bowel sounds

[Guest guest]

bile salt binders

Hi Jodi,

So glad you're feeling better. I'd be careful of the bile salt binders. My son tried those at one time and they made him sicker. Also they're not legal on SCD.

Here's an example of one: QUESTRAN powder contains the following inactive ingredients:acacia, citric acid, D & C Yellow No. 10, FD & C Yellow No.6, flavor (natural and artificial Orange), polysorbate 80, propylene glycol alginate and sucrose. QUESTRAN LIGHT contains the following inactive ingredients: aspartame, citric acid, colloidal silicon dioxide, D & C Yellow No. 10, FD & C Red No.40, flavor (natural and artificial Orange), maltodextrin, propylene glycol alginate and xanthan gum.

Prayers for a speedy and great recovery.

Take care,

Pat Dell Mini Netbooks: Great deals starting at $299 after instant savings!

[Guest guest]

This is a bit graphic but I am having bowel sounds and it seems like I pass gas.

When I go to the toilet to pee I wipe and I have stool on the toilet paper.

Also has anyone taken bile salt binders after surgery?

They want to put me on this. The upside it can help any GallBladder problems.

I woke up this morning with no small bowel pain and no upper GI pain which was

nice. I do still have pain from residual surgery like a bus hit me- but that is

getting loads better.

Thanks!

Jodi

[Guest guest]

Jodi,

<g> Great on the bowel sounds. I remember the Wednesday of my

surgery, my oncologist was there and my system decided to go f-a-a-a-art

very LOUDLY and with, shall we say, significant odor. I muttered the

usual apology, and the oncologist laughed, and said, " Oh, no... no

apologies! We LIKE hearing that after surgery! "

>> Also has anyone taken bile salt binders after surgery? They want

to put me on this. The upside it can help any GallBladder problems.

<<

No... then again, I didn't have a gall bladder at that point. I would be

very, very careful of any non-compounded medicines, because they are

likely to be chock-full of illegals. Ask them what ALL the ingredients

are, or, if you're not up to that, post the med they are proposing here,

and one of us can look it up. Then you can decide how you wish to handle

it.

I can tell you that I ran into significant difficulties, not with

specific meds -- not even Motrin / Ibuprofen -- but with all the fillers

they put in with them. Prescription strength Motrin, for instance, uses

LACTOSE as a filler! (And then I was wondering why my gut kept cramping,

long past the point the pain should have eased up...)

>> I woke up this morning with no small bowel pain and no upper GI

pain which was nice. I do still have pain from residual surgery like a

bus hit me- but that is getting loads better. <<

That's wonderful to hear! that it's getting better, I mean, not that you

feel like a bus ran over you! How's your walking doing? Have you tackled

the clear liquids yet?

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Very useful info.

I will ask my integrative doc if any of this can be compounded.

My GI said it will be very helpful for me to take after the resection. I have a

feeling he is right.

I will keep you posted.

Thanks!

Jodi

>

> Hi Jodi,

>

> I can give you my experience with the bile salt binders. The doctors are

probably referring to cholestyramine (Questran). Its very effective in

preventing D after a resection where the ileum has been removed because it binds

bile and removes it from the colon where it can cause D. In another time, bile

salts were used to cleanse the colon. Not what we need!

>

> There are a few choices. Regular flavored Questran is probably half sugar.

Not to mention dyes and flavorings. The Light form has aspartame, dyes,

flavorings and everything illegal you can think of. There are other

choices--colestid, prevachol. The cholestid tablet probably has fewer illegals

however it cannot be cut and I found early on I didn't need the prescribed dose

of Questran. The original purpose of the drug is to control cholesterol, since

that is not the reason I was taking it I experimented until I found the dose

that worked which is much smaller than the prescribed dose.

>

> Jodi, your question aroused my interest because I've been taking these drugs

many years and I think it's time to find a less illegal drug. The one good

thing I can say is that they work very well.

>

> It was really good to hear that your surgery went so well. I hope you

continue to improve day by day.

>

> Phyllis

> CD

>

>

>

>

>

>

>

>

> bowel sounds

>

>

>

>

>

> This is a bit graphic but I am having bowel sounds and it seems like I pass

gas. When I go to the toilet to pee I wipe and I have stool on the toilet paper.

