We're getting our RX tomorrow for her helmet

[Guest guest]

My husband and I are excited we're FINALLY seeing the Chief of

Pediatric Neurosurgery at Texas Children's Hospital tomorrow for our

daughter's head. She has macrocephaly, brachycephaly, and

plagiocephaly. Her head is so large that she has already had a CT scan

and ultrasound to rule out hydrocephalus. Thank God her brain is

normal and her head is just big and badly shaped.

I'm scared to death of what the NS will tell us tomorrow. Any

possibility any of these children have to have surgery on their

skulls? Should I not stress about that?

The casting looks awful. Is it better to bring my sister along and

have her help with the casting? I will probably be crying harder than

the baby, and that will only make her more upset.

So many questions, so little time. Any advice you can give us, as we

prepare to start the journey to a better head? She's almost 7 months

old.

Thanks in advance!