Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Re: chromosomes That is interesting, Bonnie. What do you think that says about thos that have Hypermobile EDS?? I'm a total idiot when it comes to science! and math and geography and history.......Eeek! Let's just say I'm an idiot and leave it at that! LOL! Love Lana Lana - <shrugging shoulders> I have NO idea about HEDS.... to a non-scientific mind...there didn't seem to be any hypermobile gene that I saw.... so....personally IMHO hypermobile type IS EDS HEDS.... And HEDs in particular? <again shrugging shoulders> HEDS is on the same chromosome as VEDS.... Because EDS types are on different chromosomes it explains, at least to ME, that a person can have symptoms from different types of EDS (like me)... I'm not that " up " on genetics and confess only knowing a LITTLE bit about it. I'm hoping Barb Uggen will weigh in on this when she gets up and to work...<G> hey Barb!!!! what do you say??? Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Re: chromosomes That is interesting, Bonnie. What do you think that says about thos that have Hypermobile EDS?? I'm a total idiot when it comes to science! and math and geography and history.......Eeek! Let's just say I'm an idiot and leave it at that! LOL! Love Lana Lana - <shrugging shoulders> I have NO idea about HEDS.... to a non-scientific mind...there didn't seem to be any hypermobile gene that I saw.... so....personally IMHO hypermobile type IS EDS HEDS.... And HEDs in particular? <again shrugging shoulders> HEDS is on the same chromosome as VEDS.... Because EDS types are on different chromosomes it explains, at least to ME, that a person can have symptoms from different types of EDS (like me)... I'm not that " up " on genetics and confess only knowing a LITTLE bit about it. I'm hoping Barb Uggen will weigh in on this when she gets up and to work...<G> hey Barb!!!! what do you say??? Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Re: chromosomes That is interesting, Bonnie. What do you think that says about thos that have Hypermobile EDS?? I'm a total idiot when it comes to science! and math and geography and history.......Eeek! Let's just say I'm an idiot and leave it at that! LOL! Love Lana Lana - <shrugging shoulders> I have NO idea about HEDS.... to a non-scientific mind...there didn't seem to be any hypermobile gene that I saw.... so....personally IMHO hypermobile type IS EDS HEDS.... And HEDs in particular? <again shrugging shoulders> HEDS is on the same chromosome as VEDS.... Because EDS types are on different chromosomes it explains, at least to ME, that a person can have symptoms from different types of EDS (like me)... I'm not that " up " on genetics and confess only knowing a LITTLE bit about it. I'm hoping Barb Uggen will weigh in on this when she gets up and to work...<G> hey Barb!!!! what do you say??? Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 I had the biopsy and it was negative for VEDS and the same for AManda... But, I'm sure my great great grandfather had VEDS as he died at age 46 from abdominal problems. Family members says it was from something he may have picked up from being in the Civil War.....but this is where the EDS comes from thru the Craven branch. Also thru his daughter in law who was a Blair who died in her early 30's. I need to get her death certificate and see what her cause of death was. Her mother was a Porter. I've traced symptoms of EDS thru the Porters while doing the family tree and have talked on the phone with a Porter relative! Now, to remember to look at this Porter females ancestors and see if there are common relatives...<G> Re: chromosomes I have symptoms of other types of EDS too, Bonnie, and so do my kids. You did have the skin biopsy done didn't you? I did, and all it said was that it wasn't type IV. I wish I had asked what category they felt I fell into, but in the end, I guess it really doesn't make that much difference anyway, as most of the treatment is done symptomatically. Love Lana To learn more about EDS, visit our website: http://www.ceda.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 I had the biopsy and it was negative for VEDS and the same for AManda... But, I'm sure my great great grandfather had VEDS as he died at age 46 from abdominal problems. Family members says it was from something he may have picked up from being in the Civil War.....but this is where the EDS comes from thru the Craven branch. Also thru his daughter in law who was a Blair who died in her early 30's. I need to get her death certificate and see what her cause of death was. Her mother was a Porter. I've traced symptoms of EDS thru the Porters while doing the family tree and have talked on the phone with a Porter relative! Now, to remember to look at this Porter females ancestors and see if there are common relatives...<G> Re: chromosomes I have symptoms of other types of EDS too, Bonnie, and so do my kids. You did have the skin biopsy done didn't you? I did, and all it said was that it wasn't type IV. I wish I had asked what category they felt I fell into, but in the end, I guess it really doesn't make that much difference anyway, as most of the treatment is done symptomatically. Love Lana To learn more about EDS, visit our website: http://www.ceda.ca Quote Link to comment Share on other sites More sharing options...
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