>

> Also has anyone taken bile salt binders after surgery?

> They want to put me on this. The upside it can help any GallBladder

problems.

>

> I woke up this morning with no small bowel pain and no upper GI pain which

was nice. I do still have pain from residual surgery like a bus hit me- but that

is getting loads better.

>

> Thanks!

> Jodi

>

[Guest guest]

Jodi, after my surgery they wanted to hear bowel sounds plus they wanted me to pass gas. It took me 4 days to have a bowel movement, it was very soft and black at first and formed after about a week or so. I didn't take anything for it. Glad your doing so well. Katy

This is a bit graphic but I am having bowel sounds and it seems like I pass gas. When I go to the toilet to pee I wipe and I have stool on the toilet paper.> > Also has anyone taken bile salt binders after surgery?> They want to put me on this. The upside it can help any GallBladder problems.> > I woke up this morning with no small bowel pain and no upper GI pain which was nice. I do still have pain from residual surgery like a bus hit me- but that is getting loads better.> > Thanks!> Jodi

____________________________________________________________

Click for discounted saunas.

[Guest guest]

Hi Marilyn,

About the bus..

Yesterday was a very challenging day. It started out very well but then I had a

problem with my Epidural Catheter (I would highly recommend it to anyone getting

this type of surgery- it is wonderful for pain management. They give pain meds

along with a numbing agent and it really worked wonders) until I had what seems

to be an air bubble due to a kink in the hose. It was not taken care of

immediately and I got an excruciating headache. The nurse taking care of me

yesterday was a bit disorganized so it took pain management (they are in charge

of epidural catheters) 3 hours to see me. When they originally saw me instead

of just flushing the catheter and having me go off-line with it to see if the

headache improved the doc decided to let it keep going. This headache escalated

into bad neck pain, excruciating back pain and then numbness in my hands (this

could of all been avoided!!) when they finally came back to see me I could not

feel my hands. They took me off-line but they did not supplement pain meds

during that time so I had to work strictly on the pump which didn't work since

it was delivered through my back. So for about 4 hours in total I got no pain

meds. OMG. I would not recommend this after major bowel surgery. So after this

my pain doctor had to order where we go from there as I was not getting it

through the catheter but IV. They were planning on taking me off the catheter

tomorrow anyway but I was suppoed to transition to IV pain meds and then oral

meds to prepare me to go home. I got no transition. The pain got so bad I had

a complete set-back. So as my intestines are awakening I had to go through

this. As it is I am having bad anal leakage (which is normal and that is why

binding the bile salts is supposed to really help since I need to like where

pads now so I don't have accidents)

Anyway, all of this was complete set back.. I only started feeling ok a couple

of hours ago as I am learning to use to new pain med so I will have enough in my

system but not cause too much nausea. It is ok in the sense that I wish I could

of stayed on the epidural but now I need to learn how to manage all of this

while being on oral pain meds at home. Which is a major shift. It was very

traumatic for me to have such excruciating pain set in. It was really bad care

by the nurse and hospital. They also did not get my steroid dosage adjusted

yesterday and they gave me all of my meds late including toradol which I am also

getting for pain.

I hope today is better and that I will in fact be able to eat some pureed food.

I think eating will help me feel better and will also hel the leakage. Soon I

will be able to take S Boulardii which is like magic for my gutt (I hope it

still is post surgery) and eating yogurt.

My pain management doc has no problem getting my pills compounded for me (how

awesome is that?) and my integrative doc has no problem getting the bile salt

binders compounded. I hope it is possible.

My GI wants to put me on Questran- It will supposedly help the leakage so I can

leave the house. It's a bit of a bummer. Phylis posted what is contained in

Questran;

http://www.rxlist.com/questran-drug.htm

I should have pathology reports I hope next week.

The Surgeon said the mass was very small perhaps tissue build up from the scar

tissue. He did say he was happy we did something about this now as he does not

know if this would of been the case in 1-2 years time. I got the sense from him

we caught it in time. But, we can only know there is no dysplasia from biopsy

results. All my docs seem pretty confident though. So, I hope my confidence is

ok.

