Guest guest Posted May 21, 2009 Report Share Posted May 21, 2009 update So I have been having a hard time adjusting home. Since there were mishaps in pain management post op (3 times to be exact) my biggest nightmare about not wanting to do surgery has shown itself on my doorstep. Dealing with pain issues. In the past, I have had a hard time getting off of sleep aids- this is when I stopped sleeping for 9 months on Prednisone. I had a major nervous breakdown at that point in my life. It changed me. On one hand this surgery has made me open up more about that experience on the other hand why I have to walk through fire is beyond me. My docs don't feel I fit the profile of addiction and since I am so concerned they feel that I am fearful of the physical dependence that occurs when one takes these strong meds. It happens to all of us. All I know is that it scares me and not sleeping 9 months caused an utter meltdown and I never want to go back there. My brother has been so loving and supportive of me that he has completely uplifted me from being in fear. I am understanding that pain is part of the process and this is something I will go through. The pain management doc in the hospital said that he thinks for me this will be an 8 week process of pain. I am also understanding that I am not just dealing with a ileocolic resection but also pain from Crohn's inflammation.. and the surgery itself is hard on the body. I honestly did not think of these things at all prior.. How could I? My GI said to me the other day (after going in and dealing with Edema) that he thinks I have post traumatic stress. I agree with him. He said the level of Crohn's that I have had and the need to be a warrior.. To having a small bowel series and learning about strictures and a mass to not being able to complete a colonoscopy to having a bowel obstruction.. to eventually having surgery.. IS A LOT for a person to deal with in such a short amount of time. Maybe this is why I feel a truck ran into me. I honestly did not even think of myself post-op at all. I did not make proper preparations for home like getting a bed railing and a couch pole so I can hoist myself up. These movements that I keep doing IMPROPERLY to get in and off the couch I think is causing systemic pain. My couch hoist is going to arrive today. I should of listened to Marilyn. My brother physically moves me when it is very bad. This has been the best way to deal with this so far. He also set up a progress chart for me. When I take my various meds and supplements and pain medication. I also have to write down when I have BM's or gas if it makes me feel bad or good (this morning my BM made me feel awful- it's a lot for the intestines to wake up) If anyone has suggestions for charts or templates or what I can add to mine that would be lovely. I find it very empowering. Finally yesterday I had an acupuncture appt. For some reason our planning and trying to coordinate all of this pre surgery was just not working. I guess we had a lot on our plate. Anyway, the acupuncture helped so much last night that it just gave me relief. It was the first time since surgery I took a proper deep breath. My brother said that the acu guy released my diaphram and all of my body movements now are a lot more fluid and not so stiff. I am having another session today too. I think I am going to be doing a lot of acupuncture in the next couple of weeks. Once again thank you all.. Can't imagine how loopy and drugged up I may seem to all of you in my posts. I am trying the best that I can.. And SCD food is just absolutely wonderful. I have had no nausea or issues with food at all. I nibble on protein all day long and have been doing juicing. Yesterday I used watermelon and parsley and it made me pee and it felt so good as it helped the Edema. I know that in the grand scale of things I am doing very well. I just had no idea how hard and challenging it would be. I am thankful I have this community and loving people around me to get through these hard times. Big Hugs, Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2009 Report Share Posted May 21, 2009 Jodi, I hear you, and I also have fears about taking " drugs " , and being given too many drugs. You have had major surgery, and a very stressful experience. Right now, you need to heal, and to do this you need to be able to sleep and also move around, as well as get in enough nutrition ( which it looks like you are doing well ) At this point you are doing well for what you have been through, and I share your concern about medication, but being post op is temporary, and if you need help to sleep and move around so you can heal, then so be it. I hope then with your doctor's help you can slowly wean off the medicines. Nobody can really anticipate everything, and there is no way you could have predicted how you would feel, and it must be very hard. Your brother is amazing and I am glad he is