Re: Please Help Me (long post)

[Guest guest]

Dear Sonja,

Don't worry so much. Really, help your cute baby to develop as a

regular child as much as he can. You do give him the best treatment

and believe me you will be so happy in June- and it is not far at

all.

Your baby will not just be stuck in his bed. If he will need you he

will call you and you will hear him. I think it is great!!! That he

is trying to roll over. They defiantly do it with elegance. I wish I

had a video to show you.

Oshri- my son is sleeping with us. We have two large mattresses on

the floor- carpets. I sleep in the middle (-;

I have to go now, take care and watch you baby's smile- it always

makes me stronger!

Idit, mom to Oshri, 7 month. BL-CF. 16-18 hours.

> Dear all parents of a child with Clubfoot,

> This is my first time posting in a chat room ever. But after

> desperately searching the web for info on Clubfoot, I found this

> support group. Thank God! I need some advice and support from

> those who are going through the same thing as I am. Here's my

story

> and ultimately my question...

>

> In December, my husband and I had our first child! A beautiful

baby

> boy named Dane. Dane was born with Clubfoot. We were aware that

> there might be a problem ever since seeing his feet on an

ultrasound

> during my pregnancy. However, we had no idea what Clubfoot was

and

> what the treatment would involve. Since Dane's birth, he has been

> receiving the Ponseti Method. He wore plaster casts for two and a

> half weeks and since then has been wearing the DBB brace. This

has

> been a very difficult thing for me to accept. I know he is in no

> pain and does not know any better. But the idea that he can not

> kick his little bare feet around just makes me want to cry.

> Especially now that the weather is changing (we live in Las Vegas)

> and it is getting really hot. Of course I realize that this is

the

> very best thing for Dane and I wouldn't change his treatment for

> anything. It's just hard sometimes emotionally for me. He's

doing

> really well and his doctor says by the time Dane is six months old

> in June, he should only have to wear the DBB at bedtime.

>

> Ok here's my question. Last night Dane spent his first night in

his

> own crib in the nursery. Up until then, he's been sleeping in a

> bassinet by the side of my bed. But he is getting too big for the

> bassinet, so we decided it was time for him to sleep in his crib.

> We have one of those video screen moniters hooked up, so that we

can

> see and hear him in our room as he sleeps down the hall in his

> room. Needless to say, I was up all night watching him to make

sure

> he was ok. What I noticed really bothered me. Since he has so

much

> more room in his crib, he was moving around a lot. Lifting his

legs

> (DBB intact)high in the air, while stretching and turning his

whole

> body. Since he is at about that age where he should be rolling

> over, I was wondering how this is possible with the DBB? A few

> times, he nearly rolled over and it scared me. He wouldn't have

the

> strengh to roll back over again! What's to stop him from laying

> face down in his crib and getting stuck there? I am worried to

> death about SIDS (no pun intended). Please help me understand.

How

> did/does your baby learn to roll over and roll back again while

> wearing the DBB?

>

> For those who made it all the way thru this message, thank you! I

> feel alone here and it would be comforting to know that there are

> other parents out there dealing with the same challenges.

> Thanks again!

> Sonja-Mommy to 3 1/2 month old Dane

[Guest guest]

Dear Sonja,

Don't worry so much. Really, help your cute baby to develop as a

regular child as much as he can. You do give him the best treatment

and believe me you will be so happy in June- and it is not far at

all.

Your baby will not just be stuck in his bed. If he will need you he

will call you and you will hear him. I think it is great!!! That he

is trying to roll over. They defiantly do it with elegance. I wish I

had a video to show you.

Oshri- my son is sleeping with us. We have two large mattresses on

the floor- carpets. I sleep in the middle (-;

I have to go now, take care and watch you baby's smile- it always

makes me stronger!

Idit, mom to Oshri, 7 month. BL-CF. 16-18 hours.

> Dear all parents of a child with Clubfoot,

> This is my first time posting in a chat room ever. But after

> desperately searching the web for info on Clubfoot, I found this

> support group. Thank God! I need some advice and support from

> those who are going through the same thing as I am. Here's my

story

> and ultimately my question...

>

> In December, my husband and I had our first child! A beautiful

baby

> boy named Dane. Dane was born with Clubfoot. We were aware that

> there might be a problem ever since seeing his feet on an

ultrasound

> during my pregnancy. However, we had no idea what Clubfoot was

and

> what the treatment would involve. Since Dane's birth, he has been

> receiving the Ponseti Method. He wore plaster casts for two and a

> half weeks and since then has been wearing the DBB brace. This

has

> been a very difficult thing for me to accept. I know he is in no

> pain and does not know any better. But the idea that he can not

> kick his little bare feet around just makes me want to cry.

> Especially now that the weather is changing (we live in Las Vegas)

> and it is getting really hot. Of course I realize that this is

the

> very best thing for Dane and I wouldn't change his treatment for

> anything. It's just hard sometimes emotionally for me. He's

doing

> really well and his doctor says by the time Dane is six months old

> in June, he should only have to wear the DBB at bedtime.

>

> Ok here's my question. Last night Dane spent his first night in

his

> own crib in the nursery. Up until then, he's been sleeping in a

> bassinet by the side of my bed. But he is getting too big for the

> bassinet, so we decided it was time for him to sleep in his crib.

> We have one of those video screen moniters hooked up, so that we

can

> see and hear him in our room as he sleeps down the hall in his

> room. Needless to say, I was up all night watching him to make

sure

> he was ok. What I noticed really bothered me. Since he has so

much

> more room in his crib, he was moving around a lot. Lifting his

legs

> (DBB intact)high in the air, while stretching and turning his

whole

> body. Since he is at about that age where he should be rolling

> over, I was wondering how this is possible with the DBB? A few

> times, he nearly rolled over and it scared me. He wouldn't have

the

> strengh to roll back over again! What's to stop him from laying

> face down in his crib and getting stuck there? I am worried to

> death about SIDS (no pun intended). Please help me understand.

How

> did/does your baby learn to roll over and roll back again while

> wearing the DBB?

>

> For those who made it all the way thru this message, thank you! I

> feel alone here and it would be comforting to know that there are

> other parents out there dealing with the same challenges.

> Thanks again!

> Sonja-Mommy to 3 1/2 month old Dane

[Guest guest]

Q***Howdid/does your baby learn to roll over and roll back again while

wearing the DBB?***

A

Hi

Glad you found the group. We all understand here. My son started wearing

his DBB at 10mtns. He would get stuck trying to turn but I showed him when

he was awake and soon enough at night if he was put to sleep on his back and

he wanted to turn he was able to turn. I still hear an occasional clunk as

he's moved in the crib and when he turns too close hits the bars but I can

move him although he'd be fine.

If you're worried is it possible to have him in your room with the crib so

you can hear if he tries to turn over?