I was totally able to walk outside the room yesterday and do a couple of circles

around the floor. But after the pain issue that didn't happen again. I am

hoping to do it today a couple of times and maybe they can lower the Heprin

dosage because I am moving.

I have had to contend with severe fluid retention due to IV's. they overloaded

me because my blood pressure was very low post surgery- so I have really swelled

and my peeing isn't great since taking the catheter out. It's all a work in

progress. It's weird seeing such a huge knee when I look down.

Jodi

[Guest guest]

Thank you Phyllis for this info.

I am going to look into getting it compounded to be SCD compliant.

I am having such horrible leakage that I feel I will need help for a couple of

months. My GI said it would be a problem for me especially with the amount of

proctitis I have (which may be from the ileum issues to begin with)

I am so over the moon as 5 years ago my small bowel was an utter disaster. Now

in surgery the doc said he was IMPRESSED with how healthy my small bowel looked

comparing some the imaging he saw from 5 years ago. The nice things is that

this did not become strictured the way the colon did. Interesting how that

happened. I wish I understood the science behind it better.

I am so thankful for what this diet has provided me. It has saved my life.

Nothing short of that.

Elaine's work and all these countless volunteers have taught me to get my health

back. It's pretty miraculous living in the land of hope and not being depressed

and despair ridden.

Jodi

[Guest guest]

Hi Jodi,

So sorry to hear about your very painful day yesterday. I really do hope that

today brings you much improvement and encouragement.

You are in our thougths.

Sending you all kinds of good vibes!!!

GERDS and chronic C.

SCD 13 months

>

> I hope today is better and that I will in fact be able to eat some pureed

food. I think eating will help me feel better and will also hel the leakage.

Soon I will be able to take S Boulardii which is like magic for my gutt (I hope

it still is post surgery) and eating yogurt.

>

> My pain management doc has no problem getting my pills compounded for me (how

awesome is that?) and my integrative doc has no problem getting the bile salt

binders compounded. I hope it is possible.

>

> My GI wants to put me on Questran- It will supposedly help the leakage so I

can leave the house. It's a bit of a bummer. Phylis posted what is contained

in Questran;

>

> http://www.rxlist.com/questran-drug.htm

>

> I should have pathology reports I hope next week.

> The Surgeon said the mass was very small perhaps tissue build up from the scar

tissue. He did say he was happy we did something about this now as he does not

know if this would of been the case in 1-2 years time. I got the sense from him

we caught it in time. But, we can only know there is no dysplasia from biopsy

results. All my docs seem pretty confident though. So, I hope my confidence is

ok.

>

> I was totally able to walk outside the room yesterday and do a couple of

circles around the floor. But after the pain issue that didn't happen again. I

am hoping to do it today a couple of times and maybe they can lower the Heprin

dosage because I am moving.

>

> I have had to contend with severe fluid retention due to IV's. they

overloaded me because my blood pressure was very low post surgery- so I have

really swelled and my peeing isn't great since taking the catheter out. It's

all a work in progress. It's weird seeing such a huge knee when I look down.

>

> Jodi

>

[Guest guest]

>

> This is a bit graphic but I am having bowel sounds and it seems like I pass

gas. When I go to the toilet to pee I wipe and I have stool on the toilet

paper.

>

> Also has anyone taken bile salt binders after surgery?

> They want to put me on this. The upside it can help any GallBladder problems.

>

> I woke up this morning with no small bowel pain and no upper GI pain which was

nice. I do still have pain from residual surgery like a bus hit me- but that is

getting loads better.

>

> Thanks!

> Jodi

>

[Guest guest]

>

> This is a bit graphic but I am having bowel sounds and it seems like I pass

gas. When I go to the toilet to pee I wipe and I have stool on the toilet

paper.

>

> Also has anyone taken bile salt binders after surgery?

> They want to put me on this. The upside it can help any GallBladder problems.

>

> I woke up this morning with no small bowel pain and no upper GI pain which was

nice. I do still have pain from residual surgery like a bus hit me- but that is

getting loads better.

>

> Thanks!