there with you. I'm also glad you can post here and have all of us rooting for you to have a good recovery. PJ > > update > > So I have been having a hard time adjusting home. > Since there were mishaps in pain management post op (3 times to be exact) my > biggest nightmare about not wanting to do surgery has shown itself on my > doorstep. Dealing with pain issues. In the past, I have had a hard time > getting off of sleep aids- this is when I stopped sleeping for 9 months on > Prednisone. I had a major nervous breakdown at that point in my life. It > changed me. > > On one hand this surgery has made me open up more about that experience on the > other hand why I have to walk through fire is beyond me. > > My docs don't feel I fit the profile of addiction and since I am so concerned > they feel that I am fearful of the physical dependence that occurs when one > takes these strong meds. It happens to all of us. All I know is that it scares > me and not sleeping 9 months caused an utter meltdown and I never want to go > back there. > > My brother has been so loving and supportive of me that he has completely > uplifted me from being in fear. > > I am understanding that pain is part of the process and this is something I will > go through. The pain management doc in the hospital said that he thinks for me > this will be an 8 week process of pain. > > I am also understanding that I am not just dealing with a ileocolic resection > but also pain from Crohn's inflammation.. and the surgery itself is hard on the > body. I honestly did not think of these things at all prior.. How could I? > > My GI said to me the other day (after going in and dealing with Edema) that he > thinks I have post traumatic stress. I agree with him. He said the level of > Crohn's that I have had and the need to be a warrior.. To having a small bowel > series and learning about strictures and a mass to not being able to complete a > colonoscopy to having a bowel obstruction.. to eventually having surgery.. IS A > LOT for a person to deal with in such a short amount of time. Maybe this is why > I feel a truck ran into me. I honestly did not even think of myself post-op at > all. > > I did not make proper preparations for home like getting a bed railing and a > couch pole so I can hoist myself up. These movements that I keep doing > IMPROPERLY to get in and off the couch I think is causing systemic pain. My > couch hoist is going to arrive today. > I should of listened to Marilyn. > > My brother physically moves me when it is very bad. This has been the best way > to deal with this so far. > > He also set up a progress chart for me. When I take my various meds and > supplements and pain medication. I also have to write down when I have BM's or > gas if it makes me feel bad or good (this morning my BM made me feel awful- it's > a lot for the intestines to wake up) > > If anyone has suggestions for charts or templates or what I can add to mine that > would be lovely. I find it very empowering. > > Finally yesterday I had an acupuncture appt. For some reason our planning and > trying to coordinate all of this pre surgery was just not working. I guess we > had a lot on our plate. > > Anyway, the acupuncture helped so much last night that it just gave me relief. > It was the first time since surgery I took a proper deep breath. My brother > said that the acu guy released my diaphram and all of my body movements now are > a lot more fluid and not so stiff. > > I am having another session today too. > I think I am going to be doing a lot of acupuncture in the next couple of weeks. > > Once again thank you all.. > Can't imagine how loopy and drugged up I may seem to all of you in my posts. > > I am trying the best that I can.. And SCD food is just absolutely wonderful. I > have had no nausea or issues with food at all. I nibble on protein all day long > and have been doing juicing. Yesterday I used watermelon and parsley and it > made me pee and it felt so good as it helped the Edema. > > I know that in the grand scale of things I am doing very well. I just had no > idea how hard and challenging it would be. > > I am thankful I have this community and loving people around me to get through > these hard times. > > Big Hugs, > Jodi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2009 Report Share Posted May 21, 2009 Jodi, I hear you, and I also have fears about taking " drugs " , and being given too many drugs. You have had major surgery, and a very stressful experience. Right now, you need to heal, and to do this you need to be able to sleep and also move around, as well as get in enough nutrition ( which it looks like you are doing well ) At this point you are doing well for what you have been through, and I share your concern about medication, but being post op is temporary, and if you need help to sleep and move around so you can heal, then so be it. I hope then with your doctor's