All the best

Melitsa and Ridley

13mtns

DBB since Jan 04

_________________________________________________________________

Express yourself with cool emoticons - download MSN Messenger today!

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[Guest guest]

First, don't worry, you will get over your feelings towards the DBB. Once the

time is reduced, it should not bother you as much. In the mean time, think of

it as you would corrective glasses. If your son had to have corrective glasses,

it would be annoying, and maybe a bit saddening (none of us like to see our

children as anything less than perfect) but the overall effect would not be

great. This is true of the DBB as well. Those first few months of 23/7 wear

are annoying, but once the time is reduced it is just a part of bedtime ... they

just become an extension of the pajamas, nothing more.

As for rolling and SIDS: can your son lift his head up while on his tummy?

Turn it from side to side? If so, then he will not suffocate in his crib

(assuming you do not have large blankets or pillows, etc.). Your fears are the

same that every parent has ... and not just first time parents or parents with a

child in the DBB. I have 3 kids and I worried just as much about SIDS with the

last (my CF baby) as I did with the first. Having said that, you would be

amazed at how the DBB actually makes rolling EASIER for the baby. That bar

gives a huge amount of leverage with a minimal amount of effort. Instead of

having to learn how to make the body and two separate and not always cooperative

legs work together to roll, the baby need only to learn to lift and pivot one

leg with the body ... the DBB will do the rest for them. My son had significant

gross motor delays for quite some time, but the one thing he could do was roll

from back to tummy. He could not roll the other way, nor could he lift his

chest up, but becasue he could hold his head up and turn it, he never got into a

sittuation where he could not breathe. Just go thru the regular precautions -

no stuffed animals, pillows, thick blankets, etc, and your son will be just

fine. It will take you some time to adjust, and if you need to, try moving the

crib into your room for a few weeks so that you are not losing sleep watching

that monitor. None of my children slept in their own rooms until they were 9

months or more.

Oh, and a very great added bonus to a baby with DBB: you will NEVER have to

worry about him getting his leg stuck between the crib slats!! My middle child

got her leg stuck so bad once we almost had to break the slats to get her out,

but with the DBB, my son never once got his leg stuck in there.

Angel

Please Help Me (long post)

Dear all parents of a child with Clubfoot,

This is my first time posting in a chat room ever. But after

desperately searching the web for info on Clubfoot, I found this

support group. Thank God! I need some advice and support from

those who are going through the same thing as I am. Here's my story

and ultimately my question...

In December, my husband and I had our first child! A beautiful baby

boy named Dane. Dane was born with Clubfoot. We were aware that

there might be a problem ever since seeing his feet on an ultrasound

during my pregnancy. However, we had no idea what Clubfoot was and

what the treatment would involve. Since Dane's birth, he has been

receiving the Ponseti Method. He wore plaster casts for two and a

half weeks and since then has been wearing the DBB brace. This has

been a very difficult thing for me to accept. I know he is in no

pain and does not know any better. But the idea that he can not

kick his little bare feet around just makes me want to cry.

Especially now that the weather is changing (we live in Las Vegas)

and it is getting really hot. Of course I realize that this is the

very best thing for Dane and I wouldn't change his treatment for

anything. It's just hard sometimes emotionally for me. He's doing

really well and his doctor says by the time Dane is six months old

in June, he should only have to wear the DBB at bedtime.

Ok here's my question. Last night Dane spent his first night in his

own crib in the nursery. Up until then, he's been sleeping in a

bassinet by the side of my bed. But he is getting too big for the

bassinet, so we decided it was time for him to sleep in his crib.

We have one of those video screen moniters hooked up, so that we can

see and hear him in our room as he sleeps down the hall in his

room. Needless to say, I was up all night watching him to make sure

he was ok. What I noticed really bothered me. Since he has so much

more room in his crib, he was moving around a lot. Lifting his legs

(DBB intact)high in the air, while stretching and turning his whole

body. Since he is at about that age where he should be rolling

over, I was wondering how this is possible with the DBB? A few

times, he nearly rolled over and it scared me. He wouldn't have the

strengh to roll back over again! What's to stop him from laying

face down in his crib and getting stuck there? I am worried to

death about SIDS (no pun intended). Please help me understand. How

did/does your baby learn to roll over and roll back again while

wearing the DBB?

For those who made it all the way thru this message, thank you! I

feel alone here and it would be comforting to know that there are

other parents out there dealing with the same challenges.

Thanks again!

Sonja-Mommy to 3 1/2 month old Dane

[Guest guest]

First, don't worry, you will get over your feelings towards the DBB. Once the

time is reduced, it should not bother you as much. In the mean time, think of

it as you would corrective glasses. If your son had to have corrective glasses,

it would be annoying, and maybe a bit saddening (none of us like to see our

children as anything less than perfect) but the overall effect would not be

great. This is true of the DBB as well. Those first few months of 23/7 wear

are annoying, but once the time is reduced it is just a part of bedtime ... they

just become an extension of the pajamas, nothing more.

As for rolling and SIDS: can your son lift his head up while on his tummy?

Turn it from side to side? If so, then he will not suffocate in his crib

(assuming you do not have large blankets or pillows, etc.). Your fears are the

same that every parent has ... and not just first time parents or parents with a

child in the DBB. I have 3 kids and I worried just as much about SIDS with the

last (my CF baby) as I did with the first. Having said that, you would be

amazed at how the DBB actually makes rolling EASIER for the baby. That bar

gives a huge amount of leverage with a minimal amount of effort. Instead of

having to learn how to make the body and two separate and not always cooperative

legs work together to roll, the baby need only to learn to lift and pivot one

leg with the body ... the DBB will do the rest for them. My son had significant

gross motor delays for quite some time, but the one thing he could do was roll

from back to tummy. He could not roll the other way, nor could he lift his

chest up, but becasue he could hold his head up and turn it, he never got into a

sittuation where he could not breathe. Just go thru the regular precautions -

no stuffed animals, pillows, thick blankets, etc, and your son will be just

fine. It will take you some time to adjust, and if you need to, try moving the

crib into your room for a few weeks so that you are not losing sleep watching

that monitor. None of my children slept in their own rooms until they were 9

months or more.

Oh, and a very great added bonus to a baby with DBB: you will NEVER have to

worry about him getting his leg stuck between the crib slats!! My middle child

got her leg stuck so bad once we almost had to break the slats to get her out,

but with the DBB, my son never once got his leg stuck in there.

Angel

Please Help Me (long post)

Dear all parents of a child with Clubfoot,

This is my first time posting in a chat room ever. But after

desperately searching the web for info on Clubfoot, I found this

support group. Thank God! I need some advice and support from

those who are going through the same thing as I am. Here's my story

and ultimately my question...

