Guest guest Posted May 8, 2004 Report Share Posted May 8, 2004 Losing correction is preferrable to making that blister worse! They can recast to regain correction and to allow the blister to heal. if the right foot is constantly slipping it is either not fully corrected or it is " atypical " . I would suggest asking your doctor to apply a cast to allow healing and possibly catch any residual problems in need of correction. (if he is bilateral he will have to be casted on the non-problem foot as well in order to hold correction). If, after recasting, you still have problems, send photos to Dr Ponseti who will be able to tell you weather the foot is fully corrected and if it is atypical and in need of a different style of casting and different style of shoes. If you need to do this, take photos from the front, back and side with him bearing weight (even a newborn will bear weight if " stood " up with support) and also photos of the sole of the foot. If his foot is properly corrected, and not atypical, but he still gets blisters and gets out, there IS another brace that Dr Ponseti can advise you of. It is the same type of brace, but the shoes are specially designed for small feet, feet that blister, and atypical feet. Hope this helps! Angel lots of problems My son Leo, 10 wks old bilat cf, got his FAB 3 days ago and we've been having problems ever since. Since he came out of his last set of casts, his little toe on his right foot has been tucked under his other toes. I expressed concern to the P.A. (my son's ortho doc is out of town) and the orthotist and they said not to worry that this often happens with casting. He has now developed a small blister on the top and a raw area underneath. He also has a red area on the insdie part of the top of his right foot that does not go away when I take off the shoes for the bath hour. His right foot also keeps slipping out of place (despite trying all of the interventions offered on this group), I end up replacing it at last every 3-5 hours. Interestingly, he does not have any redness on his heel, which I would expect to see with the frequent slipping. Oh, and one more thing, I think his bar is too short. I am starting to question his doctor (we are being seen at Tingley Hospital in Albuquerque, New Mexico)--she used soft casts that I could remove the night before appointments because we had problems with decreased circulation with the first plaster casts (applied at 4 days old). I now understand this is not part of the Ponseti protocol. After 2 weeks with minimal correction, we went back to plaster with great results. Also, his right leg is swollen, especially in the shin area, has anybody seen unilateral swelling like this? So I called and left a message for the resident on call, after speaking with him, the nurse advised me to remove the shoes and come in first thing Monday morning. I am concerned about unnecessarily losing any correction over the weekend (it is Saturday afternoon), since during his serial casting with soft casts we would lose correction overnight. Is this a valid concern? Maybe I am overreacting about the red pinky toe, I just don't know. Has anybody had a similar experience? I am not sure if the resident is Ponseti trained or not, I just don't know what to do. I hope you all can make sense of this as I as quite sleep deprived. Thanks, , mom to Leo Jr. 2/28/04, bilat cf _________________________________________________________________ MSN Toolbar provides one-click access to Hotmail from any Web page - FREE download! http://toolbar.msn.com/go/onm00200413ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2004 Report Share Posted May 10, 2004 Hi , I can't really help but my son has a toe and our Dr who follows the P method to a Tee (we even left our first Dr) say with confidence that this will correct when he starts walking and placing weight on the foot. Hope this can be of some help to you...If you find anything else I will be watching your posts Gareth and Brett lots of problems My son Leo, 10 wks old bilat cf, got his FAB 3 days ago and we've been having problems ever since. Since he came out of his last set of casts, his little toe on his right foot has been tucked under his other toes. I expressed concern to the P.A. (my son's ortho doc is out of town) and the orthotist and they said not to worry that this often happens with casting. He has now developed a small blister on the top and a raw area underneath. He also has a red area on the insdie part of the top of his right foot that does not go away when I take off the shoes for the bath hour. His right foot also keeps slipping out of place (despite trying all of the interventions offered on this group), I end up replacing it at last every 3-5 hours. Interestingly, he does not have any redness on his heel, which I would expect to see with the frequent slipping. Oh, and one more thing, I think his bar is too short. I am starting to question his doctor (we are being seen at Tingley Hospital in Albuquerque, New Mexico)--she used soft casts that I could remove the night before appointments because we had problems with decreased circulation with the first plaster casts (applied at 4 days old). I now understand this is not part of the Ponseti protocol. After 2 weeks with minimal correction, we went back to plaster with great results. Also, his right leg is swollen, especially in the shin area, has anybody seen unilateral swelling like this? So I called and left a message for the resident on call, after speaking with him, the nurse advised me to remove the shoes and come in first thing Monday morning. I am concerned about unnecessarily losing any correction over the weekend (it is Saturday afternoon), since during his serial casting with soft casts we would lose correction overnight. Is this a valid concern? Maybe I am overreacting about the red pinky toe, I just don't know. Has anybody had a similar experience? I am not sure if the resident is Ponseti trained or not, I just don't know what to do. I hope you all can make sense of this as I as quite sleep deprived. Thanks, , mom to Leo Jr. 2/28/04, bilat cf _________________________________________________________________ MSN Toolbar provides one-click access to Hotmail from any Web page - FREE download! http://toolbar.msn.com/go/onm00200413ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2004 