Re: How much will Chemo Help?

[Guest guest]

Speaking of Broccoli and Chemo and all that... I just got through talking to my

older son . He is freaking out because I have chosen to do chemo again.

Ok... here are my thoughts... I have done a massive dose of Xeloda 2500mg a day

over a course of 2 12 week cycles... My biobsy and PET are NED/ ... Onc wants

to do this FOLFOX because he is uncertain of the long term effect of 5FU in

Xeloda compared to FOLFOX. Has anyone ever heard of just doing Oxiliplatin

only? I agree with my son, in that I do not know why- other than my oncologist

highly recommends I go through it all again with a Groshans port and direct line

chemo.

Re: How much will Chemo Help?

>

>

> >

> >

> >

> > But lots more fun, huh, Jolene???

> >

> >

> > Donelle

> > Caregiver to Glenn

> >

> >

> >

> >

> > In a message dated 4/26/2005 9:07:14 A.M. Eastern Daylight Time,

> > jehret@... writes:

> >

> > More hazardous than dealing with cancer? LOL Well probably yes...

> > Jolene

> >

> > Marty and Ellen Grogin wrote:

> >> Don't you guys know that jumping out of airplanes can be hazardous to

> >> your health????

> >>

> >> All the best,

> >> Marty

> >

> >

> >

> >

> >

> >

[Guest guest]

Jay,

It is my understanding that oxaliplatin needs something else to work with

it. In my case it was xeloda (like you).

Karima

[Guest guest]

Is that the answer to dealing with the cancer??? Wow!!! Then perhaps

we all need to meet at the airport and try to forget about this

cancer. So where we meeting??? Ingrid

> >

> >> Don't you guys know that jumping out of airplanes can be

hazardous to

> >> your

> >> health????

> >>

> >> All the best,

> >> Marty

> >>

> >>

> >> Israel News Radio - http://www.Israelnewsradio.net

> >> Audio Blog:

> >> http://www.israelnewsradio.net/the-marty-roberts-show.html

> >> Podcast:

http://www.israelnewsradio.net/podcast.html

> >>

> >> Re: How much will Chemo Help?

> >>

> >>

> >> >

> >> >

> >> >

> >> > In a message dated 4/25/2005 4:44:04 PM Eastern Standard Time,

> >> > jehret@h... writes:

> >> >

> >> >

> >> > I can't answer that for you Bob, but in my 63 year old mind,

not

> >> > surviving is NOT an option. I would take the 85% anyday. I am

stage

> >> IIIc

> >> > with some lymph node involvement. Even if I can't get a cure

I will be

> >> > here that much longer to enjoy my grand daughters and do

things I

> >> > enjoy

> >> > doing. Still working on jumping out of a perfectly good

airplane as

> >> > welll.... Hang in and hang on it is a bumpy ride... Jolene

> >> >

> >> >

> >> >

> >> >

> >> > Do you want to skydive, too, Jolene?? Maybe we can do it

together

> >> > sometime.

> >> > Funny...had to laugh at your post... Glenn says the same

thing about

> >> > jumping out of a perfectly good airplane...LOL

> >> >

> >> > Lots of hugs and prayers, Donelle

> >> > Caregiver to Glenn

> >> >

> >> >

> >> >

[Guest guest]

Hey, We all got to do something for excitment!!! How about something

else that will give us the rush to scare us to death. We need to get

our minds off this cancer sometime. LOL Maybe bungee jumping? High

diving off of cliffs???

> OH, right!!!!

> NOW I remember that feeling of panic, the rapid heartbeat, the rush

of

> adrenalin.....as my wife slowly clears away the uneaten broccoli

from the

> plate in front of me...What a rush!!!!

>

> Not to mention the absolute exhiliration of lying in the sun, naked

of any

> trace of.....SUNSCREEN!!!!!

>

> Now I understand...

>

> All the best,

> Marty

>

>

> Israel News Radio - http://www.Israelnewsradio.net

> Audio Blog:

> http://www.israelnewsradio.net/the-marty-roberts-show.html

> Podcast:

http://www.israelnewsradio.net/podcast.html

>

> Re: How much will Chemo Help?

