Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 in defense of the arthritis foundation (who i volunteer for & who have done wonderful things for me in turn), they have one pamphlet in their collection re: EDS. the folks who work there are not experts in any type of arthritis & don't claim to be. they will direct you to see a rheumatologist. maybe if you go higher? or dig deeper, you'll be able to get the help you need. give them another chance. they are truly a wonderful organization. they're very active in our community & they make sure everyone gets a chance to do any of their classes, regardless if they can afford it or not. that's just my little shpeel on the AF. love & anjil hugs () : ) Quote Link to comment Share on other sites More sharing options...
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