Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 Hi , I'm Debra and don't have a documented diagnosis yet. We have gotten several doctors' attention this week so at least, I think I am headed in the right direction. I was diagnosed with Lupus in 1995 but continually doctors have questioned that since I have a large " constellation " of symptoms covering almost every system. I am certain that whatever I have I have passed on to two of my three children so finding the correct answer is imperative. Like someone posted already the cocktail could have been started years before and been effective, so we will just have to pray that you find answers soon. This group is one large family and wonderfully knowledgeable about mito, as well as other intertwined neuro-muscular diseases. Most have been years finding their own diagnosis so they are well read and can give you excellent advice, cyber shoulders and electronic hugs, just when you need them most. I live in Texas and I won't bother inviting anyone to come visit...it is just too hot, but all mitos are welcomed when you flee your winters and ours cools off a bit. It is not unusual to have the fireplace going for atmosphere and the AC running on Christmas Day! God has already blessed us because we have found Mitoldies. Best Wishes, Debra Quote Link to comment Share on other sites More sharing options...
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