Guest guest Posted April 6, 2005 Report Share Posted April 6, 2005 Alrighty. So for people with relatively normal kidney function it's alright to take Advil. This information is actually for my fiance. She's was diagnosed about 5 years ago. She's doing okay but about 5 times a year she gets flare ups with bad flank pain. However, her labs are okay. It's pretty hard on her. She gets very depressed. She's such an upbeat and active person; however, when the flare up comes it just knocks her out. ly, I'm worried about how she will deal with it if it will eventually progress. I wish she'd do more research herself but it seems that she prefers to...for a lack of better word...ignore it. But at this stage I kind of understand her. Thinking about it too much at this stage, where you can't really do much, can drive you crazy. Thank you all for your help. I can definitely say that this site has helped me deal with it. PN > > Oops - Apparently the chart of chemical names and trade names I made in my > last response didn't come through correctly! > > Sorry about that! > - > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2005 Report Share Posted April 6, 2005 My wife takes Advil when she has a headache because she says it's the only thing that works. She doesn't have kidney disease, but I don't like her taking that. I would prefer she takes a couple of aspirin or Tylenol, for the reasons I already mentioned in a previous post. Pierre Re: Flare up relief > > > Alrighty. So for people with relatively normal kidney function it's > alright to take Advil. This information is actually for my fiance. > > She's was diagnosed about 5 years ago. She's doing okay but about 5 > times a year she gets flare ups with bad flank pain. However, her labs > are okay. It's pretty hard on her. She gets very depressed. She's > such an upbeat and active person; however, when the flare up comes it > just knocks her out. ly, I'm worried about how she will deal > with it if it will eventually progress. > > I wish she'd do more research herself but it seems that she prefers > to...for a lack of better word...ignore it. But at this stage I kind > of understand her. Thinking about it too much at this stage, where > you can't really do much, can drive you crazy. > > Thank you all for your help. I can definitely say that this site has > helped me deal with it. > > PN > > > > > > Oops - Apparently the chart of chemical names and trade names I made > in my > > last response didn't come through correctly! > > > > Sorry about that! > > - > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2005 Report Share Posted April 6, 2005 Hi Carla, I am sorry you are bothered by such severe flank pain. Abdominal pain is not associated with IgAN, but flank pain certainly is. On the fish oil, there was a study done at Mayo which you can access at www.igan.ca which will give you all the information about fish oil. Many doctors are not sure it helps, but think it may help and can't hurt so many Nephrologists recommend it. If you decide to try it, make sure you do not take cod liver oil. Re: Flare up relief I too have daily flank pain and my kidney areas (both) are very sensitive to the touch. The pain has now moved around to the abdominal area. I haven't had any luck with the doctor's yet but I did ask my regular MD to do an IVP and of course it was normal. I associate my pain with an inflammed feeling and if I get shaken up too much I'm in horrible pain (ie riding in a car on a bumpy road) and I now get very nauseated. If anybody has any solutions it would be helpful. I have been becoming my own doctor and luckily my doctor has been assisting me to some degree. I requested a copy of my last 2 blood works and my last one was all over the chart. Some things were high and others were almost high or low nothing appeared to be consistant. Everyone here is great, I enjoy reading everyone's progress and I've found it very informative. I've observed that many of you are taking fish oil vitamins, why? Does it help with the kidney functioning? Thanks again, CC Re: Flare up relief I don't really know of anything that can help with flank pain, short of narcotic pain killers. Have you tried a hot water bottle or heating pad? Personally, I wouldn't make any assumptions about severe flank pain just because you happen to have IgAN. If you haven't done so already, or if it's a new symptom, I would definitely consult with my doctor. As I've posted before, the only time I thought I had severe flank pain, I assumed at first it was the kidney disease, but it turned out to be gallbladder attacks due to a severely inflamed gallbladder. Pancreatitis is another not uncommon occurence in people with chronic renal failure (the nephrologists say there's no relation, but my experience says otherwise). Sometimes, the pain can seem like flank pain. Pierre To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2005 Report