Re: Flare up relief

[Guest guest]

Found this on another site. Don't know if it works or not but

thought I would send it your way.

Mindy

If I experience flank pain, how should I treat it?

Flank pain often starts as a little discomfort in the area above one

or both kidneys. It may feel as if a nerve is pinched in that area,

and the skin over the kidneys may be very sensitive to the touch. If

the area over the kidneys is sore — but not the area over the spine —

you should suspect flank pain.

There are no good medical treatments for flank pain. Aspirin can

aggravate bouts of gross hematuria, and doctors warn against using

it in children and teenagers whenever there is a possibility of a

viral infection because of the danger of developing Reye's Syndrome.

Acetaminophen (Tylenol) and ibuprofen (Motrin, Advil) are both

nephrotoxic and should not be taken in quantity for any type of

pain, including headaches. Besides, painkillers appear to have

little effect on flank pain. Similarly, sedatives and muscle-

relaxants like Valium do little once an attack is underway, nor is

there evidence that such heavy-duty painkillers as Demerol or nerve

blocks are effective.

Hypnotherapy, biofeedback, and acupuncture are useful in managing

certain types of pain, but there is no information yet on whether

any of these works with flank pain. Homeopathy is most likely to

offer symptomatic relief that is also safe and non-toxic.

The simplest approach to handling flank pain is to catch it at the

start and apply heat to the area with a hot water bottle, heating

pad, or soaks in a warm bath or shower. Hot castor oil packs over

the affected area may be helpful, if messy.

Try to increase fluid intake during attacks. If you have frequent

attacks, especially of severe spasms of pain, watch your morning

urine specimen carefully. If it is turbid [very cloudy] with a fine,

white sediment, consider taking yourself off ALL dairy, ALL meat

products, and ALL sodas until the urine clears and the pain ends.

Stay away from refined sugar; use lots of fresh fruit and vegetables

and only WHOLE grains. We have no proof that this regimen works for

all, but it is worth a try if you are in severe pain.

It's also a good idea to stay away from caffeine, alcohol, and

tobacco during any exacerbations of the disease. The Network has

also received reports that repeated bending and overuse of the back

may aggravate flank pain. If this is a feature of yours work, you

may need to speak to your employer about possible modifications to

your job.

As with so much of IgAN, we do not know what causes flank pain, and

not knowing the cause makes treatment largely a matter of

experimentation. If you've found something that works for you, we

welcome your suggestions.

>

>

> Hi.

>

> I'm sure this question has been asked before but I couldn't find it

> using the search option.

>

> I was wondering if there is anything that can be done to ease the

pain

> of flank pain that comes with flare ups...besides drugs. Or perhaps

> something that seems to shorten the length that the flare ups last?

>

> Has anybody found something?

>

> PN

[Guest guest]

Found this on another site. Don't know if it works or not but

thought I would send it your way.

Mindy

If I experience flank pain, how should I treat it?

Flank pain often starts as a little discomfort in the area above one

or both kidneys. It may feel as if a nerve is pinched in that area,

and the skin over the kidneys may be very sensitive to the touch. If

the area over the kidneys is sore — but not the area over the spine —

you should suspect flank pain.

There are no good medical treatments for flank pain. Aspirin can

aggravate bouts of gross hematuria, and doctors warn against using

it in children and teenagers whenever there is a possibility of a

viral infection because of the danger of developing Reye's Syndrome.

Acetaminophen (Tylenol) and ibuprofen (Motrin, Advil) are both

nephrotoxic and should not be taken in quantity for any type of

pain, including headaches. Besides, painkillers appear to have

little effect on flank pain. Similarly, sedatives and muscle-

relaxants like Valium do little once an attack is underway, nor is

there evidence that such heavy-duty painkillers as Demerol or nerve

blocks are effective.

Hypnotherapy, biofeedback, and acupuncture are useful in managing

certain types of pain, but there is no information yet on whether

any of these works with flank pain. Homeopathy is most likely to

offer symptomatic relief that is also safe and non-toxic.

The simplest approach to handling flank pain is to catch it at the

start and apply heat to the area with a hot water bottle, heating

pad, or soaks in a warm bath or shower. Hot castor oil packs over

the affected area may be helpful, if messy.

Try to increase fluid intake during attacks. If you have frequent

attacks, especially of severe spasms of pain, watch your morning

urine specimen carefully. If it is turbid [very cloudy] with a fine,

white sediment, consider taking yourself off ALL dairy, ALL meat

products, and ALL sodas until the urine clears and the pain ends.

