Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 check out www.gfcfdiet.com -- it is the "bible" for the GFCF diet Also, pediatricians won't typically do GFCF peptides or food allergy testing; you need to (usually) go through either a DAN! dr or a private lab (Great Smokies or Great Plains or Doctor's Data or Pfeiffer Txt Center) to get the appropriate tests run. Check out our Links section on the yahoo site for more info on these links... Call me at or email me privately at sharlan@... for more info on the diet; I'm happy to help anyone get started! RE: meds (stacy) - Thanks for sharing your story. I actually had an autistic school evaluate Conner and was told "your son is not autistic."I have run into the same types of issues. Often you have to spend a great deal of time with Conner in order to see the behaviors. Just watching once isn't an accurate picture. The special ed director of our local district also told me that Conner was not autistic, may be ADHD, but I went ahead with the appt. with Dr. Solomon and sure enough he did get the dx. I think the meds was just one suggestion as a way to control some of the emotions. My son is similar to yours in that he is very sweet and loving, but when he meltdowns or loses control watch out!!! It is like a different child all together. He has good days and bad days (as we all do). But, sometimes I do wonder about ODD (oppositional-defiant disorder) because he really can be one to push the limits. He does display a fair amount of anxiety as well. Do you or anyone out there have a good resource suggestion for diet guidelines(GF/CF). Currently, Conner is on no special diet. We just got the dx in Feb. of this year and didn't even know of the relationship to diet until recently. I appreciate the help. Thanks. elaine Support Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2003 Report Share Posted September 15, 2003 , Don't be nervous--Rick Solomon is a fantastically caring man :-) Second, was autistic from birth, and we have never done the diet, and have seen much success in --he back slide over the summer, but is now doing quite well, socially, again. Also, though, I know many whom the diet has worked for. I would always confer with all of the "cooks in Marisa's kitchen" as our pediatrician calls all of 's doctors, before beginning any type of intervention, including diet, therapy, medical, what have you. Like the spectrum itself, autism is so multi-faceted and such an individual condition. I once went to a four year old party where there were going to be 14 kids with autism. My mom and I were so excited that we'd finally find someone who had autism, like 's--what we saw were 14 kids who all had very complete different kinds of autism. Anyhow, we've been successful without the diet, but many have found success with it. I would ask Rick Solomon, your pediatrician, and all of the medical interventionists and therapists, grandparents, friends, family, and even school professionals involved with Marisa. Along with you, they know Marisa, where she's at, and her history, best. Hope all goes well with your Rick Solomon appointment tomorrow. I'm the "pot calling the kettle black." I always say don't be nervous for a Solomon appointment, but these are big deals, and because he is so great, we all wait a long time to see him, we all get nerved up the night before our children's appointments with him. I consider him one of my best friends, we just spoke today--as was running through my house naked--that's a whole other story--he was avoiding going to his ped and thought he was funny, but underneath the accolades, Rick Solomon is just a nice guy who really cares to help children with autism. Take care, and if your worried you're not doing enough for your child, as we all do, you are probably doing great and doing more than enough :-) Before I give a speech or presentation, I know if I'm really worried it well go well, and if I'm calm, it is going to stink. If you are worried you're not doing enough for Marisa, I bet you're doing fanastic! :-) Love, Dawn -----Original Message-----From: s bassin Sent: Monday, September 15, 2003 8:47 PMTo: everydayMiraclesAutism Subject: The DietI would like to know about the diet and children born with autism vs those who got from the vaccinations? If born with it have you seen a difference in the child on the diet. I have been told that even though Marisa was born with autism the diet would help. I thought the diet was more beneficial to those children who had the reaction to the vaccinations.Please excuse my stupidity in this question but I don't want to think I'm not doing everything possible for Marisa. We have a follow up with Dr. Solomon tomorrow and I am nervous for some reason.Support Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2003 Report Share Posted September 15, 2003 Some kids who are "born with autism" may have been injured earlier- sometimes these kids have moms who were given rhogam shots, or had dental work done, or who ate a lot of fish; or they may have an autoimmune disorder of some kind, or had a flu shot... If none of this is the case, then the child may have a genetic predsposition to being unable to process heavy metals, or if they were born premature, then they were vaccinated at the same age as some babies who were still in utero, increasing the risks even more. Some kids may just have a predisposition to having allergies or intolerances or their gastrointestinal system may have been injured by the live viruses in vaccines or by multiple courses of antibiotics creating leaky gut.... This is very over-simplified, but my point is, there are many reasons why kids may benefit from the diet and it never hurts to try it. Many pediatricians and other professionals do not believe in it, so don't go to your appt tomorrow asking for support. Research the issues yourself and make the best informed choice for your child. And if you give the diet a good (100 %/no infractions/at least 3-6 months) try and you see no improvements, then at least you can say that you tried everything. Just my humble opinion!! The Diet I would like to know about the diet and children born with autism vs those who got from the vaccinations? If born with it have you seen a difference in the child on the diet. I have been told that even though Marisa was born with autism the diet would help. I thought the diet was more beneficial to those children who had the reaction to the vaccinations.Please excuse my stupidity in this question but I don't want to think I'm not doing everything possible for Marisa. We have a follow up with Dr. Solomon tomorrow and I am nervous for some reason.Support Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM Quote Link to comment Share on other sites More sharing options...
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