> Jodi

>

[Guest guest]

Hi Jodi,

I have had a bowel resection and am reading your posts reoutinely. Mine was an

emergency operation - I envy the itme you have had to prep for this - I would

have been healed years ago had I known what I know now . . . I lost most of my

lower small intestine, my ileocecal valve, my ascending colon, and half of my

transverse colon. A lot of my D is due to transit time, and loss of that

ileocecal valve, but I so have formed stools at certian times of the day - I am

hoping this will improve - BUT ANYWAY . . .

My advice - careful of judging pain while in the hospital - your experience will

vary greatly once you begin to move, and get to go home.

Just take it easy - and slow :)You seem to be a rock star here in this

department, but I just wanted to mention it

I was given questran - only after I left the hospital - it was very hard for me

- it binded me completely, and (I think) contributed to the adhesions I

experienced while my gut healed, which contributed to the pain, etc. (it was

only thru Bikram yoga + accupuncture that I was able to undo those adhesions)

Now I take an SCD compliant natural bile salt by Natural Process through my ND -

called Cholacol - I think Standard Process is only available through MDs and and

naturopaths. Cholacol helps me immensely, and I am able to tolerate fat, which

helps keep my tummy full, and my energy up, and my stools formed, and not fatty

D.

e Gedroic - highly recommend her!

http://www.gedroicfamilypractice.com/ in town, NJ

I was also given Lomotil - a narcotic - meant to slow down the transit time.

AWFUL. I don't reco any of these drugs once you are out of the hospital.

We are packing to go on vacay, and I may not get back to the list - until we

arrive at the beach. Feel free to email me personally if I can be of amy more

help to you. Take VERY good care -and HEAL WELL!

Kim in NJ, SBS due to bowel resection Feb 03

2 sons, 4, ADHD, SPD, leaky gut, k.oxytoca & candida overgrowth

Transitioned to SCD from GFCF Nov/Dec 08

All SCD Jan 1/09

> Also has anyone taken bile salt binders after surgery?

> They want to put me on this. The upside it can help any GallBladder problems.

[Guest guest]

Hi Jodi,

I can give you my experience with the bile salt binders. The doctors are probably referring to cholestyramine (Questran). Its very effective in preventing D after a resection where the ileum has been removed because it binds bile and removes it from the colon where it can cause D. In another time, bile salts were used to cleanse the colon. Not what we need!

There are a few choices. Regular flavored Questran is probably half sugar. Not to mention dyes and flavorings. The Light form has aspartame, dyes, flavorings and everything illegal you can think of. There are other choices--colestid, prevachol. The cholestid tablet probably has fewer illegals however it cannot be cut and I found early on I didn't need the prescribed dose of Questran. The original purpose of the drug is to control cholesterol, since that is not the reason I was taking it I experimented until I found the dose that worked which is much smaller than the prescribed dose.

Jodi, your question aroused my interest because I've been taking these drugs many years and I think it's time to find a less illegal drug. The one good thing I can say is that they work very well.

It was really good to hear that your surgery went so well. I hope you continue to improve day by day.

Phyllis

CD

bowel sounds

This is a bit graphic but I am having bowel sounds and it seems like I pass gas. When I go to the toilet to pee I wipe and I have stool on the toilet paper.Also has anyone taken bile salt binders after surgery?They want to put me on this. The upside it can help any GallBladder problems.I woke up this morning with no small bowel pain and no upper GI pain which was nice. I do still have pain from residual surgery like a bus hit me- but that is getting loads better.Thanks!Jodi

[Guest guest]

Jodi - sorry to hear of the downs - just want you to have all ups - no ups/downs

either - LOL - just feel good - I know it's slow going and frustrating - hang

in - we're praying for you :-)

eileen

-- In BTVC-SCD , " jodah235 " wrote:

>

> Thank you Phyllis for this info.

>

> I am going to look into getting it compounded to be SCD compliant.

> I am having such horrible leakage that I feel I will need help for a couple of

months. My GI said it would be a problem for me especially with the amount of

proctitis I have (which may be from the ileum issues to begin with)

>

> I am so over the moon as 5 years ago my small bowel was an utter disaster.

Now in surgery the doc said he was IMPRESSED with how healthy my small bowel

looked comparing some the imaging he saw from 5 years ago. The nice things is

that this did not become strictured the way the colon did. Interesting how that

happened. I wish I understood the science behind it better.

>

> I am so thankful for what this diet has provided me. It has saved my life.

