new member w/ questions + upset w/ doctor + self

[Guest guest]

Hello! I was thrilled to find and join your group yesterday. My son

is almost 8 months old. He's had what I now know to be plagiocephly

since he was approx 2 months. I just learned of the term this week

doing internet research. His right side is flattened.

I'm really upset because at my son's routine checkups I always asked

the doctor about it because it was very obvious his head was

misshaped. All the doctor did was feel to be sure he still had his

soft spot and said that my son would grow out of it the older he got

and the less time he was on his back, etc.

I made an appointment w/ a different doctor in the practice for his

6 month checkup because I didn't think his head looked any better,

despite the fact that I got rid of his swing when he 5 months and

limited his time on his head (except for sleeping and car seats).

The new doctor had an " emergency, " and I got the same doctor again.

I was crying about his head this time, and the doctor

again " promised me " that " he will grow out of it. " I again foolishly

trusted him and kept trying to limit time on his affected side.

Deep down I was feeling that this wasn't right but didn't want to be

paranoid. Also, I am a self-pay (have insurance but very high

deductible; for emergencies only).

I am consumed with guilt because I kept him in the swing so much for

the first few months of life. I have a toddler (19 months apart) and

often kept the baby in the swing and safely " out of harms way "

because I couldn't manage both kids. I'm also mad at myself for not

getting a second opinion when he was 2 – 3 months old when I knew

something was wrong. I'm also mad that I didn't get rid of the swing

sooner and never propped his head in the car seat or anything. What

was I thinking?!!! Now I stress so badly anytime he has to be in the

car seat or sleeps that way and continually try to prop him. I keep

rehashing all the times I had him unnecessarily in the swing or car

seat, etc. and am feeling so bad.

To make me more stressed, we are in the process of getting another

insurance provider so I can't do anything for probably two weeks.

I'm thrilled to learn there's a Cranial Technologies within an

hour's drive. I'm not sure if CT will make me get a doctor's order

even though I will be paying for this out of pocket. I'm just not

sure what to do right now. I feel so stressed with each day older

that he gets now that I found out that there is a solution and not

a " just wait it out " approach. Also, I feel like I missed my window

of opportunity… he should already be wearing the band… now he

probably won't get one until he's nine months old. Can anyone tell

me what steps I should take to get this going? Should I make an

appointment for a few weeks out? Go to a different doctor's practice

or a different doctor in the same practice and get a referral? Can

anyone assure me that waiting a few more weeks is no big deal? What

else can I be doing in the meantime????

Thanks so much!!!!!!!!!!!!!!!!!!! Caren