Vera - regarding my Dad/early symptoms

[Guest guest]

Dear Vera,

Thanks for asking about my dad. He managed to get the obstructing particle

out last night without going to the ER. Fisher's explanation of what it

is like for him when that happens sounds very much like what happens to my

dad. It was always a very scarry thing for us when Dad needed to excuse

himself from the table to take care of the problem. Now with the MSA being

so much worse it is even more stressful.

To follow up on Aletta's post to Lolah: It is interesting to note how early

the symptoms that once seemed common and not too consequential now, after

many years of multiple symptoms and seeking diagnoses, seem to be clues to

what was to come. Constipation, sleep problems, difficulty swallowing,

etcetera are all so mundane on one level and so ominous on another. I wonder

how it will ultimately all be tied together.

Has this group ever tried to do a survey along the lines of the Parkinson's

group's " How Did We Get Here " survery? Is there any interest in doing such a

survey for this smaller group? Has anyone heard any results from the

Parkinson's survey or is it still being done? I would be willing to help

with such a project if there is interest.

Regards,

Cindy V.