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Hi, My name is Tina and I have a almost 4 yr old daughter who was

implanted in Nov. of 2004. I desperately need feedback from mothers

and fathers who " know " where I am coming from. We live in a small

town in Tennessee, the closest school for the deaf is 65.3 miles away.

I know this because I have been driving to the school twice a day

(261.2 miles per day) 4 days a week since January. I have been humbled

and I must stand up and proclaim.... I Am Not SuperMom!!! anyhoo all

kidding aside...We have been having problems with the board of

education.. they don't like to fork out the mileage reimbursment

money...they want to send to the pre-school here in our

county..she went there before we started the school for the deaf but

she hated it... they didn't know sign (we use signed english)and they

had never seen a deaf child with a cochlear implant. ( I picked her up

one day and they had her earhook hung on her left ear, coil dangling

[she's implanted on the right])... I know that I could probably make

them keep her at the school for the deaf but I just don't know that I

can handle it. My family is suffering ( I have a husband and 2 other

girls 11 and 14. My house is suffering and my mental health is

suffering. I almost hate to post this because it sounds like it is

all about me... that is not true..I just don't want to put the needs

of one child above the other. I am wondering if maybe I could home

school ? I know it wouldn't be easy because I am not a teacher,

I am a doer...but... I just need options...Please please help!!!!

Tina (mother of (nucleus 24,nov 04)Krista 11 and Cady 14 (hearing)

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Dear Tina,

I have two boys (ages 8 and 6). My younger son has a mild sloping to

profound, bilateral, sensory neural, hearing loss. He wears aids.

Our family homeschools.

There is a support list for families who are homeschooling and have

children who are deaf or hard of hearing. There is also a resourceful

website with a page listing the basics about homeschooling if your are

considering that option.

Check out:

deafhomeschool

and

www.deafhomeschool.com

Good luck and God bless,

- Orlando FL

Tina wrote:

> Hi, My name is Tina and I have a almost 4 yr old daughter who was

> implanted in Nov. of 2004. I desperately need feedback from mothers

> and fathers who " know " where I am coming from. We live in a small

> town in Tennessee, the closest school for the deaf is 65.3 miles away.

> I know this because I have been driving to the school twice a day

> (261.2 miles per day) 4 days a week since January. I have been humbled

> and I must stand up and proclaim.... I Am Not SuperMom!!! anyhoo all

> kidding aside...We have been having problems with the board of

> education.. they don't like to fork out the mileage reimbursment

> money...they want to send to the pre-school here in our

> county..she went there before we started the school for the deaf but

> she hated it... they didn't know sign (we use signed english)and they

> had never seen a deaf child with a cochlear implant. ( I picked her up

> one day and they had her earhook hung on her left ear, coil dangling

> [she's implanted on the right])... I know that I could probably make

> them keep her at the school for the deaf but I just don't know that I

> can handle it. My family is suffering ( I have a husband and 2 other

> girls 11 and 14. My house is suffering and my mental health is

> suffering. I almost hate to post this because it sounds like it is

> all about me... that is not true..I just don't want to put the needs

> of one child above the other. I am wondering if maybe I could home

> school ? I know it wouldn't be easy because I am not a teacher,

> I am a doer...but... I just need options...Please please help!!!!

> Tina (mother of (nucleus 24,nov 04)Krista 11 and Cady 14 (hearing)

>

>

>

>

>

> All messages posted to this list are private and confidential. Each

> post is the intellectual property of the author and therefore subject

> to copyright restrictions.

>

>

>

>

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Share on other sites

Guest guest

Dear Tina,

I have two boys (ages 8 and 6). My younger son has a mild sloping to

profound, bilateral, sensory neural, hearing loss. He wears aids.

Our family homeschools.

There is a support list for families who are homeschooling and have

children who are deaf or hard of hearing. There is also a resourceful

website with a page listing the basics about homeschooling if your are

considering that option.

Check out:

deafhomeschool

and

www.deafhomeschool.com

Good luck and God bless,

- Orlando FL

Tina wrote:

> Hi, My name is Tina and I have a almost 4 yr old daughter who was

> implanted in Nov. of 2004. I desperately need feedback from mothers

> and fathers who " know " where I am coming from. We live in a small

> town in Tennessee, the closest school for the deaf is 65.3 miles away.

