Re: Re: Bone Pain & oncologist

[Guest guest]

My onc has prescribed Herceptin for me (Her2+ but still node

negative). If I understand it correctly, the reason he put the

Herceptin treatments on the " other end " (A/C first, then Taxol)

was because of the cardio issues. He said he would see

how well I did with the Taxol, and said if he thought it was safe

he'd combine it with the Herceptin so I could get the " the end "

a little faster : ) I had to have a MUGA scan first, and will more

than likely have several along the way to be sure my ticker is

ticking properly : )

Hoping I'm relevant....

- Jen : )

On Sun, 24 Sep 2006 16:02:30 -0000 " ruthiema36 "

writes:

> Hi Rhonda,

> Does the same apply when the news touts the new cancer treatments?

> Herceptin is a miracle drug! Trials stopped early to give women in

> the control groups access. Seems to me that for the most part the

> media is your friend! Why can Herceptin be given alone for

> metastatic

> breast cancer and not early node negative cancer? I am not taking

> it

> because the second opinion oncologist wanted me to take a course of

> AC

> prior to the Herceptin. Since congestive heart failure along with

> dementia runs in the family, I decided to pass. So many questions

> so

> few answers.

> Ruth

>

>

>

>

[Guest guest]

Ruth:

I found some stuff on the tests if you want to check it out...

http://www.breastcancer.org/research_herceptin_050001.html

This one has good (idiot friendly - my favorite kind : ) info on

the two tests used...Checked my notes and mine was a 3+ and

fully overexpressed (I had the IHC test run).

http://www.her2support.org/vbulletin/archive/index.php?t-20167.html

This one gave me a headache, but I thought I'd pass it along in

case your brain cells are in better shape than mine at this time - ha!

Pointless Pondering...

I am currently thinking that any general surgeon who " installs "

sub dermal ports should be required to wear a bra during the

surgery. This will ensure they will NOT put said port directly

under the bra strap area where it can be snapped by said strap

SEVERAL times - no matter HOW careful you are (ow!) Am I the

only one with this dilemma??

A woman on the edge...ready to snap (NOT!)

- Jen : )

[Guest guest]

the her2 article is sort of unsettling. It's from 2005, and states that

60% of women who test positive for her2neu don't respond to Herceptin. I

thought it was only 20%. I'll have to look around the her2support

website more to find the article on the test I mentioned (not FSH).

Apparently there's her3 and her1 receptors as well.

-

p.s. jen, maybe because my surgeon was a woman my port was installed in

a good location.

jbuzzard@... wrote on 9/24/2006, 6:41 PM:

> Ruth:

>

> I found some stuff on the tests if you want to check it out...

>

> http://www.breastcancer.org/research_herceptin_050001.html

> This one has good (idiot friendly - my favorite kind : ) info on

> the two tests used...Checked my notes and mine was a 3+ and

> fully overexpressed (I had the IHC test run).

>

> http://www.her2support.org/vbulletin/archive/index.php?t-20167.html

> This one gave me a headache, but I thought I'd pass it along in

> case your brain cells are in better shape than mine at this time - ha!

>

> Pointless Pondering...

> I am currently thinking that any general surgeon who " installs "

> sub dermal ports should be required to wear a bra during the

> surgery. This will ensure they will NOT put said port directly

> under the bra strap area where it can be snapped by said strap

> SEVERAL times - no matter HOW careful you are (ow!) Am I the

> only one with this dilemma??

>

> A woman on the edge...ready to snap (NOT!)

>

> - Jen : )

>

>

>