ultrasound revealed son's club foot

[Guest guest]

Hi! My name is Dedet. Two days ago a Level 2 ultrasound revealed

that our unborn son has clubfeet (i'm now 24 weeks pg). He is our

second son; our first, , also had the same condition, but he

died at seven days old due to labor complications.

I am still in shock. To have two children with this relatively rare

condition? I can't quite understand.

Right now my DH and I are making plans on how to deal with our son's

condition when he's born. We live in the Philippines and I hope that

we can find someone who knows the most modern treatments.

Just want to say hello... and looking for support. It's such a

scary time.

thanks,

dedet

[Guest guest]

Hi Dedet-

Welcome to our board. Sorry to hear about the loss of your first born, I

can't even imagine how difficult that must of been. Dealing with clubfoot

will be a walk in the park compared to the loss of a child.

You are already ahead of the gang because you know you are having a child

born with clubfeet. Many of us were surprised at birth with the news. You

have plenty of time to research the method that will work best for you. We

chose the Ponseti Method to avoid surgery. It has worked out great for us.

My son is now 2 and no signs visually or physically that he was born with a

left clubfoot.

To learn more about the Ponseti method please visit this website:

www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html

If you have any questions regarding the Ponseti Method please let us know.

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: ultrasound revealed son's club foot

>Date: Mon, 15 Mar 2004 03:36:57 -0000

>

>Hi! My name is Dedet. Two days ago a Level 2 ultrasound revealed

>that our unborn son has clubfeet (i'm now 24 weeks pg). He is our

>second son; our first, , also had the same condition, but he

>died at seven days old due to labor complications.

>

>I am still in shock. To have two children with this relatively rare

>condition? I can't quite understand.

>

>Right now my DH and I are making plans on how to deal with our son's

>condition when he's born. We live in the Philippines and I hope that

>we can find someone who knows the most modern treatments.

>

>Just want to say hello... and looking for support. It's such a

>scary time.

>

>thanks,

>dedet

>

>

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[Guest guest]

Hello Dedet,

I am so sorry to hear about your first son. I hope that all goes well with

this delivery and that you can find a Ponseti trained doctor within or close

to the Philippines. With proper treatment, your child will walk and run

perfectly normally and will have pain-free feet without the need of invasive

surgery (95% success rate). Please read the comforting information at Dr.

Ponseti's website " to Parents of Children Born with Clubfeet "

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html .

On that page also find the list of doctors qualified in the method. There

are only two listed for all of Asia but there may be more who are not on the

list, or you could travel further to Australia or Europe:

Amnuay Jirasirikul, MD

Section of Pediatric Orthopaedics

Department of Orthopaedics

Bhumibol Adulyadej Hospital

Bangkane, Bangkok 10220

Thailand

Tel: Ext: 27365 or 27366

Milind Chaudhary, M.D.

Chaudhary Trust Hospital

Civil Lines

Akola, India 444001

akl_milind7@...

Dr. Pirani, in Canada, has travelled in India helping kids with the " Leg to

Stand On " project. He also co-started the Uganda clubfoot Project. Perhaps

he could help you with other referrals:

Shafique Pirani, MD

205-245 East Columbia Street

New Westminster

British Columbia

Canada V3L 3W4

Tel:

Fax:

piras@...

Good luck, enjoy your pregnancy, and keep us posted.

-

Emma 18-10-99. Montreal, Canada

moderately severe bilateral clubfoot

3 months unsuccessful local casting pending surgery

corrected by Dr. Ponseti with 3 casts & tenotomy

out of FAB too early, just before 2 yrs old (loose ligaments)

relapse, ATTT at 4 years old, doing great.

[Guest guest]

Dedet,

I know that this is alot to deal with. Actually, clubfoot isn't a rare

condition at all. I believe that 1 in 500 to 1000 babies are born with this.

Someone correct me if I'm wrong about the numbers. It is also completely

treatable with proper treatment. Most babies are casted then a small

procedure is done to lengthen the achilles tendon and then they will wear a

brace of some sort for a few years. I don't know what kind of healthcare

access you have there, but a ponseti trained doctor is optimal. Although my

son, now 1, didn't have one and he is doing good. Someone in the group will

lead you to some names of excellent doctors. That is not my area. Although

overwhelming now everything will be fine. I am sorry to hear about your

first son. My heart goes out to you

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: ultrasound revealed son's club foot

>Date: Mon, 15 Mar 2004 03:36:57 -0000

>

>Hi! My name is Dedet. Two days ago a Level 2 ultrasound revealed

>that our unborn son has clubfeet (i'm now 24 weeks pg). He is our

>second son; our first, , also had the same condition, but he

>died at seven days old due to labor complications.

>

>I am still in shock. To have two children with this relatively rare

>condition? I can't quite understand.

>

>Right now my DH and I are making plans on how to deal with our son's

>condition when he's born. We live in the Philippines and I hope that

>we can find someone who knows the most modern treatments.

>

>Just want to say hello... and looking for support. It's such a

>scary time.

>

>thanks,

>dedet

>

>

>

>

>