Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 Hi , Well, even if casting won't help it's worth a try before going under the knife isn't it? At this point - I'd be a little concerned about the dr. who doesn't want to cast a child doing his absolute best at casting if you manage to convince him to do it. Is this Dr. Mosca? I hear he's great so if it's him maybe he's got something there... but what's it going to hurt to *try* casting first?. Especially if Dr. P thinks it's worth a try. Can't hurt, could possibly help right? I don't get why not... Kori Mama of Kenton 6/98 Merek 3/00 Darbi 3/03 - Rt. CF - DBB 12hr/day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 , I would suggest that you ask your doctor to call Dr. Ponseti or Dr. Morcuende directly to consult about your son's treatment. If he can explain to Dr. Ponseti about what he physically feels when he examines your son's foot, then Dr. P can take that into account. Otherwise, he's just going off of the pictures for a diagnosis. He may concur with your doctor's viewpoint, or he might give him some things to try before proceding with the ATTT. Keep us posted! & (3-16-00) left clubfoot > Hello, all, > > Thanks to everyone's excellent advice we sent pics to Dr. P of Evan's > feet (8-17-00, bilateral cf, tenotomy age 3 mo, FAB until age 2, now > relapsing?). He emailed right back (the man is amazing) and said that > we should try recasting for the relapse and then back into the FAB. > If this failed, then the only alternative is ATTT. So I called our > Dr. here in Seattle who is a Ponseti believer! He was happy that we > had contacted Dr. P., however, he is not sure that Evan has a true > relapse as his feet are still remarkably flexible. And this is true. > It is just when he starts to walk that they crank in. They do point > in when he sits with feet straight out in front but when hanging down > at a 90 degree angle, they look GREAT. Our dr's opinion is that Evan > has overactivity of the anterior tibialis and that casting may not > help this at all. He thinks the only answer is ATTT. Our doc is > going to consult with another Ponseti trained dr. in the practice and > get back to me. So, of course, we don't know what to do! This is SO > frustrating and time is going by. Anyone have experience with > overactive anterior tibialis? > > and Evan. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 I have a similar situation, my son, 11 months, looks like he's relapsing on one foot because it's beginning to turn down but it's extremely flexible. Our doc also said it's not a relapse but i'm still nervous. Can you keep us posted on what the second doc. said? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 I have a similar situation, my son, 11 months, looks like he's relapsing on one foot because it's beginning to turn down but it's extremely flexible. Our doc also said it's not a relapse but i'm still nervous. Can you keep us posted on what the second doc. said? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 I have a similar situation, my son, 11 months, looks like he's relapsing on one foot because it's beginning to turn down but it's extremely flexible. Our doc also said it's not a relapse but i'm still nervous. Can you keep us posted on what the second doc. said? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 I am also currious to know who your doctor is in Seattle? Also, did he watch Evan walk or just observe him sitting and moving his feet? Our son sees Dr Mosca in Seattle, although he has also seen Dr Ponseti. Angel > Hello, all, > > Thanks to everyone's excellent advice we sent pics to Dr. P of Evan's > feet (8-17-00, bilateral cf, tenotomy age 3 mo, FAB until age 2, now > relapsing?). He emailed right back (the man is amazing) and said that > we should try recasting for the relapse and then back into the FAB. > If this failed, then the only alternative is ATTT. So I called our > Dr. here in Seattle who is a Ponseti believer! He was happy that we > had contacted Dr. P., however, he is not sure that Evan has a true > relapse as his feet are still remarkably flexible. And this is true. > It is just when he starts to walk that they crank in. They do point > in when he sits with feet straight out in front but when hanging down > at a 90 degree angle, they look GREAT. Our dr's opinion is that Evan > has overactivity of the anterior tibialis and that casting may not > help this at all. He thinks the only answer is ATTT. Our doc is > going to consult with another Ponseti trained dr. in the practice and > get back to me. So, of course, we don't know what to do! This is SO > frustrating and time is going by. Anyone have experience with > overactive anterior tibialis? > > and Evan. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 I am also currious to know who your doctor is in Seattle? Also, did he watch Evan walk or just observe him sitting and moving his feet? Our son sees Dr Mosca in Seattle, although he has also seen Dr Ponseti. Angel > Hello, all, > > Thanks to everyone's excellent advice we sent pics to Dr. P of Evan's > feet (8-17-00, bilateral cf, tenotomy age 3 mo, FAB until age 2, now > relapsing?). He emailed right back (the man is amazing) and said that > we should try recasting for the relapse and then back into the FAB. > If this failed, then the only alternative is ATTT. So I called our > Dr. here in Seattle who is a Ponseti believer! He was happy that we > had contacted Dr. P., however, he is not sure that Evan has a true > relapse as his feet are still remarkably flexible. And this is true. > It is just when he starts to walk that they crank in. They do point > in when he sits with feet straight out in front but when hanging down > at a 90 degree angle, they look GREAT. Our dr's opinion is that Evan > has overactivity of the anterior tibialis and that casting may not > help this at all. He thinks the only answer is ATTT. Our doc is > going to consult with another Ponseti trained dr. in the practice and > get back to me. So, of course, we don't know what to do! This is SO > frustrating and time is going by. Anyone have experience with > overactive anterior tibialis? > > and Evan. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2004 Report Share Posted May 6, 2004 Thanks for all the suggestions--it helps so much. It seems, though, that no one has had this exact diagnosis of overactive anterior tibialis. Trust us to do the unusual! Drives me nuts. Yes, Kori, I totally agree with you that it is still worth casting to just see what happens. Our dr. is willing to try--told me to go ahead and make the appt., but he's just not sure that it will help. So he's going to consult with Dr. Mosca just to make sure he's not missing something. I really appreciate his honesty and willingness to work with us on this. , that's a good idea to suggest that he consult directly with Dr. P. I will mention to him that Dr. P. is willing to do this and see what he says. You see Dr. Mosca, Angel? We see Dr. Schmale at Children's. He's in the same clinic as Mosca and they work closely together. In fact, Mosca did one of Evan's tenotomies and then Schmale did the other with Mosca's supervision. I guess it was a learning experience for Schmale to do it in the clinic instead of the OR. (Which by the way, I thought was a nightmare as Evan screamed like a wild animal while they did the tenotomy. The topical anesthetic was NOT ENOUGH!) Do you live in the Seattle area or do I remember that you're from Oregon? , is your boy wearing the FAB? This didn't start with Evan until about a year after he was out of the brace. So yes, I'll keep you posted on what happens in this relapse that's not a relapse. If any other thought occur to you, please let me know! > I have a similar situation, my son, 11 months, looks like he's relapsing on > one foot because it's beginning to turn down but it's extremely flexible. Our > doc also said it's not a relapse but i'm still nervous. Can you keep us posted > on what the second doc. said? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2004 Report Share Posted May 6, 2004 - > You see Dr. Mosca, Angel? We see Dr. Schmale at Children's. He's in > the same clinic as Mosca and they work closely together. In fact, > Mosca did one of Evan's tenotomies and then Schmale did the other > with Mosca's supervision. I guess it was a learning experience for > Schmale to do it in the clinic instead of the OR. (Which by the way, > I thought was a nightmare as Evan screamed like a wild animal while > they did the tenotomy. The topical anesthetic was NOT ENOUGH!) Do > you live in the Seattle area or do I remember that you're from Oregon? Yes, our son, Kai, sees Dr Mosca. We are from Yakima and we travel over to Children's for his treatment. Dr Mosca is great and has some very recent experience with unusual problems is a clubfoot. My son has both loose ligaments and tight ones (they are usually mutually exclusive). I hope he is able to give more input or to suggest a different kind of casting for your son. Dr Ponseti and Dr Mosca had to used *different* than normal manipulation for Kai to get results. I am sorry to hear your experience with the tenotomy was so awful, but I am not so sure about the local. When Kai had his tenotomy, there was a little girl who was having one done right before him. That little girl did not so much as peep when they did hers, and Kai screamed like a banshee through the whole thing and for the entire casting and beyond. But he used to scream every time Dr Mosca or Sam got near him so .... LOL Anyway, let us know what Dr Mosca and Dr Schmale have to say! Angel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2004 Report Share Posted May 6, 2004 At 10:59 AM 5/6/2004, you wrote: >Do >you live in the Seattle area or do I remember that you're from Oregon? no, that's me. In Oregon that is. Sounds like you're totally on the ball with this. Good Mama! Kori Mama of Kenton - 6/98 Merek - 3/00 Darbi - 3/28/03 - Rt. CF - DBB 12hr/d (¨`·.