Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 He told me I could increase the dosage of xanax in the meantime to help me cope. I will, but after doing so for two days last week I found it made me feel half drunk and driving was not an option. Still, if that is what it takes to get me through the next few weeks, it is better than what I am feeling now. Thanks again Hi , I'm sorry you are going through such a hard time. I do understand...believe me!!! Are you taking the Xanax for anxiety? I don't recall you mentioning you had anxiety that's why I'm asking. If you do, it will help but be aware it can cause depression and you certainly don't need anymore of that! Also, have you been told not to take your thyroid meds on the day you're having your thyroid bloodwork done? It will skew the results. Just take it when you are done with your bloodwork. I pray you start feeling better soon! Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 He told me I could increase the dosage of xanax in the meantime to help me cope. I will, but after doing so for two days last week I found it made me feel half drunk and driving was not an option. Still, if that is what it takes to get me through the next few weeks, it is better than what I am feeling now. Thanks again Hi , I'm sorry you are going through such a hard time. I do understand...believe me!!! Are you taking the Xanax for anxiety? I don't recall you mentioning you had anxiety that's why I'm asking. If you do, it will help but be aware it can cause depression and you certainly don't need anymore of that! Also, have you been told not to take your thyroid meds on the day you're having your thyroid bloodwork done? It will skew the results. Just take it when you are done with your bloodwork. I pray you start feeling better soon! Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 , Here’s a link to see if your symptoms are in line with these; the thyroid affects almost if not every, part of the body and mind. Sue http://www.thyroid-fed.org/intro/patients.html Sue, how am I hypo and hyper dependingon the day of the week? Good question, simple answer. If I have bloodwork on a " good " day, it shows my thyroid hormones as low. If I have bloodwork done when I am having a " spell " , it shows completely opposite readings, as I understand it. My thyroid anti-bodies are measuring way off the chart, and they are busy little guys. My thyroid is slowly disintigrating, and as parts break off and enter the blood stream, they carry large quantities of hormone with them. That is the best I can understand it based on what my Endocrinologist has told me. That is why he is trying to get the thyroid to stop producing any hormones. It will help me to level off, I hope. I am seeing my GP this morning to discuss my meds and emotional issues. I am a wreck today, so I hope he is prepared to see me crying and unstable. Thanks for asking. > > > > My name is , I'm 50 and happily married with two grown boys. > > > > He said I have many issues to look at concerning my endocrine > > system, but untill he can get my throid hormones somewhat normalized > > and I get all the paxil out of my system, the tests he needs to run > > will be worthless. So, I see him the end of December and in the > > meantime I am to take NO anti-depresants of any sort or I will be > > wasting our time. > > > > We discussed clinical depression and he told me flat out it was > > going to crop up but he must be able to run the tests he has in mind > > without those drugs influencing me or the tests. > > > > My doc here in town communicated with him and wrote me a scrip for > > xanax. As he handed it to me he told me it was the best he could do, > > but it was not going to help much. > > > > He's a smart guy. It's helped, but not much. I have worked maybe > > forty hours since the middle of June, in two and three hour > > increments. I finally decided yesterday that I cannot work at all, > > period, till...I don't know when. It is damaging my body, all of my > > body. > > > > The reality is after he gets done running tests, which could take a > > while, he will be sending me to a Neurologist for more tests. > > > > This is not helping my chemical-imbalance related clinical > > depression any. > > > > I don't see any good news on the horizon when I read about thyroid > > anti-bodies either. All in all, I am very unhappy. > > > > I have just had my second session with a therapist, who had to ask > > me what an Endocrine system was, and I don't think weekly sessions > > with him are going to get me very far.He thinks I hate myself. > > > > I am not suicidal, but I have wished a few times in the last few > > days that I was dead. I don't want to kill myself, but I don't want > > to live like this. My depression is getting worse and I am starting > > to fear for next week or next month. How pro-active will I be > > feeling by then? > > > > I will be talking to my doc in a couple of days about this, but He > > is sort of at a loss I think. When I told him over the phone I > > thought a therapist was in order, he encouraged me to find one. I > > did. The next step would be a psychiatrist with some actual > > knowledge of drugs, and I am sure he will recommend I see one out. > > > > I've already called around, actually. The soonest I can get an > > evaluation which would be several days before I see who I need to > > see, is a month out. Unless I drive up to their facility and tell > > them I am wanting to hurt myself. Then I get to be seen right away, > > but I will be staying for a day or two. > > > > I do not want it to come to that. I need help. Moreso each day, it > > seems. > > > > I don't know what to do. > > > > > > * __._,_. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 , Here’s a link to see if your symptoms are in line with these; the thyroid affects almost if not every, part of the body and mind. Sue http://www.thyroid-fed.org/intro/patients.html Sue, how am I hypo and hyper dependingon the day of the week? Good question, simple answer. If I have bloodwork on a " good " day, it shows my thyroid hormones as low. If I have bloodwork done when I am having a " spell " , it shows completely opposite readings, as I understand it. My thyroid anti-bodies are measuring way off the chart, and they are busy little guys. My thyroid is slowly disintigrating, and as parts break off and enter the blood stream, they carry large quantities of hormone with them. That is the best I can understand it based on what my Endocrinologist has told me. That is why he is trying to get the thyroid to stop producing any hormones. It will help me to level off, I hope. I am seeing my GP this morning to discuss my meds and emotional issues. I am a wreck today, so I hope he is prepared to see me crying and unstable. Thanks for asking. > > > > My name is , I'm 50 and happily married with two grown boys. > > > > He said I have many issues to look at concerning my endocrine > > system, but untill he can get my throid hormones somewhat normalized > > and I get all the paxil out of my system, the tests he needs to run > > will be worthless. So, I see him the end of December and in the > > meantime I am to take NO anti-depresants of any sort or I will be > > wasting our time. > > > > We discussed clinical depression and he told me flat out it was > > going to crop up but he must be able to run the tests he has in mind > > without those drugs influencing me or the tests. > > > > My doc here in town communicated with him and wrote me a scrip for > > xanax. As he handed it to me he told me it was the best he could do, > > but it was not going to help much. > > > > He's a smart guy. It's helped, but not much. I have worked maybe > > forty hours since the middle of June, in two and three hour > > increments. I finally decided yesterday that I cannot work at all, > > period, till...I don't know when. It is damaging my body, all of my > > body. > > > > The reality is after he gets done running tests, which could take a > > while, he will be sending me to a Neurologist for more tests. > > > > This is not helping my chemical-imbalance related clinical > > depression any. > > > > I don't see any good news on the horizon when I read about thyroid > > anti-bodies either. All in all, I am very unhappy. > > > > I have just had my second session with a therapist, who had to ask > > me what an Endocrine system was, and I don't think weekly sessions > > with him are going to get me very far.He thinks I hate myself. > > > > I am not suicidal, but I have wished a few times in the last few > > days that I was dead. I don't want to kill myself, but I don't want > > to live like this. My depression is getting worse and I am starting > > to fear for next week or next month. How pro-active will I be > > feeling by then? > > > > I will be talking to my doc in a couple of days about this, but He > > is sort of at a loss I think. When I told him over the phone I > > thought a therapist was in order, he encouraged me to find one. I > > did. The next step would be a psychiatrist with some actual > > knowledge of drugs, and I am sure he will recommend I see one out. > > > > I've already called around, actually. The soonest I can get an > > evaluation which would be several days before I see who I need to > > see, is a month out. Unless I drive up to their facility and tell > > them I am wanting to hurt myself. Then I get to be seen right away, > > but I will be staying for a day or two. > > > > I do not want it to come to that. I need help. Moreso each day, it > > seems. > > > > I don't know what to do. > > > > > > * __._,_. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 , Here’s a link to see if your symptoms are in line with these; the thyroid affects almost if not every, part of the body and mind. Sue http://www.thyroid-fed.org/intro/patients.html Sue, how am I hypo and hyper dependingon the day of the week? Good question, simple answer. If I have bloodwork on a " good " day, it shows my thyroid hormones as low. If I have bloodwork done when I am having a " spell " , it shows completely opposite readings, as I understand it. My thyroid anti-bodies are measuring way off the chart, and they are busy little guys. My thyroid is slowly disintigrating, and as parts break off and enter the blood stream, they carry large quantities of hormone with them. That is the best I can understand it based on what my Endocrinologist has told me. That is why he is trying to get the thyroid to stop producing any hormones. It will help me to level off, I hope. I am seeing my GP this morning to discuss my meds and emotional issues. I am a wreck today, so I hope he is prepared to see me crying and unstable. Thanks for asking. > > > > My name is , I'm 50 and happily married with two grown boys. > > > > He said I have many issues to look at concerning my endocrine > > system, but untill he can get my throid hormones somewhat normalized > > and I get all the paxil out of my system, the tests he needs to run > > will be worthless. So, I see him the end of December and in the > > meantime I am to take NO anti-depresants of any sort or I will be > > wasting our time. > > > > We discussed clinical depression and he told me flat out it was > > going to crop up but he must be able to run the tests he has in mind > > without those drugs influencing me or the tests. > > > > My doc here in town communicated with him and wrote me a scrip for > > xanax. As he handed it to me he told me it was the best he could do, > > but it was not going to help much. > > > > He's a smart guy. It's helped, but not much. I have worked maybe > > forty hours since the middle of June, in two and three hour > > increments. I finally decided yesterday that I cannot work at all, > > period, till...I don't know when. It is damaging my body, all of my > > body. > > > > The reality is after he gets done running tests, which could take a > > while, he will be sending me to a Neurologist for more tests. > > > > This is not helping my chemical-imbalance related clinical > > depression any. > > > > I don't see any good news on the horizon when I read about thyroid > > anti-bodies either. All in all, I am very unhappy. > > > > I have just had my second session with a therapist, who had to ask > > me what an Endocrine system was, and I don't think weekly sessions > > with him are going to get me very far.He thinks I hate myself. > > > > I am not suicidal, but I have wished a few times in the last few > > days that I was dead. I don't want to kill myself, but I don't want > > to live like this. My depression is getting worse and I am starting > > to fear for next week or next month. How pro-active will I be > > feeling by then? > > > > I will be talking to my doc in a couple of days about this, but He > > is sort of at a loss I think. When I told him over the phone I > > thought a therapist was in order, he encouraged me to find one. I > > did. The next step would be a psychiatrist with some actual > > knowledge of drugs, and I am sure he will recommend I see one out. > > > > I've already called around, actually. The soonest I can get an > > evaluation which would be several days before I see who I need to > > see, is a month out. Unless I drive up to their facility and tell > > them I am wanting to hurt myself. Then I get to be seen right away, > > but I will be staying for a day or two. > > > > I do not want it to come to that. I need help. Moreso each day, it > > seems. > > > > I don't know what to do. > > > > > > * __._,_. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 Thanks for the link, Sue. Over the last nine months, I have had almost all the symptoms listed there, for Hypo and Hyper, both. I am yo-yoing back and forth. I think this week I am hyperthyroid, but I am still taking the meds for Hypo...following doctor's orders. Realistically, I can't take my thyroid meds one day and then skip them the next day based on how I feel. The doctor does not want to kill or remove the thyroid, yet. He thinks I might be able to use it in five years. This Endocrinologist is one of the top five guys in the United States, and he may be aware of cutting edge treatments, or he may be using me as a guinea pig. Either way, I feel lucky to be under his care and I trust his judgement. I spoke to another doctor " off the cuff " the other day. He told me to refuse surgery if at all possible, as having no thyroid would shave years off my life expectancy. I don't see how the preferred method of killing the thyroid is any different from surgery in that regard, but I didn't ask him about that and he was just listening in on a conversation anyway. Nice guy, but I don't even know his field of expertise, except to say he is not an Endocrinologist. We were just making talk. I spoke to my GP this morning. He has set me up with an appointment to see a psychiatrist, three weeks away. He told me I could increase the dosage of xanax in the meantime to help me cope. I will, but after doing so for two days last week I found it made me feel half drunk and driving was not an option. Still, if that is what it takes to get me through the next few weeks, it is better than what I am feeling now. Thanks again Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 Thanks for the link, Sue. Over the last nine months, I have had almost all the symptoms listed there, for Hypo and Hyper, both. I am yo-yoing back and forth. I think this week I am hyperthyroid, but I am still taking the meds