In December, my husband and I had our first child! A beautiful baby

boy named Dane. Dane was born with Clubfoot. We were aware that

there might be a problem ever since seeing his feet on an ultrasound

during my pregnancy. However, we had no idea what Clubfoot was and

what the treatment would involve. Since Dane's birth, he has been

receiving the Ponseti Method. He wore plaster casts for two and a

half weeks and since then has been wearing the DBB brace. This has

been a very difficult thing for me to accept. I know he is in no

pain and does not know any better. But the idea that he can not

kick his little bare feet around just makes me want to cry.

Especially now that the weather is changing (we live in Las Vegas)

and it is getting really hot. Of course I realize that this is the

very best thing for Dane and I wouldn't change his treatment for

anything. It's just hard sometimes emotionally for me. He's doing

really well and his doctor says by the time Dane is six months old

in June, he should only have to wear the DBB at bedtime.

Ok here's my question. Last night Dane spent his first night in his

own crib in the nursery. Up until then, he's been sleeping in a

bassinet by the side of my bed. But he is getting too big for the

bassinet, so we decided it was time for him to sleep in his crib.

We have one of those video screen moniters hooked up, so that we can

see and hear him in our room as he sleeps down the hall in his

room. Needless to say, I was up all night watching him to make sure

he was ok. What I noticed really bothered me. Since he has so much

more room in his crib, he was moving around a lot. Lifting his legs

(DBB intact)high in the air, while stretching and turning his whole

body. Since he is at about that age where he should be rolling

over, I was wondering how this is possible with the DBB? A few

times, he nearly rolled over and it scared me. He wouldn't have the

strengh to roll back over again! What's to stop him from laying

face down in his crib and getting stuck there? I am worried to

death about SIDS (no pun intended). Please help me understand. How

did/does your baby learn to roll over and roll back again while

wearing the DBB?

For those who made it all the way thru this message, thank you! I

feel alone here and it would be comforting to know that there are

other parents out there dealing with the same challenges.

Thanks again!

Sonja-Mommy to 3 1/2 month old Dane

[Guest guest]

Hi. I hope you get some reassurance from the group.

I wouldn't worry too much about him being able to roll over. If he

is strong enough to roll over he is strong enough to call for you if

he gets stuck. They make those wedges that could help prevent him

from rolling over while he is sleeping if it is a big concern for you

but make sure to encourage him with his development (like rolling)

when he is awake. I don't think his chances for sids would be any

higher with the braces than a child learning to roll with out

clubfeet would be. Lay him down on his back, don't smoke around him,

don't have any extra fluffy things in his crib, turn the monitor off

and get some sleep he will be fine.

[Guest guest]

Welcome, Sonja & Dane!

We're glad you're here!

Everyone gave you excellent advice, I hope that it helps! I will

throw in my two cents that I, too, hardly slept a wink all night

worrying about my brand new babies...clubfoot or no clubfoot. It's

just a mother's instinct to worry about *everything*. As your child

gets older, hopefully you'll be able to rest easier at night. As a

parent on " the other side " (my daughter is now 4) I can also assure

you that I know your feelings about wishing your child didn't have to

endure the treatment and braces...but your sweet little boy will not

remember any of it (though you'll remember nearly all of it) and it

won't change his temperament, his ability to reach milestones, or his

love for you! Sure, he may get smelly, sweaty toes...but you'll

still love kissing them when they're out of the shoes!

My daughter learned to roll, crawl, sit up and pull to a stand in the

brace. She walked before my son (who didn't have clubfoot).

Some items in your son's story caught my attention. Was Dane's

clubfoot very mild? It's quite unusual for a child to only have 2.5

weeks of casting before going into the brace. I assume that he

didn't need a tenotomy, so his foot/feet must have been pretty easily

corrected. What doctor are you seeing in NV? and live

near Vegas (and is our resident parent expert on the Ponseti

method) so he might be familiar with the doctor that you're taking

Dane to. The usual protocol for the brace is for the child to wear

it full time (23 hours/day) for 3 months after correction and then

night and naptime. It sounds like your doctor is deviating from the

method if he expects Dane to wear it full time until 6 months.

You might be interested in the following website:

http://pages.ivillage.com/ponseti_links where there's a parent

checklist to see if your doctor is following the method as it was

developed by Dr. Ponseti. Have you been to Dr. Ponseti's site also?

Please post all your concerns and use us as your sounding board!

We're here for you...welcome aboard!

Regards,

& (3-16-00)

left clubfoot, switched to Ponseti method at 4 months old

http://ponseticlubfoot.freeservers.com/

> Dear all parents of a child with Clubfoot,

> This is my first time posting in a chat room ever. But after

> desperately searching the web for info on Clubfoot, I found this

> support group. Thank God! I need some advice and support from

> those who are going through the same thing as I am. Here's my

story

> and ultimately my question...

>

> In December, my husband and I had our first child! A beautiful

baby

> boy named Dane. Dane was born with Clubfoot. We were aware that

> there might be a problem ever since seeing his feet on an

ultrasound

> during my pregnancy. However, we had no idea what Clubfoot was and

> what the treatment would involve. Since Dane's birth, he has been

> receiving the Ponseti Method. He wore plaster casts for two and a

> half weeks and since then has been wearing the DBB brace. This has

> been a very difficult thing for me to accept. I know he is in no

> pain and does not know any better. But the idea that he can not

> kick his little bare feet around just makes me want to cry.

> Especially now that the weather is changing (we live in Las Vegas)

> and it is getting really hot. Of course I realize that this is the

> very best thing for Dane and I wouldn't change his treatment for

> anything. It's just hard sometimes emotionally for me. He's doing

> really well and his doctor says by the time Dane is six months old

> in June, he should only have to wear the DBB at bedtime.

>

> Ok here's my question. Last night Dane spent his first night in

his

> own crib in the nursery. Up until then, he's been sleeping in a

> bassinet by the side of my bed. But he is getting too big for the

> bassinet, so we decided it was time for him to sleep in his crib.

> We have one of those video screen moniters hooked up, so that we

can

> see and hear him in our room as he sleeps down the hall in his

> room. Needless to say, I was up all night watching him to make

sure

> he was ok. What I noticed really bothered me. Since he has so

much

> more room in his crib, he was moving around a lot. Lifting his

legs

> (DBB intact)high in the air, while stretching and turning his whole

> body. Since he is at about that age where he should be rolling

> over, I was wondering how this is possible with the DBB? A few

> times, he nearly rolled over and it scared me. He wouldn't have

the

> strengh to roll back over again! What's to stop him from laying

> face down in his crib and getting stuck there? I am worried to

> death about SIDS (no pun intended). Please help me understand.

How

> did/does your baby learn to roll over and roll back again while

> wearing the DBB?

>

> For those who made it all the way thru this message, thank you! I

> feel alone here and it would be comforting to know that there are

> other parents out there dealing with the same challenges.

> Thanks again!

