Guest guest Posted March 21, 2004 Report Share Posted March 21, 2004 Hi all, I forwarded 's Reuters-link to a reporter of one of the biggest Finnish newspapers, and to my surprise they called me the next day and said they wanted to interview us. They published the story a week ago. The story can be seen at http://www.kaleva.fi/cf/juttu.cfm?j=389448 (in Finnish only, sorry!). The story was good, but there were a couple of things that bothered me. They had also interviewed Veeti's original doctor who said he is the first doctor in Finland using the Ponseti method. That isn't entirely so, as he is still modifying it quite a bit. I organised funding for his trip to Iowa city to train with Dr.Ponseti, but for some reason he didn't go. I heard from another parent that he had had problems with the money, but I don't know why he didn't contact me about it. Anyway, a local politican came to talk to me about the article, and promised to contact the doctor and see if she could arrange the funding for his trip. The doctor also said that " it is the European mentality to be eager to fix things quickly with a knife " meaning that many surgeons still think that surgery is better than having to wear the FAB for years.. The doctors in Helsinki have also changed their methods, and are now using tenotomies and FABs, but also major surgeries. It sounds like they are using a modified Ponseti method too. The reason why they feel the need to modify the time-tested method is incomprehensible to me. So I guess the good news is that the Ponseti method is definitely getting publicity in Finland, and the bad news is that we still don't have any doctors using it properly. Sanna & Veeti 05/06/02 left clubfoot, treated by Dr. Ponseti at 9 months after prior unsuccesful casting DBB 14 hrs/day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2004 Report Share Posted March 21, 2004 Sanna, I can understand your frustration, especially if the method is not being utilized in its entirety. At the very least, it's a step in the right direction and good for you for getting it underway! All the best, Daiga and Owen, 02/04/03 Unilateral LCF, DBB 14/24 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2004 Report Share Posted March 21, 2004 Sanna, Congratulations on getting the article into the major newspaper. And I am sorry that the doctors you mention seem to still be modifying something. But what you are experiencing there is not much different than what many other areas went through during the transition over to the Ponseti method. Over time, they hopefully will continue to keep switching over more and more. You may not have seen it, but there was a parent from Sweden on one of the other sites a few days ago talking about their experience with the Ponseti method. I will copy her message from the Yahoo Clubfoot group here with a link. They also have a nice web site in Swedish. " hi! " " my name is veronica and i live in sweden. in december last yar our first child was borned. he came out with bilateral clubfeet. we already known about the clubfeet since the routine ultrasound in the 20th week of gestation. my husbands brother was also borned with bilateral clubfeet almost 40 years ago. " " wiggo, our son who is almost 3 months now, is treated with the ponseti method. he got his first plaster when he was 26 hour old and after that we replastered once a week. the right foot was easier to manipulate than the left one. after six plasters/weeks wiggo had his left achilles atendon cut off with a very good result. the heel droped down to where it belongs nicely. " " last week he got his dennis brown bar. and he likes them a lot. and i like them too, it is great to have a child with bare legs *laugh* " " i hope to learn a lot from you and looking forward to join this group. " hugs! /veronica and wiggo in sweden http://www.wikberg.tk http://health.groups.yahoo.com/group/clubfoot/message/15725 and (3-17-99) > Hi all, > > I forwarded 's Reuters-link to a reporter of one of the biggest > Finnish newspapers, and to my surprise they called me the next day > and said they wanted to interview us. They published the story a week > ago. The story can be seen at > http://www.kaleva.fi/cf/juttu.cfm?j=389448 (in Finnish only, sorry!). > > The story was good, but there were a couple of things that bothered > me. They had also interviewed Veeti's original doctor who said he is > the first doctor in Finland using the Ponseti method. That isn't > entirely so, as he is still modifying it quite a bit. I organised > funding for his trip to Iowa city to train with Dr.Ponseti, but for > some reason he didn't go. I heard from another parent that he had had > problems with the money, but I don't know why he didn't contact me > about it. Anyway, a local politican came to talk to me about the > article, and promised to contact the doctor and see if she could > arrange the funding for his trip. > > The doctor also said that " it is the European mentality to be eager > to fix things quickly with a knife " meaning that many surgeons still > think that surgery is better than having to wear the FAB for years.. > > The doctors in Helsinki have also changed their methods, and are now > using tenotomies and FABs, but also major surgeries. It sounds like > they are using a modified Ponseti method too. The reason why they > feel the need to modify the time-tested method is incomprehensible to > me. > > So I guess the good news is that the Ponseti method is definitely > getting publicity in Finland, and the bad news is that we still don't > have any doctors using it properly. > > > Sanna & Veeti 05/06/02 > left clubfoot, treated by > Dr. Ponseti at 9 months after prior > unsuccesful casting > DBB 14 hrs/day Quote Link to comment Share on other sites More sharing options...
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