Stay away from refined sugar; use lots of fresh fruit and vegetables

and only WHOLE grains. We have no proof that this regimen works for

all, but it is worth a try if you are in severe pain.

It's also a good idea to stay away from caffeine, alcohol, and

tobacco during any exacerbations of the disease. The Network has

also received reports that repeated bending and overuse of the back

may aggravate flank pain. If this is a feature of yours work, you

may need to speak to your employer about possible modifications to

your job.

As with so much of IgAN, we do not know what causes flank pain, and

not knowing the cause makes treatment largely a matter of

experimentation. If you've found something that works for you, we

welcome your suggestions.

>

>

> Hi.

>

> I'm sure this question has been asked before but I couldn't find it

> using the search option.

>

> I was wondering if there is anything that can be done to ease the

pain

> of flank pain that comes with flare ups...besides drugs. Or perhaps

> something that seems to shorten the length that the flare ups last?

>

> Has anybody found something?

>

> PN

[Guest guest]

Found this on another site. Don't know if it works or not but

thought I would send it your way.

Mindy

If I experience flank pain, how should I treat it?

Flank pain often starts as a little discomfort in the area above one

or both kidneys. It may feel as if a nerve is pinched in that area,

and the skin over the kidneys may be very sensitive to the touch. If

the area over the kidneys is sore — but not the area over the spine —

you should suspect flank pain.

There are no good medical treatments for flank pain. Aspirin can

aggravate bouts of gross hematuria, and doctors warn against using

it in children and teenagers whenever there is a possibility of a

viral infection because of the danger of developing Reye's Syndrome.

Acetaminophen (Tylenol) and ibuprofen (Motrin, Advil) are both

nephrotoxic and should not be taken in quantity for any type of

pain, including headaches. Besides, painkillers appear to have

little effect on flank pain. Similarly, sedatives and muscle-

relaxants like Valium do little once an attack is underway, nor is

there evidence that such heavy-duty painkillers as Demerol or nerve

blocks are effective.

Hypnotherapy, biofeedback, and acupuncture are useful in managing

certain types of pain, but there is no information yet on whether

any of these works with flank pain. Homeopathy is most likely to

offer symptomatic relief that is also safe and non-toxic.

The simplest approach to handling flank pain is to catch it at the

start and apply heat to the area with a hot water bottle, heating

pad, or soaks in a warm bath or shower. Hot castor oil packs over

the affected area may be helpful, if messy.

Try to increase fluid intake during attacks. If you have frequent

attacks, especially of severe spasms of pain, watch your morning

urine specimen carefully. If it is turbid [very cloudy] with a fine,

white sediment, consider taking yourself off ALL dairy, ALL meat

products, and ALL sodas until the urine clears and the pain ends.

Stay away from refined sugar; use lots of fresh fruit and vegetables

and only WHOLE grains. We have no proof that this regimen works for

all, but it is worth a try if you are in severe pain.

It's also a good idea to stay away from caffeine, alcohol, and

tobacco during any exacerbations of the disease. The Network has

also received reports that repeated bending and overuse of the back

may aggravate flank pain. If this is a feature of yours work, you

may need to speak to your employer about possible modifications to

your job.

As with so much of IgAN, we do not know what causes flank pain, and

not knowing the cause makes treatment largely a matter of

experimentation. If you've found something that works for you, we

welcome your suggestions.

>

>

> Hi.

>

> I'm sure this question has been asked before but I couldn't find it

> using the search option.

>

> I was wondering if there is anything that can be done to ease the

pain

> of flank pain that comes with flare ups...besides drugs. Or perhaps

> something that seems to shorten the length that the flare ups last?

>

> Has anybody found something?

>

> PN

[Guest guest]

I'm sorry you are experiencing a flareup. I've never heard anything about

techniques to shorten a flareup. If anybody else has heard of something,

hopefully they will weigh in. I've heard anecdotal reports to the effect that

eating a less protein rich diet helps with flank pain (this was general flank

pain - not that which is associated with a flareup). These were from folks

whose disease was pretty far advanced so I'm not sure whether it is applicable

to you. Before you consider making any dietary changes tho, check with your

doctor. Not getting enough calories or becoming malnourished can be a very big

concern as renal disease progresses.

Cy

poeticnoise wrote:

Hi.

