Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 Hello All, My son has brachy and tomorrow we are going to Cranial technologies for a second opinion. He has been in a Danmar helmet for 2 mos and I am not sure if that is the right helmet for him. Anyways wish us luck, I hope the snow that is predicted for tonight does not come. Take care - Ohio Mom to 9 mos brachy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 My son just got his Danmar Helmet on Monday of this week. What do you mean about it not working? My son has moderate plagio and sever brachy. Did you get your Danmar Helmet from Michigan? Let me know how the Cranial appointment goes. Bradley (7 months, Plagio/Brachy, Danmar Helmet 12/4/06 - ???) Breana (2.75 years) > > Hello All, > My son has brachy and tomorrow we are going to Cranial technologies for a second opinion. He has been in a Danmar helmet for 2 mos and I am not sure if that is the right helmet for him. Anyways wish us luck, I hope the snow that is predicted for tonight does not come. > > Take care > - Ohio > Mom to 9 mos brachy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 Hi , I can't answer for 's specific case, but Danmar is a passive helmet, meaning it relies on more growth than an active band. Active bands include starband from orthomerica, DOCband from cranial technologies, and Hanger band from Hanger. With an active band there is slight pressure on the prominent areas and the band has to be adjusted by carving out some of the foam to make room for growth every few weeks (1, 2 or 3 depending on the provider and babies age). with a passive band there is more room in the band so there is generally more time between appointments, and the baby has to wear it longer or grow more to correct the problem. people do have success with passive helmets, but the general opinion is that they are better for younger babies (who will have more growth). I know this can be frustrating because if you're like me you didn't know anything about this until you already had your band made. (we got a starband that worked well). It may work well for your child, but you might want to ask your ortho about this and see what they say - how long will the baby wear it, what kind of results can you expect, have they treated babies with similar proble and age as your son and what were results.... take care. -christine mom to sydney/ 11 mo/ starband grad 10-06 > > > > Hello All, > > My son has brachy and tomorrow we are going to Cranial technologies > for a second opinion. He has been in a Danmar helmet for 2 mos and I > am not sure if that is the right helmet for him. Anyways wish us > luck, I hope the snow that is predicted for tonight does not come. > > > > Take care > > - Ohio > > Mom to 9 mos brachy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 Before we decided to get this helmet, I asked the Orthotist if the Danmar Helmet is active or passive and she said it was active. Do you remember where you first heard it was passive? I wonder how I can get a straight answer since I have already asked and she told me it was active! Bradley (7 months, Plagio/Brachy, Danmar Helmet 12/4/06 - ???) Breana (2.75 years) > > > > > > Hello All, > > > My son has brachy and tomorrow we are going to Cranial technologies > > for a second opinion. He has been in a Danmar helmet for 2 mos and I > > am not sure if that is the right helmet for him. Anyways wish us > > luck, I hope the snow that is predicted for tonight does not come. > > > > > > Take care > > > - Ohio > > > Mom to 9 mos brachy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 Hello All, We just returned from Cranial Technologies, and I was quite satisfied with the care there. However I am still quite conflicted. My son has plagio and severe brachy and has been in the Danmar helmet for 2 mos. I received the helmet in Ohio close to where we live.I understand the Danmar to be passive based on reading I have done on this site and many others. I am not saying the Danmar does not work I was just concerned that it may not be the best treatment for my .I have seen some improvement in as far as the flatness of his head but his head seems to be very wide and I have not seen much improvement. I was also dissapoitned in the ortho where I received the Danmar b/c no measurements were taken and the follow up apts were up to me and not on any set schedule. Take Care - Ohio - In Plagiocephaly , " trbaustin " <raustin@...