for Hypo...following doctor's orders. Realistically, I can't take my thyroid meds one day and then skip them the next day based on how I feel. The doctor does not want to kill or remove the thyroid, yet. He thinks I might be able to use it in five years. This Endocrinologist is one of the top five guys in the United States, and he may be aware of cutting edge treatments, or he may be using me as a guinea pig. Either way, I feel lucky to be under his care and I trust his judgement. I spoke to another doctor " off the cuff " the other day. He told me to refuse surgery if at all possible, as having no thyroid would shave years off my life expectancy. I don't see how the preferred method of killing the thyroid is any different from surgery in that regard, but I didn't ask him about that and he was just listening in on a conversation anyway. Nice guy, but I don't even know his field of expertise, except to say he is not an Endocrinologist. We were just making talk. I spoke to my GP this morning. He has set me up with an appointment to see a psychiatrist, three weeks away. He told me I could increase the dosage of xanax in the meantime to help me cope. I will, but after doing so for two days last week I found it made me feel half drunk and driving was not an option. Still, if that is what it takes to get me through the next few weeks, it is better than what I am feeling now. Thanks again Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 Hi , Xanax as you know is a tranquilzer and if you feel that way it is not safe to drive. It also does not help elevate the mood –it’s goal is to “numb.” Be careful – it’s so addictive after a just a few weeks and I actually belong to another board for tapering off such drugs. Sorry to be a worry wart but I am ... Hope you feel better. I rent a really silly movie when I get really down and hate to even recommend SUCH a silly movie, but we just saw Benchwarmers and it’s actually HA HA funny.... Sue He told me I could increase the dosage of xanax in the meantime to help me cope. I will, but after doing so for two days last week I found it made me feel half drunk and driving was not an option. Still, if that is what it takes to get me through the next few weeks, it is better than what I am feeling now. Thanks again .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 Elf and Chicken Little are ones I will watch over and over for a good laugh :)jackieI rent a really silly movie when I get really down and hate to even recommend SUCH a silly movie, but we just saw Benchwarmers and it’s actually HA HA funny.... Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 Elf and Chicken Little are ones I will watch over and over for a good laugh :)jackieI rent a really silly movie when I get really down and hate to even recommend SUCH a silly movie, but we just saw Benchwarmers and it’s actually HA HA funny.... Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 Elf and Chicken Little are ones I will watch over and over for a good laugh :)jackieI rent a really silly movie when I get really down and hate to even recommend SUCH a silly movie, but we just saw Benchwarmers and it’s actually HA HA funny.... Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 > Hi , > I'm sorry you are going through such a hard time. I do understand...believe > me!!! Are you taking the Xanax for anxiety? I don't recall you mentioning you > had anxiety that's why I'm asking. If you do, it will help but be aware it > can cause depression and you certainly don't need anymore of that! > > Also, have you been told not to take your thyroid meds on the day you're > having your thyroid bloodwork done? It will skew the results. Just take it when > you are done with your bloodwork. I pray you start feeling better soon! > > Tammy > I am taking xanax, well no, that is wrong. I am taking Alprazolam 0.5MG. The scrip is written " 1-2 tablets three times a day " . I aplologize for not being specific, Xanax is easier to remember, so that's what I typed. I am taking Alprazolam because my Endocrinologist told me to stop taking the Paxil. I was taking Paxil because my " new " General Physician urged me to. I asked My Endo what he suggested I take to replace the Paxil. He declined to treat me for depression from two hundred miles away, which is where I go to see him, and told me to discuss it with my regular doctor. My GP looked at the results and report from the Endo, agreed that the Paxil was not good. I asked him for something, anything that might help because I was starting to have a lot of problems. He wrote me the scrip for the alprazolam, and said this is the best I can do, but it will not help very much. The perscriptio directions seemed a bit open ended and flexible, so I started taking one every four hours, four times a day. It was less than the maximum dosage, and it was convenient for me to take them at those times, rather than three times a day. They worked well for a couple weeks, took the edge off although I was having a few bad hours here and there. However, my depression started poking through here and there and the next thing I know I am starting to be non-functional. Putting important