my 5 month daughter got diagnosed 2 months ago.i need advise..please

[Guest guest]

hi my 5 month daighter FINALLY got diagnosed 2 months ago, my husband

and i notced something was wrong with her ears and the side of her

head, so wee took her to the dr. shesaid your laying her on 1 side 2

much, i said i alternate her every couple hourss,its possible but

very very slim, something is wrong, i finally pleaded her till she

got the ex ray, she said it was normal, so i finally went and got a

second opinion as soon as the woman came in she said oh shes got

plagicephaly, then she examined her and looked at her x-ray then she

said it was positional plagicephaly. i kinda already new, the

internet is a wonderful thing ya know, it topught me every thing.

well she said she wanted to wait till she was at least 6 months and

put the helmet on her cause shell have to get a mri and shell have to

be sedated and shes worried about that.i was freaking then cause i

looked at the pics on the internet and how they mold the helmet and

all i was freaking out. i dont want her screaming and scared.she has

to go in on the 20th of march and she made me keep her on the other

side to see if itll move back any, and i dont think it has. so im

scared, cause i dont want my little girl to have to go through

this,she sid it was her neck muscles, i couldnt prevent what

happeded, cause i was blaming my self so much. ill do anything to

make her better! well now that iv wrote an novel here, heres my

question:

can yall please tell me whats going to happen after the mri. tell me

what i need to prepare for. im worried and scared of the un-known.

please give me advise and tell me EVERYTHING i need to know please!

[Guest guest]

HI and Welcome!

To get a band made you do not need and MRI - Did the dr say what the MRI would be for?

You can take your child into a band facility to get an evaluation - Cranial Tech does them for free - and at least then you will have a base for the measurments and then you can gauge the change in the head shape, if any.

Some places do a scan (it takes seconds and the child is not sedated) other places to a csting process, but the kids don't seem to mind.

Do a search thru old messages here of your area and see if there is a good place that you can go to get an eval.

If an MRI is needed for other reasons, My dd has had 2 of them (for her spine, not her head) and she did great with the sedation. It's really harder on us parents than the kids.

Jen and Luli - 27 months

Left tort - Right Plagio - Hanger Band Grad - CA

http://www.babiesonline.com/babies/j/jens5th/

my 5 month daughter got diagnosed 2 months ago.i need advise..please

hi my 5 month daighter FINALLY got diagnosed 2 months ago, my husband

and i notced something was wrong with her ears and the side of her

head, so wee took her to the dr. shesaid your laying her on 1 side 2

much, i said i alternate her every couple hourss,its possible but

very very slim, something is wrong, i finally pleaded her till she

got the ex ray, she said it was normal, so i finally went and got a

second opinion as soon as the woman came in she said oh shes got

plagicephaly, then she examined her and looked at her x-ray then she

said it was positional plagicephaly. i kinda already new, the

internet is a wonderful thing ya know, it topught me every thing.

well she said she wanted to wait till she was at least 6 months and

put the helmet on her cause shell have to get a mri and shell have to

be sedated and shes worried about that.i was freaking then cause i

looked at the pics on the internet and how they mold the helmet and

all i was freaking out. i dont want her screaming and scared.she has

to go in on the 20th of march and she made me keep her on the other

side to see if itll move back any, and i dont think it has. so im

scared, cause i dont want my little girl to have to go through

this,she sid it was her neck muscles, i couldnt prevent what

happeded, cause i was blaming my self so much. ill do anything to

make her better! well now that iv wrote an novel here, heres my

question:

can yall please tell me whats going to happen after the mri. tell me

what i need to prepare for. im worried and scared of the un-known.

please give me advise and tell me EVERYTHING i need to know please!

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[Guest guest]

Welcome-

An MRI is not needed to get fitted/casted for a helmet, so I would

be asking why an MRI is needed if you don't know for sure already.

Usually an MRI is used to rule out something more serious, like

craniosynostisis (sp? premature fusing of the skull sutures). Did

the doctor say anything about that? If she only diagnosed positional

plagio, then I don't understand the need for an MRI. My son had a CT

scan to rule out cranio when he was 3 months old and they were able

to get the scan without sedation, so if some sort of further

test/scan is necessary, I would see if you could do CT scan instead.

You might be able to avoid sedation that way (our technician tried

once without sedation to get the scan, and he was able to, so we

lucked out).

