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Welcome to Australia , I see W.A. won out over Tasmania. How are you

handling the temperature - must be very different to Alaska??

You will probably hear from others in W.A. about your fill question -

however the following Doctors are listed on the ozband site:

Dr Tony Kierath

36 Street

Perth WA 6008

Tel: 08 9321 0007

Fax: 08 9321 0059

Email: tkierath@...

Dr Tony Van Merwyk

3 Stirling Street

Freemantle WA 6160

Tel: 08 9430 4638

Fax: 08 9335 8571

Dr L Cohen

Suite 1a Level II

Mercy Medical Centre

Ellesmore Road

Mount Lawley WA 6050

Tel: 08 9370 9729

Fax: 08 9370 9732

Email: keib@...

Dr Max Baumol

58 Kings Park Road

West Perth WA 6005

Tel: 08 9322 4242

Fax: 08 9431 0376

(Tas)

New member

> I just moved to Perth from Alaska and I need to find a doctor to do a fill

> for me. Any suggestions?

>

> Also I need to find a breakfast drink, in the states I had my Slimfast,

but

> here the best I have found is a powder to add to milk that doesn't

dissolve

> very well.

>

> Stall

>

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  • 3 months later...

hi julie...

my name is kelly, and i am also thirty something!

I live in cape town, south africa. my daughter, ella will be one years old

on 7 November - she has unilateral microtia/atresia.

welcome to this group - you will never need to look any further than this

site for all the information, advice, and loving support that we all need!

good luck with sarah's operations!

kelly

New Member

Hello,

I wanted to introduce myself....I'm thirty something and live in the eastern

US. I have a 4 year old daughter named who has Treacher

Syndrome. She has bilateral atresia and microtia, although it is

asymmetrical, with her left side more severely affected than her right. She

has a bilateral pure conductive hearing loss, and for about one more week,

is wearing a standard bone conduction hearing aid. If all continues to go

well, she will be getting her BAHA on November 6th. She is only getting one

BAHA for now, since Dr Brent felt that getting the BAHA on the left would

interfere with future reconstructive work on that ear. As soon as work on

that ear is finished, we plan on getting her second BAHA. She had a feeding

tube for 3 years, but is now eating completely by mouth. Feeding has been

and continues to be our major challenge with her so far.

She is a bright, beautiful girl who says the funniest things.....she keeps

us laughing every day.

I really need to write a book about the " world according to " .

I'm so excited to be a part of this group. I am especially interested in

learning more about Dr Romo and the polyethylene option for ear

construction. I can easily perceive the advantages of this procedure versus

a rib graft; I would also like to know what the disadvantages might be.

Well, I'm looking forward to getting to know you all..........

Thanks,

K ('s mom) :)

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  • 3 weeks later...

In a message dated 11/14/01 7:11:46 AM US Mountain Standard Time,

kphuttrn@... writes:

<< My nephew's ear canals continue to narrow from

skin. Does this happen with any of you? Are any of your kids able to wear

in the ear hearing aid. >>

Kathleen,

My son, Brett, had surgery with Dr Jahrsdoerfer a few years back and we

had to do a revision because scar tissue formed and almost closed his canal.

The other ear seemed on that path as well but it is open enough for good

hearing. He used to wear a bone conductive hearing aid over the top of his

head. I thought we would go to in the ear aids after surgery.............but

didn't have to because of good results.

Yours in Him,

Mickey

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  • 6 months later...
Guest guest

Hi Starr,

Our son Josh had his ear reconstructed within the past year. While we

didn't have any delays in getting insurance approval, I really pushed the

insurance company to assign a case manager to Josh's case. This helped out

a lot as I only had to go through one person if I needed to contact them.

In any case, I would call them and ask why it was delayed and this is the

perfect example of why a case manager would be beneficial to you and the

insurance company! Hope this helps!

Love, beth

>

>Reply-To: AtresiaMicrotia

>To: AtresiaMicrotia >

>Subject: New member

>Date: Thu, 6 Jun 2002 08:24:51 -0500

>

> Hi, My name is Starr, I have a son, Trevor who is six. We live in

>Memphis,

>Tennessee area. Trevor has Microtia/atresia on the left side. We have been

>preparing for the first stage of the rib cartlidge reconstructive surgery.

>Actually he was supposed to have it yesterday, (Wednesday), but it has been

>postponed. The reason? The insurance company has not responded to the

>doctor's request for further approval of charges..we are really

>disappointed

>and don't know what to do. Has anyone else experienced anything like this?

>

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

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Guest guest

Hi Starr,

Our son Josh had his ear reconstructed within the past year. While we

didn't have any delays in getting insurance approval, I really pushed the

insurance company to assign a case manager to Josh's case. This helped out

a lot as I only had to go through one person if I needed to contact them.

In any case, I would call them and ask why it was delayed and this is the

perfect example of why a case manager would be beneficial to you and the

insurance company! Hope this helps!

