Re: Help!...Fustrated with DBB!!!

[Guest guest]

Tina,

I had the same problem with my son. I often had to come home from work and

put the shoe back on. My son's heel on his left foot didn't drop down as much as

the right and his foot was so small at the time (he was wearing size 0000).

The way I solved the problem was I put his shoe on barefoot. I found that

without the sock there was less of a chance that it would slip. I put some

powder

in the shoe so the foot would slide in good. As his foot grew, I didn't have

the problem anymore. He is now wearing a size 1.

JoAnn

10/22/03 bcf DBB 12/24

[Guest guest]

Tina,

I had the same problem with my son. I often had to come home from work and

put the shoe back on. My son's heel on his left foot didn't drop down as much as

the right and his foot was so small at the time (he was wearing size 0000).

The way I solved the problem was I put his shoe on barefoot. I found that

without the sock there was less of a chance that it would slip. I put some

powder

in the shoe so the foot would slide in good. As his foot grew, I didn't have

the problem anymore. He is now wearing a size 1.

JoAnn

10/22/03 bcf DBB 12/24

[Guest guest]

Tina,

I had the same problem with my son. I often had to come home from work and

put the shoe back on. My son's heel on his left foot didn't drop down as much as

the right and his foot was so small at the time (he was wearing size 0000).

The way I solved the problem was I put his shoe on barefoot. I found that

without the sock there was less of a chance that it would slip. I put some

powder

in the shoe so the foot would slide in good. As his foot grew, I didn't have

the problem anymore. He is now wearing a size 1.

JoAnn

10/22/03 bcf DBB 12/24

[Guest guest]

Hi JoAnn! Thank you so much for your help. He is sleeping right now

but as soon as he wakes up, I will take that sock off and see if it

works for him too!

> Tina,

>

> I had the same problem with my son. I often had to come home from

work and

> put the shoe back on. My son's heel on his left foot didn't drop

down as much as

> the right and his foot was so small at the time (he was wearing size

0000).

> The way I solved the problem was I put his shoe on barefoot. I found

that

> without the sock there was less of a chance that it would slip. I

put some powder

> in the shoe so the foot would slide in good. As his foot grew, I

didn't have

> the problem anymore. He is now wearing a size 1.

>

> JoAnn

> 10/22/03 bcf DBB 12/24

>

>

>

[Guest guest]

Hi Tina,

Not sure what kind of shoes you have but Zoe's foot slipped until I

moved the strap to the lower slit on her reverse last (I think

straight last have the two slits as well). And I wasn't getting her

heal all the way in for the first couple of days. If the barefoot

doesn't work out, I have read that some put on 2-3 pairs of socks if

the foot is really small.

Good luck, let us know how it goes.

Louisa and Zoe 2-22-04 rucf

> Hi again everyone. I hope some of you can help me. I am so fustrated

> with Ethan's DBB, I don't know what else to do. I am making sure

that

> his shoes are tight enough, sometimes too tight in my opinion, but

he

> still manages to pull his right foot out at least twice a day. It is

> still buckled and tied. I don't know what to do. Now when I look at

> his foot, I swear it is starting to turn back in. Our next

appointment

> is this Friday, but I am not sure I should wait that long. Hope

> someone has some good advice! Thanks a bunch!

>

> Tina

> Ethan 3-6-04 bcl

[Guest guest]

I got the new Markell shoes and they had a nylon type shoe lace and

Tori pulled her foot out all of the time. I put in an all cotton

shoelace that has less give and it helped a lot. Also you could try

tying the shoelace upside down where the bow is by the toes. Does it

have the insert in the back, can't remember the name. You can check

the files and the history and maybe able to come up with some other

things to try.

Tori 1/30/04 bilateral atypical cf, 1 1/2 weeks left in the cast

following the tenotomy

[Guest guest]

Tina,

I don't know if this applies to Ethan or not, but in reading many,

many similar posts over the years, the ability of the baby to pull

the foot out of the shoe easily is often a sign that the foot is not

completely corrected, and therefore needs more casting before going

into the brace. It could also be that the shoes are too big for

Ethan, or that you're not getting the heel all the way down into the

shoe before strapping & snugging the laces....or other problems.

Another thing to look at is to make sure that the distance between

the shoes is acceptable, if the bar is too short, he can also pull

his foot out. Also, the U of Iowa uses the foam horse-shoe shaped

counter-bumpers in the back of the shoes, called plastizode inserts

to help keep the foot in. Do you have these in Ethan's shoes? Info

on the brace set-up can be found in the files section here, or at

http://pages.ivillage.com/ponseti_links you can print it off and

bring it to your doctor/orthotist.

I hope some of this helps you to trouble-shoot the problem.

& (3-16-00)

left clubfoot, switched to Ponseti method at 4 months old

> Hi again everyone. I hope some of you can help me. I am so fustrated

> with Ethan's DBB, I don't know what else to do. I am making sure

that

> his shoes are tight enough, sometimes too tight in my opinion, but

he

> still manages to pull his right foot out at least twice a day. It is

> still buckled and tied. I don't know what to do. Now when I look at

> his foot, I swear it is starting to turn back in. Our next

appointment

> is this Friday, but I am not sure I should wait that long. Hope

> someone has some good advice! Thanks a bunch!

