Guest guest Posted June 7, 2003 Report Share Posted June 7, 2003 Dear , Hi ,my name is Debbi Ringle, I am not new to the group ,but haven't posted much lately due to my teen girls end of yesr activities and son 's changing summer scheduale.If you need food/urgent necessities you should contact local churches.Many have food pantries for just this purpose.I know that our church, Peace Lutheran of Shelby Twp. has a active and full pantry.I don't think it is for members only, I believe it is for community outreach.Also, you might call the Samaritan House in Washington Twp., it is a community outreach program that most area churches donate to.Hope this helps, sorry such a late response. Hope this helps. Debbi ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 What is respite and MORC? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 What is respite and MORC? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 I didn't see my responding post, so I'm resending it... As Dawn's email reminded me, the Watch and Learn 6-week seminar can be very helpful with the PLAY project. We are in the process of having a W & L set up at Perrinville using PLAY project consultants. I should have more information soon. Cindy It's really hard to 'schedule' that breakdown we all need. One day, you'll just have one... then you'll move on and carry the world on your shoulders again for several months, until the next one occurs. At least that's how it is for me! Please give the PLAY project more time. The one thing I have learned since Jon was diagnosed in April 2002, is that EVERY child is different, EVERY 'form' of autism is different, and EVERY child will respond differently to different 'treatments'. We've decided to take one step at a time and not change too many things at one time. If you do, you never truly know what was working and what wasn't. Early intervention is very important. I don't know where you live, but I recommend finding a good 'preschool' program, PPI with AI support. Perrinville Early Childhood Center is very good. It is in Livonia School district. However, there may be a waiting list for their program. will make his 'gains' in fits and starts. He will remain 'dormant' for 6 wks or more, then all of a sudden, it's like a flower bud bursting open for the next few weeks. We have been with PLAY since Feb 2003. While we have not seen 'direct' improvement as a result of PLAY, we also realize that our hectic household has not leant to a lot of devoted time by us. We are making the effort to change this. Jon is becoming more 'social' and will start to seek us or his sister for fun, help, etc. Welcome to the often confusing and always frustrating world of autism. This is a great support group and you will find families participating in many if not all of the therapies you mentioned, and this group LOVES to help each other obtain 'Everyday Miracles'... Cindy Cindy L. Westland, Michigan Mom to age 4 1/2 yr (mildly/ high-functioning autistic) and age almost 6 yr going on 36 yr! (normal and extremely bright) Autism is like having a computer without a keyboard, there is nothing wrong with the computer but it is hard to communicate with it without the right tools. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Thank you for your email Stepanie. We made an appt. for Pfeifer, but cancelled it because they told us we would have to commit to a min. of $3-$4K per year for the rest of our sons life....it sounded so absolute. We are working with a Dr. Hicks from Pathways right now and are awaiting test results to see if he is eligible for chelation, but in the meantime, I found the PCA on a website. If you know of anyone using it, please give them my email. I would be most interested. Thanks again and I hope I can pencil in a support group soon! Kim McMillan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Hi Dawn., Thanks so much for your email. Do you find that a combo of ABA & Play work best? Also, what is PPI? Have you ever used chelation? Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Hi Debbie. Thanks for the email. I saw you at Lepak yesterday and we had talked on the phone a week or so ago. I appreciate your help. I called the Abilities Center and they will not accept our insurance. We are waiting to see what the school system will do before we try to find a good PT. They may have that available for us. I am going to try to get to that support group meeting on Tuesday night! Maybe I will see you there. Thanks again, Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Cindy, You rock, by the way, by getting this all set up at Perrinville; Goren is so excited and so appreciative, as is Rick and the whole PLAY team. We talk about it at meetings, and Perrinville is awesome for allowing the program, with possible childcare. Do you know when it is going to be? We were going to use the Canton Library for the class, and may in the future, but Perrinville is such the best spot. What a great school! Also--thought you'd be pleased to know, since you are the living history of Canton, on my way home from U of M and St. Joes, I drove past your grandma's home, and it looks great--the old blue house was getting a fresh coat of white paint on the fence, and it looks fantastic, and I gave a smile of appreciation to the couple working on it because I know how much the home means to you, along with the entire Cherry Hill Village (the original one I mean :-) Love, Dawn -----Original Message-----From: ccorwin611@... Sent: Friday, August 08, 2003 10:11 AMTo: everydaymiraclesautism Subject: Fwd: helpI didn't see my responding post, so I'm resending it...As