Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 Hi Sue, I'm also in San . I went to see Dr. Ted Guarino. Who are you going to? my 7 mo old has an appt with the Helmut folks in Palo Alto on Monday. I'm pretty sure she'll need one although the neuro says she doesn't. Marina > > > > > > > > > > Hi Everyone, > > > > > I suspect my 6 months old son has > > plagiocephaly. He > > > > > likes to sleep on his left side, and always > > turn to > > > > > his left side when he is not sleeping. I > > have talked > > > > > to our pediatrician since he was born, but she > > thinks > > > > > he is fine. We have tried neck exercises & > > rotating > > > > > his sleeping position according to the > > doctor's > > > > > advice. Now that he is 6 months old, and I > > still > > > > > don't see any improvement. > > > > > > > > > > I have uploaded his pictures, would appreciate > > if any > > > > > of you can give me some advice. By the way, I > > live in > > > > > San , if you can recommend a good doctor, > > that > > > > > would be great! Thanks so much! > > > > > > > > > > > > > > > > Plagiocephaly/spnew/view/e3ac? > > > > i=4622 > > > > > > > > > > > > > > > > Plagiocephaly/spnew/view/e3ac? > > > > i=4625 > > > > > > > > > > > > > > > > Plagiocephaly/spnew/view/e3ac? > > > > i=4626 > > > > > > > > > > > > > > > > Plagiocephaly/spnew/view/e3ac? > > > > i=4624 > > > > > > > > > > > > > > > Sue > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 Hi Marina, Thanks for your info! I am going to see Dr. Keswani tomorrow. This will be our first time seeing her, I don't think she is a specialist. I met a mom at the library who recommended Dr. Keswani, her daughter is wearing a helmet right now. So, how do you like Dr. Guarino? Sue --- marina_isaac <marina_isaac@...> wrote: > > Hi Sue, > > I'm also in San . I went to see Dr. Ted Guarino. > Who are you > going to? my 7 mo old has an appt with the Helmut > folks in Palo Alto > on Monday. I'm pretty sure she'll need one although > the neuro says > she doesn't. > > Marina > > > > > > > > > > > > > > Hi Everyone, > > > > > > I suspect my 6 months old son has > > > plagiocephaly. He > > > > > > likes to sleep on his left side, and > always > > > turn to > > > > > > his left side when he is not sleeping. I > > > have talked > > > > > > to our pediatrician since he was born, but > she > > > thinks > > > > > > he is fine. We have tried neck exercises > & > > > rotating > > > > > > his sleeping position according to the > > > doctor's > > > > > > advice. Now that he is 6 months old, and > I > > > still > > > > > > don't see any improvement. > > > > > > > > > > > > I have uploaded his pictures, would > appreciate > > > if any > > > > > > of you can give me some advice. By the > way, I > > > live in > > > > > > San , if you can recommend a good > doctor, > > > that > > > > > > would be great! Thanks so much! > > > > > > > > > > > > > > > > > > > > > > Plagiocephaly/spnew/view/e3ac? > > > > > i=4622 > > > > > > > > > > > > > > > > > > > > > > Plagiocephaly/spnew/view/e3ac? > > > > > i=4625 > > > > > > > > > > > > > > > > > > > > > > Plagiocephaly/spnew/view/e3ac? > > > > > i=4626 > > > > > > > > > > > > > > > > > > > > > > Plagiocephaly/spnew/view/e3ac? > === message truncated === Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 Hi Everyone, The doctor that we seen yesterday confirmed that my 6 months old has Torticollis & Plagiocephaly. We will be going to see an occupational therapy next week for the tort. The doctor also gave us prescription to CIRS. However, she did mention that since my son is already 6 months old, the band wouldn't help much. My husband is against it after hearing what the doctor said. I was wondering if there are late starters who have successful experience? Thanks again for all your helpful advice!! Sue --- Walsh <kew1976@...