I'm sure this question has been asked before but I couldn't find it

using the search option.

I was wondering if there is anything that can be done to ease the pain

of flank pain that comes with flare ups...besides drugs. Or perhaps

something that seems to shorten the length that the flare ups last?

Has anybody found something?

PN

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Hi PN,

Sorry to hear you are having a flare up. I do not know anything that has

worked to shorten the time span of a flare up unfortunately. For pain control,

I really avoid taking anything for pain at all unless I am really desperate

for relief and even then, my Nephrologist has advised me to take only

Tylenol. Advil and Motrin and Alleve are to be avoided at all costs.

I hope you feel better soon.

In a message dated 4/4/2005 11:56:43 A.M. Pacific Daylight Time,

poeticnoise@... writes:

Hi.

I'm sure this question has been asked before but I couldn't find it

using the search option.

I was wondering if there is anything that can be done to ease the pain

of flank pain that comes with flare ups...besides drugs. Or perhaps

something that seems to shorten the length that the flare ups last?

Has anybody found something?

PN

[Guest guest]

I don't really know of anything that can help with flank pain, short of

narcotic pain killers. Have you tried a hot water bottle or heating pad?

Personally, I wouldn't make any assumptions about severe flank pain just

because you happen to have IgAN. If you haven't done so already, or if it's

a new symptom, I would definitely consult with my doctor. As I've posted

before, the only time I thought I had severe flank pain, I assumed at first

it was the kidney disease, but it turned out to be gallbladder attacks due

to a severely inflamed gallbladder. Pancreatitis is another not uncommon

occurence in people with chronic renal failure (the nephrologists say

there's no relation, but my experience says otherwise). Sometimes, the pain

can seem like flank pain.

Pierre

[Guest guest]

I too have daily flank pain and my kidney areas (both) are very sensitive to the

touch. The pain has now moved around to the abdominal area. I haven't had any

luck with the doctor's yet but I did ask my regular MD to do an IVP and of

course it was normal. I associate my pain with an inflammed feeling and if I

get shaken up too much I'm in horrible pain (ie riding in a car on a bumpy road)

and I now get very nauseated. If anybody has any solutions it would be helpful.

I have been becoming my own doctor and luckily my doctor has been assisting me

to some degree. I requested a copy of my last 2 blood works and my last one was

all over the chart. Some things were high and others were almost high or low

nothing appeared to be consistant. Everyone here is great, I enjoy reading

everyone's progress and I've found it very informative. I've observed that many

of you are taking fish oil vitamins, why? Does it help with the kidney

functioning?

Thanks again,

CC

Re: Flare up relief

I don't really know of anything that can help with flank pain, short of

narcotic pain killers. Have you tried a hot water bottle or heating pad?

Personally, I wouldn't make any assumptions about severe flank pain just

because you happen to have IgAN. If you haven't done so already, or if it's

a new symptom, I would definitely consult with my doctor. As I've posted

before, the only time I thought I had severe flank pain, I assumed at first

it was the kidney disease, but it turned out to be gallbladder attacks due

to a severely inflamed gallbladder. Pancreatitis is another not uncommon

occurence in people with chronic renal failure (the nephrologists say

there's no relation, but my experience says otherwise). Sometimes, the pain

can seem like flank pain.

Pierre

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

------------------------------------------------------------------------------

[Guest guest]

I too have daily flank pain and my kidney areas (both) are very sensitive to the

touch. The pain has now moved around to the abdominal area. I haven't had any

luck with the doctor's yet but I did ask my regular MD to do an IVP and of

course it was normal. I associate my pain with an inflammed feeling and if I

get shaken up too much I'm in horrible pain (ie riding in a car on a bumpy road)

and I now get very nauseated. If anybody has any solutions it would be helpful.

I have been becoming my own doctor and luckily my doctor has been assisting me

to some degree. I requested a copy of my last 2 blood works and my last one was

all over the chart. Some things were high and others were almost high or low

nothing appeared to be consistant. Everyone here is great, I enjoy reading

everyone's progress and I've found it very informative. I've observed that many

of you are taking fish oil vitamins, why? Does it help with the kidney

functioning?

Thanks again,

CC

Re: Flare up relief

I don't really know of anything that can help with flank pain, short of

narcotic pain killers. Have you tried a hot water bottle or heating pad?