Report Share Posted May 10, 2004 I remember quite ago reading messages from some people who were using what I think is what I think we call 'feather tape' here to strap the toe in the correct position and it will correct after a while. It's like little white paper strips that are sticky, you can cut them shorter to size and use them to hold skin cuts together, etc. They come off easier than bandaid. Maybe one of them will read this? By the way, when had his first casts, one or two of his toes started to look quite crooked (they hadn't at birth). Although his doctor said it was nothing to do with the casts, Dr Ponseti said that they probably were and that is why he cuts out plaster above the toes and makes a little shelf for the toes to rest on freely and comfortably. They straightened out quickly by the time Dr Ponseti was finished with casting. The fact that it was after his last cast, if his toes were cramped at all, it would have been for three weeks so it may take a little longer to straighten out again. If looking red and raw, it's probably painful, so I'd definitely try to cover it with something or use the strapping. Sorry I can't be of more help, we didn't experience this. and www.clubfoot.co.za lots of problems My son Leo, 10 wks old bilat cf, got his FAB 3 days ago and we've been having problems ever since. Since he came out of his last set of casts, his little toe on his right foot has been tucked under his other toes. I expressed concern to the P.A. (my son's ortho doc is out of town) and the orthotist and they said not to worry that this often happens with casting. He has now developed a small blister on the top and a raw area underneath. He also has a red area on the insdie part of the top of his right foot that does not go away when I take off the shoes for the bath hour. His right foot also keeps slipping out of place (despite trying all of the interventions offered on this group), I end up replacing it at last every 3-5 hours. Interestingly, he does not have any redness on his heel, which I would expect to see with the frequent slipping. Oh, and one more thing, I think his bar is too short. I am starting to question his doctor (we are being seen at Tingley Hospital in Albuquerque, New Mexico)--she used soft casts that I could remove the night before appointments because we had problems with decreased circulation with the first plaster casts (applied at 4 days old). I now understand this is not part of the Ponseti protocol. After 2 weeks with minimal correction, we went back to plaster with great results. Also, his right leg is swollen, especially in the shin area, has anybody seen unilateral swelling like this? So I called and left a message for the resident on call, after speaking with him, the nurse advised me to remove the shoes and come in first thing Monday morning. I am concerned about unnecessarily losing any correction over the weekend (it is Saturday afternoon), since during his serial casting with soft casts we would lose correction overnight. Is this a valid concern? Maybe I am overreacting about the red pinky toe, I just don't know. Has anybody had a similar experience? I am not sure if the resident is Ponseti trained or not, I just don't know what to do. I hope you all can make sense of this as I as quite sleep deprived. Thanks, , mom to Leo Jr. 2/28/04, bilat cf _________________________________________________________________ MSN Toolbar provides one-click access to Hotmail from any Web page - FREE download! http://toolbar.msn.com/go/onm00200413ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2004 Report Share Posted May 10, 2004 Please excuse all my typing mistakes and repetitions in this mail, I just got back from the US yesterday, am jetlagged and think that my brain is still somewhere at Atlanta airport! I hope it still makes sense. lots of problems My son Leo, 10 wks old bilat cf, got his FAB 3 days ago and we've been having problems ever since. Since he came out of his last set of casts, his little toe on his right foot has been tucked under his other toes. I expressed concern to the P.A. (my son's ortho doc is out of town) and the orthotist and they said not to worry that this often happens with casting. He has now developed a small blister on the top and a raw area underneath. He also has a red area on the insdie part of the top of his right foot that does not go away when I take off the shoes for the bath hour. His right foot also keeps slipping out of place (despite trying all of the interventions offered on this group), I end up replacing it at last every 3-5 hours. Interestingly, he does not have any redness on his heel, which I would expect to see with the frequent slipping. Oh, and one more thing, I think his bar is too short. I am starting to question his doctor (we are being seen at Tingley Hospital in Albuquerque, New Mexico)--she used soft casts that I could remove the night before appointments because we had problems with decreased circulation with the first plaster casts (applied at 4 days old). I now understand this is not part of the Ponseti protocol. After 2 weeks with minimal correction, we went back to plaster with great results. Also, his right leg is swollen, especially in the shin area, has anybody seen unilateral swelling like this? So I called and left a message for the resident on call, after speaking with him, the nurse advised me to remove the shoes and come in first thing Monday morning. I am concerned about unnecessarily losing any correction over the weekend (it is Saturday afternoon), since during his serial casting with soft casts we would lose correction overnight. Is this a valid concern? Maybe I am overreacting about the red pinky toe, I just don't know. Has anybody had a similar experience? I am not sure if the resident is Ponseti trained or not, I just don't know what to do. I hope you all can make sense of this as I as quite sleep deprived. Thanks, , mom to Leo Jr. 2/28/04, bilat cf _________________________________________________________________ MSN Toolbar provides one-click access to Hotmail from any Web page - FREE download! http://toolbar.msn.com/go/onm00200413ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
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