help you can slowly wean off the medicines. Nobody can really anticipate everything, and there is no way you could have predicted how you would feel, and it must be very hard. Your brother is amazing and I am glad he is there with you. I'm also glad you can post here and have all of us rooting for you to have a good recovery. PJ > > update > > So I have been having a hard time adjusting home. > Since there were mishaps in pain management post op (3 times to be exact) my > biggest nightmare about not wanting to do surgery has shown itself on my > doorstep. Dealing with pain issues. In the past, I have had a hard time > getting off of sleep aids- this is when I stopped sleeping for 9 months on > Prednisone. I had a major nervous breakdown at that point in my life. It > changed me. > > On one hand this surgery has made me open up more about that experience on the > other hand why I have to walk through fire is beyond me. > > My docs don't feel I fit the profile of addiction and since I am so concerned > they feel that I am fearful of the physical dependence that occurs when one > takes these strong meds. It happens to all of us. All I know is that it scares > me and not sleeping 9 months caused an utter meltdown and I never want to go > back there. > > My brother has been so loving and supportive of me that he has completely > uplifted me from being in fear. > > I am understanding that pain is part of the process and this is something I will > go through. The pain management doc in the hospital said that he thinks for me > this will be an 8 week process of pain. > > I am also understanding that I am not just dealing with a ileocolic resection > but also pain from Crohn's inflammation.. and the surgery itself is hard on the > body. I honestly did not think of these things at all prior.. How could I? > > My GI said to me the other day (after going in and dealing with Edema) that he > thinks I have post traumatic stress. I agree with him. He said the level of > Crohn's that I have had and the need to be a warrior.. To having a small bowel > series and learning about strictures and a mass to not being able to complete a > colonoscopy to having a bowel obstruction.. to eventually having surgery.. IS A > LOT for a person to deal with in such a short amount of time. Maybe this is why > I feel a truck ran into me. I honestly did not even think of myself post-op at > all. > > I did not make proper preparations for home like getting a bed railing and a > couch pole so I can hoist myself up. These movements that I keep doing > IMPROPERLY to get in and off the couch I think is causing systemic pain. My > couch hoist is going to arrive today. > I should of listened to Marilyn. > > My brother physically moves me when it is very bad. This has been the best way > to deal with this so far. > > He also set up a progress chart for me. When I take my various meds and > supplements and pain medication. I also have to write down when I have BM's or > gas if it makes me feel bad or good (this morning my BM made me feel awful- it's > a lot for the intestines to wake up) > > If anyone has suggestions for charts or templates or what I can add to mine that > would be lovely. I find it very empowering. > > Finally yesterday I had an acupuncture appt. For some reason our planning and > trying to coordinate all of this pre surgery was just not working. I guess we > had a lot on our plate. > > Anyway, the acupuncture helped so much last night that it just gave me relief. > It was the first time since surgery I took a proper deep breath. My brother > said that the acu guy released my diaphram and all of my body movements now are > a lot more fluid and not so stiff. > > I am having another session today too. > I think I am going to be doing a lot of acupuncture in the next couple of weeks. > > Once again thank you all.. > Can't imagine how loopy and drugged up I may seem to all of you in my posts. > > I am trying the best that I can.. And SCD food is just absolutely wonderful. I > have had no nausea or issues with food at all. I nibble on protein all day long > and have been doing juicing. Yesterday I used watermelon and parsley and it > made me pee and it felt so good as it helped the Edema. > > I know that in the grand scale of things I am doing very well. I just had no > idea how hard and challenging it would be. > > I am thankful I have this community and loving people around me to get through > these hard times. > > Big Hugs, > Jodi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2009 Report Share Posted May 21, 2009 Jodi, I hear you, and I also have fears about taking " drugs " , and being given too many drugs. You have had major surgery, and a very stressful experience. Right now, you need to heal, and to do this you need to be able to sleep and also move around, as well as get in enough nutrition ( which it looks like you are doing well ) At this point you are