Hi all, some interesting info

[Guest guest]

I have a friend I meet through the MDA 2 yrs ago. She was on this

site for a short time and had suspected mito. Well she had all the

test we've had ,muscle biop and emg, mri. Her test was all neg.

She went to Europe and had all test over and they showed mito

finally. But she said now that she's back she can't find a doctor

to treat her.

I had been doing somewhat ok for a few months, then in june things

got bad again. I'm having the strokelike episodes alot and have

lasting weakness and slow thoughts at times. I have a headache 24/7.

Lets not talk about fatigue! My muscles are shaking all the time.

There are so many other symptoms, but I'm on lots of meds for most

alot of them, so I just try to cope everyday.

Since the attacks have come back, I'm trying to continue with my

search for a DX. I went to the lab for blood work and the tech told

me about a lady who came in all the time in a wheel chair. She was

real sick and had been to many doctors. Well she found the right

one who found out her problem and she went to a walker to cane and

then walking on her own.

I need to hear that so much today. It's getting harder to fight and

search.

Last weak I went to my 50th endocrinoligist. As soon as she walked

in I knew she wasn't going to even try, and she didn't. I wans't

feeling well so I cried after the visist in my car BUT, I quickly

recovered. I getting much better at this :-).

I know many of you are going through VERY rough times and You will

be in my prayers.

I will not give up,