> wrote: > Good Morning > > My son had plagio and saw Dr. Menard at Kaiser in > Santa Clara, it doesn't sound like you have Kaiser > insurance though. If you go to CIRS in Palo Alto, > they will give you an evaluation without a > prescription for $150, if they feel like you would > benefit from a band, they will help you find a dr. > that is band friendly and that $150 will go towards > your band once you get a prescription. If they do > not feel you would benefit from a band, than you > just spent the best $150 of your life ha ha. > > I am confident that it is a $150 well spent, and > that not every baby they see, they recomend banding. > I have a girlfriend who they said they didn't think > her baby needed a band, as well as a friend who they > said DID need a band, however she decided to repo > and had EXCELLENT results (I'm still trying to get > her to write something about how she did it) and > ended up not needing a band. > > I'm checking email, however I don't get a lot of > time to write, so if you have any questions, please > feel free to email me, I'm checking and will respond > asap. > > Happy Thursday everyone > > > Mother to (starbanded 1/11/07-5/23/07 > GRADUATE) and Jordan (5 1/2 weeks) > > > soon yee <sykuek@...> wrote: > Hi Marina, > Thanks for your info! > > I am going to see Dr. Keswani tomorrow. This will be > our first time seeing her, I don't think she is a > specialist. I met a mom at the library who > recommended Dr. Keswani, her daughter is wearing a > helmet right now. So, how do you like Dr. Guarino? > > Sue > > --- marina_isaac <marina_isaac@...> wrote: > > > > > Hi Sue, > > > > I'm also in San . I went to see Dr. Ted > Guarino. > > Who are you > > going to? my 7 mo old has an appt with the Helmut > > folks in Palo Alto > > on Monday. I'm pretty sure she'll need one > although > > the neuro says > > she doesn't. > > > > Marina > > > > > > > > > > > > > > > > Welcome- > > > > > > Does he have flat spots on both sides of > his > > > > head? It seems that > > > > > way > > > > > > in the photos, but I could be seeing > things > > > > wrong. His head shape > > > > > > reminds me of one of our other member's > > daughter > > > > (Marcy/Greta): > > > > > > > > > > > > > > > > > > > > > > > > > > > http://health.ph./group/Plagiocephaly/photos/view/8cd > > > > > > a?b=48 > > > > > > > > > > > > She can chime in on what she thinks, but > it > > > > looks similar to me. > > > > > She > > > > > > had her daughter evaluated for > > craniosynostis > > > > (premature fusing of > > > > > > the skull sutures) and it turned out not > to > > be. > > > > But I think it > > > > > would > > > > > > be worth getting checked out. Just based > on > > what > > > > you said, that he > > > > > > looks to his left a lot, I'd be confused > why > > > > there is also a flat > > > > > > spot on his right side. Unless my eyes are > > > > totally playing tricks > > > > > on > > > > > > me. (I just woke up!) Anyway, I'm sure > Marcy > > > > will respond and give > > > > > > her opinion on that. > > > > > > > > > > > > As far as his preference to look one way, > > has be > > > > been evaluated by > > > > > a > > > > > > physical therapist yet and/or officially > > > > diagnosed with > > > > > torticollis? > > > > > > What kind of neck exercises are you doing? > > Are > > > > they helping with > > > > > his > > > > > > range of motion? I don't know why, but I > get > > a > > > > little leary when > > > > > > pediatricians start giving advice on > > stretching > > > > techniques. I > > > > > would > > > > > > feel much more comfortable with a > pediatric > > PT > > > > that is specially > > > > > > trained. My son was in PT for 2.5 months > and > > did > > > > great. Of course, > > > > > > his flat spot never improved, but at least > > his > > > > neck did. > > > > > > > > > > > > Good luck! > > > > > > > > > > > > Jake-18m (tort resolved/rt plagio/DocBand > > > > 2/11/08) > > > > > > Jordan-4 > === message truncated === Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 HI Sue, When our daughter was 4 months old, I noticed flatness and alerted the doctor who said that we should alternate which side she slept on, and that we would revisit the issue at 6 months. At her 6 month appointment, the doctor pointed the flatness out and diagnosed her with positional plagiocephaly. He referred us to Cranial Tech and we made an appointment to be seen. They said that our daughter was mild/moderate with the plagio and that she would be a good candidate for the band. We made the decision to band her, and when we got her fitted she was 7 months old. After almost 16 weeks, my daughter graduated and the results were great!!! I don't think that 6 months is too late to band, some children are banded at 14-16 months, even later! I think you would get great results. Go with your gut on this one... If you need any more information/support, this group is definitely the place to get it!! Good luck, Toni Re: need advice!