Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 HI Everyone: I am new to this list! I hope I sent this right, The first one I thought went out to the list I think went to a Individual instead... I am a Identical Twin, we are 40... I have had a bad spine all the way back to 1989, and 4 back operations and a Spinalcord Stimulator Implant.. the operations, are in the Lumbar area ... but then The implant is in the T10 or so area.. very unstable... And then in Feb., 1999 I was in a head on collision.. now I have so many muscle spasm, and burning pain, and arm pain, and numb pinky and ring fingers , I cant carry a purse at all, if I hold something in my arm cradled like, then I can not bend out my arm at all it is in sever spasms... I can not spell so please Ignore any eras.. I forgot to mention that for years I have migraines also.. Enough about me! now my twins symptoms- Donna she has a rash that has been on her leg for a couple of years and she has had several TMJ operations, and gum and teeth operations, and we both have vision problems and hearing problems that we are told normal for our age but she has severe migraines, and headaches, and sinus problem and oh my god she is allergic to every thing!!!! no me.. I can take anything.. anyway she had broken just about everything, not me:) just damn near broke my back but that is all.. mine seams to be all nerve stuff// She has always been unhealthy and me the health one , minus my dumb back and legs.... any way to make this shorter.. she has just been told she has a very fat!! a way to put it syrinx in her cord from t6 to t10 I think the problem is it is budging her cord so they have to shunt it next week... We live in Tallahassee Florida and while it is the home of the noles!!!! Seminoles that is.. we only have population of 200,000 or more here we have not many NSG in this area, but the ones here are very good.. but they have been brain programmed like the rest it seams... her head problems are underlying from something else, I know she really is not my twin, she is a imposter from mars ... any way I have a few questions that are new to us but more than likely not you all of you.. How many on here have gone to be told you do not have C1M and you only have a syrinx from no where.. he did tell her she was born with it..To getting finally DX with THE Bouproblem to Chiari Mal???? and How many are on here with proof of genetics in your family with these problems, and mainly how many twins or siblings on here ???? I am sorry for being so long it just kept pouring out.... TIA< Watts and twin Donna Custer.... lwatts100@... Quote Link to comment Share on other sites More sharing options...
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