Share Posted April 6, 2005 Those pain meds are very hard on kidneys. My Neph told me to avoid taking them at all costs. I only take Tylenol, and only if I am very desperate. Re: Flare up relief Wow. Why is Advil, Motrin and Alleve supposed to be avoided? I've been using advil. PN > > Hi PN, > > Sorry to hear you are having a flare up. I do not know anything that has > worked to shorten the time span of a flare up unfortunately. For pain control, > I really avoid taking anything for pain at all unless I am really desperate > for relief and even then, my Nephrologist has advised me to take only > Tylenol. Advil and Motrin and Alleve are to be avoided at all costs. > > I hope you feel better soon. > > > In a message dated 4/4/2005 11:56:43 A.M. Pacific Daylight Time, > poeticnoise@y... writes: > > Hi. > > I'm sure this question has been asked before but I couldn't find it > using the search option. > > I was wondering if there is anything that can be done to ease the pain > of flank pain that comes with flare ups...besides drugs. Or perhaps > something that seems to shorten the length that the flare ups last? > > Has anybody found something? > > PN > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2005 Report Share Posted April 6, 2005 Those pain meds are very hard on kidneys. My Neph told me to avoid taking them at all costs. I only take Tylenol, and only if I am very desperate. Re: Flare up relief Wow. Why is Advil, Motrin and Alleve supposed to be avoided? I've been using advil. PN > > Hi PN, > > Sorry to hear you are having a flare up. I do not know anything that has > worked to shorten the time span of a flare up unfortunately. For pain control, > I really avoid taking anything for pain at all unless I am really desperate > for relief and even then, my Nephrologist has advised me to take only > Tylenol. Advil and Motrin and Alleve are to be avoided at all costs. > > I hope you feel better soon. > > > In a message dated 4/4/2005 11:56:43 A.M. Pacific Daylight Time, > poeticnoise@y... writes: > > Hi. > > I'm sure this question has been asked before but I couldn't find it > using the search option. > > I was wondering if there is anything that can be done to ease the pain > of flank pain that comes with flare ups...besides drugs. Or perhaps > something that seems to shorten the length that the flare ups last? > > Has anybody found something? > > PN > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2005 Report Share Posted April 6, 2005 Those pain meds are very hard on kidneys. My Neph told me to avoid taking them at all costs. I only take Tylenol, and only if I am very desperate. Re: Flare up relief Wow. Why is Advil, Motrin and Alleve supposed to be avoided? I've been using advil. PN > > Hi PN, > > Sorry to hear you are having a flare up. I do not know anything that has > worked to shorten the time span of a flare up unfortunately. For pain control, > I really avoid taking anything for pain at all unless I am really desperate > for relief and even then, my Nephrologist has advised me to take only > Tylenol. Advil and Motrin and Alleve are to be avoided at all costs. > > I hope you feel better soon. > > > In a message dated 4/4/2005 11:56:43 A.M. Pacific Daylight Time, > poeticnoise@y... writes: > > Hi. > > I'm sure this question has been asked before but I couldn't find it > using the search option. > > I was wondering if there is anything that can be done to ease the pain > of flank pain that comes with flare ups...besides drugs. Or perhaps > something that seems to shorten the length that the flare ups last? > > Has anybody found something? > > PN > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2005 Report Share Posted April 6, 2005 Thanks for the list ! W Favors wrote: Oops - Apparently the chart of chemical names and trade names I made in my last response didn't come through correctly! Sorry about that! - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2005 Report Share Posted April 6, 2005 Thanks for the list ! W Favors wrote: Oops - Apparently the chart of chemical names and trade names I made in my last response didn't come through correctly! Sorry about that! - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2005 Report Share Posted April 6, 2005 Thanks for the list ! W Favors wrote: Oops - Apparently the chart of chemical names and trade names I made in my last response didn't come through correctly! Sorry about that! - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2005 Report Share Posted April 6, 2005 Hi PN, If your fiance has IgAN, I would not advise taking Advil regardless of what her labs are. It is not a good idea to take something known to be nephrotoxic knowing she has kidney disease already. I am not a doctor, but that is what my Nephrologist told me, and even advised that my husband who does not have any kidney disease to avoid taking Advi tool. Re: Flare up relief Alrighty. So for people