> Sonja-Mommy to 3 1/2 month old Dane

[Guest guest]

Sonja,

I know that it is scary. With Simon he actually learned to roll from his

back to his front at 2 1/2 months while in casts. He then learned to roll

from forward to back at 3 months. That is with his dbb's on. It actually

helped him learn. He rolled faster than my little girl. We just took the bar

in the middle and twisted so he learned. Also the only suggestion only the

rolling part is that we had a wedge that would go on both sides so he can't

roll. We only used it in the begginng, then I jsut let him roll after he

learned how.

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Please Help Me (long post)

>Date: Mon, 29 Mar 2004 15:24:33 -0000

>

>Dear all parents of a child with Clubfoot,

>This is my first time posting in a chat room ever. But after

>desperately searching the web for info on Clubfoot, I found this

>support group. Thank God! I need some advice and support from

>those who are going through the same thing as I am. Here's my story

>and ultimately my question...

>

>In December, my husband and I had our first child! A beautiful baby

>boy named Dane. Dane was born with Clubfoot. We were aware that

>there might be a problem ever since seeing his feet on an ultrasound

>during my pregnancy. However, we had no idea what Clubfoot was and

>what the treatment would involve. Since Dane's birth, he has been

>receiving the Ponseti Method. He wore plaster casts for two and a

>half weeks and since then has been wearing the DBB brace. This has

>been a very difficult thing for me to accept. I know he is in no

>pain and does not know any better. But the idea that he can not

>kick his little bare feet around just makes me want to cry.

>Especially now that the weather is changing (we live in Las Vegas)

>and it is getting really hot. Of course I realize that this is the

>very best thing for Dane and I wouldn't change his treatment for

>anything. It's just hard sometimes emotionally for me. He's doing

>really well and his doctor says by the time Dane is six months old

>in June, he should only have to wear the DBB at bedtime.

>

>Ok here's my question. Last night Dane spent his first night in his

>own crib in the nursery. Up until then, he's been sleeping in a

>bassinet by the side of my bed. But he is getting too big for the

>bassinet, so we decided it was time for him to sleep in his crib.

>We have one of those video screen moniters hooked up, so that we can

>see and hear him in our room as he sleeps down the hall in his

>room. Needless to say, I was up all night watching him to make sure

>he was ok. What I noticed really bothered me. Since he has so much

>more room in his crib, he was moving around a lot. Lifting his legs

>(DBB intact)high in the air, while stretching and turning his whole

>body. Since he is at about that age where he should be rolling

>over, I was wondering how this is possible with the DBB? A few

>times, he nearly rolled over and it scared me. He wouldn't have the

>strengh to roll back over again! What's to stop him from laying

>face down in his crib and getting stuck there? I am worried to

>death about SIDS (no pun intended). Please help me understand. How

>did/does your baby learn to roll over and roll back again while

>wearing the DBB?

>

>For those who made it all the way thru this message, thank you! I

>feel alone here and it would be comforting to know that there are

>other parents out there dealing with the same challenges.

>Thanks again!

>Sonja-Mommy to 3 1/2 month old Dane

>

>

>

>

>

>

[Guest guest]

Sonja,

I know that it is scary. With Simon he actually learned to roll from his

back to his front at 2 1/2 months while in casts. He then learned to roll

from forward to back at 3 months. That is with his dbb's on. It actually

helped him learn. He rolled faster than my little girl. We just took the bar

in the middle and twisted so he learned. Also the only suggestion only the

rolling part is that we had a wedge that would go on both sides so he can't

roll. We only used it in the begginng, then I jsut let him roll after he

learned how.

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Please Help Me (long post)

>Date: Mon, 29 Mar 2004 15:24:33 -0000

>

>Dear all parents of a child with Clubfoot,

>This is my first time posting in a chat room ever. But after

>desperately searching the web for info on Clubfoot, I found this

>support group. Thank God! I need some advice and support from

>those who are going through the same thing as I am. Here's my story

>and ultimately my question...

>

>In December, my husband and I had our first child! A beautiful baby

>boy named Dane. Dane was born with Clubfoot. We were aware that

>there might be a problem ever since seeing his feet on an ultrasound

>during my pregnancy. However, we had no idea what Clubfoot was and

>what the treatment would involve. Since Dane's birth, he has been

>receiving the Ponseti Method. He wore plaster casts for two and a

>half weeks and since then has been wearing the DBB brace. This has

>been a very difficult thing for me to accept. I know he is in no

>pain and does not know any better. But the idea that he can not

>kick his little bare feet around just makes me want to cry.

>Especially now that the weather is changing (we live in Las Vegas)

>and it is getting really hot. Of course I realize that this is the

>very best thing for Dane and I wouldn't change his treatment for

>anything. It's just hard sometimes emotionally for me. He's doing

>really well and his doctor says by the time Dane is six months old

>in June, he should only have to wear the DBB at bedtime.

>

>Ok here's my question. Last night Dane spent his first night in his

>own crib in the nursery. Up until then, he's been sleeping in a

>bassinet by the side of my bed. But he is getting too big for the

>bassinet, so we decided it was time for him to sleep in his crib.

>We have one of those video screen moniters hooked up, so that we can

>see and hear him in our room as he sleeps down the hall in his

>room. Needless to say, I was up all night watching him to make sure

>he was ok. What I noticed really bothered me. Since he has so much

>more room in his crib, he was moving around a lot. Lifting his legs

>(DBB intact)high in the air, while stretching and turning his whole

>body. Since he is at about that age where he should be rolling

>over, I was wondering how this is possible with the DBB? A few

>times, he nearly rolled over and it scared me. He wouldn't have the

>strengh to roll back over again! What's to stop him from laying

>face down in his crib and getting stuck there? I am worried to

>death about SIDS (no pun intended). Please help me understand. How

>did/does your baby learn to roll over and roll back again while

>wearing the DBB?

>

>For those who made it all the way thru this message, thank you! I

>feel alone here and it would be comforting to know that there are

>other parents out there dealing with the same challenges.

>Thanks again!

>Sonja-Mommy to 3 1/2 month old Dane

>

>

>

>

>

>

[Guest guest]

Hi Sonja-

Welcome to our board! Now take a deep breath;) Most babies learn to roll

from back to stomach a month or so below they roll back the other way. The

DBB doesn't hinder them to do so either way. In fact it can actually help

them turn over earlier because of the weight of the shoe. Dane will learn

how to roll onto his back in time. The latest finding is SIDS babies don't

die because they are smothered they die because their body gets overheated.

A baby lying on their stomach keeps a warmer body temperature than a baby on

his back. You can't stay up worrying about SIDS you can just do your best

to prevent it. You can buy at Babies R US two side sleepers and put one on

each side of Dane when you lay him down. This will prevent him from rolling

over in either directions and allow you to get a nights sleep.

