Guest guest Posted May 22, 2009 Report Share Posted May 22, 2009 Hi Jodi, sounds like you're coming along fine. The acupuncture will help a great deal with getting off the prednisone. It helped me get off a 6 year prednisone habit that I couldn't break in less than 6 weeks. Acupuncture is great stuff!! You're doing all the right things. Ann, Living in Italy Undiagnosed Crohn's since 1977 Diagnosed 15 years Sacroiliitis 25 years Rheumatoid arthritis 25 years Pyoderma Gangronosum 2 years SCD since July, 2008 Meds: None To: BTVC-SCD Sent: Friday, May 22, 2009 1:12:34 PMSubject: couch cain Hi everyone,After experiencing a meltdown yesterday (all of this just became toooverwhelming to deal with) I finally got my couch cain so I can hoist myself inand off the couch (can't sleep in bed but there are some problems withorganizing a rail/pole so my brother prioritized the couch) WHAT A DIFFERENCE!I will say it again I SHOULD OF LISTENED TO MARILYN!I am feeling so much better this morning. Needed half the pain meds I normallydo at night and I got much more sleep too. It is always hard for me to sleepwhen I am on Prednisone but this extra factor of when I need to wake up at nightbeing so strenuous which led to pain- the fact it was minimized makes me feelvery good about today.I saw my GI yesterday and he thinks a big part of the problem is being onsteroids as he feels it can enable scar tissue formation. He felt in thebegining of the week he just could not take me off of it considering how awfulmy labs were. But it was due to so many IV fluids. The bowel obstruction didnot help the situation but I was getting better pre-surgery.So I need to taper relatively quickly and with the help of some integrativemethods I hope it goes over smoothly. I am also doing acupuncture this morningwhich should help everything too.If the pain doesn't start getting much better next week and the belly distensioncontinues I will need an MRI to look at the anostomies. But since my STAT bloodwork in my GI's office was so good comparing to Monday. THEY SHOT UP!! He isvery confident the Prednisone is playing a major role also in my anxiety levels.What a difference a good night sleep makes.Thanks everyone for kind support I got so many off list emails with differentphilosophies on life from all walks of life. One of the reasons it was somoving reading it because the common thread is the SCD and all of us working toget better.Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2009 Report Share Posted May 22, 2009 Jodi sorry been offline ,comp crash - glad to hear you're headed in the right direction - thought of you as i had my IV vit's yesterday - feel good - good (typed God times by accident LOL, but yes that too!)times are ahead!!!! hugs/kisses Eileen > > Hi Jodi, sounds like you're coming along fine. The acupuncture will help a great deal with getting off the prednisone. It helped me get off a 6 year prednisone habit that I couldn't break in less than 6 weeks. Acupuncture is great stuff!! You're doing all the right things. > > Ann, > Living in Italy > Undiagnosed Crohn's since 1977 Diagnosed 15 years > Sacroiliitis 25 years > Rheumatoid arthritis 25 years > Pyoderma Gangronosum 2 years > SCD since July, 2008 > Meds: None > > > > > ________________________________ > From: jodah235 > To: BTVC-SCD > Sent: Friday, May 22, 2009 1:12:34 PM > Subject: couch cain > > > > > > Hi everyone, > > After experiencing a meltdown yesterday (all of this just became too > overwhelming to deal with) I finally got my couch cain so I can hoist myself in > and off the couch (can't sleep in bed but there are some problems with > organizing a rail/pole so my brother prioritized the couch) WHAT A DIFFERENCE! > I will say it again I SHOULD OF LISTENED TO MARILYN! > > I am feeling so much better this morning. Needed half the pain meds I normally > do at night and I got much more sleep too. It is always hard for me to sleep > when I am on Prednisone but this extra factor of when I need to wake up at night > being so strenuous which led to pain- the fact it was minimized makes me feel > very good about today. > > I saw my GI yesterday and he thinks a big part of the problem is being on > steroids as he feels it can enable scar tissue formation. He felt in the > begining of the week he just could not take me off of it considering how awful > my labs were. But it was due to so many IV fluids. The bowel obstruction did > not help the situation but I was getting better pre-surgery. > > So I need to taper relatively quickly and with the help of some integrative > methods I hope it goes over smoothly. I am also doing acupuncture this morning > which should help everything too. > > If the pain doesn't start getting much better next week and the belly distension > continues I will need an MRI to look at the anostomies. But since my STAT blood > work in my GI's office was so good comparing to Monday. THEY SHOT UP!! He is > very confident the Prednisone is playing a major role also in my anxiety levels. > > What a difference a good night sleep makes. > > Thanks everyone for kind support I got so many off list emails with different > philosophies on life from all walks of life. One of the reasons it was so > moving reading it because the common thread is the SCD and all of us working to > get better. > > Jodi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2009 Report Share Posted May 22, 2009 Jodi sorry been offline ,comp crash - glad to hear you're headed in the right direction - thought of you as i had my IV vit's yesterday - feel good - good (typed God times by accident LOL, but yes that too!)times