things off for days and letting the guilt and frustration of not getting them done nibble away at me. Then one day I started casually thinking about death, what it would mean to my family, how my wife would suffer, what caliber to use, how my boys would be hurt by it. That I could never do that. That afternoon I locked my gunsafes and gave my wife the combinations and the copies of the combos and asked her please not to lose them. And here I sit. When I told that to the " therapist " I saw last week, he was like, thank God you had enough sense to do that!!! I just looked him right in the eye and said, look, I am not suicidal, but I am not stupid either. If I shot myself, my life insurance would not pay squat. If I get in that mood all I need to do is go for a drive and pick a tree. He wasn't quite sure what to say about that. And neither am I. The safes are locked in case I have a glass of wine or take an extra Alprazolam and get stupid. Have an emotional fit and make a bad decision. But i have thought about it enough to think of a " nice " way of doing it, and that bothers me. I am not suicidal, this week. What I am not so sure about is two or three weeks from now. The plot thickened today, when I talked with my GP. I told him exactly how I was taking each of my meds, the times of day for each scrip, and that I had experimented last weekend by taking a pill and a half of the Alprazolam four times a day because the depression was getting bad. It was still six pills, the maximum dosage. I felt half drunk for two days and knew I couldn't drive, but it did help, sorta. Monday I went back to one every four hours because I am trying to have a life and leaving the house from time to time was the plan for Monday and Tuesday. He approved of the way I was doing things and told me I could go back to a pill and a half every four hours if I needed it, but to be careful driving... Then he explained to me that the reason I cannot take anti- depressants is not test-related. It is because with my body the way it is right now the meds could possibly kill me. Seratonin causing something else to go out of balance I think. I was weeping at the time. He said heart failure was a big risk for me if I took anti- depressants. I told him I had seen a therapist twice and was very unimpressed. I told him I was not going to see him again but wondered if a Psychiatrist would know of some drug that my GP was unaware of, said very diplomatically of course. He said it was worth a shot and he would get his secretary on it. My GP got me an appointment for one in three weeks. $380.00 for an evaluation is quite a bit! Now I am having second thoughts. My doc is a smart guy and I think he truely is giving me the best relief he can. But I was begging him for help in a pretty pitiful manner, so he is helping me grasp at a straw. We will see. Three weeks of feeling half drunk and zombified will play a part in that decision, I guess. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 > Hi , > I'm sorry you are going through such a hard time. I do understand...believe > me!!! Are you taking the Xanax for anxiety? I don't recall you mentioning you > had anxiety that's why I'm asking. If you do, it will help but be aware it > can cause depression and you certainly don't need anymore of that! > > Also, have you been told not to take your thyroid meds on the day you're > having your thyroid bloodwork done? It will skew the results. Just take it when > you are done with your bloodwork. I pray you start feeling better soon! > > Tammy > I am taking xanax, well no, that is wrong. I am taking Alprazolam 0.5MG. The scrip is written " 1-2 tablets three times a day " . I aplologize for not being specific, Xanax is easier to remember, so that's what I typed. I am taking Alprazolam because my Endocrinologist told me to stop taking the Paxil. I was taking Paxil because my " new " General Physician urged me to. I asked My Endo what he suggested I take to replace the Paxil. He declined to treat me for depression from two hundred miles away, which is where I go to see him, and told me to discuss it with my regular doctor. My GP looked at the results and report from the Endo, agreed that the Paxil was not good. I asked him for something, anything that might help because I was starting to have a lot of problems. He wrote me the scrip for the alprazolam, and said this is the best I can do, but it will not help very much. The perscriptio directions seemed a bit open ended and flexible, so I started taking one every four hours, four times a day. It was less than the maximum dosage, and it was convenient for me to take them at those times, rather than three times a day. They worked well for a couple weeks, took the edge off although I was having a few bad hours here and there. However, my depression started poking through here and there and the next thing I know I am starting to be non-functional. Putting important things off for days and letting the guilt and frustration of not getting them done nibble away at me. Then one day I started casually thinking about death, what it would mean to my family, how my wife would suffer, what caliber