·´¨) `·.¸(¨`·.·´¨) `·.¸.·´ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2004 Report Share Posted May 6, 2004 , We see Dr. Mosca too. He did Rose's tenotony last June. She also screamed until she screamed herself out. With Rose, he couldn't feel her tendon because of the way her babyfat had distributed itself under her cast. We had to stay an extra day with the cast off for her fat to redistibute enough for him to feel the tendon. They put the cream on Rose's ankle, but couldn;t give her the novocaine until after the tendon was cut. I don't know if that was just Rose or if that is all babies. I remember after he put the cast on, Rose was asleep. He said he would remember her like that! We see another ortho here in Alaska every three months just to watch for relapses and he reports his findings to Dr. Mosca. I am in contact by email with Dr. Mosca and have spoken to him on the phone when necessary, also he will examine Rose in June. Another thing, about three months after Rose went to 10-12 hours per night, her foot started to curve. Dr. Schwartz here in AK showed me that her foot was completely flexible, just not straight anymore. Dr. Schwartz suggested a reverse-last shoe and I proposed this to Dr. Mosca. He wanted to do casts, but agreed to try the r/l shoe since her foot was still flexible. We will also find out the outcome of that experiment when we go south in June. Anyway, perhaps the reverse/last shoes on the DBB may be the way to straighten out Evan's feet. It seems to have worked for Rose but we will know for sure next month. Robin & Rose 3/12/03 Right club foot. shelleylapp dslapp@...> wrote: Thanks for all the suggestions--it helps so much. It seems, though, that no one has had this exact diagnosis of overactive anterior tibialis. Trust us to do the unusual! Drives me nuts. Yes, Kori, I totally agree with you that it is still worth casting to just see what happens. Our dr. is willing to try--told me to go ahead and make the appt., but he's just not sure that it will help. So he's going to consult with Dr. Mosca just to make sure he's not missing something. I really appreciate his honesty and willingness to work with us on this. , that's a good idea to suggest that he consult directly with Dr. P. I will mention to him that Dr. P. is willing to do this and see what he says. You see Dr. Mosca, Angel? We see Dr. Schmale at Children's. He's in the same clinic as Mosca and they work closely together. In fact, Mosca did one of Evan's tenotomies and then Schmale did the other with Mosca's supervision. I guess it was a learning experience for Schmale to do it in the clinic instead of the OR. (Which by the way, I thought was a nightmare as Evan screamed like a wild animal while they did the tenotomy. The topical anesthetic was NOT ENOUGH!) Do you live in the Seattle area or do I remember that you're from Oregon? , is your boy wearing the FAB? This didn't start with Evan until about a year after he was out of the brace. So yes, I'll keep you posted on what happens in this relapse that's not a relapse. If any other thought occur to you, please let me know! > I have a similar situation, my son, 11 months, looks like he's relapsing on > one foot because it's beginning to turn down but it's extremely flexible. Our > doc also said it's not a relapse but i'm still nervous. Can you keep us posted > on what the second doc. said? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2004 Report Share Posted May 6, 2004 Robin, Evan didn't get novocaine at all for the tenotomy--just Tylenol and the topical anesthetic. Even though it was over three years ago I still get all teary thinking about it and hearing the screams in my head. Thank goodness my husband had the job of holding Evan on the table. I was sobbing my head off and the nurse kept inching closer to me. I think she thought I was going to pass right out! I am not squeamish--it was just the crying that got me. Anyway...it's in the past thank goodness. That is interesting about the reverse shoes. Was it just her foot itself curving? Or the whole foot turning inward as in pigeon toed? Maybe we should request an appt with Dr. Mosca. It's not that we don't trust Dr. Schmale AT ALL, it's just that he freely admits that he's not quite sure what's going on or if the casting is the right thing to do. > > I have a similar situation, my son, 11 months, looks like he's > relapsing on > > one foot because it's beginning to turn down but it's extremely > flexible. Our > > doc also said it's not a relapse but i'm still nervous. Can you > keep us posted > > on what the second doc. said? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2004 Report Share Posted May 6, 2004 Robin, Evan didn't get novocaine at all for the tenotomy--just Tylenol and the topical anesthetic. Even though it was over three years ago I still get all teary thinking about it and hearing the screams in my head. Thank goodness my husband had the job of holding Evan on the table. I was sobbing my head off and the nurse kept inching closer to me. I think she thought I was going to pass right out! I am not squeamish--it was just the crying that got me. Anyway...it's in the past thank goodness. That is interesting about the reverse shoes. Was it just her foot itself curving? Or the whole foot turning inward as in pigeon toed? Maybe we should request an appt with Dr. Mosca. It's not that we don't trust Dr. Schmale AT ALL, it's just that he freely admits that he's not quite sure what's going on or if the casting is the right thing to do. > > I have a similar situation, my son, 11 months, looks like he's > relapsing on > > one foot because it's beginning to turn down but it's extremely > flexible. Our > > doc also said it's not a relapse but i'm still nervous. Can you > keep us posted > > on what the second doc. said? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2004 Report Share Posted May 6, 2004 , I remember too. It was the worst. I lost it about an hour before the tenotony and had to leave the room and go walk the halls. I so wanted to scoop my baby up and leave that place but I knew that someday she would need to walk. It was the hardest thing I have ever had to do. I actually held Rose down during the tenotony. The outside of Rose's foot was no longer straight, it was just a little curved. Dr. Schwartz words to me were " her foot is almost perfect " . After he pointed it out to me, I could see the curve and I could see it inside her shoe where her foot pushed the leather out of the way. I will email you privately my email correspondence with Dr. Mosca just FYI. Robin & Rose shelleylapp dslapp@...> wrote: Robin, Evan didn't get novocaine at all for the tenotomy--just Tylenol and the topical anesthetic. Even though it was over three years ago I still get all teary thinking about it and hearing the screams in my head. Thank goodness my husband had the job of holding Evan on the table. I was sobbing my head off and the nurse kept inching closer to me. I think she thought I was going to pass right out! I am not squeamish--it was just the crying that got me. Anyway...it's in the past thank goodness. That is interesting about the reverse shoes. Was it just her foot itself curving? Or the whole foot turning inward as in pigeon toed? Maybe we should request an appt with Dr. Mosca. It's not that we don't trust Dr. Schmale AT ALL, it's just that he freely admits that he's not quite sure what's going on or if the casting is the right thing to do. > > I have a similar situation, my son, 11 months, looks like he's > relapsing on > > one foot because it's beginning to turn down but it's extremely > flexible. Our > > doc also said it's not a relapse but i'm still nervous. Can you > keep us posted > > on what the second doc. said? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2004 Report Share Posted May 6, 2004 , I remember too. It was the worst. I lost it about an hour before the tenotony and had to leave the room and go walk the halls. I so wanted to scoop my baby up and leave that place but I knew that someday she would need to walk. It was the hardest thing I have ever had to do. I actually held Rose down during the tenotony. The outside of Rose's foot was no longer straight, it was just a little curved. Dr. Schwartz words to me were " her foot is almost perfect " . After he pointed it out to me, I could see the curve and I could see it inside her shoe where her foot pushed the leather out of the way. I will email you privately my email correspondence with Dr. Mosca just FYI. Robin & Rose shelleylapp dslapp@...