-San CA Hi Everyone,The doctor that we seen yesterday confirmed that my 6months old has Torticollis & Plagiocephaly. We willbe going to see an occupational therapy next week forthe tort. The doctor also gave us prescription toCIRS. However, she did mention that since my son isalready 6 months old, the band wouldn't help much. Myhusband is against it after hearing what the doctorsaid. I was wondering if there are late starters whohave successful experience? Thanks again for all your helpful advice!!Sue--- Walsh <kew1976sbcglobal (DOT) net> wrote:> Good Morning> > My son had plagio and saw Dr. Menard at Kaiser in> Santa Clara, it doesn't sound like you have Kaiser> insurance though. If you go to CIRS in Palo Alto,> they will give you an evaluation without a> prescription for $150, if they feel like you would> benefit from a band, they will help you find a dr.> that is band friendly and that $150 will go towards> your band once you get a prescription. If they do> not feel you would benefit from a band, than you> just spent the best $150 of your life ha ha.> > I am confident that it is a $150 well spent, and> that not every baby they see, they recomend banding.> I have a girlfriend who they said they didn't think> her baby needed a band, as well as a friend who they> said DID need a band, however she decided to repo> and had EXCELLENT results (I'm still trying to get> her to write something about how she did it) and> ended up not needing a band.> > I'm checking email, however I don't get a lot of> time to write, so if you have any questions, please> feel free to email me, I'm checking and will respond> asap.> > Happy Thursday everyone> > > Mother to (starbanded 1/11/07-5/23/07> GRADUATE) and Jordan (5 1/2 weeks)> > > soon yee <sykuek > wrote:> Hi Marina,> Thanks for your info!> > I am going to see Dr. Keswani tomorrow. This will be> our first time seeing her, I don't think she is a> specialist. I met a mom at the library who> recommended Dr. Keswani, her daughter is wearing a> helmet right now. So, how do you like Dr. Guarino? > > Sue> > --- marina_isaac <marina_isaac > wrote:> > > > > Hi Sue,> > > > I'm also in San . I went to see Dr. Ted> Guarino.> > Who are you > > going to? my 7 mo old has an appt with the Helmut> > folks in Palo Alto > > on Monday. I'm pretty sure she'll need one> although> > the neuro says > > she doesn't.> > > > Marina> > > > > > > > > >> > > > > > Welcome-> > > > > > Does he have flat spots on both sides of> his> > > > head? It seems that > > > > > way > > > > > > in the photos, but I could be seeing> things> > > > wrong. His head shape > > > > > > reminds me of one of our other member's> > daughter> > > > (Marcy/Greta):> > > > > > > > > > > > > > > > >> > > >> > > > >>http://health.ph./group/Plagiocephaly/photos/view/8cd> > > > > > a?b=48> > > > > > > > > > > > She can chime in on what she thinks, but> it> > > > looks similar to me. > > > > > She > > > > > > had her daughter evaluated for> > craniosynostis> > > > (premature fusing of > > > > > > the skull sutures) and it turned out not> to> > be.> > > > But I think it > > > > > would > > > > > > be worth getting checked out. Just based> on> > what> > > > you said, that he > > > > > > looks to his left a lot, I'd be confused> why> > > > there is also a flat > > > > > > spot on his right side. Unless my eyes are> > > > totally playing tricks > > > > > on > > > > > > me. (I just woke up!) Anyway, I'm sure> Marcy> > > > will respond and give > > > > > > her opinion on that.> > > > > > > > > > > > As far as his preference to look one way,> > has be> > > > been evaluated by > > > > > a > > > > > > physical therapist yet and/or officially> > > > diagnosed with > > > > > torticollis? > > > > > > What kind of neck exercises are you doing?