How to be able to go to the conference Was: Re: EDS Conference I'm going!!!!!

[Guest guest]

Hi Debbi,

That is sooooo GREAT!!!!! I can't wait to see you!!!!

The first time I went, I had no chance of going out of my own pocket.

I called the airline. I had some frequent flyer points, but not

enough. I told them what I was going to and why and they gave me the

ticket for the points I had anyway!!! I am mentioning it here now,

because maybe it can be an option for others.

I also wrote letters to the co. I had my knee braces from and some

other medical companies, i.e. companies I had drugs from and a

bandaid company I had had contact with through the pso.assoc. I

called them first and talked to somebody, and they asked me to send a

letter.

The bandaid company paid my hotel bill. And I got a bit from a drug

company and from the brace company, so I managed with food and things.

I also wrote letters to the Lion's Club and their like. I didn't get

anything, but later I met some from another local chapter that told

me that if I had written to them and I had lived in their part of

this town, they would have gone for it, this was exactly the type of

thing they really liked helping people with, because it helped people

cope in their every day life.

So... I have mentioned this here before, but I do it again thinking

that if some of you out there really, really want to go, but just

can't pull it off financially, it is possible... But you better start

writing letters now....

In the letters I wrote a bit about myself and how I was diagnosed

finally. And how going to the conference would mean a lot to me in

order to learn more about EDS and how to cope with it.

Aase Marit

>Hi everyone going to the conference.

>

>I called my American Express today and found out that my plane trip across

>the country round trip will be PAID FOR BY POINTS!

>

>So that seals it for me... I am going to the Conference!

>

>I am sooooo looking forward to finally seeing and seeing again my CEDA family!

>A bright spot in my otherwise typical EDS day!

>

>See you soon!