doing well for what you have been through, and I share your concern about medication, but being post op is temporary, and if you need help to sleep and move around so you can heal, then so be it. I hope then with your doctor's help you can slowly wean off the medicines. Nobody can really anticipate everything, and there is no way you could have predicted how you would feel, and it must be very hard. Your brother is amazing and I am glad he is there with you. I'm also glad you can post here and have all of us rooting for you to have a good recovery. PJ > > update > > So I have been having a hard time adjusting home. > Since there were mishaps in pain management post op (3 times to be exact) my > biggest nightmare about not wanting to do surgery has shown itself on my > doorstep. Dealing with pain issues. In the past, I have had a hard time > getting off of sleep aids- this is when I stopped sleeping for 9 months on > Prednisone. I had a major nervous breakdown at that point in my life. It > changed me. > > On one hand this surgery has made me open up more about that experience on the > other hand why I have to walk through fire is beyond me. > > My docs don't feel I fit the profile of addiction and since I am so concerned > they feel that I am fearful of the physical dependence that occurs when one > takes these strong meds. It happens to all of us. All I know is that it scares > me and not sleeping 9 months caused an utter meltdown and I never want to go > back there. > > My brother has been so loving and supportive of me that he has completely > uplifted me from being in fear. > > I am understanding that pain is part of the process and this is something I will > go through. The pain management doc in the hospital said that he thinks for me > this will be an 8 week process of pain. > > I am also understanding that I am not just dealing with a ileocolic resection > but also pain from Crohn's inflammation.. and the surgery itself is hard on the > body. I honestly did not think of these things at all prior.. How could I? > > My GI said to me the other day (after going in and dealing with Edema) that he > thinks I have post traumatic stress. I agree with him. He said the level of > Crohn's that I have had and the need to be a warrior.. To having a small bowel > series and learning about strictures and a mass to not being able to complete a > colonoscopy to having a bowel obstruction.. to eventually having surgery.. IS A > LOT for a person to deal with in such a short amount of time. Maybe this is why > I feel a truck ran into me. I honestly did not even think of myself post-op at > all. > > I did not make proper preparations for home like getting a bed railing and a > couch pole so I can hoist myself up. These movements that I keep doing > IMPROPERLY to get in and off the couch I think is causing systemic pain. My > couch hoist is going to arrive today. > I should of listened to Marilyn. > > My brother physically moves me when it is very bad. This has been the best way > to deal with this so far. > > He also set up a progress chart for me. When I take my various meds and > supplements and pain medication. I also have to write down when I have BM's or > gas if it makes me feel bad or good (this morning my BM made me feel awful- it's > a lot for the intestines to wake up) > > If anyone has suggestions for charts or templates or what I can add to mine that > would be lovely. I find it very empowering. > > Finally yesterday I had an acupuncture appt. For some reason our planning and > trying to coordinate all of this pre surgery was just not working. I guess we > had a lot on our plate. > > Anyway, the acupuncture helped so much last night that it just gave me relief. > It was the first time since surgery I took a proper deep breath. My brother > said that the acu guy released my diaphram and all of my body movements now are > a lot more fluid and not so stiff. > > I am having another session today too. > I think I am going to be doing a lot of acupuncture in the next couple of weeks. > > Once again thank you all.. > Can't imagine how loopy and drugged up I may seem to all of you in my posts. > > I am trying the best that I can.. And SCD food is just absolutely wonderful. I > have had no nausea or issues with food at all. I nibble on protein all day long > and have been doing juicing. Yesterday I used watermelon and parsley and it > made me pee and it felt so good as it helped the Edema. > > I know that in the grand scale of things I am doing very well. I just had no > idea how hard and challenging it would be. > > I am thankful I have this community and loving people around me to get through > these hard times. > > Big Hugs, > Jodi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2009 Report Share Posted May 21, 2009 Hey Jodi! Glad you're still improving, but it definitely sounds like a learning experience! I'm glad we can be of at least mental