You mention she has tightness in her neck muscles, which sounds like

torticollis. Has the doctor diagnosed her with that? And if so, has

she been in physical therapy for it? My son also had tort, diagnosed

at 2 months old, and was in PT for 2.5 months with excellent

results.

If you do get the helmet, you might luck out and go to a place with

a scanner that will take an image of the head in a couple of

seconds. If you do have to go through the casting process, it's not

as bad as you think it will be. It's not fun, but it only lasts

about 10 minutes, and the babies forget about it soon after.

Please keep us posted. Good luck!

Jake-18m (tort resolved/rt plagio/DocBand 2/11/08)

Jordan-4

>

> hi my 5 month daighter FINALLY got diagnosed 2 months ago, my

husband

> and i notced something was wrong with her ears and the side of her

> head, so wee took her to the dr. shesaid your laying her on 1 side

2

> much, i said i alternate her every couple hourss,its possible but

> very very slim, something is wrong, i finally pleaded her till she

> got the ex ray, she said it was normal, so i finally went and got

a

> second opinion as soon as the woman came in she said oh shes got

> plagicephaly, then she examined her and looked at her x-ray then

she

> said it was positional plagicephaly. i kinda already new, the

> internet is a wonderful thing ya know, it topught me every thing.

> well she said she wanted to wait till she was at least 6 months

and

> put the helmet on her cause shell have to get a mri and shell have

to

> be sedated and shes worried about that.i was freaking then cause i

> looked at the pics on the internet and how they mold the helmet

and

> all i was freaking out. i dont want her screaming and scared.she

has

> to go in on the 20th of march and she made me keep her on the

other

> side to see if itll move back any, and i dont think it has. so im

> scared, cause i dont want my little girl to have to go through

> this,she sid it was her neck muscles, i couldnt prevent what

> happeded, cause i was blaming my self so much. ill do anything to

> make her better! well now that iv wrote an novel here, heres

my

> question:

> can yall please tell me whats going to happen after the mri. tell

me

> what i need to prepare for. im worried and scared of the un-known.

> please give me advise and tell me EVERYTHING i need to know please!

>

[Guest guest]

I am confused about the MRI as well. If there is a possibility of

craniosyntosis then that makes sense but if it is just positional

plagiocephally then an MRI would not be needed (unless maybe your

insurance requires it???). We went to Cranial Tech, son got casted,

and then got the helmet/band 2 weeks later. He never had a Cat Scan

or MRI...the doctor and Cranial Tech ruled out cranio just by

looking at him and feeling his soft spot. Good luck.

PS: The casting for the band is not that bad. IT takes about 10

minutes. A lot of babies don't like it (my son didn't) but

afterwards they are fine. I think the casting is just scary for

them because they don't know what is happening.

> >

> > hi my 5 month daighter FINALLY got diagnosed 2 months ago, my

> husband

> > and i notced something was wrong with her ears and the side of

her

> > head, so wee took her to the dr. shesaid your laying her on 1

side

> 2

> > much, i said i alternate her every couple hourss,its possible

but

> > very very slim, something is wrong, i finally pleaded her till

she

> > got the ex ray, she said it was normal, so i finally went and

got

> a

> > second opinion as soon as the woman came in she said oh shes got

> > plagicephaly, then she examined her and looked at her x-ray then

> she

> > said it was positional plagicephaly. i kinda already new, the

> > internet is a wonderful thing ya know, it topught me every

thing.

> > well she said she wanted to wait till she was at least 6 months

> and

> > put the helmet on her cause shell have to get a mri and shell

have

> to

> > be sedated and shes worried about that.i was freaking then cause

i

> > looked at the pics on the internet and how they mold the helmet

> and

> > all i was freaking out. i dont want her screaming and scared.she

> has

> > to go in on the 20th of march and she made me keep her on the

> other

> > side to see if itll move back any, and i dont think it has. so

im

> > scared, cause i dont want my little girl to have to go through

> > this,she sid it was her neck muscles, i couldnt prevent what

> > happeded, cause i was blaming my self so much. ill do anything

to

> > make her better! well now that iv wrote an novel here, heres

> my

> > question:

> > can yall please tell me whats going to happen after the mri.

tell

> me

> > what i need to prepare for. im worried and scared of the un-

known.

> > please give me advise and tell me EVERYTHING i need to know

please!

> >

>