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Re: Flare up relief

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Alrighty. So for people with relatively normal kidney function it's

alright to take Advil. This information is actually for my fiance.

She's was diagnosed about 5 years ago. She's doing okay but about 5

times a year she gets flare ups with bad flank pain. However, her labs

are okay. It's pretty hard on her. She gets very depressed. She's

such an upbeat and active person; however, when the flare up comes it

just knocks her out. ly, I'm worried about how she will deal

with it if it will eventually progress.

I wish she'd do more research herself but it seems that she prefers

to...for a lack of better word...ignore it. But at this stage I kind

of understand her. Thinking about it too much at this stage, where

you can't really do much, can drive you crazy.

Thank you all for your help. I can definitely say that this site has

helped me deal with it.

PN

>

> Oops - Apparently the chart of chemical names and trade names I made

in my

> last response didn't come through correctly!

>

> Sorry about that!

> -

>

>

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My wife takes Advil when she has a headache because she says it's the only

thing that works. She doesn't have kidney disease, but I don't like her

taking that. I would prefer she takes a couple of aspirin or Tylenol, for

the reasons I already mentioned in a previous post.

Pierre

Re: Flare up relief

>

>

> Alrighty. So for people with relatively normal kidney function it's

> alright to take Advil. This information is actually for my fiance.

>

> She's was diagnosed about 5 years ago. She's doing okay but about 5

> times a year she gets flare ups with bad flank pain. However, her labs

> are okay. It's pretty hard on her. She gets very depressed. She's

> such an upbeat and active person; however, when the flare up comes it

> just knocks her out. ly, I'm worried about how she will deal

> with it if it will eventually progress.

>

> I wish she'd do more research herself but it seems that she prefers

> to...for a lack of better word...ignore it. But at this stage I kind

> of understand her. Thinking about it too much at this stage, where

> you can't really do much, can drive you crazy.

>

> Thank you all for your help. I can definitely say that this site has

> helped me deal with it.

>

> PN

>

>

> >

> > Oops - Apparently the chart of chemical names and trade names I made

> in my

> > last response didn't come through correctly!

> >

> > Sorry about that!

> > -

> >

> >

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Hi Carla,

I am sorry you are bothered by such severe flank pain. Abdominal pain

is not associated with IgAN, but flank pain certainly is.

On the fish oil, there was a study done at Mayo which you can access at

www.igan.ca which will give you all the information about fish oil.

Many doctors are not sure it helps, but think it may help and can't

hurt so many Nephrologists recommend it. If you decide to try it, make

sure you do not take cod liver oil.

Re: Flare up relief

I too have daily flank pain and my kidney areas (both) are very

sensitive to the

touch. The pain has now moved around to the abdominal area. I haven't

had any

luck with the doctor's yet but I did ask my regular MD to do an IVP and

of

course it was normal. I associate my pain with an inflammed feeling

and if I

get shaken up too much I'm in horrible pain (ie riding in a car on a

bumpy road)

and I now get very nauseated. If anybody has any solutions it would be

helpful.

I have been becoming my own doctor and luckily my doctor has been

assisting me

to some degree. I requested a copy of my last 2 blood works and my

last one was

all over the chart. Some things were high and others were almost high

or low

nothing appeared to be consistant. Everyone here is great, I enjoy

reading

everyone's progress and I've found it very informative. I've observed

that many

of you are taking fish oil vitamins, why? Does it help with the kidney

functioning?

Thanks again,

CC

Re: Flare up relief

I don't really know of anything that can help with flank pain, short

of

narcotic pain killers. Have you tried a hot water bottle or heating

pad?

Personally, I wouldn't make any assumptions about severe flank pain

just

because you happen to have IgAN. If you haven't done so already, or

if it's

a new symptom, I would definitely consult with my doctor. As I've

posted

before, the only time I thought I had severe flank pain, I assumed at

first

it was the kidney disease, but it turned out to be gallbladder

attacks due

to a severely inflamed gallbladder. Pancreatitis is another not

uncommon

occurence in people with chronic renal failure (the nephrologists say

there's no relation, but my experience says otherwise). Sometimes,

the pain

can seem like flank pain.

Pierre

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely

supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

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Those pain meds are very hard on kidneys. My Neph told me to avoid

taking them at all costs. I only take Tylenol, and only if I am very

desperate.