help if not physical help through your healing. It certainly seems like complete brain meltdowns are common in dealing with these lovely gut issues =) I know I've had mine! I guess you can just be glad that that part of your learning experience is over and know that it well get easier the more you learn! It's such a bummer that you have so much pain though. I can't really know how you feel because I've been blessed with a very painless bout of UC thus far. Yay for accupuncture though! I"m glad it's helping, and all you have to do is sit there with needles stuck all over you for an hour! =D JK, I actually found that accupuncture wasn't as bad as that, thankfully. Anyways, just know that we are all rooting for you, and in a few years you'll hardly remember that you ever had gut problems!!pour Dieu, pour terre,Alyssa ^.^updateSo I have been having a hard time adjusting home.Since there were mishaps in pain management post op (3 times to be exact) mybiggest nightmare about not wanting to do surgery has shown itself on mydoorstep. Dealing with pain issues. In the past, I have had a hard timegetting off of sleep aids- this is when I stopped sleeping for 9 months onPrednisone. I had a major nervous breakdown at that point in my life. Itchanged me.On one hand this surgery has made me open up more about that experience on theother hand why I have to walk through fire is beyond me.My docs don't feel I fit the profile of addiction and since I am so concernedthey feel that I am fearful of the physical dependence that occurs when onetakes these strong meds. It happens to all of us. All I know is that it scaresme and not sleeping 9 months caused an utter meltdown and I never want to goback there.My brother has been so loving and supportive of me that he has completelyuplifted me from being in fear.I am understanding that pain is part of the process and this is something I willgo through. The pain management doc in the hospital said that he thinks for methis will be an 8 week process of pain.I am also understanding that I am not just dealing with a ileocolic resectionbut also pain from Crohn's inflammation.. and the surgery itself is hard on thebody. I honestly did not think of these things at all prior.. How could I?My GI said to me the other day (after going in and dealing with Edema) that hethinks I have post traumatic stress. I agree with him. He said the level ofCrohn's that I have had and the need to be a warrior.. To having a small bowelseries and learning about strictures and a mass to not being able to complete acolonoscopy to having a bowel obstruction.. to eventually having surgery.. IS ALOT for a person to deal with in such a short amount of time. Maybe this is whyI feel a truck ran into me. I honestly did not even think of myself post-op atall.I did not make proper preparations for home like getting a bed railing and acouch pole so I can hoist myself up. These movements that I keep doingIMPROPERLY to get in and off the couch I think is causing systemic pain. Mycouch hoist is going to arrive today.I should of listened to Marilyn.My brother physically moves me when it is very bad. This has been the best wayto deal with this so far.He also set up a progress chart for me. When I take my various meds andsupplements and pain medication. I also have to write down when I have BM's orgas if it makes me feel bad or good (this morning my BM made me feel awful- it'sa lot for the intestines to wake up)If anyone has suggestions for charts or templates or what I can add to mine thatwould be lovely. I find it very empowering.Finally yesterday I had an acupuncture appt. For some reason our planning andtrying to coordinate all of this pre surgery was just not working. I guess wehad a lot on our plate.Anyway, the acupuncture helped so much last night that it just gave me relief.It was the first time since surgery I took a proper deep breath. My brothersaid that the acu guy released my diaphram and all of my body movements now area lot more fluid and not so stiff.I am having another session today too.I think I am going to be doing a lot of acupuncture in the next couple of weeks.Once again thank you all..Can't imagine how loopy and drugged up I may seem to all of you in my posts.I am trying the best that I can.. And SCD food is just absolutely wonderful. Ihave had no nausea or issues with food at all. I nibble on protein all day longand have been doing juicing. Yesterday I used watermelon and parsley and itmade me pee and it felt so good as it helped the Edema.I know that in the grand scale of things I am doing very well. I just had noidea how hard and challenging it would be.I am thankful I have this community and loving people around me to get throughthese hard times.Big Hugs,Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2009 Report Share Posted May 21, 2009 Hey Jodi! Glad you're still improving, but it definitely sounds like a learning experience! I'm glad