to use, how my boys would be hurt by it. That I could never do that. That afternoon I locked my gunsafes and gave my wife the combinations and the copies of the combos and asked her please not to lose them. And here I sit. When I told that to the " therapist " I saw last week, he was like, thank God you had enough sense to do that!!! I just looked him right in the eye and said, look, I am not suicidal, but I am not stupid either. If I shot myself, my life insurance would not pay squat. If I get in that mood all I need to do is go for a drive and pick a tree. He wasn't quite sure what to say about that. And neither am I. The safes are locked in case I have a glass of wine or take an extra Alprazolam and get stupid. Have an emotional fit and make a bad decision. But i have thought about it enough to think of a " nice " way of doing it, and that bothers me. I am not suicidal, this week. What I am not so sure about is two or three weeks from now. The plot thickened today, when I talked with my GP. I told him exactly how I was taking each of my meds, the times of day for each scrip, and that I had experimented last weekend by taking a pill and a half of the Alprazolam four times a day because the depression was getting bad. It was still six pills, the maximum dosage. I felt half drunk for two days and knew I couldn't drive, but it did help, sorta. Monday I went back to one every four hours because I am trying to have a life and leaving the house from time to time was the plan for Monday and Tuesday. He approved of the way I was doing things and told me I could go back to a pill and a half every four hours if I needed it, but to be careful driving... Then he explained to me that the reason I cannot take anti- depressants is not test-related. It is because with my body the way it is right now the meds could possibly kill me. Seratonin causing something else to go out of balance I think. I was weeping at the time. He said heart failure was a big risk for me if I took anti- depressants. I told him I had seen a therapist twice and was very unimpressed. I told him I was not going to see him again but wondered if a Psychiatrist would know of some drug that my GP was unaware of, said very diplomatically of course. He said it was worth a shot and he would get his secretary on it. My GP got me an appointment for one in three weeks. $380.00 for an evaluation is quite a bit! Now I am having second thoughts. My doc is a smart guy and I think he truely is giving me the best relief he can. But I was begging him for help in a pretty pitiful manner, so he is helping me grasp at a straw. We will see. Three weeks of feeling half drunk and zombified will play a part in that decision, I guess. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 , Xaxax is prescribed for ACUTE anxiety and PANIC DISORDER. In addition, it can cause or escalate depression — please be careful!! “Xanax is the most potent and known as being the most addictive of all the benzos, so use with caution if there's any chance you need to take this med daily or have the slightest hint of substance abuse.” Sue http://www.crazymeds.org/xanax.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 You really need labs to post so we can see what the labs are doing. Thyroid hormones do effect the brain, and they do not have to be high or low but just the flucuation in levels can make one unstable. That said, with normal thyroid function things should get better, but you need to talk to the doc about something to help level you out until you are stable and stay stable. If you can not take the newer SSRI's how about some of the older Antidepressants? One possibility is diet.. Iodine is uptaken by the thyroid, the thyroid uses iodine to produce thyroid hormone. Most people with autoimmune disease can calm the ups and downs by reducing the amount of Iodine in the diet. Immune stimulants are also a big thing, Vit C, Echinacea, and thing that stimulates you , you want to avoid. Did your Endo do antibody testing? See if you can get your wife to write down labs, and list all meds you are on, dosing, timing etc..and include supplements. Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 I have Hashimotos and I was avoiding the immune stimulants but my body feels like its dying on the inside so I bought some Astragalus and i noticed as soon as I took it within 10 mins my body was feeling a WHOLE lot better on the inside. Which I find contridictive to what the group says. I am allergic to Echinacea so I cant take that. Just a thought Deana > > > > Immune stimulants are also a big thing, Vit C, Echinacea, and thing > that stimulates you , you want to avoid. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Why avoid immune stimulants? Is this a "in general" thing or for the rest of us as well? I've been taking some allergy stuff, it's herbal. At least I use it for allergies, that KM stuff I mentioned. Please let me know, I don't want to be messing anything up just when I'm on an upswing.Spiffkats3boys wrote: You really need labs to post so we can see what the labs are doing.Thyroid hormones do effect the brain, and they do not have to be high or low but just the flucuation in levels can make one unstable.That said, with normal thyroid function things should get better, but you need to talk to the doc about something to help level you out until you are stable and stay stable.If you can not take the newer SSRI's how about some of the older Antidepressants?One possibility is diet.. Iodine is uptaken by the thyroid, the thyroid uses iodine to produce thyroid hormone. Most people with autoimmune disease can calm the ups and downs by reducing the amount of Iodine in the diet.Immune stimulants are also a big thing, Vit C, Echinacea, and thing that stimulates you , you want to avoid.Did your Endo do antibody testing?See if you can get your wife to write down labs, and list all meds you are on, dosing, timing etc..and include supplements.Kats3boys How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 I'll have to google astragalus and check into it. I realized this morning I am probably hyperthyroid again, by the way I feel. I wish I had thought of that yesterday when I saw the doctor. I'll e-mail my Endocrinologist and see if I need to have some tests run, or up my dosage of Methimazole, or what. I do NOT want to be hyper and taking hormone substitutes at the same time again. > > I have Hashimotos and I was avoiding the immune stimulants but my body > feels like its dying on the inside so I bought some Astragalus and i > noticed as soon as I took it within 10 mins my body was feeling a WHOLE > lot better on the inside. Which I find contridictive to what the group > says. > I am allergic to Echinacea so I cant take that. > > Just a thought > Deana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Wow. You have A lot going on! Sue > addedendum My Adrenal tumor. That is an interesting story. My GP sent me to an Endocrinologist for a close look at what was going on, because I had scads of bloodwork in my file showing me hypothyroid and the blood tests he ran the day I collapsed and he put me on IV introduced beta blockers showed me extremely hyperthytoid. He sent me home with Toprol XL and told me to stop the synthroid immediately. The Endo he sent me to was...clueless. My doctor had sent the entire medical file along with a cover letter introducing me and explaining that I was very ill and needed immediate attention. I read the cover letter. I was impressed with my GP in his concern for me. The Endo picks up one paper from the pile and starts reading it while asking me questions. It just happened to be one of my " hypothyroid " bloodwork sheets. I mentioned that I had been getting dizzy at work at times for several months, and related the story of nearly passing out in the GP's office. He tells me I am hypothyroid, I should go back on my Synthroid, and started talking about a Neurological disorder and tilt-table tests. He sent my GP a not saying the same without looking at my file or running any test at all. I was not happy. My GP was dumbfounded, and I told him I was tired of piddling around and wanted to see some doctors at Mayo Clinic. He said, yes, it is time. His secretary told me it might be quicker if I contacted them directly, so I did. After two weeks of me sending info and the clinic sending info, Mayo told us I was not sick enough for them and they would not do anything my doctor had already done. They were too busy and I was not going to be getting an appointment with them, period. I had not had a cat scan or any testing other than the bloodwork that a small town hospital can do, and a twenty four hour urine test. Mayo Clinc could not offer any better effort to diagnose an unknown condition that was dibillitating me and endangering my life. One day I ran into an old friend and when he asked how I was doing I broke with tradition and told him the truth. Hadn't worked in over a month, how I was ill and all the gory details. The next thing I know he is telling me to call his wife in late afternoon because she had been going through this for three years and I should talk to her. She has Pheocromacytoma, a very rare endocrine gland tumor. My symptoms matched hers to a tee, and she gave me the name of an Endocrinologist in Iowa City that is running a study on pheo and urged me to call him. Two days later he was cat scanning my adrenal glands and ran at least ten blood tests. I don't have Pheochromocytoma, I have a big ol benign tumor on one gland, and he had lots to say about my thyroid. He agreed to treat me and wrote me a scrip for Methimazole 10 MG to put the thyroid to sleep, and Levothyrox 125MCG for my synthroid replacement. He told me the tumor was medium sized, surgery-wise, and the y would look at it again in three months when I go back for more tests. If it's bigger, they will remove it. If it is not, they may leave it IF it is not irritating the adrenal gland. Pituitary gland is next visit too, and who knows what else. He said I have very high titers and my thyroid anti-bodies are about ten times higher than way to high. He is concerned about Hashimoto's Encepholapoly. google that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 > > Why avoid immune stimulants? Is this a " in general " thing or for the