Personally, I wouldn't make any assumptions about severe flank pain just

because you happen to have IgAN. If you haven't done so already, or if it's

a new symptom, I would definitely consult with my doctor. As I've posted

before, the only time I thought I had severe flank pain, I assumed at first

it was the kidney disease, but it turned out to be gallbladder attacks due

to a severely inflamed gallbladder. Pancreatitis is another not uncommon

occurence in people with chronic renal failure (the nephrologists say

there's no relation, but my experience says otherwise). Sometimes, the pain

can seem like flank pain.

Pierre

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

------------------------------------------------------------------------------

[Guest guest]

I too have daily flank pain and my kidney areas (both) are very sensitive to the

touch. The pain has now moved around to the abdominal area. I haven't had any

luck with the doctor's yet but I did ask my regular MD to do an IVP and of

course it was normal. I associate my pain with an inflammed feeling and if I

get shaken up too much I'm in horrible pain (ie riding in a car on a bumpy road)

and I now get very nauseated. If anybody has any solutions it would be helpful.

I have been becoming my own doctor and luckily my doctor has been assisting me

to some degree. I requested a copy of my last 2 blood works and my last one was

all over the chart. Some things were high and others were almost high or low

nothing appeared to be consistant. Everyone here is great, I enjoy reading

everyone's progress and I've found it very informative. I've observed that many

of you are taking fish oil vitamins, why? Does it help with the kidney

functioning?

Thanks again,

CC

Re: Flare up relief

I don't really know of anything that can help with flank pain, short of

narcotic pain killers. Have you tried a hot water bottle or heating pad?

Personally, I wouldn't make any assumptions about severe flank pain just

because you happen to have IgAN. If you haven't done so already, or if it's

a new symptom, I would definitely consult with my doctor. As I've posted

before, the only time I thought I had severe flank pain, I assumed at first

it was the kidney disease, but it turned out to be gallbladder attacks due

to a severely inflamed gallbladder. Pancreatitis is another not uncommon

occurence in people with chronic renal failure (the nephrologists say

there's no relation, but my experience says otherwise). Sometimes, the pain

can seem like flank pain.

Pierre

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

------------------------------------------------------------------------------

[Guest guest]

Carla,

I too deal with flank pain daily. There isnt much that I have found

that helps, except pain killer (which my PCP is happy to prescribe)

but I try to avoid those things unless absolutelly nessasarry. I

talked to my neph about it and he just told me to see my PCP. He kind

of told me its par for the coarse and there wasnt to much to be done.

I hot bath helps alot.

Hope you fell better

>

> I too have daily flank pain and my kidney areas (both) are very

sensitive to the touch. The pain has now moved around to the abdominal

area. I haven't had any luck with the doctor's yet but I did ask my

regular MD to do an IVP and of course it was normal. I associate my

pain with an inflammed feeling and if I get shaken up too much I'm in

horrible pain (ie riding in a car on a bumpy road) and I now get very

nauseated. If anybody has any solutions it would be helpful. I have

been becoming my own doctor and luckily my doctor has been assisting

me to some degree. I requested a copy of my last 2 blood works and my

last one was all over the chart. Some things were high and others

were almost high or low nothing appeared to be consistant. Everyone

here is great, I enjoy reading everyone's progress and I've found it

very informative. I've observed that many of you are taking fish oil

vitamins, why? Does it help with the kidney functioning?

> Thanks again,

> CC

> Re: Flare up relief

>

>

> I don't really know of anything that can help with flank pain,

short of

> narcotic pain killers. Have you tried a hot water bottle or

heating pad?

>

> Personally, I wouldn't make any assumptions about severe flank

pain just

> because you happen to have IgAN. If you haven't done so already,

or if it's

> a new symptom, I would definitely consult with my doctor. As I've

posted

> before, the only time I thought I had severe flank pain, I assumed

at first

> it was the kidney disease, but it turned out to be gallbladder

attacks due

> to a severely inflamed gallbladder. Pancreatitis is another not

uncommon

> occurence in people with chronic renal failure (the nephrologists say

> there's no relation, but my experience says otherwise). Sometimes,

the pain

> can seem like flank pain.

>

> Pierre

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

>

>

------------------------------------------------------------------------------

>

[Guest guest]

Carla,

I too deal with flank pain daily. There isnt much that I have found

that helps, except pain killer (which my PCP is happy to prescribe)

but I try to avoid those things unless absolutelly nessasarry. I

talked to my neph about it and he just told me to see my PCP. He kind

of told me its par for the coarse and there wasnt to much to be done.