> > Are> > > > they helping with > > > > > his > > > > > > range of motion? I don't know why, but I> get> > a> > > > little leary when > > > > > > pediatricians start giving advice on> > stretching> > > > techniques. I > > > > > would > > > > > > feel much more comfortable with a> pediatric> > PT> > > > that is specially > > > > > > trained. My son was in PT for 2.5 months> and> > did> > > > great. Of course, > > > > > > his flat spot never improved, but at least> > his> > > > neck did. > > > > > > > > > > > > Good luck!> > > > > > > > > > > > Jake-18m (tort resolved/rt plagio/DocBand> > > > 2/11/08)> > > > > > Jordan-4> === message truncated === Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 The doctor is misinformed -- for most every type of molding device, helmet or band -- I believe all of them work pretty well within the first year. Check out the pictures here on the plagiocephaly website with your husband. Molding treatment does work -- and some devices can even be used after a year old (specifically DOCband has a good record for this, but others, too).Take care.(old timer) -- son brn 11/99, DOCband grad 10/00PSMy son had a very long, narrow headshape (this was not plagiocephaly, it was not asymetric -- his shape was called scaphocephalic or dolichocephalic), and he did not have a slope in the back of his head. Instead his head jutted straight back, and he couldn't even lie flat on hit back without the back of his head forcing his chin to his chest. A DOCband made specifically for his head shape gave him the width and slope he needed. He wore the band from 7 months until 11 mon ths, graduating a few weeks before his first b-day.>------- Original Message ------->From : soon yee[mailto:sykuek@...]>Sent : 3/7/2008 2:06:55 PM>To : Plagiocephaly >Cc : >Subject : RE: Re: need advice!-San CA>>Hi Everyone,The doctor that we seen yesterday confirmed that my 6months old has Torticollis & Plagiocephaly. We willbe going to see an occupational therapy next week forthe tort. The doctor also gave us prescription toCIRS. However, she did mention that since my son isalready 6 months old, the band wouldn't help much. Myhusband is against it after hearing what the doctorsaid. I was wondering if there are late starters whohave successful experience? Thanks again for all your helpful advice!!Sue--- Walsh <kew 1976@...> wrote:> Good Morning> > My son had plagio and saw Dr. Menard at Kaiser in> Santa Clara, it doesn't sound like you have Kaiser> insurance though. If you go to CIRS in Palo Alto,> they will give you an evaluation without a> prescription for $150, if they feel like you would> benefit from a band, they will help you find a dr.> that is band friendly and that $150 will go towards> your band once you get a prescription. If they do> not feel you would benefit from a band, than you> just spent the best $150 of your life ha ha.> > I am confident that it is a $150 well spent, and> that not every baby they see, they recomend banding.> I have a girlfriend who they said they didn't think> her baby needed a band, as well as a friend who they> said DID need a band, however she decided to repo> and had EXCELLENT results (I'm still tr ying to get> her to write something about how she did it) and> ended up not needing a band.> > I'm checking email, however I don't get a lot of> time to write, so if you have any questions, please> feel free to email me, I'm checking and will respond> asap.> > Happy Thursday everyone> > > Mother to (starbanded 1/11/07-5/23/07> GRADUATE) and Jordan (5 1/2 weeks)> > > soon yee <sykuek@...> wrote:> Hi Marina,> Thanks for your info!> > I am going to see Dr. Keswani tomorrow. This will be> our first time seeing her, I don't think she is a> specialist. I met a mom at the library who> recommended Dr. Keswani, her daughter is wearing a> helmet right now. So, how do you like Dr. Guarino? > > Sue> > --- marina_isaac <marina_isaac@...> wrote:> &g t; > > > Hi Sue,> > > > I'm also in San . I went to see Dr. Ted> Guarino.> > Who are you > > going to? my 7 mo old has an appt with the Helmut> > folks in Palo Alto > > on Monday. I'm pretty sure she'll need one> although> > the neuro says > > she doesn't.