are ahead!!!! hugs/kisses Eileen > > Hi Jodi, sounds like you're coming along fine. The acupuncture will help a great deal with getting off the prednisone. It helped me get off a 6 year prednisone habit that I couldn't break in less than 6 weeks. Acupuncture is great stuff!! You're doing all the right things. > > Ann, > Living in Italy > Undiagnosed Crohn's since 1977 Diagnosed 15 years > Sacroiliitis 25 years > Rheumatoid arthritis 25 years > Pyoderma Gangronosum 2 years > SCD since July, 2008 > Meds: None > > > > > ________________________________ > From: jodah235 > To: BTVC-SCD > Sent: Friday, May 22, 2009 1:12:34 PM > Subject: couch cain > > > > > > Hi everyone, > > After experiencing a meltdown yesterday (all of this just became too > overwhelming to deal with) I finally got my couch cain so I can hoist myself in > and off the couch (can't sleep in bed but there are some problems with > organizing a rail/pole so my brother prioritized the couch) WHAT A DIFFERENCE! > I will say it again I SHOULD OF LISTENED TO MARILYN! > > I am feeling so much better this morning. Needed half the pain meds I normally > do at night and I got much more sleep too. It is always hard for me to sleep > when I am on Prednisone but this extra factor of when I need to wake up at night > being so strenuous which led to pain- the fact it was minimized makes me feel > very good about today. > > I saw my GI yesterday and he thinks a big part of the problem is being on > steroids as he feels it can enable scar tissue formation. He felt in the > begining of the week he just could not take me off of it considering how awful > my labs were. But it was due to so many IV fluids. The bowel obstruction did > not help the situation but I was getting better pre-surgery. > > So I need to taper relatively quickly and with the help of some integrative > methods I hope it goes over smoothly. I am also doing acupuncture this morning > which should help everything too. > > If the pain doesn't start getting much better next week and the belly distension > continues I will need an MRI to look at the anostomies. But since my STAT blood > work in my GI's office was so good comparing to Monday. THEY SHOT UP!! He is > very confident the Prednisone is playing a major role also in my anxiety levels. > > What a difference a good night sleep makes. > > Thanks everyone for kind support I got so many off list emails with different > philosophies on life from all walks of life. One of the reasons it was so > moving reading it because the common thread is the SCD and all of us working to > get better. > > Jodi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2009 Report Share Posted May 22, 2009 Jodi sorry been offline ,comp crash - glad to hear you're headed in the right direction - thought of you as i had my IV vit's yesterday - feel good - good (typed God times by accident LOL, but yes that too!)times are ahead!!!! hugs/kisses Eileen > > Hi Jodi, sounds like you're coming along fine. The acupuncture will help a great deal with getting off the prednisone. It helped me get off a 6 year prednisone habit that I couldn't break in less than 6 weeks. Acupuncture is great stuff!! You're doing all the right things. > > Ann, > Living in Italy > Undiagnosed Crohn's since 1977 Diagnosed 15 years > Sacroiliitis 25 years > Rheumatoid arthritis 25 years > Pyoderma Gangronosum 2 years > SCD since July, 2008 > Meds: None > > > > > ________________________________ > From: jodah235 > To: BTVC-SCD > Sent: Friday, May 22, 2009 1:12:34 PM > Subject: couch cain > > > > > > Hi everyone, > > After experiencing a meltdown yesterday (all of this just became too > overwhelming to deal with) I finally got my couch cain so I can hoist myself in > and off the couch (can't sleep in bed but there are some problems with > organizing a rail/pole so my brother prioritized the couch) WHAT A DIFFERENCE! > I will say it again I SHOULD OF LISTENED TO MARILYN! > > I am feeling so much better this morning. Needed half the pain meds I normally > do at night and I got much more sleep too. It is always hard for me to sleep > when I am on Prednisone but this extra factor of when I need to wake up at night > being so strenuous which led to pain- the fact it was minimized makes me feel > very good about today. > > I saw my GI yesterday and he thinks a big part of the problem is being on > steroids as he feels it can enable scar tissue formation. He felt in the > begining of the week he just could not take me off of it considering how awful > my labs were. But it was due to so many IV fluids. The bowel obstruction did > not help the situation but I was getting better pre-surgery. > > So I need to taper relatively quickly and with the help of some integrative > methods I hope it goes over smoothly. I am also doing acupuncture this morning > which should help everything too. > > If the pain doesn't start getting much better next week and the belly distension > continues I will need an MRI to look at the anostomies. But since my STAT blood > work in my GI's office was so good comparing to Monday. THEY SHOT UP!! He is > very confident the Prednisone is playing a major role also in my anxiety levels. > > What a difference a good night sleep makes. > > Thanks everyone for kind support I got so many off list emails with different > philosophies on life from all walks of life. One of the reasons it was so > moving reading it because the common thread is the SCD and all of us working to > get better. > > Jodi > Quote Link to comment Share on other sites More sharing options...
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