Guest guest Posted January 2, 2007 Report Share Posted January 2, 2007 The best thing you could do for him is to get him to use sign while you are working on the speech. All the old school thoughts of how it delays speech are WRONG. It actually augments speech. It teaches their brains the concept of language and communication. Sign language is a language, and it is key to get them processing language at this point in their development. Look into signingtime.com. Great videos. Once my son realized there was a way to get us to understand him...his sign communication took off and he was signing 2-3 word sentences even though he was non-verbal. I even found him signing in his sleep one night!! Sign language was truly his first language. But as speech came...he was 100% unintelligible. This is where sign helped once again. He usually knew 1 or 2 signs that could give us a clue as to what he was talking about...and we could figure out what he was saying...then take it as an opportunity to work on his speech error to get a near approximation. Don't hold back on sign. It was the best thing we did for my son last summer...but should have done it sooner. We started at 23 months - but knew there was " a problem " for a while before then. Just hoping the " late bloomer " would catch up. I can't believe the speech therapist said he was " fine " . Surely it sounds like he was at the 9-12 month range for expressive language...which means you would have qualified for free state intervention through your regional center. Get an appt for an evaluation with your state early intervention center ...these services are free until age 3 when they transition to the school district. It seems at least in California that the regional center offered us more than the school district. But by the time most people are getting a diagnosis, the child is already over 3 and you've missed out on the opportunity to utilize this free and often excellent system. - > Hi All! > My name is and I am mom to 2 boys Hunter (5) and Brayden (will > be 2 on Jan. 10th). Hunter was a VERY earlier talker so this is > something that is new for us. When we took Brayden to his 18 month > appointment, the ped asked how many words he was saying. At that > time it was mama, dada, ball, car and bye-bye. He told us that he > just wanted him evaluated in case there was a problem, we could > catch it early. The speech therapist said that he was fine, just > seemed not to want to talk. She told us to start doing simple signs > with him to cut down on some of his frustration and that he still > wasn't talking in a year, to bring him back. Well, it's been 6 > months and he now says 2 words (mama and dada) won't even say those > other words anymore. He does about 5 signs. He could do more, but > I have been reluctant to have him depending too much on signs > because I'm not sure if it would delay the talking even more. Any > suggestions or should I just wait it out? > I will be looking over the posts on here over the next couple of > days for ideas also! > Thanks so much! > in Florida > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2007 Report Share Posted January 2, 2007 Hi : I have two boys, one is 6 and Landon is 3. My 6 year old was talking circles around us by the time he was a year old. Landon was like your second child. At 18 months he had 3 words and we heard others before this age, but he lost them as soon as he said them. The only words that stuck with him was mama, dada, and Ayen(Hayden). Losing words is a symptom of apraxia. Since he is under 3 years old you can get in touch with Early Intervention and have him evaluated again. My Pediatrician referred Landon and within a month he started getting therapy. Sign language is good for many reasons. Children with apraxia know what they want to say, but because of motor planning problems they can't get the words out. This then leads to frustration. Sign language helps to cut down on the frustration. It also helps them learn the word as they are signing. Everytime you sign, make sure you are signing and saying the word at the same time. Tina > > Hi All! > My name is and I am mom to 2 boys Hunter (5) and Brayden (will > be 2 on Jan. 10th). Hunter was a VERY earlier talker so this is > something that is new for us. When we took Brayden to his 18 month > appointment, the ped asked how many words he was saying. At that > time it was mama, dada, ball, car and bye-bye. He told us that he > just wanted him evaluated in case there was a problem, we could > catch it early. The speech therapist said that he was fine, just > seemed not to want to talk. She told us to start doing simple signs > with him to cut down on some of his frustration and that he still > wasn't talking in a year, to bring him back. Well, it's been 6 > months and he now says 2 words (mama and dada) won't even say those > other words anymore. He does about 5 signs. He could do more, but > I have been reluctant to have him depending too much on signs > because I'm not sure if it would delay the talking even more. Any > suggestions or should I just wait it out? > I will be looking over the posts on here over the next couple of > days for ideas also! > Thanks so much! > in Florida > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2007 Report Share Posted January 2, 2007 Hey : I forgot to mention in my earlier message to consider giving your child ProEFA and ProEPA. https://www.nordicnaturals.com/direct/Retailproducts.asp cheaper here: http://www.goestores.com/catalog.aspx? Merchant=shopinserviceinc2 & DeptID=228642 Once we started the ProEFA, Landon started to say more words, and he stopped losing words. The ProEFA also helped with his sensory issues. We started out with one ProEFA, 6 months later added another ProEFA, 6 months later added the ProEPA, and then upped it shortly after that to the higher doses being used now. Now some are starting out with 2 ProEFA and 1 ProEPA. You will hear more about EFA's and Vitamin E as you read on. A good book to read is The Late Talker What to Do If Your Child Isn't Talking Yet by Marilyn C. Agin; F. Geng; Malcolm J. Nicholl Tina > > Hi All! > My name is and I am mom to 2 boys Hunter (5) and Brayden (will > be 2 on Jan. 10th). Hunter was a VERY earlier talker so this is > something that is new for us. When we took Brayden to his 18 month > appointment, the ped asked how many words he was saying. At that > time it was mama, dada, ball, car and bye-bye. He told us that he > just wanted him evaluated in case there was a problem, we could > catch it early. The speech therapist said