Re: frustrated and discouraged

[Guest guest]

Oh Maureen I am so glad you posted I was thinking about you and

Tommy. I am so happy to hear that the band is now going well. We will

be there Saturday at 11:30 if you are there be sure to say Hi!

> > Hello,

> > My 6 month old has been in her DOC band for about 3 weeks.

Well,

> > last Friday morning she woke up, and when I took the band off

there

> > was blood in it. She has developed a horrible sore on her

forehead

> > and in between her ear and eye. I brought her in to CT

immediately

> > and they said they think it was a bad heat rash. I had noticed

> > Thursday her head getting red so I left it off until it faded.

I

> > guess I should have left it off overnight. Anyway, I went back

to

> > CT this past Monday so they could tell me if it was ok to put

the

> > band back on. We had left it off all weekend. They said the

sores

> > were healing but to leave it off for another 24 hrs which was

> > yesterday. When my baby woke up yesterday, her scabs were still

> > there so I decided to call my pediatrician before I did

anything. I

> > brought her in yesterday afternoon and my pediatrician was

shocked

> > that CT would tell me to put the helmet back on so soon. I also

> > found out that my baby had actually lost weight from her 4

month

> > visit. She only weighs 10 pounds. My doctor told me to leave

the

> > helmet off until next Monday when she can see us again. She

told me

> > to feed my baby rice cereal 4 times a day along with nursing.

She

> > thinks Isabelle developed these sores because her skin is so

thin,

> > and it definitely wasn't a heat rash. I called CT this morning

to

> > tell them all this and they said if I leave the band off until

> > Monday it wouldn't fit anymore and we would have to start over.

I

> > cannot start over. For one, I can't pay another 3000 dollars

and I

> > can't put my baby through another casting. I have decided to

put

> > the band back on tomorrow and do skin checks every hour, and if

her

> > head turns the slightest color of red I am chunking the helmet.

Her

> > plagio isn't that bad anyway. Just FYI, my pediatrician is who

> > referred me to CT and thinks the band is a great thing.

However,

> > she did say some babies just can't wear it.

> > Does anyone have any advice or words of encouragement?

> > Thanks,

> > Ginger

> >

> >

> >

> >

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> >

> > ><> ><> ><> ><> ><> ><> ><> ><> ><> ><> ><> ><> ><> ><> ><>

> >

> >

> >

> >

> >

> > ---------------------------------

> > Moody friends. Drama queens. Your life? Nope! - their life,

your

> story.

> > Play Sims Stories at Games.

> >

>

>

>

>

>

>

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