I hot bath helps alot.

Hope you fell better

>

> I too have daily flank pain and my kidney areas (both) are very

sensitive to the touch. The pain has now moved around to the abdominal

area. I haven't had any luck with the doctor's yet but I did ask my

regular MD to do an IVP and of course it was normal. I associate my

pain with an inflammed feeling and if I get shaken up too much I'm in

horrible pain (ie riding in a car on a bumpy road) and I now get very

nauseated. If anybody has any solutions it would be helpful. I have

been becoming my own doctor and luckily my doctor has been assisting

me to some degree. I requested a copy of my last 2 blood works and my

last one was all over the chart. Some things were high and others

were almost high or low nothing appeared to be consistant. Everyone

here is great, I enjoy reading everyone's progress and I've found it

very informative. I've observed that many of you are taking fish oil

vitamins, why? Does it help with the kidney functioning?

> Thanks again,

> CC

> Re: Flare up relief

>

>

> I don't really know of anything that can help with flank pain,

short of

> narcotic pain killers. Have you tried a hot water bottle or

heating pad?

>

> Personally, I wouldn't make any assumptions about severe flank

pain just

> because you happen to have IgAN. If you haven't done so already,

or if it's

> a new symptom, I would definitely consult with my doctor. As I've

posted

> before, the only time I thought I had severe flank pain, I assumed

at first

> it was the kidney disease, but it turned out to be gallbladder

attacks due

> to a severely inflamed gallbladder. Pancreatitis is another not

uncommon

> occurence in people with chronic renal failure (the nephrologists say

> there's no relation, but my experience says otherwise). Sometimes,

the pain

> can seem like flank pain.

>

> Pierre

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

>

>

------------------------------------------------------------------------------

>

[Guest guest]

Carla,

I too deal with flank pain daily. There isnt much that I have found

that helps, except pain killer (which my PCP is happy to prescribe)

but I try to avoid those things unless absolutelly nessasarry. I

talked to my neph about it and he just told me to see my PCP. He kind

of told me its par for the coarse and there wasnt to much to be done.

I hot bath helps alot.

Hope you fell better

>

> I too have daily flank pain and my kidney areas (both) are very

sensitive to the touch. The pain has now moved around to the abdominal

area. I haven't had any luck with the doctor's yet but I did ask my

regular MD to do an IVP and of course it was normal. I associate my

pain with an inflammed feeling and if I get shaken up too much I'm in

horrible pain (ie riding in a car on a bumpy road) and I now get very

nauseated. If anybody has any solutions it would be helpful. I have

been becoming my own doctor and luckily my doctor has been assisting

me to some degree. I requested a copy of my last 2 blood works and my

last one was all over the chart. Some things were high and others

were almost high or low nothing appeared to be consistant. Everyone

here is great, I enjoy reading everyone's progress and I've found it

very informative. I've observed that many of you are taking fish oil

vitamins, why? Does it help with the kidney functioning?

> Thanks again,

> CC

> Re: Flare up relief

>

>

> I don't really know of anything that can help with flank pain,

short of

> narcotic pain killers. Have you tried a hot water bottle or

heating pad?

>

> Personally, I wouldn't make any assumptions about severe flank

pain just

> because you happen to have IgAN. If you haven't done so already,

or if it's

> a new symptom, I would definitely consult with my doctor. As I've

posted

> before, the only time I thought I had severe flank pain, I assumed

at first

> it was the kidney disease, but it turned out to be gallbladder

attacks due

> to a severely inflamed gallbladder. Pancreatitis is another not

uncommon

> occurence in people with chronic renal failure (the nephrologists say

> there's no relation, but my experience says otherwise). Sometimes,

the pain

> can seem like flank pain.

>

> Pierre

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

>

>

------------------------------------------------------------------------------

>

[Guest guest]

Those drugs are known to have some nephrotoxic effects. Under normal

dosage and usage they don't affect the general population too much

(extended use of greater than six months is supposed to require blood test

to monitor kidney damage), but not a good idea for those of us trying to

preserve whatever kidney function we have!

Avoid the following medicines (probably not a comprehensive list):

Chemical Name Trade Name

Fenoprofen

Nalfon

Flurbiprofen

Ansaid

Ibuprofen

Advil, Motrin, Nuprin

Ketoprofen

Actron, Orudis, Oruvail

Naproxen

Aleve, Anaprox, Naprelan, Naprosyn

Oxaprozin

Daypro

-

poeticnoise

04/06/2005 11:19 AM

Please respond to iga-nephropathy

To: iga-nephropathy

cc:

Subject: Re: Flare up relief

Wow. Why is Advil, Motrin and Alleve supposed to be avoided?

