Guest guest Posted July 10, 2003 Report Share Posted July 10, 2003 Tisha, I accidentaly hit delete when answering your e-mail. I hope you get this and know i am talking to you. I would be more than glad to answer any questions you have. Looking forward to hearing from you. And by the way, it cost me 13,000 to have the plastic surgery and insurance would not touch it. They didnt even pay for my gastric bypass so I KNEW They wouldnt pay for that!!! Rhonda > > > Date: 2003/07/08 Tue PM 09:14:59 EDT > To: OSSG-pregnant > > Subject: New to the group > > > > Hello all you wonderful people. I have been reading everyones post and decided to finally make myself known. You would think I was shy or something. I am a hairdresser so we know that IS NOT TRUE!! > Ok all you experienced women here is my question......I had open RNY may 3rd of 2002 and plastic surgery (implants, breast lift and Beltlectomy which is the tummy tuck all the way around) JUST 4 months ago. I just found out on July 4th that i am pregnant. I went to the doctor today and she did a vaginal ultrasound and said that the sack looked a little irregular. It had a triangle shape to it instead of round. I do not know when my last period was so we do not know how far along I am. I have been pretty irregular due to all the trauma to my body in the last year. She said if I am only 5 or 6 weeks then all is fine, but if i am further along than that, she is a little concerned. She took blood today and is taking it again Thursday then we will compare the two at an appt friday to see if my count is going up. So, we are praying for the best. Anyway, back to the question......Is my stomach going to explode as it gets larger??????haha My stomach is so tight due to the tuck i dont see how in the world i could get a big belly. Has anyone become pregnant that quick after a tuck? If so, please let me know how things went and any advice anyone has I would love for you to share your knowledge with me. > Thank you so much for your time and God bless to each one of you brave and corageous women!! > Rhonda > > > > Date: 2003/07/08 Tue PM 05:56:40 EDT > > To: OSSG-pregnant > > Subject: Re: He's HERE! > > > > Congratulations on your little one! Seems that the right around the > > 4th were the days to have babies this month. > > > > Becky Soodsma > > > > > > > Hunter arrived July 3, 2003 @ 8:53am EST weighing in at a > > whopping > > > 7lbs 13ozs & 20 " long.. So much for that " small " baby we were > > expecting! He's > > > perfectly healthy and it seems his heart is PERFECT (Thank GOD!!) > > An absolute > > > miracle and we are extremely blessed! > > > > > > Here is a pic of our family & one of Hunter alone from the 4th of > > July.. > > > he's 1 day old in this picture. We arrived home yesterday > > morning.. and are just > > > relaxing! Easy delivery and amazingly super easy pain free c/s > > delivery! > > > > > > If the " in email " photos don't show let me know! > > > [unable to display image] > > > [unable to display image] > > > *~Joy~* > > > Lap RNY @ 491lbs > > > town Memorial > > > Dr. Bertha > > > 2/26/01 > > > Mommy to: > > > (1-9-99) & Saralyn (12-15-99) > > > AND > > > Hunter > > > 07/03/03 > > > 7lbs 13ozs & 20 " long > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Hi Tina! Welcome! I am also new to this group, I have been here about a week. I cannot begin to explain how helpful and understanding everyone is. Always willing to help with any problems you may have! My son Ethan was born with bilateral clubfoot in March. Look forward to learing more about your daughter! Tina Dylan 3-21-00 Ethan 3-06-04 bcf DBB 23/7 > Hello all. My name is Tina, and I live in Dartmouth, NS, Canada. My > 14 month old daughter was born with her left foot clubbed and though > I have never heard of the Ponseti method until I found this website, > I believe this is what my daughter had done. She was in her first > cast when she was 6 days old, and have then on for several months, > using manipulation of the casts, however all of her casts were > fiberglass ones. I am looking forward to chatting with all of you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2005 Report Share Posted April 26, 2005 Cathy Hi and Welcome to the group My 33yrold husbands only symptom was lower left abdominal pain , which they found out through a colonoscopy ( after running out of other options) He also had a massive blockage , couldnt even do the scope he was to blocked off . Did your husband have to have a ileostomy? Hubby was diagnosed with stage 4 , had resection(thats when they found it had spread to adbominal wall lining, 3 out of 39 lymph nodes involved) , temporary ileostomy, chemo started in Jan , and he only has THREEEEEE MOREE LEFT!!!!!!!!! cant waitttttttttt Let us know what the oncologist says Deb 33yrold husband Joe, was diagnosed with CC in Sept, resection on Sept 27th 2004 found mets to the abdominal wall lining 3 lymph nodes involved open wound from infection until Jan 2005 Ileostomy reversal Dec 7th 2004 Chemo regiment begun Jan 2005 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines Calcium Magnesium added for the Tingles Feb 28 2005 Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found April 1 2005 PET scan done awaiting results April 11 PET SCAN SHOWS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2005 Report Share Posted April 26, 2005 Hi Welcome to our