>

>

> >

> >

> >

> > In a message dated 4/26/2005 9:00:03 A.M. Eastern Daylight Time,

> > grogclan@z... writes:

> >

> > Don't you guys know that jumping out of airplanes can be

hazardous to

> > your

> > health????

> >

> > All the best,

> > Marty

> >

> >

> >

> > But, Marty, so is NOT eating your broccoli, lying in the sun,

riding in a

> > vehicle....LOL

> >

> > Donelle

> > Caregiver to Glenn

> >

> >

> >

[Guest guest]

You sure do have a tough decision with all this. You will have to do

a lot of soul searching on this. I don't understand you having to

take more of chemo either. But then the doctors are not doctors for

nothing. So hard to decide if you really need more of this hell. Am

Praying that God leads you into tthe right road. Best of all to you.

Ingrid

> > >> Don't you guys know that jumping out of airplanes can be

hazardous to

> > >> your health????

> > >>

> > >> All the best,

> > >> Marty

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I actually am (was) a pilot, so, hop in guys!!!!

Uh, oh...haven't flown in about 18 years, though...but then again, even if

you guys jump into the plane with me, then jump out again at about 15,000

feet, it STILL won't be TOO much more hazardous than what we are all going

through, no???

All the best,

Marty

Israel News Radio - http://www.Israelnewsradio.net

Audio Blog:

http://www.israelnewsradio.net/the-marty-roberts-show.html

Podcast: http://www.israelnewsradio.net/podcast.html

Re: How much will Chemo Help?

>> >>

>> >>

>> >> >

>> >> >

>> >> >

>> >> > In a message dated 4/25/2005 4:44:04 PM Eastern Standard Time,

>> >> > jehret@h... writes:

>> >> >

>> >> >

>> >> > I can't answer that for you Bob, but in my 63 year old mind,

> not

>> >> > surviving is NOT an option. I would take the 85% anyday. I am

> stage

>> >> IIIc

>> >> > with some lymph node involvement. Even if I can't get a cure

> I will be

>> >> > here that much longer to enjoy my grand daughters and do

> things I

>> >> > enjoy

>> >> > doing. Still working on jumping out of a perfectly good

> airplane as

>> >> > welll.... Hang in and hang on it is a bumpy ride... Jolene

>> >> >

>> >> >

>> >> >

>> >> >

>> >> > Do you want to skydive, too, Jolene?? Maybe we can do it

> together

>> >> > sometime.

>> >> > Funny...had to laugh at your post... Glenn says the same

> thing about

>> >> > jumping out of a perfectly good airplane...LOL

>> >> >

>> >> > Lots of hugs and prayers, Donelle

>> >> > Caregiver to Glenn

>> >> >

>> >> >

>> >> >

[Guest guest]

In a message dated 4/26/2005 6:17:45 P.M. Eastern Daylight Time,

jayishome@... writes:

Speaking of Broccoli and Chemo and all that... I just got through talking to

my older son . He is freaking out because I have chosen to do chemo

again. Ok... here are my thoughts... I have done a massive dose of Xeloda

2500mg a day over a course of 2 12 week cycles... My biobsy and PET are NED/

.... Onc wants to do this FOLFOX because he is uncertain of the long term

effect of 5FU in Xeloda compared to FOLFOX. Has anyone ever heard of just

doing

Oxiliplatin only? I agree with my son, in that I do not know why- other than

my oncologist highly recommends I go through it all again with a Groshans

port and direct line chemo.

Hi Jay... do you mean Oxaliplatin w/o 5FU or Xeloda?? Allllll by itself??

Always heard of it given with other DRANO, like 5FU, Xeloda, etc. Might ask

tho.

If I trusted my dr., I might go along with him. If not, I would maybe get

another opinion. Hell, I'm such a scaredy cat, I'd probably not even question

my dr., esp. if I trusted him....LOL I would just absolutely dread the

thought of more chemo, tho!!! Why is your son so against it?? B/c it made you

sick?? Does he realize how often there are mets...how often it seems to " come

back " ....etc. It's a tough call, Jay... we'll be praying for you to make

the right decision for you.