> wrote: Robin, Evan didn't get novocaine at all for the tenotomy--just Tylenol and the topical anesthetic. Even though it was over three years ago I still get all teary thinking about it and hearing the screams in my head. Thank goodness my husband had the job of holding Evan on the table. I was sobbing my head off and the nurse kept inching closer to me. I think she thought I was going to pass right out! I am not squeamish--it was just the crying that got me. Anyway...it's in the past thank goodness. That is interesting about the reverse shoes. Was it just her foot itself curving? Or the whole foot turning inward as in pigeon toed? Maybe we should request an appt with Dr. Mosca. It's not that we don't trust Dr. Schmale AT ALL, it's just that he freely admits that he's not quite sure what's going on or if the casting is the right thing to do. > > I have a similar situation, my son, 11 months, looks like he's > relapsing on > > one foot because it's beginning to turn down but it's extremely > flexible. Our > > doc also said it's not a relapse but i'm still nervous. Can you > keep us posted > > on what the second doc. said? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2004 Report Share Posted May 6, 2004 , I remember too. It was the worst. I lost it about an hour before the tenotony and had to leave the room and go walk the halls. I so wanted to scoop my baby up and leave that place but I knew that someday she would need to walk. It was the hardest thing I have ever had to do. I actually held Rose down during the tenotony. The outside of Rose's foot was no longer straight, it was just a little curved. Dr. Schwartz words to me were " her foot is almost perfect " . After he pointed it out to me, I could see the curve and I could see it inside her shoe where her foot pushed the leather out of the way. I will email you privately my email correspondence with Dr. Mosca just FYI. Robin & Rose shelleylapp dslapp@...> wrote: Robin, Evan didn't get novocaine at all for the tenotomy--just Tylenol and the topical anesthetic. Even though it was over three years ago I still get all teary thinking about it and hearing the screams in my head. Thank goodness my husband had the job of holding Evan on the table. I was sobbing my head off and the nurse kept inching closer to me. I think she thought I was going to pass right out! I am not squeamish--it was just the crying that got me. Anyway...it's in the past thank goodness. That is interesting about the reverse shoes. Was it just her foot itself curving? Or the whole foot turning inward as in pigeon toed? Maybe we should request an appt with Dr. Mosca. It's not that we don't trust Dr. Schmale AT ALL, it's just that he freely admits that he's not quite sure what's going on or if the casting is the right thing to do. > > I have a similar situation, my son, 11 months, looks like he's > relapsing on > > one foot because it's beginning to turn down but it's extremely > flexible. Our > > doc also said it's not a relapse but i'm still nervous. Can you > keep us posted > > on what the second doc. said? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2004 Report Share Posted May 8, 2004 Hi - Insist that your doctor consult with Dr. P himself! > >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: New dilemma! >Date: Wed, 05 May 2004 17:55:59 -0000 > >Hello, all, > >Thanks to everyone's excellent advice we sent pics to Dr. P of Evan's >feet (8-17-00, bilateral cf, tenotomy age 3 mo, FAB until age 2, now >relapsing?). He emailed right back (the man is amazing) and said that >we should try recasting for the relapse and then back into the FAB. >If this failed, then the only alternative is ATTT. So I called our >Dr. here in Seattle who is a Ponseti believer! He was happy that we >had contacted Dr. P., however, he is not sure that Evan has a true >relapse as his feet are still remarkably flexible. And this is true. >It is just when he starts to walk that they crank in. They do point >in when he sits with feet straight out in front but when hanging down >at a 90 degree angle, they look GREAT. Our dr's opinion is that Evan >has overactivity of the anterior tibialis and that casting may not >help this at all. He thinks the only answer is ATTT. Our doc is >going to consult with another Ponseti trained dr. in the practice and >get back to me. So, of course, we don't know what to do! This is SO >frustrating and time is going by. Anyone have experience with >overactive anterior tibialis? > > and Evan. > > _________________________________________________________________ Is your PC infected? Get a FREE online computer virus scan from McAfee® Security. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
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