surgery comes in because they take the strong tendon and cross it over to foot and attach it to the other side so the foot lifts properly. Lucky for us Rose does not have this problem but I just thought it was very good information. > > Robin & Rose > 3/12/03 > right club foot > > kitaki wrote: > As a side note, both Dr Mosca and Dr Ponseti have mentioned that Kai may need the ATTT in the future, but they are talking a few years. He is also 18 months. Even then, sometimes casting can manage/correct the sittuation without needing to resort to the ATTT. Recently someone on list reported that they had thought an ATTT was needed, but after Dr Ponseti casted, it was not needed - the child was 3, I think. > > Angel > new to group > > > > > > Hi my name is and I have a son with Bi-lateral club feet. > > His name is Tyler. He is now 18 months and we have been through 3 > > surgeries, countless castings, braces and dennis brown shoes with > > bar. His doc says if he is not walking this month he is thinking > of > > doing another surgery. I looked on the internet and found a place > > here that helps kids with special needs and found that they came > to > > the house and now has started physical therepy. In my searches on > > the internet I also found Shriner's hospital. I have gotten him > an > > appt. hoping to get a second opinion. This last pair of shoes his > > doc put him in knowing that his heel did not fit into the bottom > of > > the shoe. His doc even took xrays and seen that his heel was not > > fitting into the shoe and he said to just let it go for a month > and > > hope that the shoes with the bar would help. I didn't think this > > was right. Tyler has not wore the shoes in the past couple of > weeks > > cause they do not fit right. I am hoping that not too much damage > > will have been done. He goes to the Shriner's hospital the 27th of > > this month. I just don't want to go back to his regular > orthopedic > > doc cause I don't want him to do surgery on Tyler. He is an > > pediatric orthopedic surgeon so I think that his first thought is > > surgery and I am hoping maybe correction can be obtained in > another > > way. I was just wondering if anyone else has had probs with docs > > like this? I also thought it would be good to know that we are > not > > alone in going through what we have and will go through. > > > > > > thanks > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 We have had such a hard time finding regular shoes to fit Tyler. His orthodist said that he has to wear triple wide shoes and they have to be special ordered. So for awhile we were taking the bar off his dbbs during the day and just letting him wear the shoes. Mother of Tyler bi lat cf 1/14/03 > > > Actually, ALOT of people have this problem. Some have had to go > > thru several doctors before finding the right one for them. There > > are surgery doctors and there are non-surgery doctors and if you > > have a surgery doc nothing will convince them otherwise most of > the > > time. It is very sad, because they refuse to admit that there is > > another way. > > > > > > You said that he has had 3 surgeries already (amazing at such a > > young age, IMO) What were the surgeries/what was done? > > > > > > Angel > > > > > > new to group > > > > > > > > > Hi my name is and I have a son with Bi-lateral club > feet. > > > His name is Tyler. He is now 18 months and we have been through > 3 > > > surgeries, countless castings, braces and dennis brown shoes > with > > > bar. His doc says if he is not walking this month he is > thinking > > of > > > doing another surgery. I looked on the internet and found a > place > > > here that helps kids with special needs and found that they came > > to > > > the house and now has started physical therepy. In my searches > on > > > the internet I also found Shriner's hospital. I have gotten him > > an > > > appt. hoping to get a second opinion. This last pair of shoes > his > > > doc put him in knowing that his heel did not fit into the bottom > > of > > > the shoe. His doc even took xrays and seen that his heel was > not > > > fitting into the shoe and he said to just let it go for a month > > and > > > hope that the shoes with the bar would help. I didn't think > this > > > was right. Tyler has not wore the shoes in the past couple of > > weeks > > > cause they do not fit right. I am hoping that not too much > damage > > > will have been done. He goes to the Shriner's hospital the 27th > of > > > this month. I just don't want to go back to his regular > > orthopedic > > > doc cause I don't want him to do surgery on Tyler. He is an > > > pediatric orthopedic surgeon so I think that his first thought > is > > > surgery and I am hoping maybe correction can be obtained in > > another > > > way. I was just wondering if anyone else has had probs with > docs > > > like this? I also thought it would be good to know that we are > > not > > > alone in going through what we have and will go through. > > > > > > > > > thanks > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Interesting - and the poor baby being in pain! I thought the 3 week cast was only for tenotomy patients, so the heel could heal. I havent' heard of a 3 week cast for any other purpose. Let us know what happens. s. Re: new to group Hello, Our daughter Grace was born on July 21st 04 with one kidney and a club foot...with all the attention in utero paid to the kidney situation, her club foot was not diagnosed thus was quite a shock to her dad and me. I had never really heard anything about club foot before, I think we were really lucky to have had our daughter at the Royal Columbian Hospital in New Westminister BC as there is a Ponseti certified Orthopist practising there - Dr. Pirani. He was away temporarly at the time of her birth and as I didn't know if it would be OK to wait a few days, we brought her to Children's Hospital to get her first cast on. It was in retrospect an upsetting experience - I cried the whole time.She was placed naked on a hospital bed for the cast to be done so of course, screamed throughout the whole thing and the cast was done without the supervision of the attending Doctor. They used a thick batting under the cast, not the cotton sleve used by Dr. Pirani, thus the first cast was not accurate. We are so glad that we decided to go and see Dr. Pirani, Grace is casted while sitting on my