Re: Flare up relief

Wow. Why is Advil, Motrin and Alleve supposed to be avoided?

I've been using advil.

PN

>

> Hi PN,

>

> Sorry to hear you are having a flare up. I do not know anything

that has

> worked to shorten the time span of a flare up unfortunately. For

pain control,

> I really avoid taking anything for pain at all unless I am really

desperate

> for relief and even then, my Nephrologist has advised me to take only

> Tylenol. Advil and Motrin and Alleve are to be avoided at all costs.

>

> I hope you feel better soon.

>

>

> In a message dated 4/4/2005 11:56:43 A.M. Pacific Daylight Time,

> poeticnoise@y... writes:

>

> Hi.

>

> I'm sure this question has been asked before but I couldn't find it

> using the search option.

>

> I was wondering if there is anything that can be done to ease the

pain

> of flank pain that comes with flare ups...besides drugs. Or perhaps

> something that seems to shorten the length that the flare ups last?

>

> Has anybody found something?

>

> PN

>

>

>

>

>

>

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Those pain meds are very hard on kidneys. My Neph told me to avoid

taking them at all costs. I only take Tylenol, and only if I am very

desperate.

Re: Flare up relief

Wow. Why is Advil, Motrin and Alleve supposed to be avoided?

I've been using advil.

PN

>

> Hi PN,

>

> Sorry to hear you are having a flare up. I do not know anything

that has

> worked to shorten the time span of a flare up unfortunately. For

pain control,

> I really avoid taking anything for pain at all unless I am really

desperate

> for relief and even then, my Nephrologist has advised me to take only

> Tylenol. Advil and Motrin and Alleve are to be avoided at all costs.

>

> I hope you feel better soon.

>

>

> In a message dated 4/4/2005 11:56:43 A.M. Pacific Daylight Time,

> poeticnoise@y... writes:

>

> Hi.

>

> I'm sure this question has been asked before but I couldn't find it

> using the search option.

>

> I was wondering if there is anything that can be done to ease the

pain

> of flank pain that comes with flare ups...besides drugs. Or perhaps

> something that seems to shorten the length that the flare ups last?

>

> Has anybody found something?

>

> PN

>

>

>

>

>

>

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Guest guest

Those pain meds are very hard on kidneys. My Neph told me to avoid

taking them at all costs. I only take Tylenol, and only if I am very

desperate.

Re: Flare up relief

Wow. Why is Advil, Motrin and Alleve supposed to be avoided?

I've been using advil.

PN

>

> Hi PN,

>

> Sorry to hear you are having a flare up. I do not know anything

that has

> worked to shorten the time span of a flare up unfortunately. For

pain control,

> I really avoid taking anything for pain at all unless I am really

desperate

> for relief and even then, my Nephrologist has advised me to take only

> Tylenol. Advil and Motrin and Alleve are to be avoided at all costs.

>

> I hope you feel better soon.

>

>

> In a message dated 4/4/2005 11:56:43 A.M. Pacific Daylight Time,

> poeticnoise@y... writes:

>

> Hi.

>

> I'm sure this question has been asked before but I couldn't find it

> using the search option.

>

> I was wondering if there is anything that can be done to ease the

pain

> of flank pain that comes with flare ups...besides drugs. Or perhaps

> something that seems to shorten the length that the flare ups last?

>

> Has anybody found something?

>

> PN

>

>

>

>

>

>

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Thanks for the list !

W Favors wrote:

Oops - Apparently the chart of chemical names and trade names I made in

my

last response didn't come through correctly!

Sorry about that!

-

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Guest guest

Thanks for the list !

W Favors wrote:

Oops - Apparently the chart of chemical names and trade names I made in

my

last response didn't come through correctly!

Sorry about that!

-

Link to comment
Share on other sites

Guest guest

Thanks for the list !

W Favors wrote:

Oops - Apparently the chart of chemical names and trade names I made in

my

last response didn't come through correctly!

Sorry about that!

-

Link to comment
Share on other sites

Guest guest

Hi PN,

If your fiance has IgAN, I would not advise taking Advil regardless of

what her labs are. It is not a good idea to take something known to be

nephrotoxic knowing she has kidney disease already. I am not a doctor,

but that is what my Nephrologist told me, and even advised that my

husband who does not have any kidney disease to avoid taking Advi tool.