> wrote: > > Before we decided to get this helmet, I asked the Orthotist if the > Danmar Helmet is active or passive and she said it was active. Do > you remember where you first heard it was passive? I wonder how I > can get a straight answer since I have already asked and she told me > it was active! > > > Bradley (7 months, Plagio/Brachy, Danmar Helmet 12/4/06 - ???) > Breana (2.75 years) > > > > > > > > > > Hello All, > > > > My son has brachy and tomorrow we are going to Cranial > technologies > > > for a second opinion. He has been in a Danmar helmet for 2 mos > and I > > > am not sure if that is the right helmet for him. Anyways wish > us > > > luck, I hope the snow that is predicted for tonight does not > come. > > > > > > > > Take care > > > > - Ohio > > > > Mom to 9 mos brachy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 If you have any doubts about the current helmet, switch providers!! I was not happy with my son's STARband from the beginning (it always rotated to the right smushing his left ear - folding it in half at night), but I kept trusting the ortho who said it was OK and I kept telling myself that there was 'some' progress. Long story short, he wore the ill fitting STARband for 5 months before I finally went to DOCband for a second opinion. By then he had facial asymmetries that were not present when he'd started the STARband. I don't know for sure if it was the band or the untreated tort (the doctors kept telling me it was nothing, but the DOCband therapist confirmed he should be in PT). Either way, I WISH, WISH, WISH I'd gone for that second opinion and switched providers after 2 months and not 5. He's had his DOCband for 3 months now and is looking much better, but will need another band for a total of 5 more months and will probably still have the facial asymmetry. It just kills me because if we'd switched when I first started having doubts he'd probably be done by now. Just my 2 cents... Sheila, mom to , STARband 3/6-8/6, DOCband 9/6-? > > > > > > > > > > Hello All, > > > > > My son has brachy and tomorrow we are going to Cranial > > technologies > > > > for a second opinion. He has been in a Danmar helmet for 2 mos > > and I > > > > am not sure if that is the right helmet for him. Anyways wish > > us > > > > luck, I hope the snow that is predicted for tonight does not > > come. > > > > > > > > > > Take care > > > > > - Ohio > > > > > Mom to 9 mos brachy > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 -Sheila, Thanks for sharing. I think we will go with the DOC band. If it were not for this site I would have never even known about Cranial Tech. It is comforting to hear that other people have switched b/c my dh was making me think I was crazy, but I knew in my heart this Danmar was not the best for . Thanks again. ephaly , " Sheila " <lotspeis@...> wrote: > > If you have any doubts about the current helmet, switch providers!! > I was not happy with my son's STARband from the beginning (it always > rotated to the right smushing his left ear - folding it in half at > night), but I kept trusting the ortho who said it was OK and I kept > telling myself that there was 'some' progress. Long story short, he > wore the ill fitting STARband for 5 months before I finally went to > DOCband for a second opinion. By then he had facial asymmetries > that were not present when he'd started the STARband. I don't know > for sure if it was the band or the untreated tort (the doctors kept > telling me it was nothing, but the DOCband therapist confirmed he > should be in PT). Either way, I WISH, WISH, WISH I'd gone for that > second opinion and switched providers after 2 months and not 5. > He's had his DOCband for 3 months now and is looking much better, > but will need another band for a total of 5 more months and will > probably still have the facial asymmetry. It just kills me because > if we'd switched when I first started having doubts he'd probably be > done by now. Just my 2 cents... > > Sheila, mom to , STARband 3/6-8/6, DOCband 9/6-? > > > > > > > > > > > > > > Hello All, > > > > > > My son has brachy and tomorrow we are going to Cranial > > > technologies > > > > > for a second opinion. He has been in a Danmar helmet for 2 > mos > > > and I > > > > > am not sure if that is the right helmet for him. Anyways > wish > > > us > > > > > luck, I hope the snow that is predicted for tonight does not > > > come. > > > > > > > > > > > > Take