> > > > Marina> > > > > > > > > >> > > > > > Welcome-> > > > > > Does he have flat spots on both sides of> his> > > > head? It seems that > > > > > way > > > > > > in the photos, but I could be seeing> things> > > > wrong. His head shap e > > > > > > reminds me of one of our other member's> > daughter> > > > (Marcy/Greta):> > > > > > > > > > > > > > > > >> > > >> > > > >>http://health.ph./group/Plagiocephaly/photos/view/8cd > > > > > > a?b=48> > > > > > > > > > > > She can chime in on what she thinks, but> it> > > > looks similar to me. > > > > > She > > > > > > had her daughter evaluated for> > craniosynostis> > > > (premature fusing of > > > > > > the skull sutures) and it turned out not> to> > be.> > > > But I think it > gt; > > > would > > > > > > be worth getting checked out. Just based> on> > what> > > > you said, that he > > > > > > looks to his left a lot, I'd be confused> why> > > > there is also a flat > > > > > > spot on his right side. Unless my eyes are> > > > totally playing tricks > > > > > on > > > > > > me. (I just woke up!) Anyway, I'm sure> Marcy> > > > will respond and give > > > > > > her opinion on that.> > > > > > > > > > > > As far as his preference to look one way,> > has be> > > > been evaluated by > > > > > a > > > > > > physical therapist yet and/or officially> > > > diagnosed with > > > > > tor ticollis? > > > > > > What kind of neck exercises are you doing?> > Are> > > > they helping with > > > > > his > > > > > > range of motion? I don't know why, but I> get> > a> > > > little leary when > > > > > > pediatricians start giving advice on> > stretching> > > > techniques. I > > > > > would > > > > > > feel much more comfortable with a> pediatric> > PT> > > > that is specially > > > > > > trained. My son was in PT for 2.5 months> and> > did> > > > great. Of course, > > > > > > his flat spot never improved, but at least> > his> > > > neck did. > > > > > > > > > > > > Good luck!> > > > > > > > > > > > Jake-18m (tort resolved/rt plagio/DocBand> > > > 2/11/08)> > > > > > Jordan-4> === message truncated ===For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2008 Report Share Posted March 8, 2008 the neurosurgeon we went to said 4-6 months is the ideal age. They will not band before then so I think your child is at an ideal age to band. From: christineashok <christineashok@...> Date: 2008/03/08 Sat AM 02:29:23 CST Plagiocephaly Subject: Re: need advice!-San CA Your doctor is not very well informed, but at least you got the Rx. Some say 1 yrs is late to start, but babies start as late as 18 mo or even older and get some correction. 6 mo is a great time to start, I'm sure CIRS will confirm this. My daughter got her band from CIRS at 5 mo. -christine sydney 2 yrs starband grad > > > > > > > > > > > > > > Welcome- > > > > > > > Does he have flat spots on both sides of > > his > > > > > head? It seems that > > > > > > way > > > > > > > in the photos, but I could be seeing > > things > > > > > wrong. His head shape > > > > > > > reminds me of one of our other member's > > > daughter > > > > > (Marcy/Greta): > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > http://health.ph./group/Plagiocephaly/photos/view/8cd > > > > > > > a?b=48 > > > > > > > > > > > > > > She can chime in on what she thinks, but > > it > > > > > looks similar to me. > > > > > > She > > > > > > > had her daughter evaluated for > > > craniosynostis > > > > > (premature fusing of > > > > > > > the skull sutures) and it turned out not > > to > > > be. > > > > > But I think it > > > > > > would > > > > > > > be worth getting checked out. Just based > > on > > > what > > > > > you said, that he > > > > > > > looks to his left a lot, I'd be confused > > why > > > > > there is also a flat > > > > > > > spot on his right side. Unless my eyes are > > > > > totally playing tricks > > > > > > on > > > > > > > me. (I just woke up!) Anyway, I'm sure > > Marcy > > > > > will respond and give > > > > > > > her opinion on that. > > > > > > > > > > > > > > As far as his preference to look one way, > > > has be > > > > > been evaluated by > > > > > > a > > > > > > > physical therapist yet and/or officially > > > > > diagnosed with > > > > > > torticollis? > > > > > > > What kind of neck exercises are you doing? > > > Are > > > > > they helping with > > > > > > his > > > > > > > range of motion? I don't know why, but I > > get > > > a > > > > > little leary when > > > > > > > pediatricians