I've been using advil.

PN

>

> Hi PN,

>

> Sorry to hear you are having a flare up. I do not know anything

that has

> worked to shorten the time span of a flare up unfortunately. For

pain control,

> I really avoid taking anything for pain at all unless I am really

desperate

> for relief and even then, my Nephrologist has advised me to take only

> Tylenol. Advil and Motrin and Alleve are to be avoided at all costs.

>

> I hope you feel better soon.

>

>

> In a message dated 4/4/2005 11:56:43 A.M. Pacific Daylight Time,

> poeticnoise@y... writes:

>

> Hi.

>

> I'm sure this question has been asked before but I couldn't find it

> using the search option.

>

> I was wondering if there is anything that can be done to ease the pain

> of flank pain that comes with flare ups...besides drugs. Or perhaps

> something that seems to shorten the length that the flare ups last?

>

> Has anybody found something?

>

> PN

>

>

>

>

>

>

[Guest guest]

Those drugs are known to have some nephrotoxic effects. Under normal

dosage and usage they don't affect the general population too much

(extended use of greater than six months is supposed to require blood test

to monitor kidney damage), but not a good idea for those of us trying to

preserve whatever kidney function we have!

Avoid the following medicines (probably not a comprehensive list):

Chemical Name Trade Name

Fenoprofen

Nalfon

Flurbiprofen

Ansaid

Ibuprofen

Advil, Motrin, Nuprin

Ketoprofen

Actron, Orudis, Oruvail

Naproxen

Aleve, Anaprox, Naprelan, Naprosyn

Oxaprozin

Daypro

-

poeticnoise

04/06/2005 11:19 AM

Please respond to iga-nephropathy

To: iga-nephropathy

cc:

Subject: Re: Flare up relief

Wow. Why is Advil, Motrin and Alleve supposed to be avoided?

I've been using advil.

PN

>

> Hi PN,

>

> Sorry to hear you are having a flare up. I do not know anything

that has

> worked to shorten the time span of a flare up unfortunately. For

pain control,

> I really avoid taking anything for pain at all unless I am really

desperate

> for relief and even then, my Nephrologist has advised me to take only

> Tylenol. Advil and Motrin and Alleve are to be avoided at all costs.

>

> I hope you feel better soon.

>

>

> In a message dated 4/4/2005 11:56:43 A.M. Pacific Daylight Time,

> poeticnoise@y... writes:

>

> Hi.

>

> I'm sure this question has been asked before but I couldn't find it

> using the search option.

>

> I was wondering if there is anything that can be done to ease the pain

> of flank pain that comes with flare ups...besides drugs. Or perhaps

> something that seems to shorten the length that the flare ups last?

>

> Has anybody found something?

>

> PN

>

>

>

>

>

>

[Guest guest]

Those drugs are known to have some nephrotoxic effects. Under normal

dosage and usage they don't affect the general population too much

(extended use of greater than six months is supposed to require blood test

to monitor kidney damage), but not a good idea for those of us trying to

preserve whatever kidney function we have!

Avoid the following medicines (probably not a comprehensive list):

Chemical Name Trade Name

Fenoprofen

Nalfon

Flurbiprofen

Ansaid

Ibuprofen

Advil, Motrin, Nuprin

Ketoprofen

Actron, Orudis, Oruvail

Naproxen

Aleve, Anaprox, Naprelan, Naprosyn

Oxaprozin

Daypro

-

poeticnoise

04/06/2005 11:19 AM

Please respond to iga-nephropathy

To: iga-nephropathy

cc:

Subject: Re: Flare up relief

Wow. Why is Advil, Motrin and Alleve supposed to be avoided?

I've been using advil.

PN

>

> Hi PN,

>

> Sorry to hear you are having a flare up. I do not know anything

that has

> worked to shorten the time span of a flare up unfortunately. For

pain control,

> I really avoid taking anything for pain at all unless I am really

desperate

> for relief and even then, my Nephrologist has advised me to take only

> Tylenol. Advil and Motrin and Alleve are to be avoided at all costs.

>

> I hope you feel better soon.

