new here

[Guest guest]

Hi,

I have a beautiful 3.5 mo daughter, Caitlin, with hypotonia,

torticollis and plagiocephaly. We saw the ped neuro last week who

recommends aggressive repositioning and we started PT two weeks ago.

After reading the intial PT eval and seeing that her ears were

asymmetrical (and her eyes though I can't see that) I find myself

studying her head shape all the time. The neuro also told us that

her front fontanel is almost closed, but that her head is growing at

a good rate and it isn't cranial synostosis.

I'm new to this and already have some conflicting info. Her PT

feels she may need a helmet down the line, but wasn't sure if the

closed fontanel was a contraindication. When I asked the neuro he

said that it wasn't, but that he hadn't found helmets to be very

successful (I'm not sure if he meant in general or in cases like

Cailtin's) and we should try to reposition aggressively. The PT said

she hears this alot from docs but that in her experience they do

help. In reading the FAQ's and looking at pictures I can see that

people have had positive experiences with the helmets.

Anyway, I'm jumping the gun as we've just started the

repositioning but I just wanted to introduce myself and see if others

have had kids successfully treated with helmets after a fontanel was

closed. I have a two year old with hypotonia and global delays and

lots of weekly therapy so Cailtin's repositioning is a little

overwhelming.

thanks

Carolyn