Re: Flare up relief

Alrighty. So for people with relatively normal kidney function it's

alright to take Advil. This information is actually for my fiance.

She's was diagnosed about 5 years ago. She's doing okay but about 5

times a year she gets flare ups with bad flank pain. However, her labs

are okay. It's pretty hard on her. She gets very depressed. She's

such an upbeat and active person; however, when the flare up comes it

just knocks her out. ly, I'm worried about how she will deal

with it if it will eventually progress.

I wish she'd do more research herself but it seems that she prefers

to...for a lack of better word...ignore it. But at this stage I kind

of understand her. Thinking about it too much at this stage, where

you can't really do much, can drive you crazy.

Thank you all for your help. I can definitely say that this site has

helped me deal with it.

PN

>

> Oops - Apparently the chart of chemical names and trade names I made

in my

> last response didn't come through correctly!

>

> Sorry about that!

> -

>

>

Link to comment
Share on other sites

Guest guest

Hi PN,

If your fiance has IgAN, I would not advise taking Advil regardless of

what her labs are. It is not a good idea to take something known to be

nephrotoxic knowing she has kidney disease already. I am not a doctor,

but that is what my Nephrologist told me, and even advised that my

husband who does not have any kidney disease to avoid taking Advi tool.

Re: Flare up relief

Alrighty. So for people with relatively normal kidney function it's

alright to take Advil. This information is actually for my fiance.

She's was diagnosed about 5 years ago. She's doing okay but about 5

times a year she gets flare ups with bad flank pain. However, her labs

are okay. It's pretty hard on her. She gets very depressed. She's

such an upbeat and active person; however, when the flare up comes it

just knocks her out. ly, I'm worried about how she will deal

with it if it will eventually progress.

I wish she'd do more research herself but it seems that she prefers

to...for a lack of better word...ignore it. But at this stage I kind

of understand her. Thinking about it too much at this stage, where

you can't really do much, can drive you crazy.

Thank you all for your help. I can definitely say that this site has

helped me deal with it.

PN

>

> Oops - Apparently the chart of chemical names and trade names I made

in my

> last response didn't come through correctly!

>

> Sorry about that!

> -

>

>

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Guest guest

Thanks . I'll try to stop her from taking them...but she's

really stubborn. :-)

PN

> >

> > Oops - Apparently the chart of chemical names and trade names I made

> in my

> > last response didn't come through correctly!

> >

> > Sorry about that!

> > -

> >

> >

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Thank you Elisabeth. I'll pass it on to her.

PN

>

> So for people with relatively normal kidney function it's

> alright to take Advil. This information is actually for my fiance.

>

> Hi PN,

>

> No, I don't think it's alright. The problem is, advil damages the

tiny blood vessels inside the kidneys. For someone with relatively

normal kidney function who has kidney disease, this will not

necessarily make your function go down right away. But it will make

your proteinuria and BP go up.

>

> One good alternative is Tylenol- especially the new one, for

Arthritis Pain. This really works well for me.

>

> Best wishes,

>

> -Elisabeth

>

>

>

>

>

>

>

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Hi PN,

I am sure I cannot relate to being stubborn ;-)

Seriously I hope that she will take careful consideration of the importance of

protecting the kidney function she does have.

In a message dated 4/7/2005 12:08:00 PM Eastern Daylight Time, " poeticnoise "

writes:

>

>

>Thanks . I'll try to stop her from taking them...but she's

>really stubborn. :-)

>

>PN

>

>

>> >

>> > Oops - Apparently the chart of chemical names and trade names I made

>> in my

>> > last response didn't come through correctly!

>> >

>> > Sorry about that!

>> > -

>> >

>> >

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Guest guest

Hi PN,

I am sure I cannot relate to being stubborn ;-)

Seriously I hope that she will take careful consideration of the importance of

protecting the kidney function she does have.

In a message dated 4/7/2005 12:08:00 PM Eastern Daylight Time, " poeticnoise "

writes:

>

>

>Thanks . I'll try to stop her from taking them...but she's

>really stubborn. :-)

>

>PN

>

>

>> >

>> > Oops - Apparently the chart of chemical names and trade names I made

>> in my

>> > last response didn't come through correctly!

>> >

>> > Sorry about that!

>> > -

>> >

>> >

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