>

> Tina

> Ethan 3-6-04 bcl

[Guest guest]

Hi Tina,

My grandson Andrez had the same problem - his left foot always seem

come out of the shoe. We tried everything recommended but still

wouldn't stay in. He developed a really bad blister and could not

wear the shoes until his blister healed. It took over 8 days to

completely heal and by that time his foot had already started to

relapse and had an even harder time getting his foot in. We had to

wait another week to see our doctor. In the meantime we sent pictures

to Dr. Ponseti who said it looked like Andrez may have lost a little

correction being out of the shoes for so long. He also said that

since Andrez's feet were so short and chubby that it would be hard to

fit in any type of shoe. We also are using the Markell open toe white

shoe, but the older ones. Dr. Ponseti said that new sandals

have worked well with the smaller chubbier feet. Once we get Andrez's

cast remvoed in 3 weeks and he is ready to go back in the shoes, we

will either try the new Markell shoes or spend the $350 for the

sandals. I feel your frustration, Andrez only wore his

shoes for 1 week before he developed the blister. He doesn't mind

the castings but hated the shoes. Hopefully this time out of the cast

his foot will be in a better position to stay in them.

Good luck!!

> Hi again everyone. I hope some of you can help me. I am so fustrated

> with Ethan's DBB, I don't know what else to do. I am making sure

that

> his shoes are tight enough, sometimes too tight in my opinion, but

he

> still manages to pull his right foot out at least twice a day. It is

> still buckled and tied. I don't know what to do. Now when I look at

> his foot, I swear it is starting to turn back in. Our next

appointment

> is this Friday, but I am not sure I should wait that long. Hope

> someone has some good advice! Thanks a bunch!

>

> Tina

> Ethan 3-6-04 bcl

[Guest guest]

Tina,

I just re-read the info. about setting up the brace put together by

Hall. From the following quote, it would seem that part of

the problem is that the clubfoot heel is not correctly formed. Over

time, the shoes help to form the heel and then the feet stop slipping

out. Only Zoe's clubfoot came out of the shoe when we first started

using the shoes.

" On the inside of the shoe, above the heel, there is a pink pad that

creates an area for A NORMAL HEEL TO DEVELOP AND GROW INTO; it also

helps to prevent the heel from coming out of the shoe. "

I think she's referring to the plastizote insert that I believe is no

longer in use with the newly redesigned Markell shoes...

After a short time, we no longer needed the plastizote in her shoes.

Only those first few weeks until the shoe stopped coming off...

Hope this helps.

Joanne W. mom to Zoe (3-25-01, right clubfoot)

> Hi again everyone. I hope some of you can help me. I am so fustrated

> with Ethan's DBB, I don't know what else to do. I am making sure

that

> his shoes are tight enough, sometimes too tight in my opinion, but

he

> still manages to pull his right foot out at least twice a day. It is

> still buckled and tied. I don't know what to do. Now when I look at

> his foot, I swear it is starting to turn back in. Our next

appointment

> is this Friday, but I am not sure I should wait that long. Hope

> someone has some good advice! Thanks a bunch!

>

> Tina

> Ethan 3-6-04 bcl

[Guest guest]

Thanks . I will try the bow upside down and if that doesn't work

I will try cotton laces. I talked to the ortho today and he wants to

see Ethan and make sure his foot isn't regressing. I kind of think

that is what is happening since it is always the same foot. I will let

you know!!

Tina and Ethan 3-6-04 bcf

> I got the new Markell shoes and they had a nylon type shoe lace and

> Tori pulled her foot out all of the time. I put in an all cotton

> shoelace that has less give and it helped a lot. Also you could try

> tying the shoelace upside down where the bow is by the toes. Does it

> have the insert in the back, can't remember the name. You can check

> the files and the history and maybe able to come up with some other

> things to try.

>

> Tori 1/30/04 bilateral atypical cf, 1 1/2 weeks left in the cast

> following the tenotomy

[Guest guest]

Hi ! I completely agree with you. I think the foot is not

completely corrected. We will find out on Friday. I don't think his

shoes are too big because he just pulls the right foot out, never the

left. Today, he pulled it out 2 minutes after I put it on again!! I

will let you know what happens. Thanks !

Tina and Ethan 3-6-04 bcf

> > Hi again everyone. I hope some of you can help me. I am so fustrated

> > with Ethan's DBB, I don't know what else to do. I am making sure

> that

> > his shoes are tight enough, sometimes too tight in my opinion, but

> he

> > still manages to pull his right foot out at least twice a day. It is

> > still buckled and tied. I don't know what to do. Now when I look at

> > his foot, I swear it is starting to turn back in. Our next

> appointment

> > is this Friday, but I am not sure I should wait that long. Hope

> > someone has some good advice! Thanks a bunch!

> >

> > Tina

> > Ethan 3-6-04 bcl