Nothing short of that.

>

> Elaine's work and all these countless volunteers have taught me to get my

health back. It's pretty miraculous living in the land of hope and not being

depressed and despair ridden.

>

> Jodi

>

[Guest guest]

Thanks for calling me a rock star.

I sure don't feel like one. I am however doing my very best and I cannot

believe I went through the surgery. I am pretty proud of myself. I was scared

Luckily being on this diet my small bowel looked really good. So they removed

half of my transverse all the way including the cecum and ileum. They did say

my ileum and cecum were so strictured I wasn't absorbing anyway. Since I am

only 5 feet tall (my surgeon said I am tiny) that in my size they only removed

1.5- 2 feet in total. He needs to look up the exact dimensions. I really

wanted him to take a picture for me but he said that he has seen so many colons

that it is a good thing he was not interested LOL.

I think this diet helped my small bowel like nothing else. My integrative doc

was worried that my small bowel would be stricutured too but thankfully it

wasn't and I have more than enough bowel to have normalized stool although my

doc said it will take time and I may need help from Questran. I did learn today

I can get it to be SCD compliant via a compounding pharmacy. The pain meds

however cannot be compounded.

How long did it take for your pain to get better at home.

These two setbacks I had yesterday and today was pretty traumatic for me. The

epidural catheter was like a dream between the fentanyl and numbing agent

delivered in my spine I experienced no pain. Now, I am having pain spells. My

transitions into feeling this have been quite violent so my brother and I

decided that this is a learning curve too. hopefully my pain patch will be

working to it's full capacity by tomorrow.

I walked today and it released so much gasses that boy did I feel better. My GI

and surgeon want me to walk walk walk. It will also help the expansion from the

IV's.

Thanks for all of your help, it is so appreciated I kind of feel alone. I mean

I have so much loving support but this is brand new territory for me.

It was nice waking up for a few days there with no bowel spasms.

I was able to eat today and it went over really well. The GI said the minute I

can eat some solids my blood counts and albumin should get better and my stool

should bind more. He was right on the money.

I will fwd you this email personally later too.

Enjoy your vacation!!

Jodi

>

> Hi Jodi,

> I have had a bowel resection and am reading your posts reoutinely. Mine was an

emergency operation - I envy the itme you have had to prep for this - I would

have been healed years ago had I known what I know now . . . I lost most of my

lower small intestine, my ileocecal valve, my ascending colon, and half of my

transverse colon. A lot of my D is due to transit time, and loss of that

ileocecal valve, but I so have formed stools at certian times of the day - I am

hoping this will improve - BUT ANYWAY . . .

>

> My advice - careful of judging pain while in the hospital - your experience

will vary greatly once you begin to move, and get to go home.

> Just take it easy - and slow :)You seem to be a rock star here in this

department, but I just wanted to mention it

>

> I was given questran - only after I left the hospital - it was very hard for

me - it binded me completely, and (I think) contributed to the adhesions I

experienced while my gut healed, which contributed to the pain, etc. (it was

only thru Bikram yoga + accupuncture that I was able to undo those adhesions)

Now I take an SCD compliant natural bile salt by Natural Process through my ND -

called Cholacol - I think Standard Process is only available through MDs and and

naturopaths. Cholacol helps me immensely, and I am able to tolerate fat, which

helps keep my tummy full, and my energy up, and my stools formed, and not fatty

D.

>

> e Gedroic - highly recommend her!

> http://www.gedroicfamilypractice.com/ in town, NJ

>

> I was also given Lomotil - a narcotic - meant to slow down the transit time.

AWFUL. I don't reco any of these drugs once you are out of the hospital.

>

> We are packing to go on vacay, and I may not get back to the list - until we

arrive at the beach. Feel free to email me personally if I can be of amy more

help to you. Take VERY good care -and HEAL WELL!

>

> Kim in NJ, SBS due to bowel resection Feb 03

> 2 sons, 4, ADHD, SPD, leaky gut, k.oxytoca & candida overgrowth

> Transitioned to SCD from GFCF Nov/Dec 08

> All SCD Jan 1/09

>

>

> > Also has anyone taken bile salt binders after surgery?

> > They want to put me on this. The upside it can help any GallBladder

problems.

>