Dr. referrals in sdale, AZ???

March 5, 2004

Hello - I'm new here. My name is - my husband and I just saw in my 20 week

ultrasound that our first will most likely be born a bilateral clubby in July.

The level of severity is still unknown.

At this point, I am trying to deal with the sadness and fear by keeping myself

busy researching treatment etc. At first, even looking at photographs just made

me cry and cry.

I am very interested in both Ponseti and the French Method - can anyone point me

in the direction of a good doc/physiotherapy program in or around Phoenix, AZ??

What has been your experience with insurance coverage for treatment?

Thank you so much - I have learned a lot already from reading your posts and I

admire the strength of each and every one of you.

Best,

NORTH STAR DUST What do YOU want...?

Bainter Baghdadi

northstarcoach@...

Powered by Plaxo Want a signature like this?

March 5, 2004

Hi

I remember when my son was diagnosed at our ultrasound. I remember

crying and crying in the parking lot. Now I look at my little boy and

wonder why.

I know a lot of people have probably said this to you already, but

clubfoot really is TOTALLY managable. You WILL have to watch your

baby spend a few months in casts and some boots and a bar (that is if

you go with the Ponseti method.) But it is totally managable.

I have just been typing out my son's clubfoot story in order to put

together a scrapbook for him. As I tried to remember my first

impressions of his clubfoot I realised that when Ben was born, I

never once looked at his foot. I was just so pleased to see him. I

knew it was clubbed, it looked turned, but it also looked like my

newborn baby boys foot.....and it was ok.

Today s foot is slightly smaller and chunkier than the other,

and his calf muscle will always be a bit smaller, but he is happy,

naughty, and totally mobile in a totally normal way. (see pics in

file section under Ben H, these won't make you cry, I promise)

So persevere, and prepare to answer a lot of questions, everyone is

curious about a newborn with a legcast :')

I can't help you with doc in Arizona, but go to Dr. Ponseti's website

and have a look, the site is listed in the archives a billion times.

Keep in touch and good luck

Ruth

Mum to born March 31, 2003 unilateral clubfoot, left

>

> Hello - I'm new here. My name is - my husband and I just saw

in my 20 week ultrasound that our first will most likely be born a

bilateral clubby in July. The level of severity is still unknown.

>

> At this point, I am trying to deal with the sadness and fear by

keeping myself busy researching treatment etc. At first, even looking

at photographs just made me cry and cry.

>

> I am very interested in both Ponseti and the French Method - can

anyone point me in the direction of a good doc/physiotherapy program

in or around Phoenix, AZ??

>

> What has been your experience with insurance coverage for treatment?

>

> Thank you so much - I have learned a lot already from reading your

posts and I admire the strength of each and every one of you.

>

> Best,

>

> NORTH STAR DUST What do YOU want...?

>

> Bainter Baghdadi

> northstarcoach@e...

>

> Powered by Plaxo Want a signature like this?

>

March 5, 2004

Hi -

I totally understand your feelings and was there myself when my son was born

with a unilateral clubfoot. I had three ultrasounds and it was detected, so

you are ahead of the game by knowing now. All I can say is that clubfoot is

no big deal, if you are in the hands of the right doctor. By 6 weeks of age

my son's foot was totally corrected by casting and a simple tenonomy

(Ponseti Method). I assure you it is nothing to freak out about. My son will

be 2 in a couple of weeks and you would have no clue he was born with a

clubfoot. He has no scars and runs faster than any other child his age. He

has an older brother without clubfeet and they did everything at exactly the

same age. They both walked at 10 months, they both crawled out of their crib

at 21 months and my cf child even did it with his brace on. What I'm trying

to say is that it won't slow your child down at all and his feet after

proper correction will look just like everyone elses.

As far as insurance goes my insurance (Blue Cross HMO at the time) denied to

reimburse me for my Ponseti doctor. However, after a simple letter of appeal

they agreed to reimburse me. I think most of us who have appealed have won.

If you need a letter I can share mine with you.

I personally think the best doctor on the west coast is Dr. Colburn in

Pleasanton (bay area), CA. How far would that be for you??? He has been

practicing the Ponseti Method for 5 years now and has the same success rate

as Ponseti because he doesn't try and change what already works. He consults

with Ponseti regularly and Ponseti comes to his clinic when he is in CA to

see his patients. Dr. Colburn treats you like an individual and not a

number. He truly cares about these babies feet and has done it long enough

that he is excellent at it. He is more than willing to consult free of

charge by email or phone prior to your baby being born too. If you would

like contact information let me know.

Congrats on your baby to be! My aunt gave me the best advice when my son

was born unexpected with clubfoot. She said thank god he was born healthy

and with all his parts, all his foot needs is a little adjustment. It is so

true it really just is an adjusment.

>