Re: [SPAM] INFO ON GRETA'S HEAD--NEUROSURGEON

[Guest guest]

We’ll be thinking about you J Is it

possible to get in any sooner for the MRI so you can get some answers

quicker? A lot of places will let you get on a waiting list to be sooner

if there are any cancellations or they tell you to call in the morning to find

out if there have been any. When you do get an answer please let us know

how things go.

Molly

Novato, California

Nicolas, 2, tort & plagio, STARband (CIRS Oakland)

4/24/06-9/12/06, Graduate!

, 5

, 8

From: Plagiocephaly

[mailto:Plagiocephaly ] On Behalf Of marcyeiseman

Sent: 23 February 2008 03:14

Plagiocephaly

Subject: [sPAM] INFO ON GRETA'S HEAD--NEUROSURGEON

Well, some of you were wondering why Greta's

head looked the way it

did, with both sides looking flat. I dont have good news. Even though

my pediatrician diagnosed her with plagio, my gut told me

otherwise...SO, I made an appt with a neursurgeon...the neurosurgeon

felt her head, kept feeling it, and feeling it, very silent. I was

like, oh crap. I know what he is looking for. He said, I am going to

send Greta down for an XRAY of her skull. I asked, " why, you think

that the bones are coming together too quickly? " he said, " yes, I

cant feel a space in between the bones. I am not sure. " My heart

sank.

She had the xray, and when he came back in after looking at it, he

said, " I still cant tell. "

WHAT??!?!?!? So, then he says, " come back in 3 weeks, i want to give

her an MRI...She cant have surgery until then anyway. "

OH MY GOSH. I cant even believe what I am hearing...Here I am hoping

the guy tells me, yes, she has plagio, a weird case of it, and my

worst nightmare came true.

SO the reason her head looks like it does is because the bottom part

of her skull, the occiput is prominant, or being pushed out from the

pressure of her brain, and the bones pushing. I am praying he is

somehow wrong, and that this next doctor will see a space!

Please pray for her, I will keep everyone informed...marcy

[Guest guest]

Molly, we are actually going for a second opinion before we do the MRI-considering she is only 9.5 weeks old, and they would have to sedate her for an MRI...Hopefully we will be seen in the beginning of the week!Thanks for your advice!~marcy

[sPAM] INFO ON GRETA'S HEAD--NEUROSURGEON

Well, some of you were wondering why Greta's head looked the way it did, with both sides looking flat. I dont have good news. Even though my pediatrician diagnosed her with plagio, my gut told me otherwise... SO, I made an appt with a neursurgeon. ..the neurosurgeon felt her head, kept feeling it, and feeling it, very silent. I was like, oh crap. I know what he is looking for. He said, I am going to send Greta down for an XRAY of her skull. I asked, "why, you think that the bones are coming together too quickly?" he said, "yes, I cant feel a space in between the bones. I am not sure." My heart sank. She had the xray, and when he came back in after looking at it, he said,"I still cant tell." WHAT??!?!?!? So, then he says, "come back in 3 weeks, i want to give her an MRI...She cant have surgery until then anyway."OH MY GOSH. I cant even believe what I am hearing...Here I am hoping the guy tells

me, yes, she has plagio, a weird case of it, and my worst nightmare came true.SO the reason her head looks like it does is because the bottom part of her skull, the occiput is prominant, or being pushed out from the pressure of her brain, and the bones pushing. I am praying he is somehow wrong, and that this next doctor will see a space!Please pray for her, I will keep everyone informed...marcy

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