Love, beth

>

>Reply-To: AtresiaMicrotia

>To: AtresiaMicrotia >

>Subject: New member

>Date: Thu, 6 Jun 2002 08:24:51 -0500

>

> Hi, My name is Starr, I have a son, Trevor who is six. We live in

>Memphis,

>Tennessee area. Trevor has Microtia/atresia on the left side. We have been

>preparing for the first stage of the rib cartlidge reconstructive surgery.

>Actually he was supposed to have it yesterday, (Wednesday), but it has been

>postponed. The reason? The insurance company has not responded to the

>doctor's request for further approval of charges..we are really

>disappointed

>and don't know what to do. Has anyone else experienced anything like this?

>

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

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  • 2 months later...

Hi Torrie and welcome! What are you studying in college? So nice to meet

you! Love, beth

>

>Reply-To: AtresiaMicrotia

>To: AtresiaMicrotia

>Subject: New member

>Date: Fri, 23 Aug 2002 15:31:41 -0700 (PDT)

>

>Hi, everyone! I just joined the group yesterday and

>thought I'd introduce myself. I am a 22 year old

>college student (attending a college in my state, but

>may spend a semester at Gally so I can become fluent

>in ASL)with bilateral aural atresia (As well as absent

>eardrums and the bones in my inner ear are fused

>together) due to 18q- syndrome (a chromosome disorder)

>I had the surgery done on my left ear,by Dr. Roland

>Eavy at Mass. Eye and Ear, back in '96. It worked at

>first but then closed up again. I still wear an ITE in

>that ear,(due to a mild loss)and I also wear a BTE

>(mild-moderate loss) in my right ear.

>Got to run.(leaving for college in a couple of weeks!)

>Hope to hear from everyone soon.

>Torrie

>

>=====

>Let there be peace on earth, and let it begin with me.

> " Deaf people can do anything except hear! " Dr. I.King Jordan

>

> " I'd found myself becoming more immobile, when I'd think a little girl in

>the world can't do anything. A distant nation my community, a street person

>my responsbilty. If I have a care in the world, I have a gift to

>bring " - " Hammer & a Nail " Indigo Girls

>

>

>Waste some time looking at my webpage!:

>http://www.angelfire.com/grrl/deafgrrl/indextwo.html

>

>__________________________________________________

>

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  • 10 months later...
Guest guest

Kendra,

You are doing fantastic! Man you are half way there and it hasn't been 1 year. From time to time we all go thru things like that. Right now I am dealing with the same thing. Except I am eating non stop. I am letting myself have free rein until Monday and then I AM getting my big butt back in gear as I still have about 55 pounds to go to get to my goal. I am tired of paying to do something that I should (but can't) do on my own! Good luck . One of the most important things we all have to remember is we have to learn to forgive ourselves like we forgive others.

Roxie

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Guest guest

Hi Kendra -

I too decided that I can't use the excuse of the New baby any

longer...since he's 8 months.....heehee...but it was nice while it

lasted.

Good luck!

> Hi, I am a new member and just want to say hello.

> I joined weight watchers January 2003. I have lost 49.2 pounds,

> with 42.8 pounds left to lose. I have been over weight since after

> my youngest son was born (who is now 5 years old), so I can no

> longer use the excuse that I just had a baby. :0)

> It is very encouraging to read messages from members and look at

> pictures of losses. I am at a spot right now where I feel

> completely out of control. I have gained the last two weeks.

After

> WW meetings, I say I will do better next week, and then I lose it

> and eat way more then I should, actually I am eating the wrong

> things. It is my fault and I should not whine, but I feel like I

> have no control and I am not sure how to get it back, obviously

> gaining weight back is not forcing me to. I feel myself going back

> to the " fat me " and I do not want to do that. I thought joining

this

> group may help with more encouragement.

> I love weight watchers and I think it is a terrific program. I

have

> finally realized there is no miracle pill that I can take and will

> make me skinny in the morning. It is hard work, but it can be

done,

> and you don't have to starve to do it!!

>

> Thanks for listening!!

> Kendra

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Guest guest

I waited until today because I had my 30 year class reunion this weekend and if I started then I would only get angry with myself when I ate things that weren't OP. So instead of starting in a bad way I waited until today. I am back and ready to get rid of this weight.

Yes I think that forgiveness is very important. This is NOT a diet it is a change of lifestyle and there will always be things that get in the way. We all have to learn to move forward and not let them get us so down that we quit!

Roxie

Why wait til Monday? (Fine if you do, of course, but you can

also give yourself permission to start right away, if you want

to start Monday with a greater sense of accomplishment and

lightness.)

I like what you say about forgiveness, by the way! 8-)

-Elissa

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  • 2 years later...

Hello Everyone!

I am on my first day of the SBD. I am on a path to improving my

lifestyle, although I'm not quite feeling the benefits yet. I quit

smoking a little while ago with serious intention of not going back. My

roommates have been a huge help and I don't know why I'd do without

them. I'm preparing my food ahead of time so that when a craving hits,

I have veggies, etc. ready to go. Can anyone give me a heads up on the

types of symptoms I might experience during my time on Phase 1? I've

heard lethargy, irritibility and sore muscles are common.

I look forward to sharing my success story with everyone.

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