knee, I have even nursed her while being casted. We have had a bit of a problem with the last cast (the 3 week cast). She had been extra fussy and then a few days ago began to lift her little leg and really cry. Her dad noticed that her toes were really squished...we didn't want to remove the cast before tuesday afternoon as we didn't want to impeed her progress. Yesterday (tuesday) morning I finally decided that we needed to remove it as I could not get her to stop crying. Her whole calf was purple and she had three creases, the largest being on the top of her foot where it joins the leg, this one was leaking fluid. We immediatly took her to her doctor who said we could use polysporyn on her creases and to keep her leg moist with lotion. He said that the creases would most likely not get infected as she is on a mild anitbiotic for her kidney. We saw Dr. Pirani that afternoon, (he came in on his vacation to see Grace), he said that she strained in her cast and had a bit of a growth spurt. We decided to wait until next Tuesday to put her into the boots and bars as her little leg needs time to heal. I hope we don't need to cast her again!!! Dr. Pirani showed us an excersize (holding her knee North and holding her foot East for 10 min.) that we will do twice a day with her. Before she had the 3 week cast put on, Dr. Pirani said that she would probably not need to have her tendon cut as the casting was going so well. We will find out next Tuesday if she needs to go into another cast...has anyone else had a similar experience with the 3 week cast? And if so, how long did the creases take to heal? I really don't want the big crease on the top of her foot to heal improperly and tear when she moves her foot, it looks so painful! Any advise would be appreciated. Thank-you , Gilles and Grace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 The 3w cast is for all CF babies. Regardless of tenotomy. It might be reduced to 2w, depending on the Dr. (our doc said babies can't be in casts that long, they grow too much... which we all know is incorrect) but it is the cast that *over corrects* the foot to 70+ degrees abduction and thus must be on longer than the first 3-7 corrective casts. Dr. Ponseti emailed me and specifically stated that Darbi would need the 3w cast regardless of tenotomy. He did not think she would need the tenotomy and she never did have it. Kori At 09:18 PM 9/8/2004, you wrote: >Interesting - and the poor baby being in pain! I thought the 3 week cast >was only for tenotomy patients, so the heel could heal. I havent' heard >of a 3 week cast for any other purpose. Let us know what happens. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 not until her last cast is at 70 degrees. Which Dr. Ponseti will take care of. Don't worry about it right now, as it hardly matters. In fact, I might even consider taking her out entirely for the weekend. Just to give her a little break. I think I'd email Dr. Ponseti first though lol... just to be sure it's not a bad idea but I doubt it'll make any difference because he'll surely cast her again anyway. I would think 3 days out of the DBB or cast wouldn't make much of a difference in this situation but that's not an informed opinion, just a mama's opinion :~} FYI, the DBB is to be set at 70 degrees abduction. As long as the last cast is 70 degrees. Save it to be sure. But Dr. P. won't steer you wrong. You'll be saving it for memories with him. Congrats on seeing him on Monday. I'm really always so jealous some of you get to meet him. I know it's not the ideal situation, with a failed first casting or whatever... but I'm jealous nonetheless. Kori At 11:58 AM 9/9/2004, you wrote: >That's very intresting. I didn't know that. Our first doc that did >the tenotomy still gave Ava cast changes weekly. She had 10 all >together. Then they put her in the DBB and her R foot is terrible but >we are seeing Dr. Ponseti on Monday. Can't wait!!! In the DBB she is >locked out to 60-60, should she be turned out further?? > >KK >Livi 01/03 >Ava 05/04 BCF,DBB 2wks and worthless?? > > > > > > >Interesting - and the poor baby being in pain! I thought the 3 >week cast > > >was only for tenotomy patients, so the heel could heal. I havent' >heard > > >of a 3 week cast for any other purpose. Let us know what happens. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 Dear Bonnie: Welcome to the group. I am glad that you have found us, though sorry that you are ill and needing seek our help. I am also happy that you have felt comfortable to post and ask your questions, please continue to do so, there are many experienced members here and though things are quiet sometimes, if you give it time, your questions will always get answered. The group is a great place to come for support or just to vent as well. My name is Kim, it is getting very late now, so I am going to address your specific questions in the morning, but I wanted to welcome you now before signing out of here tonight. I will say quickly that I am sure many have had trouble with dizziness and vision problems are also common. Coordination and walking problems are also common. Please write and tell us how your sarcoid was diagnosed. I am sure many will share their experiences with you. Take care, Kim NS Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2008 Report Share Posted December 8, 2008 sorry you need us, but glad you are here go to a teaching hospital where the pulmonary docs specialize in interstitial lung diseases Pink Joyce IPF 3/06 Pennsylvania Donate Life Subject: new to groupTo: Breathe-Support Date: Monday, December 8, 2008, 4:17 PM Hello everyone my Name is I was just Diagnosed with pulmonary Fiborosis .And I am only thrity six years old.I have been suffering with Chronic Sinus for years and short of breath my pulse rate was 150 with exercise and lying down so the cardligest put me on cardizem for my heart rate which .is still high and lightheaded and headache and eye troble plus dizzyness and hard time doing activites. my lungs feel very short of breath my Pulmogligest. says it is only the begining of int.fibrosios. I am very upset.I am a Mother of 4 Boy's and wife.this has been a long process. I wonder if any one can get me some answers to what is the process.thanks DENISE Quote Link to comment Share on other sites More sharing options...
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