group. You will find lots of support here as well as answers. I have found so much help here. These people here are the best!!!! And they can answer questions better then the doctors since they have gone through it first hand. I do hope the best for your husband. Sorry you had to meet us this way but you will be glad you joined. Ingrid > > Less than a week ago-my 46 year old-slightly overweight-Husband was > diagnosed in the emergency room with a " malignant blockage " -- that > turned out to be colon cancer. Imagine my surprise when he had had > no other symptoms -- except for a few days of " stomach cramps " . He is > home -- the colon resected - and 5 of 26 nodes had cancer. So hello > to everyone-- I'm glad this is here -- and as soon as we see the > oncologist, I'm sure I'll be posting more questions. Cathy, San > Francisco Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2005 Report Share Posted May 10, 2005 ; I am sorry you find it necessary to join up. No one should be saddled with this nasty disease, but since you are one of us unlucky ones, welcome and best wishes. I was diagnosed with stage IV Colon Cancer in December, 2003, via a biopsy of my liver. It was interesting because it was a CT guided needle biopsy and I woke up just as the surgeon was getting ready to take a tissue sample. I could even watch on the monitor as they positioned the needle. Well, I had mets to my liver (two lesions) and my lungs. Anyway, my oncologist started me out on the " FOLOFOX " regimen. That's the Oxaliplatin, 5-FU and Leucovorin every two weeks. Avastin hadn't been approved when I started so that was not available. To make a long story short, the first things to go were the liver mets. In a matter of a few months my liver was unremarkable to a CT scan. I never got a PET scan since my mets were easily identified on the CT. I really believe in the FOLFOX therapy; if only the side effects of peripheral neuropathy were easier to manage. Please ask your oncologist about Calcium Glucconate/Magnesium Sulfate infusions along with the chemo to keep the nerve damage down to a minimum. Best wishes and good luck to you. -joe- > Unfortunately, I am new to this group. I haven't followed it for very long > but wanted to say hello and see if there is anyone out there like me. > > I live in California and was diagnosed just last week with Stage 4 colon > cancer with metastasis to the liver. There appears to be one lesion on the > liver (via Pet Scan). I am visiting with oncologists and surgeons in the LA area > and I am learning that some of the best in the country may be right here. > > We are discussing whether to start with 8 weeks of agressive chemo: > oxaliplatin, 4FU and Avastin with a vitamin. Treatments would be 3 days every 2 > weeks (ie chemo via vein for several hours and return home wearing a fanny pack > for 48 hours). After 8 weeks, do a CT scan to determine whether the tumors > are shrinking. If so, another 8 weeks of chemo; rest one week; then operate > on both the colon and liver at the same time. > > Has anyone gone through liver surgery? > Has anyone used this chemo formula? > > Thank you so much and I wish you all wellness. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2005 Report Share Posted May 10, 2005 Hi , Sorry you had to join this group. But you will find lots of information here. The people on this group are the nicest people I have ever met. They have given me an awful lot of support. I cannot answer your questions but just want to say HI. Ingrid > Unfortunately, I am new to this group. I haven't followed it for very long > but wanted to say hello and see if there is anyone out there like me. > > I live in California and was diagnosed just last week with Stage 4 colon > cancer with metastasis to the liver. There appears to be one lesion on the > liver (via Pet Scan). I am visiting with oncologists and surgeons in the LA area > and I am learning that some of the best in the country may be right here. > > We are discussing whether to start with 8 weeks of agressive chemo: > oxaliplatin, 4FU and Avastin with a vitamin. Treatments would be 3 days every 2 > weeks (ie chemo via vein for several hours and return home wearing a fanny pack > for 48 hours). After 8 weeks, do a CT scan to determine whether the tumors > are shrinking. If so, another 8 weeks of chemo; rest one week; then operate > on both the colon and liver at the same time. > > Has anyone gone through liver surgery? > Has anyone used this chemo formula? > > Thank you so much and I wish you all wellness. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2012 Report Share Posted March 10, 2012 Hi Tina: I am also from northeast- relocated from CT last summer, and am also a pediatric SLP who treated ASD in young children/toddlers for many years in both private practice and clinic up north. My advice is- think long and hard about a move down here if your son has special needs, especially spectrum. There is no comparison in overall quality and quantity of therapeutic and educational services provided- it is a different world. Sad but true. If you'd like more a more detailed opinion, please email me directly.DebraTo: sList From: tinamaturah@...Date: Fri, 9 Mar 2012 23:28:54 +0000Subject: New to the Group Hi, I am new to this group. Let me start by saying this email will be a bit winded but I need some help! I have an almost 4yo with