Dawn's email reminded me, the Watch and Learn 6-week seminar can be very helpful with the PLAY project. We are in the process of having a W & L set up at Perrinville using PLAY project consultants. I should have more information soon.CindySupport Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Hi Kim, Welcome to the group! Definitely the diagnosis of autism has got to be one of the most devastating diagnosis a parent can hear about their child. The fear, despair, and uncertainty the word " autism " creates in a parent can be intense. But, being a part of this group can be very helpful. I think the more people a parent talks to, the better it is-one feels less alone and other parents often know of helpful resources and ways of coping. As hard as it is to believe, things will get better over time-especially because you are getting help for your son early on instead of waiting while precious time slips by. I think it's great that you are going to be doing the HOPE program-I've heard good things about it. PLAY can also be good, but is not right for every child. About O.T. and P.T.s, I have found the Ability Center to be very good. They are located about 5-10 minutes from Lepak and I have been very satisfied with them. The phone number there is . The O.T. we have been working with is Lindsey and the P.T. we have been working with is Maureen. They are both very good with children and are both very empathetic. There are also a couple of books I would recommend. One of them is called More Than Words, Helping Parents Promote Communication And Social Skills in Children With Autism Spectrum Disorder by Fern Sussman. I found this book to be outstanding-it's a real thick book packed with info about how to help the child with ASD to communicate and interact-especially how to develop both receptive and expressive speech. The approach in this book is very similar to the PLAY PROJECT in some ways, but also incorporates a lot of ABA principles and other kinds of communication (sign language and visual aids). It can be ordered from www.hanen.org. The other book is called Teaching Language to Children with Autism or Other Developmental Disabilities by Sundberg and Partington. This book is based on ABA principles and probably would be good to borrow or get after you have had some experience with ABA through the HOPE program. You might be able to borrow this book from The Early Intervention Center in Birmingham. They have a library there with books on autism and ABA and they probably have this book. I think their number is . The most important thing, I believe, is for the child with autism to get as much early intervention as possible. It's better to do more than it is to do less. This past year we have been involved in all kinds of therapies for our three year old son (I'm the person you met at Lepak). We've done and are doing speech, language camp, O.T., P.T., ABA, and PLAY PROJECT and have attempted to get started with the biomedical approach. All of this has been incredibly expensive and intensive, but as I look back on this past year of incredibly hard work, I believe every bit of it has been helpful. Of course, it's also important to take some time to yourself for things other than therapy-getting respite care is a good thing to do when possible. Take care and know that the peolpe here care- Debbie help Hello all. I am a new member and have a recently diagnosed 2 year old ( " Autism " ). Our family is devastated. Has anyone out there ever heard of the " Awakennutrition.com " website or used their PCA-rx do it yourself at home without a doctor chelation products? We are thinking of this option for our son. We started PLAY 6 weeks ago, but are not seeing great results. Entering HOPE ABA Center in September for 3 month ABA schooling and are hopeful that will work out well. Speech at Lepak is wonderful, but still looking for competant OT and PT;s, would love suggestions. We also are looking at Pfeifer Clinic and working with Pathways. Any info on either would be helpful to us. Also, when can I pencil in that nervous breakdown I so desperately need? Are there any others out there that feel the same? What is your outlet? When and how do you find time for yourselves? I need help. Thank you, Kim McMillan Support Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Hanen's It Takes Two to Talk and More Than Words are so great, and are our texts for our PPI's parent communication class, that we take in the Plymouth-Canton Schools. More Than Words is the best for parents and children with autism, and have a DIR / Floortime / PLAY feel and concepts. When was two, Hanen's approach was what really worked for us, and is still applicable to our son, today, at age five, and It Takes Two to Talk was given to us by both our U of M speech pathologist, and our PPI speech pathologist, before was two, when his initial diagnosis was still just for hearing impairment. The Ability Center, although we've never gone there, has such a great reputation, and seems to be so fantastic. Dawn -----Original Message-----From: Websie Sent: Friday, August 08, 2003 11:05 AMTo: EverydayMiraclesAutism Subject: RE: helpHi Kim,Welcome to the group! Definitely the diagnosis of autism has got to be oneof the most devastating diagnosis a parent can hear about their child. Thefear, despair, and uncertainty the word "autism" creates in a parent can beintense. But, being a part of this group can be very helpful. I think themore people a parent talks to, the better it is-one feels less alone andother parents often know of helpful resources and ways of coping. As hardas it is to believe, things