care > > > > > > - Ohio > > > > > > Mom to 9 mos brachy > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 My husband thought I was crazy too, but he knows I just want what's best for , so he relented. And now he has to agree that his head DOES look better. > > > > > > > > > > > > > > Hello All, > > > > > > > My son has brachy and tomorrow we are going to Cranial > > > > technologies > > > > > > for a second opinion. He has been in a Danmar helmet for 2 > > mos > > > > and I > > > > > > am not sure if that is the right helmet for him. Anyways > > wish > > > > us > > > > > > luck, I hope the snow that is predicted for tonight does > not > > > > come. > > > > > > > > > > > > > > Take care > > > > > > > - Ohio > > > > > > > Mom to 9 mos brachy > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 I've heard it was passive on this forum, not from first hand knowledge. We had a starband and an experienced ortho who was somewhat dismissive of 'active' vs 'passive'. i guess one way to tell is how often are your adjusments. if they are more than 3 or 4 weeks I would say there is a lot of room in the band and it can't be that 'active'. I think DOCbands tend to leave less room each adjustment and have you come in more frequently (every week or two). starbands seem to leave more time between adjustments and therefore leave more room for growth. Our appointments were every 2 or 3 weeks, but it differs based on the ortho. If you find out more about this I would be interested, since my reading here indicates that they are passive. -christine -- In Plagiocephaly , " trbaustin " <raustin@...> wrote: > > Before we decided to get this helmet, I asked the Orthotist if the > Danmar Helmet is active or passive and she said it was active. Do > you remember where you first heard it was passive? I wonder how I > can get a straight answer since I have already asked and she told me > it was active! > > > Bradley (7 months, Plagio/Brachy, Danmar Helmet 12/4/06 - ???) > Breana (2.75 years) > > > > > > > > > > Hello All, > > > > My son has brachy and tomorrow we are going to Cranial > technologies > > > for a second opinion. He has been in a Danmar helmet for 2 mos > and I > > > am not sure if that is the right helmet for him. Anyways wish > us > > > luck, I hope the snow that is predicted for tonight does not > come. > > > > > > > > Take care > > > > - Ohio > > > > Mom to 9 mos brachy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 I do agree if a helemt is active or passive may have to do with how often your adjustment our made. For the Danmar we were told to come in if it appeared to be ill-fitting or we had any problems or concerns. The ortho did not have us make regular appointments which I was not real happy with. There is alot of room in his helmet for growth so in 8 weeks we have only been in twice. -- In Plagiocephaly , " christineashok " <christineashok@...> wrote: > > I've heard it was passive on this forum, not from first hand > knowledge. We had a starband and an experienced ortho who was somewhat > dismissive of 'active' vs 'passive'. i guess one way to tell is how > often are your adjusments. if they are more than 3 or 4 weeks I would > say there is a lot of room in the band and it can't be that 'active'. > I think DOCbands tend to leave less room each adjustment and have you > come in more frequently (every week or two). starbands seem to leave > more time between adjustments and therefore leave more room for > growth. Our appointments were every 2 or 3 weeks, but it differs based > on the ortho. > > If you find out more about this I would be interested, since my > reading here indicates that they are passive. > -christine > > > -- In Plagiocephaly , " trbaustin " <raustin@> wrote: > > > > Before we decided to get this helmet, I asked the Orthotist if the > > Danmar Helmet is active or passive and she said it was active. Do > > you remember where you first heard it was passive? I wonder how I > > can get a straight answer since I have already asked and she told me > > it was active! > > > > > > Bradley (7 months, Plagio/Brachy, Danmar Helmet 12/4/06 - ???) > > Breana (2.75 years) > > > > > > > > > > > > > > Hello All, > > > > > My son has brachy and tomorrow we are going to Cranial > > technologies > > > > for a second opinion. He has been in a Danmar helmet for 2 mos > > and I > > > > am not sure if that is the right helmet for him. Anyways wish > > us > > > > luck, I hope the snow that is predicted for tonight does not > > come. > > > > > > > > > > Take care > > > > > - Ohio > > > > > Mom to 9 mos brachy > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 i was just going through this site http://www.danmarproducts.com/index.cfm?pageSRC=cranialShapingHelmets this line made it sound like its passive The helmet is generally worn both day and night, for an average period of four to six months. The baby is monitored for any signs of pressure areas and the helmet will be modified or replaced to accommodate growth as necessary. but it never really says for sure is there foam inside that they shave out when they do adjustments? Aron Holwighttp://birds.lemonyfresh.com/gallery/http://b1.lilypie.com/2QXlm7.png On 12/7/06, demorelisa <lademore@...> wrote: I do agree if a helemt is active or passive may have to do with how often your adjustment our made. For the Danmar we were told to come in if it appeared to be ill-fitting or we had any problems or concerns. The ortho did not have us make regular appointments which I was not real happy with. There is alot of room in his helmet for growth so in 8 weeks we have only been in twice. -- In Plagiocephaly , " christineashok " <christineashok@...> wrote:>> I've heard it was passive on this forum, not from first hand> knowledge. We had a starband and an experienced ortho who was somewhat> dismissive of 'active' vs 'passive'. i guess one way to tell is how > often are your adjusments. if they are more than 3 or 4 weeks I would> say there is a lot of room in the band and it can't be that 'active'.> I think DOCbands tend to leave less room each adjustment and have you> come in more frequently (every week or two). starbands seem to leave> more time between adjustments and therefore leave more room for> growth. Our appointments were every 2 or 3 weeks, but it differs based> on the ortho. > > If you find out more about this I would be interested, since my> reading here indicates that they are passive. > -christine> > > -- In Plagiocephaly , " trbaustin " <raustin@> wrote:> >> > Before we decided to get this helmet, I asked the Orthotist if the > > Danmar Helmet is active or passive and she said it was active. Do > > you remember where you first heard it was passive? I wonder how I > > can get a straight answer since I have already asked and she told me > > it was active!> > > > > > Bradley (7 months, Plagio/Brachy, Danmar Helmet 12/4/06 - ???)> > Breana (2.75 years)> > > > > > > > >> > > > > Hello All,> > > > > My son has brachy and tomorrow we are going to Cranial > > technologies > > > > for a second opinion. He has been in a Danmar helmet for 2 mos > > and I > > > > am not sure if that is the right helmet for him. Anyways wish > > us > > > > luck, I hope the snow that is predicted for tonight does not > > come.> > > > > > > > > > Take care> > > > > - Ohio> > > > > Mom to 9 mos brachy> > > >> > >> > > -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 There is foam inside that they shave out when they do adjustments. I have an appointment with the neurosurgeon tomorrow and then after that I have an appointment with the orthotist so I will ask them both about this (active vs. passive) again and let everyone know what they say. The brochure that the orthotist gave me regarding the Danmar Helmet says the principles behind the helmet are: - Provide total contact in the areas where growth is to be curbed - Allow space in the areas where growth is needed - The symmetrical helmet creates a means for growth to occur Does this seem different that the DOC and STAR bands? If not, what does the Danmar Helmet seem to be missing? Thanks for your help! Bradley (7 months, Plagio/Brachy, Danmar Helmet 12/4/06 - ???) Breana (2.75 years) > > > > > > > > > > > > > > Hello All, > > > > > > > My son has brachy and tomorrow we are going to Cranial > > > > technologies > > > > > > for a second opinion. He has been in a Danmar helmet for 2 > > mos > > > > and I > > > > > > am not sure if that is the right helmet for him. Anyways > > wish > > > > us > > > > > > luck, I hope the snow that is predicted for tonight does not > > > > come. > > > > > > > > > > > > > > Take care > > > > > > > - Ohio > > > > > > > Mom to 9 mos brachy > > > > > > > > > > > > > > > > > > > > > > > > > > > > -- > Quote Link to comment Share on other sites More sharing options...
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