PDD-NOS. My husband and I are looking to move south, we are currently living in the suburbs of Boston. We have an excellent pre-school program that he is in and making great progress. Our plan is to move in the summer of 2013. I was hoping I could hear from parents that have had an great pre-school kindergarten experience then into grammar school. A little about Shane: His delays are strictly in communication. Receptively he has move mountains. Expressively is where he struggles. He uses pecs, is signing and can be prompted and will try to say the word. He has a handful of spontaneous words so the future is promising. Right now his school program consists of the following: -10 hours of direct ABA -1.5 hours of speech -1.5 hours of OT -1 hour of PT -2.5 hours of Floortime -1 hour of social skills -Visit to the integrated pre-school occassionaly In addition to the school program he has 13 hours of private ABA at home. We really need to find a district that we can keep the same type of schedule he is responding very well to this. I would also like to hear about private ABA providers that are recommended. We also have a 2yo neurotypical son, so we need a good district for him as well. I have no idea how the FL system works. We are looking in the West Palm area and south. I know this is a very long email, I hope that you guys can help point me in the right direction. I appreciate any help you can give me. We need a place to start! Thanks in advance. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2012 Report Share Posted March 10, 2012 Hello Tina,I can't think of any programs in the area (Broward) that provide the level of services you're currently receiving. Public schools do not offer ABA, and speech and OT don't come by easy.Are you looking for a private school or public? If you're moving with hopes of finding better programs, I wouldn't do it. Florida has had many budget cuts and has a long waiting list for services, schools are crowded.The few private schools that do offer truly individualized and specialized programs are very expensive (think $35K a year and up).This has been my experience in the area (Broward County - Weston), hopefully someone from W Palm will be able to offer some feedback as well.Good luck with whatever you choose, and please let me know if there's anything else I can help you with, info or chat, whatever it may be.GabiSent from a's iPhone Hi, I am new to this group. Let me start by saying this email will be a bit winded but I need some help! I have an almost 4yo with PDD-NOS. My husband and I are looking to move south, we are currently living in the suburbs of Boston. We have an excellent pre-school program that he is in and making great progress. Our plan is to move in the summer of 2013. I was hoping I could hear from parents that have had an great pre-school kindergarten experience then into grammar school. A little about Shane: His delays are strictly in communication. Receptively he has move mountains. Expressively is where he struggles. He uses pecs, is signing and can be prompted and will try to say the word. He has a handful of spontaneous words so the future is promising. Right now his school program consists of the following: -10 hours of direct ABA -1.5 hours of speech -1.5 hours of OT -1 hour of PT -2.5 hours of Floortime -1 hour of social skills -Visit to the integrated pre-school occassionaly In addition to the school program he has 13 hours of private ABA at home. We really need to find a district that we can keep the same type of schedule he is responding very well to this. I would also like to hear about private ABA providers that are recommended. We also have a 2yo neurotypical son, so we need a good district for him as well. I have no idea how the FL system works. We are looking in the West Palm area and south. I know this is a very long email, I hope that you guys can help point me in the right direction. I appreciate any help you can give me. We need a place to start! Thanks in advance. Tina = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2012 Report Share Posted March 10, 2012 Hi Tina,I agree with Gabi and Debra. Come to South Florida for the weather, but be prepared to be disappointed with services for your ASD child. To: deniseslist Sent: Saturday, March 10, 2012 9:07 AM Subject: RE: New to the Group Hi Tina: I am also from northeast- relocated from CT last summer, and am also a pediatric SLP who treated ASD in young children/toddlers for many years in both private practice and clinic up north. My advice is- think long and hard about a move down here if your son has special needs, especially spectrum. There is no comparison in overall quality and quantity of therapeutic and educational services provided- it is a different world. Sad but true. If you'd like more a more detailed opinion, please email me directly.DebraTo: sList From: tinamaturah@...Date: Fri, 9 Mar 2012 23:28:54 +0000Subject: New to the Group Hi, I am new to this group. Let me start by saying this email will be a bit winded but I need some help! I have an almost 4yo with PDD-NOS. My husband and I are looking to move south, we are currently living in the suburbs of Boston. We have an excellent pre-school program that he is in and making great progress. Our plan is to move in the summer of 2013. I was hoping I could hear from parents that have had an great pre-school kindergarten