Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 Those of you that know us, know Max's story. Max had late treated Plagiocephaly and a mild case of Craniosynostosis. His deformation was attributed more to his Positional Deformity. Though we questioned our pediatricians at every visit, Max's deformity was not treated until he was 10 months old. With this group and CAPPSKIDS, we found the treatment that Max needed. Come see Max's Journey through surgery amy has shared Max's Journey through surgery with you, a montage created at One True Media. A personal message from amy: Hi, here's a montage I created online at onetruemedia.com. Click on the link below to see it. You don't need to have an account. See Max's Journey through surgery online. Max's Journey through surgery If clicking on the image or link does not work, copy and paste this link into your browser's address field: http://www.onetruemedia.com/shared?p=4fc86d77d5d41b023b439c & skin_id=701 & utm_source=otm & utm_medium=email One True Media, Inc. customercare@... www.onetruemedia.com Get the MapQuest Toolbar, Maps, Traffic, Directions More! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 Thank you so much for making this and sharing it with us... I hope cappskids.org can use it to help other parents going thru the same thing!!! Jen and Luli - 28 months Left tort - Right Plagio - Hanger Band Grad - CA http://www.babiesonline.com/babies/j/jens5th/ Max's Awareness Video Those of you that know us, know Max's story. Max had late treated Plagiocephaly and a mild case of Craniosynostosis. His deformation was attributed more to his Positional Deformity. Though we questioned our pediatricians at every visit, Max's deformity was not treated until he was 10 months old. With this group and CAPPSKIDS, we found the treatment that Max needed. Come see Max's Journey through surgery amy has shared Max's Journey through surgery with you, a montage created at One True Media. A personal message from amy: Hi, here's a montage I created online at onetruemedia.com. Click on the link below to see it. You don't need to have an account. See Max's Journey through surgery online. Max's Journey through surgery If clicking on the image or link does not work, copy and paste this link into your browser's address field: http://www.onetruemedia.com/shared?p=4fc86d77d5d41b023b439c & skin_id=701 & utm_source=otm & utm_medium=email One True Media, Inc. customercareonetruemedia www.onetruemedia.com Get the MapQuest Toolbar, Maps, Traffic, Directions More! Get the MapQuest Toolbar, Maps, Traffic, Directions More! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 That was so touching. You have a very beautiful son. It is so true that so many people don't know about this. People brush it off like it is no big deal. Education is the key!! Good Luck. >From: JenandLuli@... >Date: 2008/04/10 Thu AM 11:22:44 CDT >Plagiocephaly >Subject: Re: Max's Awareness Video > >Thank you so much for making this and sharing it with us... I hope cappskids.org can use it to help other parents going thru the same thing!!! > > Jen and Luli - 28 months >Left tort - Right Plagio - Hanger Band Grad - CA >http://www.babiesonline.com/babies/j/jens5th/ > > Max's Awareness Video > >Those of you that know us, know Max's story. Max had late treated Plagiocephaly and a mild case of Craniosynostosis. His deformation was attributed more to his Positional Deformity. Though we questioned our pediatricians at every visit, Max's deformity was not treated until he was 10 months old. With this group and CAPPSKIDS, we found the treatment that Max needed. > > Come see Max's Journey through surgery   amy has shared Max's Journey through surgery with you, a montage created at One True Media. >A personal message from amy:Hi, here's a montage I created online at onetruemedia.<WBR>com. Click on the link below to see it. You don't need to have an account.See Max's Journey through surgery online. >Max's Journey through surgery  >If clicking on the image or link does not work, copy and paste this link into your browser's address field: http://www.onetruemedia.com/shared?p=4fc86d77d5d41b023b439c & skin_id=701 & utm_sour\ ce=otm & utm_medium=email > >One True Media, Inc. >customercare@... >www.onetruemedia.com  Get the MapQuest Toolbar, Maps, Traffic, Directions More! Get the MapQuest Toolbar, Maps, Traffic, Directions More! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 Hi, Thanks so much for sharing your story. I would recommend sharing your story/video with the American Academy of Pediatrics. It would be a great tool to raise public awareness of this problem. You are in our prayers. Sincerely, CCK (pediatrician and mother to 9 mo old dd in Doc band week 9 of 13) plagiocephaly From: syddesi2@...Date: Wed, 9 Apr 2008 21:23:28 -0400Subject: Max's Awareness Video Those of you that know us, know Max's story. Max had late treated Plagiocephaly and a mild case of Craniosynostosis. His deformation was attributed more to his Positional Deformity. Though we questioned our pediatricians at every visit, Max's deformity was not treated until he was 10 months old. With this group and CAPPSKIDS, we found the treatment that Max needed. Come see Max's Journey through surgery amy has shared Max's Journey through surgery with you, a montage created at One True Media. A personal message from amy: Hi, here's a montage I created online at onetruemedia.com. Click on the link below to see it. You don't need to have an account. See Max's Journey through surgery online. Max's Journey through surgery If clicking on the image or link does not work, copy and paste this link into your browser's address field: http://www.onetruemedia.com/shared?p=4fc86d77d5d41b023b439c & skin_id=701 & utm_source=otm & utm_medium=email One True Media, Inc.customercareonetruemediawww.onetruemedia.com Get the MapQuest Toolbar, Maps, Traffic, Directions More! More immediate than e-mail? Get instant access with Windows Live Messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 Speaking as a new mom you are truly a role model and someone special to look up to. God will never give us more than we can handle and you've truly proven that. Max is a beautiful boy and although he went through a lot, in the many of the pictures you have posted he is smiling so brightly. That shows me that as a mother you are being strong for him and showering him with so much love. These babies are stronger than what we think and with our unconditional love and support they can overcome just about anything. Thank you for sharing your story with us. God bless you and your family. Tammy (christian - 8mos-plagio-will be banded 04/18/08)syddesi2@... wrote: Those of you that know us, know Max's story. Max had late treated Plagiocephaly and a mild case of Craniosynostosis. His deformation was attributed more to his Positional Deformity. Though we questioned our pediatricians at every visit, Max's deformity was not treated until he was 10 months old. With this group and CAPPSKIDS, we found the treatment that Max needed. Come see Max's Journey through surgery amy has shared Max's Journey through surgery with you, a montage created at One True Media. A personal message from amy: Hi, here's a montage I created online at onetruemedia.com. Click on the link below to see it. You don't need to have an account. See Max's Journey through surgery online. Max's Journey through surgery If clicking on the image or link does not work, copy and paste this link into your browser's address field: http://www.onetruemedia.com/shared?p=4fc86d77d5d41b023b439c & skin_id=701 & utm_source=otm & utm_medium=email One True Media, Inc.customercareonetruemediawww.onetruemedia.com Get the MapQuest Toolbar, Maps, Traffic, Directions More! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 Amy, thank you so much for sharing the video. I was so moved and couldn't stop the tears that welled up. I am going to forward this video to friends & family, hopefully more people will be aware of plagio and Cranio. Thanks again and my prayers will be with you and your beautiful little boy! Sue --- syddesi2@... wrote: > Those of you that know us, know Max's story. Max had > late treated Plagiocephaly and a mild case of > Craniosynostosis. His deformation was attributed > more to his Positional Deformity. Though we > questioned our pediatricians at every visit, Max's > deformity was not treated until he was 10 months > old. With this group and CAPPSKIDS, we found the > treatment that Max needed.? > > > > > > > > > > > > > > > > > Come see Max's Journey through surgery > > ? > > > > ? > > > > > > > > > > > > ? > > > amy has shared Max's Journey through surgery with > you, a montage created at One True Media. > > > A personal message from amy: > > Hi, here's a montage I created online at > onetruemedia.com. Click on the link below to see it. > You don't need to have an account. > > See Max's Journey through surgery online. > > > ? > > > Max's Journey through surgery > > ? > > > > ? > > > If clicking on the image or link does not work, copy > and paste this link into your browser's address > field: > http://www.onetruemedia.com/shared?p=4fc86d77d5d41b023b439c & skin_id=701 & utm_sour\ ce=otm & utm_medium=email > > > > > > One True Media, Inc. > customercare@... > www.onetruemedia.com > > > > > > > > ? > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 Thanks for sharing this video. Max is beautiful! Your video will help so many people. Angie Max's Awareness Video http://www.onetruemedia.com/shared?p=4fc86d77d5d41b023b439c & skin_id=701 & utm_source=otm & utm_medium=text_urlJust wanted to share!Hope you're all well.XOXOXOAmy & Max Quote Link to comment Share on other sites More sharing options...
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