with relatively normal kidney function it's alright to take Advil. This information is actually for my fiance. She's was diagnosed about 5 years ago. She's doing okay but about 5 times a year she gets flare ups with bad flank pain. However, her labs are okay. It's pretty hard on her. She gets very depressed. She's such an upbeat and active person; however, when the flare up comes it just knocks her out. ly, I'm worried about how she will deal with it if it will eventually progress. I wish she'd do more research herself but it seems that she prefers to...for a lack of better word...ignore it. But at this stage I kind of understand her. Thinking about it too much at this stage, where you can't really do much, can drive you crazy. Thank you all for your help. I can definitely say that this site has helped me deal with it. PN > > Oops - Apparently the chart of chemical names and trade names I made in my > last response didn't come through correctly! > > Sorry about that! > - > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2005 Report Share Posted April 6, 2005 Hi PN, If your fiance has IgAN, I would not advise taking Advil regardless of what her labs are. It is not a good idea to take something known to be nephrotoxic knowing she has kidney disease already. I am not a doctor, but that is what my Nephrologist told me, and even advised that my husband who does not have any kidney disease to avoid taking Advi tool. Re: Flare up relief Alrighty. So for people with relatively normal kidney function it's alright to take Advil. This information is actually for my fiance. She's was diagnosed about 5 years ago. She's doing okay but about 5 times a year she gets flare ups with bad flank pain. However, her labs are okay. It's pretty hard on her. She gets very depressed. She's such an upbeat and active person; however, when the flare up comes it just knocks her out. ly, I'm worried about how she will deal with it if it will eventually progress. I wish she'd do more research herself but it seems that she prefers to...for a lack of better word...ignore it. But at this stage I kind of understand her. Thinking about it too much at this stage, where you can't really do much, can drive you crazy. Thank you all for your help. I can definitely say that this site has helped me deal with it. PN > > Oops - Apparently the chart of chemical names and trade names I made in my > last response didn't come through correctly! > > Sorry about that! > - > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2005 Report Share Posted April 7, 2005 Thanks . I'll try to stop her from taking them...but she's really stubborn. :-) PN > > > > Oops - Apparently the chart of chemical names and trade names I made > in my > > last response didn't come through correctly! > > > > Sorry about that! > > - > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2005 Report Share Posted April 7, 2005 Thank you Elisabeth. I'll pass it on to her. PN > > So for people with relatively normal kidney function it's > alright to take Advil. This information is actually for my fiance. > > Hi PN, > > No, I don't think it's alright. The problem is, advil damages the tiny blood vessels inside the kidneys. For someone with relatively normal kidney function who has kidney disease, this will not necessarily make your function go down right away. But it will make your proteinuria and BP go up. > > One good alternative is Tylenol- especially the new one, for Arthritis Pain. This really works well for me. > > Best wishes, > > -Elisabeth > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2005 Report Share Posted April 7, 2005 Hi PN, I am sure I cannot relate to being stubborn ;-) Seriously I hope that she will take careful consideration of the importance of protecting the kidney function she does have. In a message dated 4/7/2005 12:08:00 PM Eastern Daylight Time, " poeticnoise " writes: > > >Thanks . I'll try to stop her from taking them...but she's >really stubborn. :-) > >PN > > >> > >> > Oops - Apparently the chart of chemical names and trade names I made >> in my >> > last response didn't come through correctly! >> > >> > Sorry about that! >> > - >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2005 Report Share Posted April 7, 2005 Hi PN, I am sure I cannot relate to being stubborn ;-) Seriously I hope that she will take careful consideration of the importance of protecting the kidney function she does have. In a message dated 4/7/2005 12:08:00 PM Eastern Daylight Time, " poeticnoise " writes: > > >Thanks . I'll try to stop her from taking them...but she's >really stubborn. :-) > >PN > > >> > >> > Oops - Apparently the chart of chemical names and trade names I made >> in my >> > last response didn't come through correctly! >> > >> > Sorry about that! >> > - >> > >> > Quote Link to comment Share on other sites More sharing options...
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