experience then into grammar school. A little about Shane: His delays are strictly in communication. Receptively he has move mountains. Expressively is where he struggles. He uses pecs, is signing and can be prompted and will try to say the word. He has a handful of spontaneous words so the future is promising. Right now his school program consists of the following: -10 hours of direct ABA -1.5 hours of speech -1.5 hours of OT -1 hour of PT -2.5 hours of Floortime -1 hour of social skills -Visit to the integrated pre-school occassionaly In addition to the school program he has 13 hours of private ABA at home. We really need to find a district that we can keep the same type of schedule he is responding very well to this. I would also like to hear about private ABA providers that are recommended. We also have a 2yo neurotypical son, so we need a good district for him as well. I have no idea how the FL system works. We are looking in the West Palm area and south. I know this is a very long email, I hope that you guys can help point me in the right direction. I appreciate any help you can give me. We need a place to start! Thanks in advance. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2012 Report Share Posted March 10, 2012 I agree. I just moved to Princeton, NJ and went from my son not having a chance to receive a high school diploma to my choice of two schools that will help him earn a diploma and provide vocational training and support transitioning to work or college. Hi Tina,I agree with Gabi and Debra. Come to South Florida for the weather, but be prepared to be disappointed with services for your ASD child. To: deniseslist Sent: Saturday, March 10, 2012 9:07 AM Subject: RE: New to the Group Hi Tina: I am also from northeast- relocated from CT last summer, and am also a pediatric SLP who treated ASD in young children/toddlers for many years in both private practice and clinic up north. My advice is- think long and hard about a move down here if your son has special needs, especially spectrum. There is no comparison in overall quality and quantity of therapeutic and educational services provided- it is a different world. Sad but true. If you'd like more a more detailed opinion, please email me directly.DebraTo: sList From: tinamaturah@...Date: Fri, 9 Mar 2012 23:28:54 +0000Subject: New to the Group Hi, I am new to this group. Let me start by saying this email will be a bit winded but I need some help! I have an almost 4yo with PDD-NOS. My husband and I are looking to move south, we are currently living in the suburbs of Boston. We have an excellent pre-school program that he is in and making great progress. Our plan is to move in the summer of 2013. I was hoping I could hear from parents that have had an great pre-school kindergarten experience then into grammar school. A little about Shane: His delays are strictly in communication. Receptively he has move mountains. Expressively is where he struggles. He uses pecs, is signing and can be prompted and will try to say the word. He has a handful of spontaneous words so the future is promising. Right now his school program consists of the following: -10 hours of direct ABA -1.5 hours of speech -1.5 hours of OT -1 hour of PT -2.5 hours of Floortime -1 hour of social skills -Visit to the integrated pre-school occassionaly In addition to the school program he has 13 hours of private ABA at home. We really need to find a district that we can keep the same type of schedule he is responding very well to this. I would also like to hear about private ABA providers that are recommended. We also have a 2yo neurotypical son, so we need a good district for him as well. I have no idea how the FL system works. We are looking in the West Palm area and south. I know this is a very long email, I hope that you guys can help point me in the right direction. I appreciate any help you can give me. We need a place to start! Thanks in advance. Tina = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2012 Report Share Posted March 10, 2012 Yes but if Tina is looking at the West Palm area both Renaissance Learning Center and Palm Beach School for Autism provide a good learning environment. Both are charter schools so you need to find out if there are any openings. Not quite sure but I think both take kids of that age. Only problem is you have to be here to get on their lists but I guess they could give you a feel for what is possible.Also in Florida there are good SLPs and Ots around as well as a good choice of Dan Doctors. It takes research but they are there and if Tina is planning a move summer next year it gives her time to research.Sent from my iPad Hi Tina,I agree with Gabi and Debra. Come to South Florida for the weather, but be prepared to be disappointed with services for your ASD child. To: deniseslist Sent: Saturday, March 10, 2012 9:07 AM Subject: RE: New to the Group Hi Tina: I am also from northeast- relocated from CT last summer, and am also a pediatric SLP who treated ASD in young children/toddlers for many years in both private practice and clinic up north. My advice is- think long and hard about a move down here if your son has special needs, especially spectrum. There is no comparison in overall quality and quantity of therapeutic and educational services provided- it is a different world. Sad but true. If you'd like more a more detailed