Donelle

Caregiver to Glenn

[Guest guest]

You got it Marty....

Jolene

Marty and Ellen Grogin wrote:

> I actually am (was) a pilot, so, hop in guys!!!!

>

> Uh, oh...haven't flown in about 18 years, though...but then again,

> even if

> you guys jump into the plane with me, then jump out again at about 15,000

> feet, it STILL won't be TOO much more hazardous than what we are all

> going

> through, no???

>

>

> All the best,

> Marty

>

>

> Israel News Radio - http://www.Israelnewsradio.net

> Audio Blog:

> http://www.israelnewsradio.net/the-marty-roberts-show.html

> Podcast: http://www.israelnewsradio.net/podcast.html

>

> Re: How much will Chemo Help?

> >> >>

> >> >>

> >> >> >

> >> >> >

> >> >> >

> >> >> > In a message dated 4/25/2005 4:44:04 PM Eastern Standard Time,

> >> >> > jehret@h... writes:

> >> >> >

> >> >> >

> >> >> > I can't answer that for you Bob, but in my 63 year old mind,

> > not

> >> >> > surviving is NOT an option. I would take the 85% anyday. I am

> > stage

> >> >> IIIc

> >> >> > with some lymph node involvement. Even if I can't get a cure

> > I will be

> >> >> > here that much longer to enjoy my grand daughters and do

> > things I

> >> >> > enjoy

> >> >> > doing. Still working on jumping out of a perfectly good

> > airplane as

> >> >> > welll.... Hang in and hang on it is a bumpy ride... Jolene

> >> >> >

> >> >> >

> >> >> >

> >> >> >

> >> >> > Do you want to skydive, too, Jolene?? Maybe we can do it

> > together

> >> >> > sometime.

> >> >> > Funny...had to laugh at your post... Glenn says the same

> > thing about

> >> >> > jumping out of a perfectly good airplane...LOL

> >> >> >

> >> >> > Lots of hugs and prayers, Donelle

> >> >> > Caregiver to Glenn

> >> >> >

> >> >> >

> >> >> >

[Guest guest]

> > OH, right!!!!

> > NOW I remember that feeling of panic, the rapid heartbeat, the

rush

> of

> > adrenalin.....as my wife slowly clears away the uneaten broccoli

> from the

> > plate in front of me...What a rush!!!!

> >

> > Not to mention the absolute exhiliration of lying in the sun,

naked

> of any

> > trace of.....SUNSCREEN!!!!!

> >

> > Now I understand...

> >

> > All the best,

> > Marty

> >

> >

[Guest guest]

Jay,

You have to listen to your inner voice. It is a very tough decision; I know

because I made it. Good luck.

Karima

[Guest guest]

Jay,

You have to listen to your inner voice. It is a very tough decision; I know

because I made it. Good luck.

Karima

[Guest guest]

OK, Lets go for it. Hopefully we will all forget about the cancer for

an hour or two!!!! I need a break from all this real bad!!!!! Ingrid

> >> >

> >> >> Don't you guys know that jumping out of airplanes can be

> > hazardous to

> >> >> your

> >> >> health????

> >> >>

> >> >> All the best,

> >> >> Marty

> >> >>

> >> >>

> >> >> Israel News Radio - http://www.Israelnewsradio.net

> >> >> Audio Blog:

> >> >> http://www.israelnewsradio.net/the-marty-roberts-show.html

> >> >> Podcast:

> > http://www.israelnewsradio.net/podcast.html

> >> >>

> >> >> Re: How much will Chemo Help?

> >> >>

> >> >>

> >> >> >

> >> >> >

> >> >> >

> >> >> > In a message dated 4/25/2005 4:44:04 PM Eastern Standard

Time,

> >> >> > jehret@h... writes:

> >> >> >

> >> >> >

> >> >> > I can't answer that for you Bob, but in my 63 year old

mind,

> > not

> >> >> > surviving is NOT an option. I would take the 85% anyday. I

am

> > stage

> >> >> IIIc

> >> >> > with some lymph node involvement. Even if I can't get a

cure

> > I will be

> >> >> > here that much longer to enjoy my grand daughters and do

> > things I

> >> >> > enjoy

> >> >> > doing. Still working on jumping out of a perfectly good

> > airplane as

> >> >> > welll.... Hang in and hang on it is a bumpy ride... Jolene

> >> >> >

> >> >> >

> >> >> >

> >> >> >

> >> >> > Do you want to skydive, too, Jolene?? Maybe we can do it

> > together

> >> >> > sometime.