Also most children treated with the Ponseti Method only wear the DBB 23hrs a

day for 3 months. Why is your doctor having your son wear his DBB 23hr for

such an extended period of time. This sounds like an unnecessary

modification. I would challenge him and find out his reasoning on this.

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Please Help Me (long post)

>Date: Mon, 29 Mar 2004 15:24:33 -0000

>

>Dear all parents of a child with Clubfoot,

>This is my first time posting in a chat room ever. But after

>desperately searching the web for info on Clubfoot, I found this

>support group. Thank God! I need some advice and support from

>those who are going through the same thing as I am. Here's my story

>and ultimately my question...

>

>In December, my husband and I had our first child! A beautiful baby

>boy named Dane. Dane was born with Clubfoot. We were aware that

>there might be a problem ever since seeing his feet on an ultrasound

>during my pregnancy. However, we had no idea what Clubfoot was and

>what the treatment would involve. Since Dane's birth, he has been

>receiving the Ponseti Method. He wore plaster casts for two and a

>half weeks and since then has been wearing the DBB brace. This has

>been a very difficult thing for me to accept. I know he is in no

>pain and does not know any better. But the idea that he can not

>kick his little bare feet around just makes me want to cry.

>Especially now that the weather is changing (we live in Las Vegas)

>and it is getting really hot. Of course I realize that this is the

>very best thing for Dane and I wouldn't change his treatment for

>anything. It's just hard sometimes emotionally for me. He's doing

>really well and his doctor says by the time Dane is six months old

>in June, he should only have to wear the DBB at bedtime.

>

>Ok here's my question. Last night Dane spent his first night in his

>own crib in the nursery. Up until then, he's been sleeping in a

>bassinet by the side of my bed. But he is getting too big for the

>bassinet, so we decided it was time for him to sleep in his crib.

>We have one of those video screen moniters hooked up, so that we can

>see and hear him in our room as he sleeps down the hall in his

>room. Needless to say, I was up all night watching him to make sure

>he was ok. What I noticed really bothered me. Since he has so much

>more room in his crib, he was moving around a lot. Lifting his legs

>(DBB intact)high in the air, while stretching and turning his whole

>body. Since he is at about that age where he should be rolling

>over, I was wondering how this is possible with the DBB? A few

>times, he nearly rolled over and it scared me. He wouldn't have the

>strengh to roll back over again! What's to stop him from laying

>face down in his crib and getting stuck there? I am worried to

>death about SIDS (no pun intended). Please help me understand. How

>did/does your baby learn to roll over and roll back again while

>wearing the DBB?

>

>For those who made it all the way thru this message, thank you! I

>feel alone here and it would be comforting to know that there are

>other parents out there dealing with the same challenges.

>Thanks again!

>Sonja-Mommy to 3 1/2 month old Dane

>

>

_________________________________________________________________

Get reliable access on MSN 9 Dial-up. 3 months for the price of 1!

(Limited-time offer)

http://join.msn.com/?page=dept/dialup&pgmarket=en-us&ST=1/go/onm00200361ave/dire\

ct/01/

[Guest guest]

Hi Sonja-

Welcome to our board! Now take a deep breath;) Most babies learn to roll

from back to stomach a month or so below they roll back the other way. The

DBB doesn't hinder them to do so either way. In fact it can actually help

them turn over earlier because of the weight of the shoe. Dane will learn

how to roll onto his back in time. The latest finding is SIDS babies don't

die because they are smothered they die because their body gets overheated.

A baby lying on their stomach keeps a warmer body temperature than a baby on

his back. You can't stay up worrying about SIDS you can just do your best

to prevent it. You can buy at Babies R US two side sleepers and put one on

each side of Dane when you lay him down. This will prevent him from rolling

over in either directions and allow you to get a nights sleep.

Also most children treated with the Ponseti Method only wear the DBB 23hrs a

day for 3 months. Why is your doctor having your son wear his DBB 23hr for

such an extended period of time. This sounds like an unnecessary

modification. I would challenge him and find out his reasoning on this.

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Please Help Me (long post)

>Date: Mon, 29 Mar 2004 15:24:33 -0000

>

>Dear all parents of a child with Clubfoot,

>This is my first time posting in a chat room ever. But after

>desperately searching the web for info on Clubfoot, I found this

>support group. Thank God! I need some advice and support from

>those who are going through the same thing as I am. Here's my story

>and ultimately my question...

>

>In December, my husband and I had our first child! A beautiful baby

>boy named Dane. Dane was born with Clubfoot. We were aware that

>there might be a problem ever since seeing his feet on an ultrasound

>during my pregnancy. However, we had no idea what Clubfoot was and

>what the treatment would involve. Since Dane's birth, he has been

>receiving the Ponseti Method. He wore plaster casts for two and a

>half weeks and since then has been wearing the DBB brace. This has

>been a very difficult thing for me to accept. I know he is in no

>pain and does not know any better. But the idea that he can not

>kick his little bare feet around just makes me want to cry.

>Especially now that the weather is changing (we live in Las Vegas)

>and it is getting really hot. Of course I realize that this is the

>very best thing for Dane and I wouldn't change his treatment for

>anything. It's just hard sometimes emotionally for me. He's doing

>really well and his doctor says by the time Dane is six months old

>in June, he should only have to wear the DBB at bedtime.

>

>Ok here's my question. Last night Dane spent his first night in his

>own crib in the nursery. Up until then, he's been sleeping in a

>bassinet by the side of my bed. But he is getting too big for the

>bassinet, so we decided it was time for him to sleep in his crib.

>We have one of those video screen moniters hooked up, so that we can

>see and hear him in our room as he sleeps down the hall in his

>room. Needless to say, I was up all night watching him to make sure

>he was ok. What I noticed really bothered me. Since he has so much

>more room in his crib, he was moving around a lot. Lifting his legs

>(DBB intact)high in the air, while stretching and turning his whole

>body. Since he is at about that age where he should be rolling

>over, I was wondering how this is possible with the DBB? A few

>times, he nearly rolled over and it scared me. He wouldn't have the

>strengh to roll back over again! What's to stop him from laying

>face down in his crib and getting stuck there? I am worried to

>death about SIDS (no pun intended). Please help me understand. How

>did/does your baby learn to roll over and roll back again while

>wearing the DBB?

>

>For those who made it all the way thru this message, thank you! I

>feel alone here and it would be comforting to know that there are

>other parents out there dealing with the same challenges.

>Thanks again!

>Sonja-Mommy to 3 1/2 month old Dane

>

>

_________________________________________________________________

Get reliable access on MSN 9 Dial-up. 3 months for the price of 1!

(Limited-time offer)

http://join.msn.com/?page=dept/dialup&pgmarket=en-us&ST=1/go/onm00200361ave/dire\

ct/01/

[Guest guest]

Hi! I don't know how they do it, but they do learn to roll over.