start giving advice on > > > stretching > > > > > techniques. I > > > > > > would > > > > > > > feel much more comfortable with a > > pediatric > > > PT > > > > > that is specially > > > > > > > trained. My son was in PT for 2.5 months > > and > > > did > > > > > great. Of course, > > > > > > > his flat spot never improved, but at least > > > his > > > > > neck did. > > > > > > > > > > > > > > Good luck! > > > > > > > > > > > > > > Jake-18m (tort resolved/rt plagio/DocBand > > > > > 2/11/08) > > > > > > > Jordan-4 > > > === message truncated === > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Hi Everyone, Thanks so much for all your kind & helpful responses!! We are going to Cranial Tech in Palo Alto for an evaluation on Wednesday. Will keep you all posted of the outcome. Thanks again everyone!! warmly, Sue --- lka_236 <lka_236@...> wrote: > Is the doctor that told you that at 6 months you > wouldn't see good > results the one that would be doing the fittings? > If so, I would > find another ortho. We banded at 7.5 months and I > am SO glad we > did. We saw excellent results and got them 1-1 1/2 > months sooner > than what Cranial Tech anticipated. 6 months is the > perfect age to > band (CT told us 4-6 months is best)....I would seek > another opinion > asap especially since you aren't happy with his head > shape. > > > > PS: The head is still moldable up until 2 years of > age which is why > you hear of people starting late (i.e. 17 months). > > > > > > > > > > > > > > Hi Everyone, > > > > > > Thank you so much for all your input!! I > really > > > > > really > > > > > > appreciate it!! > > > > > > > > > > > > Yes, he does have flat spots on both > sides, left > > > > > side > === message truncated === Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 Hi Sue, My son started his Starband at 5 1/2 months with CIRS in Palo Alto (Bob was our othorist and we saw Amy at the end of our treatment), and he went from 12mm difference to 3.6 ( I think, you can't believe it now, but you will at some point forget) in almost 5 mths. He did have a huge growth spurt at 6 mths which took us to 5.9, however he had slow growth up until the last month where he had another growth spurt. you CAN have change and you can have successful change at 6 mths, it might take a little longer.....but you WILL see results. Have you talked to CIRS directly about what progress you might see? Mother to , Starband graduate 5/23/07, and Jordan currently 6 wks and being watched like a hawk!soon yee <sykuek@...> wrote: Hi Everyone,The doctor that we seen yesterday confirmed that my 6months old has Torticollis & Plagiocephaly. We willbe going to see an occupational therapy next week forthe tort. The doctor also gave us prescription toCIRS. However, she did mention that since my son isalready 6 months old, the band wouldn't help much. Myhusband is against it after hearing what the doctorsaid. I was wondering if there are late starters whohave successful experience? Thanks again for all your helpful advice!!Sue--- Walsh <kew1976sbcglobal (DOT) net> wrote:> Good Morning> > My son had plagio and saw Dr. Menard at Kaiser in> Santa Clara, it doesn't sound like you have Kaiser> insurance though. If you go to CIRS in Palo Alto,> they will give you an evaluation without a> prescription for $150, if they feel like you would> benefit from a band, they will help you find a dr.> that is band friendly and that $150 will go towards> your band once you get a prescription. If they do> not feel you would benefit from a band, than you> just spent the best $150 of your life ha ha.> > I am confident that it is a $150 well spent, and> that not every baby they see, they recomend banding.> I have a girlfriend who they said they didn't think> her baby needed a band, as well as a friend who they> said DID need a band, however she decided to repo> and had EXCELLENT results (I'm still trying to get> her to write something about how she did it) and> ended up not needing a band.> > I'm checking email, however I don't get a lot of> time to write, so if you have any questions, please> feel free to email me, I'm checking and will respond> asap.