> >> >> > Funny...had to laugh at your post... Glenn says the same

> > thing about

> >> >> > jumping out of a perfectly good airplane...LOL

> >> >> >

> >> >> > Lots of hugs and prayers, Donelle

> >> >> > Caregiver to Glenn

> >> >> >

> >> >> >

> >> >> >

[Guest guest]

Thank YOU Cliff, I would love to get your wife involved into the

critter collections. I started my neighbor next door into riding

horses. She was using one of mine. Well her husband said she would

never have a horse. Well needless to say she bought one last summer

and kept it here. Named the horse Never since he did say she would

never have one. Now they have addded a loafing shed. Fenced off a

pasture. Aquired a round pen and on and on. Her husband is blaming me

now for their added expenses. All I can say is that they have 16

acres and it is now being put to use. LOL Her husband always hated

the flys that horse manure seems to attract. All I can say is wait

till it really gets warm.

They will have fly terminaters on thier shopping list as well.

Another expense for poor old Joe to complain about. His wife is

talking about getting a goat to companion her horse. So we will be

going to the sale in a week. Wonder if her husband will ever talk to

me again. LOL Then comes the million dollar truck to pull the

million dollar horse trailer. Needless to say there are a lot of

expenses Joe has not figured on yet. LOL Ingrid

> > > OH, right!!!!

> > > NOW I remember that feeling of panic, the rapid heartbeat, the

> rush

> > of

> > > adrenalin.....as my wife slowly clears away the uneaten

broccoli

> > from the

> > > plate in front of me...What a rush!!!!

> > >

> > > Not to mention the absolute exhiliration of lying in the sun,

> naked

> > of any

> > > trace of.....SUNSCREEN!!!!!

> > >

> > > Now I understand...

> > >

> > > All the best,

> > > Marty

> > >

> > >

[Guest guest]

By now you probably know what I'm going to say. Do the GCC blood and lymph

nodes tests and then make the decision.

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

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Re: How much will Chemo Help?

>

>

> >

> >

> >

> > But lots more fun, huh, Jolene???

> >

> >

> > Donelle

> > Caregiver to Glenn

> >

> >

> >

> >

> > In a message dated 4/26/2005 9:07:14 A.M. Eastern Daylight Time,

> > jehret@... writes:

> >

> > More hazardous than dealing with cancer? LOL Well probably yes...

> > Jolene

> >

> > Marty and Ellen Grogin wrote:

> >> Don't you guys know that jumping out of airplanes can be hazardous to

> >> your health????

> >>

> >> All the best,

> >> Marty

> >

> >

> >

> >

> >

> >

[Guest guest]

Priscilla can I ask you a question about the blood test. My husband just

finished his treatments, and I asked the Dr. about this. Told him we would be

willing to pay for it if insurance would not. But he is saying that because it

does not have all the " approvals " he could not do any scans or start any

treatments based on it.

I was determined my husband would get it at least yearly, but would it do any

good to know if nothing is going to be done. Hopefully you can give me some

information that would help.

Thanks,

Ann

Re: How much will Chemo Help?

>

>

> >

> >

> >

> > But lots more fun, huh, Jolene???

> >

> >

> > Donelle

> > Caregiver to Glenn

> >

> >

> >

> >

> > In a message dated 4/26/2005 9:07:14 A.M. Eastern Daylight Time,

> > jehret@... writes:

> >

> > More hazardous than dealing with cancer? LOL Well probably yes...

> > Jolene

> >

> > Marty and Ellen Grogin wrote:

> >> Don't you guys know that jumping out of airplanes can be hazardous

to

> >> your health????

> >>

> >> All the best,

> >> Marty

> >

> >

> >

> >

> >

> >