In fact, as my son got older (he's 14 months old now) rolling was

his primary way of getting around. sleeps on his side but

with his legs all the way over, as if he were going to lay on his

tummy. He has slept like this the whole time he's been in the DBB.

I had the same feelings about his feet being confined. But I got

beyond those feelings and we survived his time in the DBB 23/7. Now

he is only in them 12 hours a day. You too, and Dane will survive.

God bless~

and

> Dear all parents of a child with Clubfoot,

> This is my first time posting in a chat room ever. But after

> desperately searching the web for info on Clubfoot, I found this

> support group. Thank God! I need some advice and support from

> those who are going through the same thing as I am. Here's my

story

> and ultimately my question...

>

> In December, my husband and I had our first child! A beautiful

baby

> boy named Dane. Dane was born with Clubfoot. We were aware that

> there might be a problem ever since seeing his feet on an

ultrasound

> during my pregnancy. However, we had no idea what Clubfoot was

and

> what the treatment would involve. Since Dane's birth, he has been

> receiving the Ponseti Method. He wore plaster casts for two and a

> half weeks and since then has been wearing the DBB brace. This

has

> been a very difficult thing for me to accept. I know he is in no

> pain and does not know any better. But the idea that he can not

> kick his little bare feet around just makes me want to cry.

> Especially now that the weather is changing (we live in Las Vegas)

> and it is getting really hot. Of course I realize that this is

the

> very best thing for Dane and I wouldn't change his treatment for

> anything. It's just hard sometimes emotionally for me. He's

doing

> really well and his doctor says by the time Dane is six months old

> in June, he should only have to wear the DBB at bedtime.

>

> Ok here's my question. Last night Dane spent his first night in

his

> own crib in the nursery. Up until then, he's been sleeping in a

> bassinet by the side of my bed. But he is getting too big for the

> bassinet, so we decided it was time for him to sleep in his crib.

> We have one of those video screen moniters hooked up, so that we

can

> see and hear him in our room as he sleeps down the hall in his

> room. Needless to say, I was up all night watching him to make

sure

> he was ok. What I noticed really bothered me. Since he has so

much

> more room in his crib, he was moving around a lot. Lifting his

legs

> (DBB intact)high in the air, while stretching and turning his

whole

> body. Since he is at about that age where he should be rolling

> over, I was wondering how this is possible with the DBB? A few

> times, he nearly rolled over and it scared me. He wouldn't have

the

> strengh to roll back over again! What's to stop him from laying

> face down in his crib and getting stuck there? I am worried to

> death about SIDS (no pun intended). Please help me understand.

How

> did/does your baby learn to roll over and roll back again while

> wearing the DBB?

>

> For those who made it all the way thru this message, thank you! I

> feel alone here and it would be comforting to know that there are

> other parents out there dealing with the same challenges.

> Thanks again!

> Sonja-Mommy to 3 1/2 month old Dane

[Guest guest]

Hi! I don't know how they do it, but they do learn to roll over.

In fact, as my son got older (he's 14 months old now) rolling was

his primary way of getting around. sleeps on his side but

with his legs all the way over, as if he were going to lay on his

tummy. He has slept like this the whole time he's been in the DBB.

I had the same feelings about his feet being confined. But I got

beyond those feelings and we survived his time in the DBB 23/7. Now

he is only in them 12 hours a day. You too, and Dane will survive.

God bless~

and

> Dear all parents of a child with Clubfoot,

> This is my first time posting in a chat room ever. But after

> desperately searching the web for info on Clubfoot, I found this

> support group. Thank God! I need some advice and support from

> those who are going through the same thing as I am. Here's my

story

> and ultimately my question...

>

> In December, my husband and I had our first child! A beautiful

baby

> boy named Dane. Dane was born with Clubfoot. We were aware that

> there might be a problem ever since seeing his feet on an

ultrasound

> during my pregnancy. However, we had no idea what Clubfoot was

and

> what the treatment would involve. Since Dane's birth, he has been

> receiving the Ponseti Method. He wore plaster casts for two and a

> half weeks and since then has been wearing the DBB brace. This

has

> been a very difficult thing for me to accept. I know he is in no

> pain and does not know any better. But the idea that he can not

> kick his little bare feet around just makes me want to cry.

> Especially now that the weather is changing (we live in Las Vegas)

> and it is getting really hot. Of course I realize that this is

the

> very best thing for Dane and I wouldn't change his treatment for

> anything. It's just hard sometimes emotionally for me. He's

doing

> really well and his doctor says by the time Dane is six months old

> in June, he should only have to wear the DBB at bedtime.

>

> Ok here's my question. Last night Dane spent his first night in

his

> own crib in the nursery. Up until then, he's been sleeping in a

> bassinet by the side of my bed. But he is getting too big for the

> bassinet, so we decided it was time for him to sleep in his crib.

> We have one of those video screen moniters hooked up, so that we

can

> see and hear him in our room as he sleeps down the hall in his

> room. Needless to say, I was up all night watching him to make

sure

> he was ok. What I noticed really bothered me. Since he has so

much

> more room in his crib, he was moving around a lot. Lifting his

legs

> (DBB intact)high in the air, while stretching and turning his

whole

> body. Since he is at about that age where he should be rolling

> over, I was wondering how this is possible with the DBB? A few

> times, he nearly rolled over and it scared me. He wouldn't have

the

> strengh to roll back over again! What's to stop him from laying

> face down in his crib and getting stuck there? I am worried to

> death about SIDS (no pun intended). Please help me understand.

How

> did/does your baby learn to roll over and roll back again while

> wearing the DBB?

>

> For those who made it all the way thru this message, thank you! I

> feel alone here and it would be comforting to know that there are

> other parents out there dealing with the same challenges.

> Thanks again!

> Sonja-Mommy to 3 1/2 month old Dane

[Guest guest]

THANK YOU to EVERYONE who has responded to my post. I'm new to all

this online support group stuff, so it took me a while to read

everyone's replies. I really really appreciate the encouragement!

Sonja

> > Dear all parents of a child with Clubfoot,

> > This is my first time posting in a chat room ever. But after

> > desperately searching the web for info on Clubfoot, I found this

> > support group. Thank God! I need some advice and support from

> > those who are going through the same thing as I am. Here's my

> story

> > and ultimately my question...

> >

> > In December, my husband and I had our first child! A beautiful

> baby

> > boy named Dane. Dane was born with Clubfoot. We were aware

that

> > there might be a problem ever since seeing his feet on an

> ultrasound

> > during my pregnancy. However, we had no idea what Clubfoot was

> and

> > what the treatment would involve. Since Dane's birth, he has

been

> > receiving the Ponseti Method. He wore plaster casts for two and

a

> > half weeks and since then has been wearing the DBB brace. This

> has

> > been a very difficult thing for me to accept. I know he is in

no

> > pain and does not know any better. But the idea that he can not

> > kick his little bare feet around just makes me want to cry.