we can be of at least mental help if not physical help through your healing. It certainly seems like complete brain meltdowns are common in dealing with these lovely gut issues =) I know I've had mine! I guess you can just be glad that that part of your learning experience is over and know that it well get easier the more you learn! It's such a bummer that you have so much pain though. I can't really know how you feel because I've been blessed with a very painless bout of UC thus far. Yay for accupuncture though! I"m glad it's helping, and all you have to do is sit there with needles stuck all over you for an hour! =D JK, I actually found that accupuncture wasn't as bad as that, thankfully. Anyways, just know that we are all rooting for you, and in a few years you'll hardly remember that you ever had gut problems!!pour Dieu, pour terre,Alyssa ^.^updateSo I have been having a hard time adjusting home.Since there were mishaps in pain management post op (3 times to be exact) mybiggest nightmare about not wanting to do surgery has shown itself on mydoorstep. Dealing with pain issues. In the past, I have had a hard timegetting off of sleep aids- this is when I stopped sleeping for 9 months onPrednisone. I had a major nervous breakdown at that point in my life. Itchanged me.On one hand this surgery has made me open up more about that experience on theother hand why I have to walk through fire is beyond me.My docs don't feel I fit the profile of addiction and since I am so concernedthey feel that I am fearful of the physical dependence that occurs when onetakes these strong meds. It happens to all of us. All I know is that it scaresme and not sleeping 9 months caused an utter meltdown and I never want to goback there.My brother has been so loving and supportive of me that he has completelyuplifted me from being in fear.I am understanding that pain is part of the process and this is something I willgo through. The pain management doc in the hospital said that he thinks for methis will be an 8 week process of pain.I am also understanding that I am not just dealing with a ileocolic resectionbut also pain from Crohn's inflammation.. and the surgery itself is hard on thebody. I honestly did not think of these things at all prior.. How could I?My GI said to me the other day (after going in and dealing with Edema) that hethinks I have post traumatic stress. I agree with him. He said the level ofCrohn's that I have had and the need to be a warrior.. To having a small bowelseries and learning about strictures and a mass to not being able to complete acolonoscopy to having a bowel obstruction.. to eventually having surgery.. IS ALOT for a person to deal with in such a short amount of time. Maybe this is whyI feel a truck ran into me. I honestly did not even think of myself post-op atall.I did not make proper preparations for home like getting a bed railing and acouch pole so I can hoist myself up. These movements that I keep doingIMPROPERLY to get in and off the couch I think is causing systemic pain. Mycouch hoist is going to arrive today.I should of listened to Marilyn.My brother physically moves me when it is very bad. This has been the best wayto deal with this so far.He also set up a progress chart for me. When I take my various meds andsupplements and pain medication. I also have to write down when I have BM's orgas if it makes me feel bad or good (this morning my BM made me feel awful- it'sa lot for the intestines to wake up)If anyone has suggestions for charts or templates or what I can add to mine thatwould be lovely. I find it very empowering.Finally yesterday I had an acupuncture appt. For some reason our planning andtrying to coordinate all of this pre surgery was just not working. I guess wehad a lot on our plate.Anyway, the acupuncture helped so much last night that it just gave me relief.It was the first time since surgery I took a proper deep breath. My brothersaid that the acu guy released my diaphram and all of my body movements now area lot more fluid and not so stiff.I am having another session today too.I think I am going to be doing a lot of acupuncture in the next couple of weeks.Once again thank you all..Can't imagine how loopy and drugged up I may seem to all of you in my posts.I am trying the best that I can.. And SCD food is just absolutely wonderful. Ihave had no nausea or issues with food at all. I nibble on protein all day longand have been doing juicing. Yesterday I used watermelon and parsley and itmade me pee and it felt so good as it helped the Edema.I know that in the grand scale of things I am doing very well. I just had noidea how hard and challenging it would be.I am thankful I have this community and loving people around me to get throughthese hard times.Big Hugs,Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2009 Report Share Posted May 21, 2009 Hey Jodi! Glad you're still improving, but it definitely sounds