Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 Hello all I understand that there are a few other folks here from New Jersey. Is it acceptable practice to ask where you are? I'll start (have little remaining internet paranoia!!!) I'm in in the middle of the northern part of NJ. Most of my doctors are affiliated with town Memorial Hospital (which now has a Children's Hospital). The docs we see (or have appointments this century to see!) are her priamary care pediatrician, a ped neurologist, a GI doc, a genetecist, an endocrinologist and we have an appointment for a swallow study and/or full eval at St. Joe's in Paterson. We are also in Somerset County's EI program. How about you all? Jeanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 Jeanne, I have little to no internet fear. This may change when we move. But. for now I am so far removed from the world that it doesn't bother me. Right now we are in Anchorage, AK. But, we will be moving to MD soon. For right now N. NJ seems close. We look at the map of the states and every thing seems close...for now. We have just started down this path as well. The only solid answer we have so far is that is RSS, but no test have been done to prove this. Just his small size, and his looks. We have on going doctor problems. My husband is in the Air Force and our medical needs are " met " at the military clinic. Worse then dealing with an HMO. We see a GI that is military, and our ped. is military, but the Endo we saw last week was an outside doctor...what a mess. We needed tests done, blood can only be drawn at the military clinic. The endo wanted another CF test done...but those CAN'T be done at the clinic. Like I said its a mess. good luck Cami arie Mirabella wrote: > Hello all > > I understand that there are a few other folks here from New Jersey. Is > it acceptable practice to ask where you are? I'll start (have little > remaining internet paranoia!!!) > > I'm in in the middle of the northern part of NJ. Most of my doctors are > affiliated with town Memorial Hospital (which now has a Children's > Hospital). The docs we see (or have appointments this century to see!) > are her priamary care pediatrician, a ped neurologist, a GI doc, a > genetecist, an endocrinologist and we have an appointment for a swallow > study and/or full eval at St. Joe's in Paterson. We are also in > Somerset County's EI program. > > How about you all? > > Jeanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 Jeanne, I live about 5 minutes from MMH. I live in Madison, which is the next town over from town. In fact, I know the family that donated the money for the Goryeb Children's Center. Their grandson is a student at the private school where I teach. Where are you? Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 One more thing, Jeanne. If you are so close, why don't you switch over to Dr. Harbison? She is in NYC and she is an expert on RSS. Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 Jodi I grew up in Newark (didn't everyone!) Now, I had thought that you worked for magic (from your email address) but I guess that's not possible if they are in ILL and you are in NJ... There are a couple of you with magicrss in your emails, no??? I am in bridgewater now... although I hope to move to long hill within a year or so. I chose madison, but peter (my husband) vetoed me. I do love long hill though... I really like that children's center... although it takes FOREVER to get appointments... I guess when you are IN the system it moves more quickly than when you are trying to get into the system. Thanks for getting in touch. I'm sure we'll meet at some point... Madison is less than 1/2 hour from here... Jeanne magicrss3 wrote: > > Jeanne, > > I live about 5 minutes from MMH. I live in Madison, which is the > next town over from town. In fact, I know the family that > donated the money for the Goryeb Children's Center. Their grandson > is a student at the private school where I teach. Where are you? > > Jodi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 Jodi Rosemarie hasn't been diagnosed with RSS (or anything else!) yet. I know she has many of the signs and symptoms, so I'm here to get as much info as I can. I am seeing many (MANY) docs in an effort to figure the whole thing out. If it turns out that she does have RSS, I'll certainly be posting here to talk about RSS specialists. Where in the city is she? Jeanne magicrss3 wrote: > > One more thing, Jeanne. If you are so close, why don't you switch > over to Dr. Harbison? She is in NYC and she is an expert on RSS. > > Jodi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 Jeanne, I do work for MAGIC. I am the Email Coordinator for the RSS Division. is the Division Director, though. I know exactly where Long Hill is. It's about 10 minutes from here. Maybe someday we will meet! I used to go into that area a lot, but now I work in Mountain Lakes, so I travel more in the opposite direction. I still think you should consider at least a consult with Dr. H. That is a good system to get into, too. I love MMH as a local hospital, though. Our pediatrician works out of there and we love her. It's great for short stays like when Max has a stomach virus and needs those couple of days for rehydration and acidosis. Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 maybe we can get some kind of NJ/NY to meet... a picnic or something with the kids! I'm impressed that you know about long hill. Even though it's right there, in the middle of everything, most people think of either long valley or far hills when they hear long hill, and have no idea that it's just sandwhiched in there! It's funny too, because it is in morris county, but the kids go to HS in somerset county... that always throws folks too. Anyway, I'm not there yet, but am so close to you! Did you grow up in NJ? Jeanne magicrss3 wrote: > > Jeanne, > > I do work for MAGIC. I am the Email Coordinator for the RSS > Division. is the Division Director, though. > > I know exactly where Long Hill is. It's about 10 minutes from > here. Maybe someday we will meet! I used to go into that area a > lot, but now I work in Mountain Lakes, so I travel more in the > opposite direction. > > I still think you should consider at least a consult with Dr. H. > That is a good system to get into, too. I love MMH as a local > hospital, though. Our pediatrician works out of there and we love > her. It's great for short stays like when Max has a stomach virus > and needs those couple of days for rehydration and acidosis. > > Jodi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2002 Report Share Posted May 31, 2002 Jeanne, I grew up in South Orange. My parents moved to New Vernon/Harding Township while I was in college in Atlanta. Now I am back in NJ and, as you know, living in Madison. As for a NY/NJ gathering, I would be all for it. We used to host one here every fall and had quite an attendance. I wish my house were bigger now so that I could do it again. Our yard is big enough, but if it rains, things would be pretty tight. This was supposed to be our 5 year house, then we were going to move to a larger house. Along came Max and all the medical expenses and our dreams flew out the window. Now we don't want to move because Jenna is going to college in a year and we won't need the extra room. We are comfortable and happy here. When are you moving? At least maybe you and I can meet! Perhaps Katy could come up, too, when she is going to visit her parents. Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 I grew up in Vailsburg. No doubt we did some sleighriding together at cameron field or ate ice cream at grunings (on the hill??!!) I'm sure we will meet! jeanne magicrss3 wrote: > > Jeanne, > > I grew up in South Orange. My parents moved to New Vernon/Harding > Township while I was in college in Atlanta. Now I am back in NJ > and, as you know, living in Madison. > > As for a NY/NJ gathering, I would be all for it. We used to host > one here every fall and had quite an attendance. I wish my house > were bigger now so that I could do it again. Our yard is big > enough, but if it rains, things would be pretty tight. This was > supposed to be our 5 year house, then we were going to move to a > larger house. Along came Max and all the medical expenses and our > dreams flew out the window. Now we don't want to move because Jenna > is going to college in a year and we won't need the extra room. We > are comfortable and happy here. > > When are you moving? At least maybe you and I can meet! Perhaps > Katy could come up, too, when she is going to visit her parents. > > Jodi > > Quote Link to comment Share on other sites More sharing options...
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