Re: For RH

[Guest guest]

-This is where only the UK folks can understand the discharge...We

have a totally different system..

We have the NHS..state funded..we can only go where our PCT's (one

of the layers of beurocracy) have awarded a contract for certain

procedures/care...

No we have no freeedom of 'choice' BUT compared to many people here

in Uk I consider myself to get nowadays wonderful treatment.

So as Debra rightly says..a consultant faced with a person with

mito. has a patient with a chronic awkward illness..govt. treatment

targets have to be met....I go to a consultant after a refferal

letter has been sent by my GP..in the gastro's case after blood test

had shown a problem.

I have a fantastic GP and a metabolic Doc who deals with Inborn

Errors of Metabolism in both children and Adults..they know the

score and say do not give info. that is NOT asked for..unfortunatly

the gastro. was doing EVERYTHING correctly to ascertain what was

wrong as he would with any patient based on my blood tests and

examination..My consultant says the gastro. did NOT ned to know I

had mito when he did the endosopy to find what damage my autoimmune

parietal antibodies had done and were doing to the lining of my

stomach..and treat accordingly......

I think the best summing up of the situation was my nephrologist in

the renal unit where I had been going for years...I told him I had

mito. last year...he shrugged his shoulders and told me that what is

wrong with my kidneys is found in thousands of people and telling

him of mito. is a red herring he refused to have treat entered in

the file...he treats what he sees as his job..my kidneys....He is a

very Senior man in the UK renal world and he says you could argue

that every form of renal/urological malfunction will have a knock on

effect on the mitochondria which are after all in every cell. They

also do transplants and dialysis on patients according to clinical

need regardless of other diagnosis...

Gillian

-- In , " ohgminion " wrote:

>

> > My Gp and metabolic doc were delighted... I then at my next

appt.

> > made the fatal mistake of saying I had a biopsy and mito.cyto.

He

> > discharged me on the spot..think what I am trying to say in a

long

> > winded way is do you HAVE to tell all the other Docs you have

> > Mito. ??????

>

> Alice and Laurie and all,

> Isn't that illegal in the U.S. (yes, I think Gillian is in UK, but

> most of us are in the States)? Discharging a patient because of a

> diagnosis? Without even a referral to another specialist in the

same

> field?

>

> Certainly the medical board should hear about that.

>

> But on the other hand, he may have saved your life by releasing

you

> as a patient, because he was honest enough to say he couldn't

handle

> your diagnosis.

>

> The best specialist in the world is no good if they don't know

about

> your case...

>

> Take care (and find a different doctor),

> RH