reply to lisa

[Guest guest]

Hi ,

I have a couple of questions for you..

How did you " flare " when using the LDN can you explain this to me?

How much Prednisone were you on when taking the LDN?

How are you tapering the Prednisone?

Some of us have a very hard time getting off of Prednisone. LDN actually really

helped me get off of it. I am on Pred now again as before the surgery I had an

emergency bowel obstruction which thankfully did not require surgery on the spot

but I had to move the surgery date closer than what I originally intended.

Since I am on narcotics I cannot go on LDN which is a pitty since it is so

helpful.

I think your diet sounds very sound and good. If you drink any juices make sure

they are really diluted. I cannot tolerate store bought juice at all (not even

apple cider) only juice that I make so maybe that is something to look into.

The disease can progress . The classification of the disease usually does

not switch from UC to CD or vice versa. It happens to some of us but if you

have UC you have UC. Gurgling is pretty normal. I reckon you are referring to

painful gurgling? These are all symptoms of the disease. The SCD will take

care of this.

You are on Prednisone which helps in the short term but long term it causes

issues so many of the issues you may be dealing with are the Prednisone itself.

It is very common to flare when getting off of Prednisone that is why a slow

taper is best. I do not think LDN made you " flare " it might of modulated your

immune response which I doubt at the Pred dosages you take.

Anyway it is best to take LDN on 20mg or less of Prednisone. Some even say more

like 10mg as that is closest as to what the body naturally manufacturers. The

LDN is pretty much useless at high doses.

Also, as you say the problems started when you ate bok choy and had too much

wine. I think this is why you are off to begin with.

This diet calls for beyond what is normal type of fanaticism. That is just how

it works. We are human and we will reach for that extra glass of wine but at

the end of the day we have to learn moderation too. It tough. The only way I

have seen results is to be very strict! It's all a learning process.

Jodi

>

> I have tried LDN, but only for a couple of weeks, twice...each time I tried I

got the start of a flare. Coincidence, perhaps, but I am a little afraid to try

it again. I have the prescription. My understanding is that it may take a

couple of months to start working - is that right? I have been on Prednisone

at a higher dosage...I am tapering right now from a 40 mg dose and was on a 60

mg taper last year. Yesterday I had stomache paisn - I was thinking, " oh no -

now whats wrong? " Is the disease progressing even more now? Into my upper

intestine? Do others get stomache gurgles and pains when they only have UC or

is that a sure sign of chrones/colitis? Today was more successful than

yesterday - I had five visits to the loo with D and B...today, only two small

ones but D and B in both...no stomach pains - I am hoping I just ate something

that was too advanced for me and I am having a mild falre. As far as

elimination - I really don't

> eat much to begine with...I eat beef patties, buffalo, dry white fish grilled

mahi mahi and alittle steelhead) and pecorino romano cheese and weakened coffee,

well cooked zuchinni and well good grean beans and salt..all of which seemed to

be tolerated today pretty well as I saw a reduction in the bms...perhaps regualr

beef or the dubliner cheddar causes probelms? I also eat occasionally bacon and

bananna...but perhaps I will stick with what I ate today for the next few days

and see where that gets me. I had some bok choy in a stir fry and a little too

much wine over the weekend last weekend and that is when things started - oh

please oh please just be a temporary thing - I want to get off this Prednisone

soooo bad and be doing better again. I miss raw fruit and vegetables

>

> aiazeen

> UC 6 yrs

> Prednisone 5 mg (trying to hold steady - send good thoughts this way)

> Imipramine 20 mg, Asacol 800 mg 3x/day

> Canasa suppository 1/day for last two days

>

>

>