> > Happy Thursday everyone> > > Mother to (starbanded 1/11/07-5/23/07> GRADUATE) and Jordan (5 1/2 weeks)> > > soon yee <sykuek > wrote:> Hi Marina,> Thanks for your info!> > I am going to see Dr. Keswani tomorrow. This will be> our first time seeing her, I don't think she is a> specialist. I met a mom at the library who> recommended Dr. Keswani, her daughter is wearing a> helmet right now. So, how do you like Dr. Guarino? > > Sue> > --- marina_isaac <marina_isaac > wrote:> > > > > Hi Sue,> > > > I'm also in San . I went to see Dr. Ted> Guarino.> > Who are you > > going to? my 7 mo old has an appt with the Helmut> > folks in Palo Alto > > on Monday. I'm pretty sure she'll need one> although> > the neuro says > > she doesn't.> > > > Marina> > > > > > > > > >> > > > > > Welcome-> > > > > > Does he have flat spots on both sides of> his> > > > head? It seems that > > > > > way > > > > > > in the photos, but I could be seeing> things> > > > wrong. His head shape > > > > > > reminds me of one of our other member's> > daughter> > > > (Marcy/Greta):> > > > > > > > > > > > > > > > >> > > >> > > > >>http://health.ph./group/Plagiocephaly/photos/view/8cd> > > > > > a?b=48> > > > > > > > > > > > She can chime in on what she thinks, but> it> > > > looks similar to me. > > > > > She > > > > > > had her daughter evaluated for> > craniosynostis> > > > (premature fusing of > > > > > > the skull sutures) and it turned out not> to> > be.> > > > But I think it > > > > > would > > > > > > be worth getting checked out. Just based> on> > what> > > > you said, that he > > > > > > looks to his left a lot, I'd be confused> why> > > > there is also a flat > > > > > > spot on his right side. Unless my eyes are> > > > totally playing tricks > > > > > on > > > > > > me. (I just woke up!) Anyway, I'm sure> Marcy> > > > will respond and give > > > > > > her opinion on that.> > > > > > > > > > > > As far as his preference to look one way,> > has be> > > > been evaluated by > > > > > a > > > > > > physical therapist yet and/or officially> > > > diagnosed with > > > > > torticollis? > > > > > > What kind of neck exercises are you doing?> > Are> > > > they helping with > > > > > his > > > > > > range of motion? I don't know why, but I> get> > a> > > > little leary when > > > > > > pediatricians start giving advice on> > stretching> > > > techniques. I > > > > > would > > > > > > feel much more comfortable with a> pediatric> > PT> > > > that is specially > > > > > > trained. My son was in PT for 2.5 months> and> > did> > > > great. Of course, > > > > > > his flat spot never improved, but at least> > his> > > > neck did. > > > > > > > > > > > > Good luck!> > > > > > > > > > > > Jake-18m (tort resolved/rt plagio/DocBand> > > > 2/11/08)> > > > > > Jordan-4> === message truncated === "In the depths of winter, I finally found there was in me an invincible summer." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Hi , Sorry to jump in here. After reading your response to Dawn, I can't help but wonder if we should go ahead with the helmet. My son is 8.1 mm. We are doing repo and seeing PT, planning to go back for another scan in a month time to see if there's improvement. The reason that I am hesitating is that my insurance UHC PPO won't cover the cost. Would you mind sharing with me how did you win the appeal with UHC? Thanks!! Sue --- lka_236 <lka_236@...> wrote: > Is the doctor that told you that at 6 months you > wouldn't see good > results the one that would be doing the fittings? > If so, I would > find another ortho. We banded at 7.5 months and I > am SO glad we > did. We saw excellent results and got them 1-1 1/2 > months sooner > than what Cranial Tech anticipated. 6 months is the > perfect age to > band (CT told us 4-6 months is best)....I would seek > another opinion > asap especially since you aren't happy with his head > shape. > > > > PS: The head is still moldable up until 2 years of > age which is why > you hear of people starting late (i.e. 17 months). > > > > > > > > > > > > > > Hi Everyone, > > > > > > Thank you so much for all your input!! I > really > > > > > really > > > > > > appreciate it!! > > > > > > > > > > > > Yes, he does have flat spots on both > sides, left > > > > > side > === message truncated === Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.