Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 At 08:36 PM 10/5/05, Sue wrote: >Glass, in order for your insurance to pay for testing supplies, you >have to get a prescription for them. Make sure you ask your doctor to >make the prescription for enough testing strips to do a lot of testing, >maybe 10 times a day, especially initially. After you find out how >different foods affect you, you might be able to test less often. Yes, and hope you live in a state where the insurance company is required to fill such prescriptions. Mine will only allow 3 strips per day. >If the metformin causes diarrhea, eat some yogurt every day. That's >what I did, and it worked like a charm for me. It gets all of those gut >bacteria in balance or something. Or ask for Metformin Extended Release. sky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2006 Report Share Posted April 1, 2006 Happy Birthday Late Ken! Good to see that you are still arround and doing well! that A1c is amazing! Congrats on the new up and coming grandchild! Angelia in OR who was out of town for a week. ----- Original Message ----- From: " Ken GreyEagle " > Hi everyone: > > On another note our daughter told us this week we are expecting our second > grandchild. Our first grandchild will be 3 years old in June. We > help > our daughter with him a lot because she has MS. She is doing well all > things > considered. > > Happy Sunday to everyone. > > Ken GreyEagle > Type 2 for 6 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 > We had our daughter to the GI doctor on Monday and he ran more test and I > just got them. Her levels are within normal ranges and there was one that > was extremely elevated two years ago and it is in normal levels now. They > said that one was probably from a growth spurt or could have been > caused by her breaking her leg. > > The doctor wants to wait on a gluten challenge... Presumably, she has been eating gf? If so, the tests should all be negative now, as they simply confirm she is not eating gluten. > for a couple of years ... You'll probably need to wait until after she is 21 at this point, if you failed to get a biopsy before (if you already have a positive one, a challenge is never necessary). About the time puberty hits, growth hormones start to interfere with biopsy results (just as taking synthetic steroids would, such as prednisone). > The doctor did say he would want her to have a solid diagnosis before she > gets too much older and that he would definitely recommend it before she > gets near her teen years. Sounds like he waited too late - it should ahve been done before you went gf. After all, if this isn't her problem, going gf would not have had any affect on her health or growth. --- [This E-mail scanned for viruses by Declude Virus] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2006 Report Share Posted August 3, 2006 Sue, I do notice an increase in my appetite when my dose increases, but it's a good thing, because when I'm hypo, I barely eat at all, and the few things that are appealing to me are the worst things for me, especially carbs. I know when I'm craving bread with butter or bread with cheese that I'm hypo. And of course carbs cause me to gain weight too. I can eat all the meat and veggies I want, but not carbs and like you, they're my favorite. I just got my results yesterday, so my next blood work will be in 6 weeks. I'll probably see that big jump in appetite and energy soon, then it will wane until the end of that 6 week point, then I'll know where I am, whether I'm good or need a change. Re: Update Hi ,It makes sense your dosage is still being adjusted since you are newly diagnosed — as far as the 100 to 150 that is a pretty big jump, but how do you feel? Did you find you got hungrier with a dose increase? I sure do the first week or so and I hate it but it’s happened all three times these past 2 years... I think I am on the perfect dose now but I still can’t get the weight to come off. My endo told me I have a metobolic disorder and that makes sense and for me it really does come down to something as “simple” as carbs — if I eat carbs, I gain weight no matter how low my caloric intake is and if I drop carbs, or at least the high glycemic ones, I lose weight without dieting at all --- it’s a bummer cuz I LOVE carbs and they make me “happy” and “satisfied” but they do my body no good.The heat is something that’s always bothered me as well — I have gotten heat-stroke before — never frost bite and I grew up in the Northeast but heat stroke for sure. The fact that I am naturally blonde and fair skinned and burn like a piece of toast on high setting doesn’t help matters! LOL!When is your next blood test to check your TSH?SueOn 8/2/06 5:41 PM, " " <stewlis (AT) gmail (DOT) com> wrote: I asked myself the same question though. Why am I still needing steady dose increases? The only thing I can come up with is, that I began being hypo back around 1997 when I had mono (there is a link between the virus that causes mono and people later developing hypothyroidism; I wonder if it's an adrenal link, because mono surely taxed my adrenals, I was sick for two years on and off with complications and it should not have taken that long to get over it, and why on earth nobody ever checked adrenal and thyroid functions at that time I'll never know). Also, my mom his hypothyroid, but hers showed up at the onset of menopause. Mine...well, I'm 27 now, so I was 26 last September when mine was caught, and was probably around 19 or 20 when I developed symptoms and started having weight gain problems. I weigh around 230 now, and thanks to the move and not having a vehicle for the first 2 weeks we were here, I haven't gained any more than that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 Money??? what's that?? hehehehe Yeah.. a LOT of us know that one..... A lot of docs don't know where their butts are.... when I first got into researching thyroid stuff... nearly five years ago