that he was fine, just > seemed not to want to talk. She told us to start doing simple signs > with him to cut down on some of his frustration and that he still > wasn't talking in a year, to bring him back. Well, it's been 6 > months and he now says 2 words (mama and dada) won't even say those > other words anymore. He does about 5 signs. He could do more, but > I have been reluctant to have him depending too much on signs > because I'm not sure if it would delay the talking even more. Any > suggestions or should I just wait it out? > I will be looking over the posts on here over the next couple of > days for ideas also! > Thanks so much! > in Florida > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Thanks for the welcoming replies everyone! Of course we tried the hypoallergenic Aliplast, too, but he was also allergic to that. He has a latex allergy, too, so it kind of comes with the territory. There is not really much we can do with the helmet. We aren't looking for perfection because I don't think we can get that at this point, just improvement, which we are seeing!Katy New Here! Hi Everyone,My name is Katy and I just found this group about Plagio and I'm sohappy because I've been looking for some support! My ds is 9 monthsold and was diagnosed at 3 months with brachycephaly, mild tomoderate. We tried to get him a helmet but he had a severe allergicreaction to the co-polymer plastics used to make it so we are nowtrying other methods to try to reshape his head, includingrepositioning and CranioSacral Therapy. We're getting pretty goodresults. Anyway, just wanted to introduce myself!Katy and Max AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Ahhh...imagining that irresistible "new car" smell? Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2007 Report Share Posted June 12, 2007 Welcome Vicky! How blessed you are to have a Dr who is so proactive and up on plagio. There are many here who did not get such support! Has your dd been casted yet? Please post pics of your baby!!!  Jen and Luli - 18 mo. Left Tort - Right Plagio - Hanger Band Grad - CA tallulah jayne www.babiesonline.com/babies/j/jens5th/ New here! Hello to everyone! I am a stay at home mother of two children age 3 and 4 1/2 months! My daughter was diagnosed with Plagiocephaly and Brachyocephaly just yesterday at Cranial Technology, due to tortacollis. My niece had Positional Plagiochephaly and was treated at the same center that we are going to get my daughter's treatment done at. My daughter's pediatrician noticed a flat spot on the back side of my daughters head at her two week appointment, and we were told to try a few things to help our daughter reshape her head without having to get medical treatment but all the suggestions the doctor gave us did not work. So we were referred to Cranial Technology. I'm here to get to know all you other moms and/or dads that are here! I'm thinking about setting up website that is to raise awareness of these conditions! If anyone is interested in telling their story then please email them too me, so I can get them together and organize all the stuff for a website! Thanks a ton! Vicky! Mommy to Connor and ! AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 Hi Vicky: You are the only other mom (bar me) that I have heard of having a positive experience with their ped. Mine also referred me for cranial consultation.....you're very lucky...stick with that doc.! I took Sofia for a consult at 3 mo. and she just graduated from repositioning about a month ago. Good luck with everything and your drive to highlight this condition....maybe a good start would be to start a template and let people post their info. in a categorized manner, and then you could sort it and realign your site accordingly. Anything anyone does to raise awareness of plagio is a good thing, especially since it was classified as an epidemic a few years ago (see paper by Graham, M.D. Genetics and Dysmorphology, Cedars-Sinai, California). I think pediatricians should be the first to be educated. I know you have a good one, but more often than not, this is not the case -- they don't seem to take plagio seriously generally. They don't seem to get that with Torticollis...there is no " rounding out " without PT....this very basic rule seems to elude most peds. Best, Natasha. > > > Welcome Vicky! > > How blessed you are to have a Dr who is so proactive and up on plagio. There are many here who did not get such support! > Has your dd been casted yet? > Please post pics of your baby!!! > > > >  Jen and Luli - 18 mo. > Left Tort - Right Plagio - Hanger Band Grad - CA > tallulah jayne > www.babiesonline.com/babies/j/jens5th/ > > > New here! > > > > > > > Hello to everyone! I am a stay at home mother of two children age 3 > and 4 1/2 months! My daughter was diagnosed with Plagiocephaly and > Brachyocephaly just yesterday at Cranial Technology, due to > tortacollis. My niece had Positional Plagiochephaly and was treated at > the same center that we are going to get my daughter's treatment done at. > > My daughter's pediatrician noticed a flat spot on the back side of my > daughters head at her two week appointment, and we were told to try a > few things to help our daughter reshape her head without having to get > medical treatment but all the suggestions the doctor gave us did not > work. > > So we were referred to Cranial Technology. > > I'm here to get to know all you other moms and/or dads that are here! > I'm thinking about setting up website that is to raise awareness of > these conditions! If anyone is interested in telling their story then > please email them too me, so I can get them together and organize all > the stuff for a website! > Thanks a ton! > Vicky! > Mommy to Connor and ! > > > > > > ________________________________________________________________________ > AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2007 Report Share Posted September 12, 2007 Hi everyone! I am so glad to have found this group, as my daughter just got her DOC Band today! I am sure I will have tons of questions for everyone! My name is Hannah, I am 23, and a chlid dev. major attending NIU. Kaylin is 9 months old, and has a big sister in Heaven. She has done pretty good with the band today..expect for nap time! We will see. Her forehead tends to get pushed down too..causing a bit of a pink spot on her forehead and her eyes to scrunch...I am assuming this is normal and will hopefully go away?! Quote Link to comment Share on other sites More sharing options...
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