rest of us as well? > I've been taking some allergy stuff, it's herbal. At least I use it for allergies, that KM stuff I mentioned. Please let me know, I don't want to be messing anything up just when I'm on an upswing. > Spiff Immune system aids, things that support your immune system are fine, it is just the things that stimulate your immune system that most people seem to find as triggers. Grave's , Hashimoto's are autoimmune disorders, some people can have the antibodies in there system and they may never be triggered. For others something triggers it. Although it is auto immune it is part of the immune system. The main key here is to rest the thyroid and rest the immune system to lower the antibodies, using stimulants that trigger the immune system will also stimulate the auto antibodies..this stimulation increases them.. It is also possible to have thyroid problems with it not being auto immune and in this case the stimulants would not effect you..but you have to use your own judgement plus antibody tests to see where you sit in this department.. Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Ya, that makes sense.....thanks for explaining that to me! Spiffkats3boys wrote: >> Why avoid immune stimulants? Is this a "in general" thing or for the rest of us as well?> I've been taking some allergy stuff, it's herbal. At least I use it for allergies, that KM stuff I mentioned. Please let me know, I don't want to be messing anything up just when I'm on an upswing.> SpiffImmune system aids, things that support your immune system are fine, it is just the things that stimulate your immune system that most people seem to find as triggers.Grave's , Hashimoto's are autoimmune disorders, some people can have the antibodies in there system and they may never be triggered. For others something triggers it. Although it is auto immune it is part of the immune system. The main key here is to rest the thyroid and rest the immune system to lower the antibodies, using stimulants that trigger the immune system will also stimulate the auto antibodies..this stimulation increases them..It is also possible to have thyroid problems with it not being auto immune and in this case the stimulants would not effect you..but you have to use your own judgement plus antibody tests to see where you sit in this department..Kats3boys Stay in the know. Pulse on the new Yahoo.com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Ya, that makes sense.....thanks for explaining that to me! Spiffkats3boys wrote: >> Why avoid immune stimulants? Is this a "in general" thing or for the rest of us as well?> I've been taking some allergy stuff, it's herbal. At least I use it for allergies, that KM stuff I mentioned. Please let me know, I don't want to be messing anything up just when I'm on an upswing.> SpiffImmune system aids, things that support your immune system are fine, it is just the things that stimulate your immune system that most people seem to find as triggers.Grave's , Hashimoto's are autoimmune disorders, some people can have the antibodies in there system and they may never be triggered. For others something triggers it. Although it is auto immune it is part of the immune system. The main key here is to rest the thyroid and rest the immune system to lower the antibodies, using stimulants that trigger the immune system will also stimulate the auto antibodies..this stimulation increases them..It is also possible to have thyroid problems with it not being auto immune and in this case the stimulants would not effect you..but you have to use your own judgement plus antibody tests to see where you sit in this department..Kats3boys Stay in the know. Pulse on the new Yahoo.com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Ya, that makes sense.....thanks for explaining that to me! Spiffkats3boys wrote: >> Why avoid immune stimulants? Is this a "in general" thing or for the rest of us as well?> I've been taking some allergy stuff, it's herbal. At least I use it for allergies, that KM stuff I mentioned. Please let me know, I don't want to be messing anything up just when I'm on an upswing.> SpiffImmune system aids, things that support your immune system are fine, it is just the things that stimulate your immune system that most people seem to find as triggers.Grave's , Hashimoto's are autoimmune disorders, some people can have the antibodies in there system and they may never be triggered. For others something triggers it. Although it is auto immune it is part of the immune system. The main key here is to rest the thyroid and rest the immune system to lower the antibodies, using stimulants that trigger the immune system will also stimulate the auto antibodies..this stimulation increases them..It is also possible to have thyroid problems with it not being auto immune and in this case the stimulants would not effect you..but you have to use your own judgement plus antibody tests to see where you sit in this department..Kats3boys Stay in the know. Pulse on the new Yahoo.com. Check it out. Quote Link to comment Share on other sites More sharing options...
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