Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 hello, I live in Canada and have a 2 1/2 year old daughter. We got extremely bad advice in her first months of life and were told this would 'mold out' on it's own and that a helmet was not needed. It improved a bit but you look at your child every day and don't notice the subtle facial changes occurring. I looked at pictures of her and notice she has the typical changes, forehead and cheek prominence on one side and facial flattening and recessed eye on the other side. went to see a craniofacial surgeon at sick kids in toronto, canada and was told, this is mild, nothing to do. I can't leave her with self esteem issues due to this facial assymetry. I am filled with guilt about not demanding the helmet and just trusting the 'experts'. Is there anyone who has had reconstructive surgery for their child's facial assymetry and if so, when did you do it (what age) and where did you go? Is there anyone in Canada who knows a doctor that will do this. I am thinking I will have to go to the US if the surgeon here already said no. Please advise about US surgeons and who is good and also, if anyone has any idea about cost. I appreciate any help and advice. thanks, Deepa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Deepa- I'm sorry you're going through this! Unfortunately, I can't help with your questions, but I can recommend that you check out the Older Plagio message board on . It is mostly parents of older children who missed their chance at banding as well, and maybe they can give you some advice. I'm not sure I read of anyone having the surgery, but they do have experience in other techniques of therapy (I can't remember the name of therapy right now) that apparently helps in reshaping the skull. But check them out and see what you can find. Good luck! in Raleigh > > hello, > I live in Canada and have a 2 1/2 year old daughter. We got > extremely bad advice in her first months of life and were told this > would 'mold out' on it's own and that a helmet was not needed. It > improved a bit but you look at your child every day and don't notice > the subtle facial changes occurring. > > I looked at pictures of her and notice she has the typical changes, > forehead and cheek prominence on one side and facial flattening and > recessed eye on the other side. > > went to see a craniofacial surgeon at sick kids in toronto, canada > and was told, this is mild, nothing to do. > > I can't leave her with self esteem issues due to this facial > assymetry. I am filled with guilt about not demanding the helmet and > just trusting the 'experts'. > > Is there anyone who has had reconstructive surgery for their child's > facial assymetry and if so, when did you do it (what age) and where > did you go? Is there anyone in Canada who knows a doctor that will > do this. I am thinking I will have to go to the US if the surgeon > here already said no. Please advise about US surgeons and who is > good and also, if anyone has any idea about cost. > > I appreciate any help and advice. > > thanks, > Deepa > Quote Link to comment Share on other sites More sharing options...
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