Chiari - Duke genetics study page

[Guest guest]

http://www.chg.duke.edu/patients/facts.html

Duke University's Center for Human Genetics has been studing chiari

malformations with Dr Milhorat and ASAP's funding assistance and this link

has current good info on chiari including a discusion of the clustering or

grouping tendancy that has been found sugesting a genetic factor may be

present in some familys .

For those of you asking about getting MRI's done if your child shows some

symtpoms ..printing this page for your childs chart /and to share with the

pediatrician when asking for MRI's may help justify to the insurance ( or the

clinic protacols the doctor should follow ) why its warented .

Since early diagnosis may help lead to lifestyle modifications and keep from

exacerbating a mildly symptomatic person ...given where science is heading

...I'd say diagnosis someone as early as possible myself ...you may prevent

dammage from every occuring by doing so ! ( And save the darn insurance

company a LOT of money in the process _ LOL.

in Paradise