opinion, please email me directly.DebraTo: sList From: tinamaturah@...Date: Fri, 9 Mar 2012 23:28:54 +0000Subject: New to the Group Hi, I am new to this group. Let me start by saying this email will be a bit winded but I need some help! I have an almost 4yo with PDD-NOS. My husband and I are looking to move south, we are currently living in the suburbs of Boston. We have an excellent pre-school program that he is in and making great progress. Our plan is to move in the summer of 2013. I was hoping I could hear from parents that have had an great pre-school kindergarten experience then into grammar school. A little about Shane: His delays are strictly in communication. Receptively he has move mountains. Expressively is where he struggles. He uses pecs, is signing and can be prompted and will try to say the word. He has a handful of spontaneous words so the future is promising. Right now his school program consists of the following: -10 hours of direct ABA -1.5 hours of speech -1.5 hours of OT -1 hour of PT -2.5 hours of Floortime -1 hour of social skills -Visit to the integrated pre-school occassionaly In addition to the school program he has 13 hours of private ABA at home. We really need to find a district that we can keep the same type of schedule he is responding very well to this. I would also like to hear about private ABA providers that are recommended. We also have a 2yo neurotypical son, so we need a good district for him as well. I have no idea how the FL system works. We are looking in the West Palm area and south. I know this is a very long email, I hope that you guys can help point me in the right direction. I appreciate any help you can give me. We need a place to start! Thanks in advance. Tina = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2012 Report Share Posted March 10, 2012 HiCould you please let us know the names of the two schools?Thank youSent from my iPhoneNeisy Nieto SchoenPh. Fx. I agree. I just moved to Princeton, NJ and went from my son not having a chance to receive a high school diploma to my choice of two schools that will help him earn a diploma and provide vocational training and support transitioning to work or college. Hi Tina,I agree with Gabi and Debra. Come to South Florida for the weather, but be prepared to be disappointed with services for your ASD child. To: deniseslist Sent: Saturday, March 10, 2012 9:07 AM Subject: RE: New to the Group Hi Tina: I am also from northeast- relocated from CT last summer, and am also a pediatric SLP who treated ASD in young children/toddlers for many years in both private practice and clinic up north. My advice is- think long and hard about a move down here if your son has special needs, especially spectrum. There is no comparison in overall quality and quantity of therapeutic and educational services provided- it is a different world. Sad but true. If you'd like more a more detailed opinion, please email me directly.DebraTo: sList From: tinamaturah@...Date: Fri, 9 Mar 2012 23:28:54 +0000Subject: New to the Group Hi, I am new to this group. Let me start by saying this email will be a bit winded but I need some help! I have an almost 4yo with PDD-NOS. My husband and I are looking to move south, we are currently living in the suburbs of Boston. We have an excellent pre-school program that he is in and making great progress. Our plan is to move in the summer of 2013. I was hoping I could hear from parents that have had an great pre-school kindergarten experience then into grammar school. A little about Shane: His delays are strictly in communication. Receptively he has move mountains. Expressively is where he struggles. He uses pecs, is signing and can be prompted and will try to say the word. He has a handful of spontaneous words so the future is promising. Right now his school program consists of the following: -10 hours of direct ABA -1.5 hours of speech -1.5 hours of OT -1 hour of PT -2.5 hours of Floortime -1 hour of social skills -Visit to the integrated pre-school occassionaly In addition to the school program he has 13 hours of private ABA at home. We really need to find a district that we can keep the same type of schedule he is responding very well to this. I would also like to hear about private ABA providers that are recommended. We also have a 2yo neurotypical son, so we need a good district for him as well. I have no idea how the FL system works. We are looking in the West Palm area and south. I know this is a very long email, I hope that you guys can help point me in the right direction. I appreciate any help you can give me. We need a place to start! Thanks in advance. Tina = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2012 Report Share Posted March 10, 2012 Dear Tina: Hi and Welcome! We moved down here when our son with the same or similar diagnosis was 9. We came from East Brunswick, NJ which had a lot of services. I am also familiar with Boston as our other son has been at BU since 2001. Anyway, just a thought, call Nova Southeastern University they seem to have a lot of programs and information on how to proceed and develop a plan. I do believe that services are much better up north (being born and raised in NY/NJ) but you obviously have reasons to move down here. Hang in there, we are here for you! Good luck and let us know how you are doing. Sandy Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.