will get better over time-especially because youare getting help for your son early on instead of waiting while precioustime slips by.I think it's great that you are going to be doing the HOPE program-I'veheard good things about it. PLAY can also be good, but is not right forevery child. About O.T. and P.T.s, I have found the Ability Center to bevery good. They are located about 5-10 minutes from Lepak and I have beenvery satisfied with them. The phone number there is . TheO.T. we have been working with is Lindsey and the P.T. we have been workingwith is Maureen. They are both very good with children and are both veryempathetic.There are also a couple of books I would recommend. One of them is calledMore Than Words, Helping Parents Promote Communication And Social Skills inChildren With Autism Spectrum Disorder by Fern Sussman. I found this bookto be outstanding-it's a real thick book packed with info about how to helpthe child with ASD to communicate and interact-especially how to developboth receptive and expressive speech. The approach in this book is verysimilar to the PLAY PROJECT in some ways, but also incorporates a lot of ABAprinciples and other kinds of communication (sign language and visual aids).It can be ordered from www.hanen.org.The other book is called Teaching Language to Children with Autism or OtherDevelopmental Disabilities by Sundberg and Partington. This book is basedon ABA principles and probably would be good to borrow or get after you havehad some experience with ABA through the HOPE program. You might be able toborrow this book from The Early Intervention Center in Birmingham. Theyhave a library there with books on autism and ABA and they probably havethis book. I think their number is .The most important thing, I believe, is for the child with autism to get asmuch early intervention as possible. It's better to do more than it is todo less. This past year we have been involved in all kinds of therapies forour three year old son (I'm the person you met at Lepak). We'vedone and are doing speech, language camp, O.T., P.T., ABA, and PLAY PROJECTand have attempted to get started with the biomedical approach. All of thishas been incredibly expensive and intensive, but as I look back on this pastyear of incredibly hard work, I believe every bit of it has been helpful.Of course, it's also important to take some time to yourself for thingsother than therapy-getting respite care is a good thing to do when possible.Take care and know that the peolpe here care-Debbie-----Original Message-----From: kimbamac@... Sent: Thursday, August 07, 2003 10:03 PMTo: EverydayMiraclesAutism Subject: helpHello all.I am a new member and have a recently diagnosed 2 year old ("Autism"). Ourfamily is devastated.Has anyone out there ever heard of the "Awakennutrition.com" website or usedtheir PCA-rx do it yourself at home without a doctor chelation products? Weare thinking of this option for our son.We started PLAY 6 weeks ago, but are not seeing great results. EnteringHOPEABA Center in September for 3 month ABA schooling and are hopeful that willwork out well. Speech at Lepak is wonderful, but still looking forcompetantOT and PT;s, would love suggestions.We also are looking at Pfeifer Clinic and working with Pathways. Any infooneither would be helpful to us.Also, when can I pencil in that nervous breakdown I so desperately need?Arethere any others out there that feel the same? What is your outlet? Whenand how do you find time for yourselves?I need help.Thank you, Kim McMillanSupport Everyday Miracles by shopping online at IGIVE.COM, where a portionof every purchase is donated to this support network. Proceeds received willbe used for a variety of functions, such as educational activities, therapy,famiy outings, etc. http://www.igive.com/EDM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Would you have the phone number? And also, how much is the initial visit? Thanks, Angie ---- Original Message ---- From: sharlan@... To: EverydayMiraclesAutism Subject: Re: help Date: Fri, 8 Aug 2003 07:51:25 -0400 >Hi , >Where is Pfeiffer located? > > It's in Warrenville, IL-- a suburb of Chicago. You have to >physically go out there for the first comprehensive evaluation, but >follow ups can be done locally and by phone. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 I'm glad things are working out with Dr Hicks- did you know that he and Betsy Prohaska will eb speaking this Saturday at a fundraiser in Hines Park? I'm going to try to attend this event/for the whole family... anyways, Pfeiffer does not cost $3-4,000 by any means. Yes, it is costly to buy the vitamins and do the initial consult and the followup, but certainly not this much. I'd have to add it all up, but I'm sure it's not that much. The most money is in the beginning, going to the initial consult, getting all the tests orderered and then getting the vitamins and supplements, but then after that it's not so bad. I have no idea how much Dr. Hicks prices are, but I imagine the tests he sends away are all about the same price?? Well, good luck with whichever way you choose...there are many differnet roads to success. Re: help Thank you for your email Stepanie. We made an appt. for Pfeifer, but cancelled it because they told us we would have to commit to a min. of $3-$4K per year for the rest of our sons life....it sounded so absolute. We are working with a Dr. Hicks from Pathways right now and are awaiting test results to see if he is eligible for chelation, but in the meantime, I found the PCA on a website. If you know of anyone using it, please give them my email. I would be most interested.Thanks again and I hope I can pencil in a support group soon!Kim McMillanSupport Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 PPI is Pre-primary impaired a class for children 3-5 who have impairments. Part of the public school system. Definitely check into it. Re: help > Hi Dawn., > Thanks so much for your email. > > Do you find that a combo of ABA & Play work best? > > Also, what is PPI? > > Have you ever used chelation? > > Kim > > > Support Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Penny, making someone more comfortable and trying to make them NT are two completly differant things. Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Yes I will be there Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 check out their website: www.girlsempowered.com They have classes, parent workshops, after-school programs, exercise/dance/aerobics, etc. all for girls, ages 4-17. They began in order to help empower girls , develop self-confidence, personal enrichment, etc. They also have dad's groups, girl scouts, birthday parties. etc. It looked pretty cool for anyone with girls... Re: help what is Girls empowered? I have never heard of it before. Pennie Abby's Mom Support Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2003 Report Share Posted September 10, 2003 Don't now if this will help or not 1. Be sure they have a visual schedule available for her (hanging near her desk or on a wall showing what's coming next) 2. Depending on what will work better for your daughter (and we use both with our son) either point to a clock and tell her her " when the big hand gets on the _____, its time to ______) or tell her " I'm going to count to 10 and then its time to________ " . For my son, he needs a bit of time to get ready for the transition - it doesn't necessarily have to be a long time, just five or ten seconds. Sue > >Reply-To: EverydayMiraclesAutism >To: everydayMiraclesAutism >Subject: HELP >Date: Tue, 9 Sep 2003 15:03:00 -0400 > >Marisa is in a PPI class in Royal Oak and the thing that drives her >nuts is transitions and I don't know what ideas to give the teachers. >She is very happy to go to school, she is verbal but when they tell her >to do something and she doesn't want to she screams. I have a follow >up with Dr. Solomon on the 16th but if anyone has an idea really would >appreciate it. > >Thanks > - Marisa's mom > _________________________________________________________________ Use custom emotions -- try MSN Messenger 6.0! http://www.msnmessenger-download.com/tracking/reach_emoticon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2003 Report Share Posted September 10, 2003 My 4yo had a horrible time with transitions....so bad that his teacher called in an autism specialist to help us. Below are some of the things that helped him over the years. A favorite toy (usually matchbox cars) that he could hold in his hand during the transition....something comforting and a little bit of a distraction. Plenty of warning, both verbally and visually. For a time we used a timer but he came to hate it. He still uses a picture schedule (PECS) and it makes all the difference in the world. Good luck....I hope this helps! -----Original Message-----From: s bassin Sent: Tuesday, September 09, 2003 3:03 PMTo: everydayMiraclesAutism Subject: HELPMarisa is in a PPI class in Royal Oak and the thing that drives her nuts is transitions and I don't know what ideas to give the teachers. She is very happy to go to school, she is verbal but when they tell her to do something and she doesn't want to she screams. I have a follow up with Dr. Solomon on the 16th but if anyone has an idea really would appreciate it.Thanks - Marisa's momSupport Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 OUT OF CONTROL GAS... EMBARRASSING....ESCAPES WHILE JUST WALKING AND STANDING TALKING TO SOME ONE, How can i help to stop... have never had gas like that in my life Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 Lynn.... I know you have been on the beach for a bit...I am guessing this is something new? MB Re: Re: HELP At 11:07 AM 2/9/2006 +0000, you wrote: >Wish I could help. I only have that problem when I'm off-plan (like >now!) well I'm on it like P2/P3 in fact I'm more or less never off except for a sometimes cheat....I remember someone saying peppermint pills ??? i take beno ,but have not noticed them as much of a cure Please send your recipes for inclusion in the Files to the Moderator at: South-Beach-Diet-Getting-It-Right-owner Reminder: The South Beach Diet is not low-carb. Nor is it low-fat. The South Beach Diet teaches you to rely on the right carbs and the right fats-the good ones - and enables you to live quite happily without the bad carbs and bad fats. For more on this Way Of Eating please read " The South Beach Diet " by Arthur Agatston, MD. ISBN 1-57954-814-8 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 At 08:21 AM 2/9/2006 -0700, you wrote: >Lynn.... > >I know you have been on the beach for a bit...I am guessing this is >something new? > >MB no not really just worst then its ever been before > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 Lynne wrote: OUT OF CONTROL GAS... EMBARRASSING....ESCAPES WHILE JUST WALKING AND STANDING TALKING TO SOME ONE, ~~~~~ Hey..I've joined that group also... :-( it's the veggies - especially broccoli! Best bet is to cook veggies slightly, that seems to help me, FRESH broccoli cut into a salad sends me outside for the rest of the day :-) SK HELP Quote Link to comment Share on other sites More sharing options...
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