>

>

> In a message dated 4/4/2005 11:56:43 A.M. Pacific Daylight Time,

> poeticnoise@y... writes:

>

> Hi.

>

> I'm sure this question has been asked before but I couldn't find it

> using the search option.

>

> I was wondering if there is anything that can be done to ease the pain

> of flank pain that comes with flare ups...besides drugs. Or perhaps

> something that seems to shorten the length that the flare ups last?

>

> Has anybody found something?

>

> PN

>

>

>

>

>

>

[Guest guest]

Oops - Apparently the chart of chemical names and trade names I made in my

last response didn't come through correctly!

Sorry about that!

-

[Guest guest]

Hi PN,

I'm not sure of the specific mechanism, but excessive use of ibuprofen can

cause analgesic nephropathy in healthy people. In patients who already have

kidney disease, it becomes all that more dangerous.

While our neph indicated that this is may not present an immediate danger to

patients whose disease is not particular advanced, she urged avoiding it

altogether to prevent cumulative damage. In patients with advanced disease,

it becomes even more dangerous. Several months prior to a friend's transplant,

my friend's neph told him that " he could kill off his remaining kidney function

with just about six Advil " .

Do check with your doctor on this.

Cy

poeticnoise wrote:

Wow. Why is Advil, Motrin and Alleve supposed to be avoided?

I've been using advil.

PN

>

> Hi PN,

>

> Sorry to hear you are having a flare up. I do not know anything

that has

> worked to shorten the time span of a flare up unfortunately. For

pain control,

> I really avoid taking anything for pain at all unless I am really

desperate

> for relief and even then, my Nephrologist has advised me to take only

> Tylenol. Advil and Motrin and Alleve are to be avoided at all costs.

>

> I hope you feel better soon.

>

>

> In a message dated 4/4/2005 11:56:43 A.M. Pacific Daylight Time,

> poeticnoise@y... writes:

>

> Hi.

>

> I'm sure this question has been asked before but I couldn't find it

> using the search option.

>

> I was wondering if there is anything that can be done to ease the pain

> of flank pain that comes with flare ups...besides drugs. Or perhaps

> something that seems to shorten the length that the flare ups last?

>

> Has anybody found something?

>

> PN

>

>

>

>

>

>

[Guest guest]

Hi PN,

I'm not sure of the specific mechanism, but excessive use of ibuprofen can

cause analgesic nephropathy in healthy people. In patients who already have

kidney disease, it becomes all that more dangerous.

While our neph indicated that this is may not present an immediate danger to

patients whose disease is not particular advanced, she urged avoiding it

altogether to prevent cumulative damage. In patients with advanced disease,

it becomes even more dangerous. Several months prior to a friend's transplant,

my friend's neph told him that " he could kill off his remaining kidney function

with just about six Advil " .

Do check with your doctor on this.

Cy

poeticnoise wrote:

Wow. Why is Advil, Motrin and Alleve supposed to be avoided?

I've been using advil.

PN

>

> Hi PN,

>

> Sorry to hear you are having a flare up. I do not know anything

that has

> worked to shorten the time span of a flare up unfortunately. For

pain control,

> I really avoid taking anything for pain at all unless I am really

desperate

> for relief and even then, my Nephrologist has advised me to take only

> Tylenol. Advil and Motrin and Alleve are to be avoided at all costs.

>

> I hope you feel better soon.

>

>

> In a message dated 4/4/2005 11:56:43 A.M. Pacific Daylight Time,

> poeticnoise@y... writes:

>

> Hi.

>

> I'm sure this question has been asked before but I couldn't find it

> using the search option.

>

> I was wondering if there is anything that can be done to ease the pain

> of flank pain that comes with flare ups...besides drugs. Or perhaps

> something that seems to shorten the length that the flare ups last?

>

> Has anybody found something?

>

> PN

>

>

>

>

>

>

[Guest guest]

Hi PN,

I'm not sure of the specific mechanism, but excessive use of ibuprofen can

cause analgesic nephropathy in healthy people. In patients who already have

kidney disease, it becomes all that more dangerous.

While our neph indicated that this is may not present an immediate danger to

patients whose disease is not particular advanced, she urged avoiding it

altogether to prevent cumulative damage. In patients with advanced disease,

it becomes even more dangerous. Several months prior to a friend's transplant,

my friend's neph told him that " he could kill off his remaining kidney function

with just about six Advil " .

Do check with your doctor on this.

