couch cain

[Guest guest]

Hi everyone,

After experiencing a meltdown yesterday (all of this just became too

overwhelming to deal with) I finally got my couch cain so I can hoist myself in

and off the couch (can't sleep in bed but there are some problems with

organizing a rail/pole so my brother prioritized the couch) WHAT A DIFFERENCE!

I will say it again I SHOULD OF LISTENED TO MARILYN!

I am feeling so much better this morning. Needed half the pain meds I normally

do at night and I got much more sleep too. It is always hard for me to sleep

when I am on Prednisone but this extra factor of when I need to wake up at night

being so strenuous which led to pain- the fact it was minimized makes me feel

very good about today.

I saw my GI yesterday and he thinks a big part of the problem is being on

steroids as he feels it can enable scar tissue formation. He felt in the

begining of the week he just could not take me off of it considering how awful

my labs were. But it was due to so many IV fluids. The bowel obstruction did

not help the situation but I was getting better pre-surgery.

So I need to taper relatively quickly and with the help of some integrative

methods I hope it goes over smoothly. I am also doing acupuncture this morning

which should help everything too.

If the pain doesn't start getting much better next week and the belly distension

continues I will need an MRI to look at the anostomies. But since my STAT blood

work in my GI's office was so good comparing to Monday. THEY SHOT UP!! He is

very confident the Prednisone is playing a major role also in my anxiety levels.

What a difference a good night sleep makes.

Thanks everyone for kind support I got so many off list emails with different

philosophies on life from all walks of life. One of the reasons it was so

moving reading it because the common thread is the SCD and all of us working to

get better.

Jodi