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As many of you know, I have gone through a horrible divorce this

past yr. 's doctor stepped up and protected her from the

medical incompitence of her father and he can only visit her in my

home. Drew is 13 and has chosen to not go with Jeff. In short, Jeff

has not chosen to learn anything about mito in th past three yrs we

have dealt with it because of . He lives in denial. Molly

just began to go for overnights with him in the spring (because of

her age) and that is when she began to present. She has had constant

exhaustion, low grade temps, dehydration, and heat exhaustion upon

returning from his home. When she was officially diagnosed this week

he told me " I am optomistic she will live a normal life and grow

out of it " . Do you see what I mean? Her doctor(pediatrician who

knows little of mito) told me that he doesn't want to get dragged

into court (I think Jeff has threatened him). I am frightened. Do

you know how hard it is for us to expalin mito to ER docs? try

explaining it to a judge or court worker or laywer. No one cares.

One mistake and she can die. I am trying to get help from her mito

doc but we have seen him once, so I can't imagine he will want o get

involved. No one wants to protect her. I will go to jail- but how

will that help them? any ideas would really help. I cannot believe

it has really come to this. It really is that bad, and the court

system is really that stupid.

Any help would be appreciated.

Dawn

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