Cy

poeticnoise wrote:

Wow. Why is Advil, Motrin and Alleve supposed to be avoided?

I've been using advil.

PN

>

> Hi PN,

>

> Sorry to hear you are having a flare up. I do not know anything

that has

> worked to shorten the time span of a flare up unfortunately. For

pain control,

> I really avoid taking anything for pain at all unless I am really

desperate

> for relief and even then, my Nephrologist has advised me to take only

> Tylenol. Advil and Motrin and Alleve are to be avoided at all costs.

>

> I hope you feel better soon.

>

>

> In a message dated 4/4/2005 11:56:43 A.M. Pacific Daylight Time,

> poeticnoise@y... writes:

>

> Hi.

>

> I'm sure this question has been asked before but I couldn't find it

> using the search option.

>

> I was wondering if there is anything that can be done to ease the pain

> of flank pain that comes with flare ups...besides drugs. Or perhaps

> something that seems to shorten the length that the flare ups last?

>

> Has anybody found something?

>

> PN

>

>

>

>

>

>

[Guest guest]

This can be serious stuff. I know a couple of people whose only known reason

for having developed kidney failure and being on dialysis is long term,

frequent use of the ibuprofen painkillers.

Pierre

Re: Flare up relief

>

> Those drugs are known to have some nephrotoxic effects. Under normal

> dosage and usage they don't affect the general population too much

> (extended use of greater than six months is supposed to require blood test

> to monitor kidney damage), but not a good idea for those of us trying to

> preserve whatever kidney function we have!

> Avoid the following medicines (probably not a comprehensive list):

>

> Chemical Name Trade Name

> Fenoprofen

> Nalfon

> Flurbiprofen

> Ansaid

> Ibuprofen

> Advil, Motrin, Nuprin

> Ketoprofen

> Actron, Orudis, Oruvail

> Naproxen

> Aleve, Anaprox, Naprelan, Naprosyn

> Oxaprozin

> Daypro

>

>

> -

>

[Guest guest]

This can be serious stuff. I know a couple of people whose only known reason

for having developed kidney failure and being on dialysis is long term,

frequent use of the ibuprofen painkillers.

Pierre

Re: Flare up relief

>

> Those drugs are known to have some nephrotoxic effects. Under normal

> dosage and usage they don't affect the general population too much

> (extended use of greater than six months is supposed to require blood test

> to monitor kidney damage), but not a good idea for those of us trying to

> preserve whatever kidney function we have!

> Avoid the following medicines (probably not a comprehensive list):

>

> Chemical Name Trade Name

> Fenoprofen

> Nalfon

> Flurbiprofen

> Ansaid

> Ibuprofen

> Advil, Motrin, Nuprin

> Ketoprofen

> Actron, Orudis, Oruvail

> Naproxen

> Aleve, Anaprox, Naprelan, Naprosyn

> Oxaprozin

> Daypro

>

>

> -

>

[Guest guest]

Not a problem ! It's always nice to have a list of any sort.

Cy

W Favors wrote:

Oops - Apparently the chart of chemical names and trade names I made in my

last response didn't come through correctly!

Sorry about that!

-

[Guest guest]

Not a problem ! It's always nice to have a list of any sort.

Cy

W Favors wrote:

Oops - Apparently the chart of chemical names and trade names I made in my

last response didn't come through correctly!

Sorry about that!

-

[Guest guest]

Not a problem ! It's always nice to have a list of any sort.

Cy

W Favors wrote:

Oops - Apparently the chart of chemical names and trade names I made in my

last response didn't come through correctly!

Sorry about that!

-

[Guest guest]

Alrighty. So for people with relatively normal kidney function it's

alright to take Advil. This information is actually for my fiance.

She's was diagnosed about 5 years ago. She's doing okay but about 5

times a year she gets flare ups with bad flank pain. However, her labs

are okay. It's pretty hard on her. She gets very depressed. She's

such an upbeat and active person; however, when the flare up comes it

just knocks her out. ly, I'm worried about how she will deal

with it if it will eventually progress.

I wish she'd do more research herself but it seems that she prefers

to...for a lack of better word...ignore it. But at this stage I kind

of understand her. Thinking about it too much at this stage, where

you can't really do much, can drive you crazy.

Thank you all for your help. I can definitely say that this site has

helped me deal with it.

PN

>

> Oops - Apparently the chart of chemical names and trade names I made

in my

> last response didn't come through correctly!

>

> Sorry about that!

> -

>

>