> > Especially now that the weather is changing (we live in Las

Vegas)

> > and it is getting really hot. Of course I realize that this is

> the

> > very best thing for Dane and I wouldn't change his treatment for

> > anything. It's just hard sometimes emotionally for me. He's

> doing

> > really well and his doctor says by the time Dane is six months

old

> > in June, he should only have to wear the DBB at bedtime.

> >

> > Ok here's my question. Last night Dane spent his first night in

> his

> > own crib in the nursery. Up until then, he's been sleeping in a

> > bassinet by the side of my bed. But he is getting too big for

the

> > bassinet, so we decided it was time for him to sleep in his

crib.

> > We have one of those video screen moniters hooked up, so that we

> can

> > see and hear him in our room as he sleeps down the hall in his

> > room. Needless to say, I was up all night watching him to make

> sure

> > he was ok. What I noticed really bothered me. Since he has so

> much

> > more room in his crib, he was moving around a lot. Lifting his

> legs

> > (DBB intact)high in the air, while stretching and turning his

> whole

> > body. Since he is at about that age where he should be rolling

> > over, I was wondering how this is possible with the DBB? A few

> > times, he nearly rolled over and it scared me. He wouldn't have

> the

> > strengh to roll back over again! What's to stop him from laying

> > face down in his crib and getting stuck there? I am worried to

> > death about SIDS (no pun intended). Please help me understand.

> How

> > did/does your baby learn to roll over and roll back again while

> > wearing the DBB?

> >

> > For those who made it all the way thru this message, thank you!

I

> > feel alone here and it would be comforting to know that there

are

> > other parents out there dealing with the same challenges.

> > Thanks again!

> > Sonja-Mommy to 3 1/2 month old Dane

[Guest guest]

Hi, is the same age pretty much though he hasn't

successfully turned over yet (very close so not long now) so I was

pleased to read your posting and all the replies which have been very

helpful.

Just a thought but you might want to move him Dane back into your

room - this way you will know what he is up to. As SIDS has been

raised already (sorry if you know anyway) you may want to know that

advice is for babies kept in

our rooms from 0-6 months.

Mum to - Bilateral

[Guest guest]

Sonja,

Relax! You will be surprised as you watch your little guy grow and

develop! I was worried about my Vinny being held up in development

or even hurting himself with his casts or the bar (daddy still

worries about him whacking his forehead with the bar before we can

find a pad for it!). Amazingly (to us), Little Vinny starting doing

things babies without clubfoot would do. Things like rolling over

(despite the heavy casts and even despite the DBB). He is now even

pulling himself up to stand on his bar! We keep joking about him

being a championship snow-boarder at the rate he's going with his bar.

Now, Vinny is very strong (his thigh muscles are huge!) and very

capable. I am always amazed when he rolls around with his DBB on.

It looks to me to be so awkward and uncomfortable with his feet stuck

out at 70 degrees and linked together with the bar, but to him it is

just how things are.

A person born without a limb doesn't miss it, because they grew up

around the disability. These little guys grow up around their

obstacles as well. Be cautious, just as you would if he didn't have

clubfoot, but dont stop him from learning. He may get frustrated and

scream terrible tantrums if he gets stuck on one side or the other...

Just let him figure it out.

I can relate to how you feel with him being your first. I was

neurotic with my first son (9 years ago!). I was afraid to let him

get dirty for fear of germs! My second son... now 7 is the rough

neck of the family, I can't tell you how many times we've been to the

emergency room! Vinny, he's the last (5 altogether including 2

stepdaughters) and has the most freedom of all the kids. As long as

the 'baby dangers' have been removed, he is free to roll, crawl,

scoot and play... until he picks the fuzz from the carpet, then its

back in the play yard!

You will see, Sonja. Give Dane the space and support he needs to

become independant, and he will astonish you with the wonderful

things he can do!

Laurie - Vinny's Mommy

> Dear all parents of a child with Clubfoot,

> This is my first time posting in a chat room ever. But after

> desperately searching the web for info on Clubfoot, I found this

> support group. Thank God! I need some advice and support from

> those who are going through the same thing as I am. Here's my

story

> and ultimately my question...

>

> In December, my husband and I had our first child! A beautiful

baby

> boy named Dane. Dane was born with Clubfoot. We were aware that

> there might be a problem ever since seeing his feet on an

ultrasound

> during my pregnancy. However, we had no idea what Clubfoot was and

> what the treatment would involve. Since Dane's birth, he has been

> receiving the Ponseti Method. He wore plaster casts for two and a

> half weeks and since then has been wearing the DBB brace. This has

> been a very difficult thing for me to accept. I know he is in no

> pain and does not know any better. But the idea that he can not

> kick his little bare feet around just makes me want to cry.

> Especially now that the weather is changing (we live in Las Vegas)

> and it is getting really hot. Of course I realize that this is the

> very best thing for Dane and I wouldn't change his treatment for

> anything. It's just hard sometimes emotionally for me. He's doing

> really well and his doctor says by the time Dane is six months old

> in June, he should only have to wear the DBB at bedtime.

>

> Ok here's my question. Last night Dane spent his first night in

his

> own crib in the nursery. Up until then, he's been sleeping in a

> bassinet by the side of my bed. But he is getting too big for the

> bassinet, so we decided it was time for him to sleep in his crib.

> We have one of those video screen moniters hooked up, so that we

can

> see and hear him in our room as he sleeps down the hall in his

> room. Needless to say, I was up all night watching him to make

sure

> he was ok. What I noticed really bothered me. Since he has so

much

> more room in his crib, he was moving around a lot. Lifting his

legs

> (DBB intact)high in the air, while stretching and turning his whole

> body. Since he is at about that age where he should be rolling

> over, I was wondering how this is possible with the DBB? A few

> times, he nearly rolled over and it scared me. He wouldn't have

the

> strengh to roll back over again! What's to stop him from laying

> face down in his crib and getting stuck there? I am worried to

> death about SIDS (no pun intended). Please help me understand.

How

> did/does your baby learn to roll over and roll back again while

> wearing the DBB?

>

> For those who made it all the way thru this message, thank you! I

> feel alone here and it would be comforting to know that there are

> other parents out there dealing with the same challenges.

> Thanks again!

> Sonja-Mommy to 3 1/2 month old Dane

[Guest guest]

Hi Sonja,

Everyone has pretty much said it all, I just wanted to echo the fact

that your little one will reach each and every milestone " on time "

and being in the DBB will have no ill affect. I actually thought

that the DBB helped Zach to roll over earlier than his counterparts

because it provided some leverage. I can't remember exactly (I'd

have to go check his baby book) when he rolled over for the first

time, but I do know it was early.

Emotionally, I know just what you're going through - you hate to see

your little one in any ounce of pain, or suffering any amount of

frustration. Trust me, this is harder on you than your little one.