now..... Someone that I was 'talking' with online said something that still sticks in my craw...... and I've read in MANY places since then..... Thyroid disorder...... the Bread and Butter disease. Why? They can underdose, misdiagnose, and generally torture us for years, for DECADES and not quite kill us.... in the mean time... by keeping our dose of replacement low.... our blood levels off... our symptoms many and severe, they actually have a list of drugs that they can prescribe for the myriad of symptoms that hypothyroidism generates.... Antidepressants, sleep aids, pain killers, skin concoctions, hair treatments, female hormone 'cures' for infertility, male hormone 'cures' for ED, allergy medications, surgeries to correct things that were damaged, or more severely damaged, due to low thyroid levels.. including hysterectomy and gall bladder removal, a NEW one..... don't deal with the thyroid condition and it's impact on weight management, give gastric bypass surgery instead... So... considering the gold mine that we represent.. is it no wonder that the pharmaceutical reps have standardized lists of medications that are needed for the symptoms of the hypothyroid? Is it any wonder why pharmaceutical companies give incentives for the docs that prescribe the most Synthroid and 'support meds' off that list??? .... slowly climbing off soap box and sliding it into the corner.... ... argggh... the night I ended up in emergency???? They 'fixed' me by sending me home with ONE tablet of Synthroid.... I was told to take it with breakfast when I told them that I can't take that large a tablet cuz it makes me sick. Topper () On Mon, 7 Aug 2006 12:09:34 -0700 (PDT) DerSpiff writes: I've got to get the $ first tho, everybody here knows how that goes. But at least I have something to go in with. I'm learning so much being in this group, it's crazy! The drs around here don't know their butt from a hole in the ground for the most part, unfortunately.... Spiff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 Hi Barb and welcome back. Sorry to hear of your fil's passing. Even though it's expected sometimes, it can be difficult and draining. Wish I could be more help on the Taxatore issue but I didn't take that in my treatment. I do feel the constant joint pain and sleepyness associated with the Arimidex I'm taking, but trying to work through that. My last chemo was the end of June (then I had two months of radiation) finished last month. I still don't feel " better each day " YET - but hope that is coming soon. So many have told me that it really takes a full year to feel as good as you did before B/C treatment started. A year seems like a long time to me anyway. Hope things settle in now that your home and that you begin to feel better. I'm sure many in here will offer advice on the Taxatore issue. Ellen > > Hi All... been gone a while. Dh and I had planned a trip up north in the RV for rest and relaxation. Unfortunately, his father passed away on the 11th so we spend almost 2 weeks in Florida. It was a welcome passing as he had been fighting esophageal cancer for 2 years. He was in a lot of pain and at 89 there was nothing else they could do for him. The memorial service was very nice and we stayed on to help his wife (dh's step mother). > > I went down there 10 days after my last chemo of Taxotere. Was pretty tired but was able to rest and sleep when I needed to. > > We have been back about 5 days which have been very busy trying to get my work done, get things caught up around here. > > Currently I'm having some tough days and don't know if it relates to the Taxotere or the Aranesp (given for anemia -- which I had this past Monday) or what. I am tired, my body aches like I have been over exercising... hard to get out of a chair but once I'm up my legs feel better. My arms ache and I've had swelling in my feet, legs, and hands. I have the tingling and pins and needles in my hands and feet but had that after my last treatment.... basically I feel like I just had a Neulasta shot. > > As it is now 5 weeks since my very last chemo, I'm just wondering if anyone else has had this problem.... I was hoping to be feeling better each day and it just isn't happening. I know this will take a while but again, if anyone else has had Taxotere and can tell me how their recovery was... I'd appreciate it. > > Monday I have my port taken out (had to cancel that due to our trip to Florida) and next Friday see the Radiology Oncologist. Radiation was finished on my 3rd Taxotere treatment, so I don't think the way I'm feeling relates to that. > > Any suggestions....? > Barb R. > Michigan > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 Sorry to hear about your f-i-l. I will keep all of you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com Update Hi All... been gone a while. Dh and I had planned a trip up north in the RV for rest and relaxation. Unfortunately, his father passed away on the 11th so we spend almost 2 weeks in Florida. It was a welcome passing as he had been fighting esophageal cancer for 2 years. He was in a lot of pain and at 89 there was nothing else they could do for him. The memorial service was very nice and we stayed on to help his wife (dh's step mother). I went down there 10 days after my last chemo of Taxotere. Was pretty tired but was able to rest and sleep when I needed to. We have been back about 5 days which have been very busy trying to get my work done, get things caught up around here. Currently I'm having some tough days and don't know if it relates to the Taxotere or the Aranesp (given for anemia -- which I had this past Monday) or what. I am tired, my body aches like I have been over exercising... hard to get out of a chair but once I'm up my legs feel better. My arms ache and I've had swelling in my feet, legs, and hands. I have the tingling and pins and needles in my hands and feet but had that after my last treatment.... basically I feel like I just had a Neulasta shot. As it is now 5 weeks since my very last chemo, I'm just wondering if anyone else has had this problem.... I was hoping to be feeling better each day and it just isn't happening. I know this will take a while but again, if anyone else has had Taxotere and can tell me how their recovery was... I'd appreciate it. Monday I have my port taken out (had to cancel that due to our trip to Florida) and next Friday see the Radiology Oncologist. Radiation was finished on my 3rd Taxotere treatment, so I don't think the way I'm feeling relates to that. Any suggestions....? Barb R. Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 , I am so happy for you that you are this close to joining many of us here. Look forward to sharing so much more of this journey with you. You can lose those 4 lbs in no time!!! wrote: Hi all. I just wanted to update everyone on where I am after the death of my dad. I lost 4 pounds the week of his death and funeral. Sitting at his bedside, I just could not eat. Now I am within 4 lbs of getting scheduled. I just found out that Dr. Chu has injured her wrist and has taken leave early as she was set to take her maternity leave in Dec. I had my last psych eval on thurs last week and am waiting for that to get to and then my file will go to one of the other Docs. Depending on their case loads, and I know they are swamped, It is probable that I will be on the Nov. surgery schedule. I plan to work my remaining 4 lbs off, this week and be at goal so that when calls, I will be there!! This has been an amazing journey. It seems as though it has been a looong one but in reality has just been short of 7 mos since I began this proccess. For all of you out there just beginning, take advantage of your time to get as healthy emotionally, as well as phiscally, as you possibly can. Believe me the time will pass so swiftly, you will wonder where it went. Ready and waiting for that LOSERS bench!! --On Angel Wings --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. --------------------------------- Get your email and more, right on the new Yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 Er+ and Pr+ are easier to treat than negative.You will probably have to have chemo, but that is just a guess from me. It took my surgeon around 10 days to get my pathology reports back. Sending good wishes, sorry the surgery was so hard on you. (I had a unilateral MRM when 5 1/2 months pregnant, it wasn't bad at all) hugs Pam 15 yr survivor of IBC, STAGE III, NED since 1991 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 Nothing simple about a " simple " mastectomy. Regardless of breast size the breast tissue taken extends from the inframammary fold to the clavicle and from the sternum to the area under your arm. That is a considerable sized wound and you had two of them! You should have had your path report before now. It tends to com in in bits and pieces with addendums coming after the fact. I believe staining is used to determine your Her2 status. Staining also helps to determine grade as well. If the IHC came back ++ that is a weak positive and needs to be confirmed by FISH. Only certain labs do that test and it takes a week to get the results. My biopsy came out high grade and the mastectomy path report came out intermediate grade. Path from the mastectomy is more accurate as there is more tissue to work with, lots more, see above. Did you have a sentinel node biopsy along with the " simple " mastectomy X 2? Hope you are feeling better! Gentle hugs coming your way. Ruth (Ruthiema) > > Well hi again everyone. I finally had my double mastectomy on Nov. > 16th and it was a harder surgery then I ever thought it could be. I > will never think that removing all that breast tissue is " minor " . In > fact why the surgery is ever called Simple Mastectomy is beyond > me...maybe from the surgical standpoint but for the patient the pain > was excruciating. I would rather have had another c-section. > > I called today re: my final path...getting very irritated that Kaiser > has taken since the 16th to get back to me. Found out today that > add'l stains were due back today or tomorrow..what stains could > possibly take this long? I am getting no answers from the clinic > coordinators. This is very frustrating and I'm tired of being on > pins/needles wondering what my final outcome will be. The only thing > I know was from my original core biopsy of DCIS high grade with ER/PR > positive (90% both). What possible outcomes am I looking at? No one > is giving me any answers..... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 I am sorry to hear you were in so much pain. I know of people in other groups that have Kaiser and are not happy with them. I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com Update Well hi again everyone. I finally had my double mastectomy on Nov. 16th and it was a harder surgery then I ever thought it could be. I will never think that removing all that breast tissue is " minor " . In fact why the surgery is ever called Simple Mastectomy is beyond me...maybe from the surgical standpoint but for the patient the pain was excruciating. I would rather have had another c-section. I called today re: my final path...getting very irritated that Kaiser has taken since the 16th to get back to me. Found out today that add'l stains were due back today or tomorrow..what stains could possibly take this long? I am getting no answers from the clinic coordinators. This is very frustrating and I'm tired of being on pins/needles wondering what my final outcome will be. The only thing I know was from my original core biopsy of DCIS high grade with ER/PR positive (90% both). What possible outcomes am I looking at? No one is giving me any answers..... ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.409 / Virus Database: 268.14.17/553 - Release Date: 11/27/2006 Quote Link to comment Share on other sites More sharing options...
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