like a learning experience! I'm glad we can be of at least mental help if not physical help through your healing. It certainly seems like complete brain meltdowns are common in dealing with these lovely gut issues =) I know I've had mine! I guess you can just be glad that that part of your learning experience is over and know that it well get easier the more you learn! It's such a bummer that you have so much pain though. I can't really know how you feel because I've been blessed with a very painless bout of UC thus far. Yay for accupuncture though! I"m glad it's helping, and all you have to do is sit there with needles stuck all over you for an hour! =D JK, I actually found that accupuncture wasn't as bad as that, thankfully. Anyways, just know that we are all rooting for you, and in a few years you'll hardly remember that you ever had gut problems!!pour Dieu, pour terre,Alyssa ^.^updateSo I have been having a hard time adjusting home.Since there were mishaps in pain management post op (3 times to be exact) mybiggest nightmare about not wanting to do surgery has shown itself on mydoorstep. Dealing with pain issues. In the past, I have had a hard timegetting off of sleep aids- this is when I stopped sleeping for 9 months onPrednisone. I had a major nervous breakdown at that point in my life. Itchanged me.On one hand this surgery has made me open up more about that experience on theother hand why I have to walk through fire is beyond me.My docs don't feel I fit the profile of addiction and since I am so concernedthey feel that I am fearful of the physical dependence that occurs when onetakes these strong meds. It happens to all of us. All I know is that it scaresme and not sleeping 9 months caused an utter meltdown and I never want to goback there.My brother has been so loving and supportive of me that he has completelyuplifted me from being in fear.I am understanding that pain is part of the process and this is something I willgo through. The pain management doc in the hospital said that he thinks for methis will be an 8 week process of pain.I am also understanding that I am not just dealing with a ileocolic resectionbut also pain from Crohn's inflammation.. and the surgery itself is hard on thebody. I honestly did not think of these things at all prior.. How could I?My GI said to me the other day (after going in and dealing with Edema) that hethinks I have post traumatic stress. I agree with him. He said the level ofCrohn's that I have had and the need to be a warrior.. To having a small bowelseries and learning about strictures and a mass to not being able to complete acolonoscopy to having a bowel obstruction.. to eventually having surgery.. IS ALOT for a person to deal with in such a short amount of time. Maybe this is whyI feel a truck ran into me. I honestly did not even think of myself post-op atall.I did not make proper preparations for home like getting a bed railing and acouch pole so I can hoist myself up. These movements that I keep doingIMPROPERLY to get in and off the couch I think is causing systemic pain. Mycouch hoist is going to arrive today.I should of listened to Marilyn.My brother physically moves me when it is very bad. This has been the best wayto deal with this so far.He also set up a progress chart for me. When I take my various meds andsupplements and pain medication. I also have to write down when I have BM's orgas if it makes me feel bad or good (this morning my BM made me feel awful- it'sa lot for the intestines to wake up)If anyone has suggestions for charts or templates or what I can add to mine thatwould be lovely. I find it very empowering.Finally yesterday I had an acupuncture appt. For some reason our planning andtrying to coordinate all of this pre surgery was just not working. I guess wehad a lot on our plate.Anyway, the acupuncture helped so much last night that it just gave me relief.It was the first time since surgery I took a proper deep breath. My brothersaid that the acu guy released my diaphram and all of my body movements now area lot more fluid and not so stiff.I am having another session today too.I think I am going to be doing a lot of acupuncture in the next couple of weeks.Once again thank you all..Can't imagine how loopy and drugged up I may seem to all of you in my posts.I am trying the best that I can.. And SCD food is just absolutely wonderful. Ihave had no nausea or issues with food at all. I nibble on protein all day longand have been doing juicing. Yesterday I used watermelon and parsley and itmade me pee and it felt so good as it helped the Edema.I know that in the grand scale of things I am doing very well. I just had noidea how hard and challenging it would be.I am thankful I have this community and loving people around me to get throughthese hard times.Big Hugs,Jodi Quote Link to comment Share on other sites More sharing options...
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