Your baby doesn't know any different - this is the norm to him.

I remmeber it hurt my heart at first to see him attempting to kick

his legs, but once he got the hang of it, and starting reaching

those milestones, I quickly put aside those " poor him " " poor me "

feelings and simply began enjoying my little one, and our

situation. Now, I make a point of helping parents who are just

starting off on this journey - I'm very proud that we've gone

through this, and feel so proud of my little guy and the hurdles

he's literally LEAPT over!

You've come to the right place for support - we've all either been

there or are currently going through very similar things.

Oh, I have to reiterate what said about checking into things

and making sure your doctor used the true Ponseti method, and not a

modified version, which very rarely yields the same desired results

as the true method. You could easily email Dr.Ponseti pictures of

Dane's feet, just to make sure he feels they are fully corrected.

Holly

Zachary 7/27/02

Unilateral Right Clubfoot

Treated by Dr. Ponseti

14 hrs/day DBB

-- In nosurgery4clubfoot , " sonjahoussels "

wrote:

> Dear all parents of a child with Clubfoot,

> This is my first time posting in a chat room ever. But after

> desperately searching the web for info on Clubfoot, I found this

> support group. Thank God! I need some advice and support from

> those who are going through the same thing as I am. Here's my

story

> and ultimately my question...

>

> In December, my husband and I had our first child! A beautiful

baby

> boy named Dane. Dane was born with Clubfoot. We were aware that

> there might be a problem ever since seeing his feet on an

ultrasound

> during my pregnancy. However, we had no idea what Clubfoot was

and

> what the treatment would involve. Since Dane's birth, he has been

> receiving the Ponseti Method. He wore plaster casts for two and a

> half weeks and since then has been wearing the DBB brace. This

has

> been a very difficult thing for me to accept. I know he is in no

> pain and does not know any better. But the idea that he can not

> kick his little bare feet around just makes me want to cry.

> Especially now that the weather is changing (we live in Las Vegas)

> and it is getting really hot. Of course I realize that this is

the

> very best thing for Dane and I wouldn't change his treatment for

> anything. It's just hard sometimes emotionally for me. He's

doing

> really well and his doctor says by the time Dane is six months old

> in June, he should only have to wear the DBB at bedtime.

>

> Ok here's my question. Last night Dane spent his first night in

his

> own crib in the nursery. Up until then, he's been sleeping in a

> bassinet by the side of my bed. But he is getting too big for the

> bassinet, so we decided it was time for him to sleep in his crib.

> We have one of those video screen moniters hooked up, so that we

can

> see and hear him in our room as he sleeps down the hall in his

> room. Needless to say, I was up all night watching him to make

sure

> he was ok. What I noticed really bothered me. Since he has so

much

> more room in his crib, he was moving around a lot. Lifting his

legs

> (DBB intact)high in the air, while stretching and turning his

whole

> body. Since he is at about that age where he should be rolling

> over, I was wondering how this is possible with the DBB? A few

> times, he nearly rolled over and it scared me. He wouldn't have

the

> strengh to roll back over again! What's to stop him from laying

> face down in his crib and getting stuck there? I am worried to

> death about SIDS (no pun intended). Please help me understand.

How

> did/does your baby learn to roll over and roll back again while

> wearing the DBB?

>

> For those who made it all the way thru this message, thank you! I

> feel alone here and it would be comforting to know that there are

> other parents out there dealing with the same challenges.

> Thanks again!

> Sonja-Mommy to 3 1/2 month old Dane

[Guest guest]

Sonja,

First, congratulations on your new son. Second, don't worry about him rolling

over. It isn't any different than rolling over without the DBB. My daughter

Rose started rolling when she was still in her cast and, if anything, she used

that cast as leverage to get all the way over. She would get really mad because

she HATED being on her tummy. Anyway, she has really strong tummy muscles from

flinging that DBB around. As for dealing with this, well, it is hard. I look

at my baby girl's little foot and leg and feel sorry for both of us. BUT, when

that happens, I shake it off and move on to what is best for my baby. You have

to be strong because there will be plenty of people who will want to feel sorry

for Dane and you need to run interference. Just this last week we visited my

mom and she cried when I put the DBB on Rose for the night. It would be really

easy to get caught up in that but it would not be good for Rose. I want her to

think that all babies wear shoes at night.

Anyway, good luck. Just remember we all are here for you to talk to when you

feel like banging your head against the wall. Feel free to email me privately

as well.

Robin & Rose

3/12/03 Right club foot.

sonjahoussels sonjahoussels@...> wrote:

Dear all parents of a child with Clubfoot,

This is my first time posting in a chat room ever. But after

desperately searching the web for info on Clubfoot, I found this

support group. Thank God! I need some advice and support from

those who are going through the same thing as I am. Here's my story

and ultimately my question...

In December, my husband and I had our first child! A beautiful baby

boy named Dane. Dane was born with Clubfoot. We were aware that

there might be a problem ever since seeing his feet on an ultrasound

during my pregnancy. However, we had no idea what Clubfoot was and

what the treatment would involve. Since Dane's birth, he has been

receiving the Ponseti Method. He wore plaster casts for two and a

half weeks and since then has been wearing the DBB brace. This has

been a very difficult thing for me to accept. I know he is in no

pain and does not know any better. But the idea that he can not

kick his little bare feet around just makes me want to cry.

Especially now that the weather is changing (we live in Las Vegas)

and it is getting really hot. Of course I realize that this is the

very best thing for Dane and I wouldn't change his treatment for

anything. It's just hard sometimes emotionally for me. He's doing

really well and his doctor says by the time Dane is six months old

in June, he should only have to wear the DBB at bedtime.

Ok here's my question. Last night Dane spent his first night in his

own crib in the nursery. Up until then, he's been sleeping in a

bassinet by the side of my bed. But he is getting too big for the

bassinet, so we decided it was time for him to sleep in his crib.

We have one of those video screen moniters hooked up, so that we can

see and hear him in our room as he sleeps down the hall in his

room. Needless to say, I was up all night watching him to make sure

he was ok. What I noticed really bothered me. Since he has so much

more room in his crib, he was moving around a lot. Lifting his legs

(DBB intact)high in the air, while stretching and turning his whole

body. Since he is at about that age where he should be rolling

over, I was wondering how this is possible with the DBB? A few

times, he nearly rolled over and it scared me. He wouldn't have the

strengh to roll back over again! What's to stop him from laying

face down in his crib and getting stuck there? I am worried to

death about SIDS (no pun intended). Please help me understand. How

did/does your baby learn to roll over and roll back again while

wearing the DBB?

For those who made it all the way thru this message, thank you! I

feel alone here and it would be comforting to know that there are

other parents out there dealing with the same challenges.

Thanks again!

Sonja-Mommy to 3 1/2 month old Dane