> I know this because I have been driving to the school twice a day

> (261.2 miles per day) 4 days a week since January. I have been humbled

> and I must stand up and proclaim.... I Am Not SuperMom!!! anyhoo all

> kidding aside...We have been having problems with the board of

> education.. they don't like to fork out the mileage reimbursment

> money...they want to send to the pre-school here in our

> county..she went there before we started the school for the deaf but

> she hated it... they didn't know sign (we use signed english)and they

> had never seen a deaf child with a cochlear implant. ( I picked her up

> one day and they had her earhook hung on her left ear, coil dangling

> [she's implanted on the right])... I know that I could probably make

> them keep her at the school for the deaf but I just don't know that I

> can handle it. My family is suffering ( I have a husband and 2 other

> girls 11 and 14. My house is suffering and my mental health is

> suffering. I almost hate to post this because it sounds like it is

> all about me... that is not true..I just don't want to put the needs

> of one child above the other. I am wondering if maybe I could home

> school ? I know it wouldn't be easy because I am not a teacher,

> I am a doer...but... I just need options...Please please help!!!!

> Tina (mother of (nucleus 24,nov 04)Krista 11 and Cady 14 (hearing)

>

>

>

>

>

> All messages posted to this list are private and confidential. Each

> post is the intellectual property of the author and therefore subject

> to copyright restrictions.

>

>

>

>

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Guest guest

Hi ,

Thanks so much for the reply...Sounds like you are outnumbered by males.:)

has a severe to profound sensory neural hearing loss... she was

implanted in her severe ear. We still have trouble making her wear

the implant. She will wear for a couple of hours at a time.

If the board of education monitors the homeschooling would they not be

required to help with the cost of teaching material?

Thanks again,

Tina

>

> > Hi, My name is Tina and I have a almost 4 yr old daughter who was

> > implanted in Nov. of 2004. I desperately need feedback from mothers

> > and fathers who " know " where I am coming from. We live in a small

> > town in Tennessee, the closest school for the deaf is 65.3 miles away.

> > I know this because I have been driving to the school twice a day

> > (261.2 miles per day) 4 days a week since January. I have been humbled

> > and I must stand up and proclaim.... I Am Not SuperMom!!! anyhoo all

> > kidding aside...We have been having problems with the board of

> > education.. they don't like to fork out the mileage reimbursment

> > money...they want to send to the pre-school here in our

> > county..she went there before we started the school for the deaf but

> > she hated it... they didn't know sign (we use signed english)and they

> > had never seen a deaf child with a cochlear implant. ( I picked her up

> > one day and they had her earhook hung on her left ear, coil dangling

> > [she's implanted on the right])... I know that I could probably make

> > them keep her at the school for the deaf but I just don't know that I

> > can handle it. My family is suffering ( I have a husband and 2 other

> > girls 11 and 14. My house is suffering and my mental health is

> > suffering. I almost hate to post this because it sounds like it is

> > all about me... that is not true..I just don't want to put the needs

> > of one child above the other. I am wondering if maybe I could home

> > school ? I know it wouldn't be easy because I am not a teacher,

> > I am a doer...but... I just need options...Please please help!!!!

> > Tina (mother of (nucleus 24,nov 04)Krista 11 and Cady 14

(hearing)

> >

> >

> >

> >

> >

> > All messages posted to this list are private and confidential. Each

> > post is the intellectual property of the author and therefore subject

> > to copyright restrictions.

> >

> >

> >

> >

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Guest guest

Hi ,

Thanks so much for the reply...Sounds like you are outnumbered by males.:)

has a severe to profound sensory neural hearing loss... she was

implanted in her severe ear. We still have trouble making her wear

the implant. She will wear for a couple of hours at a time.

If the board of education monitors the homeschooling would they not be

required to help with the cost of teaching material?

Thanks again,

Tina

>

> > Hi, My name is Tina and I have a almost 4 yr old daughter who was

> > implanted in Nov. of 2004. I desperately need feedback from mothers

> > and fathers who " know " where I am coming from. We live in a small

> > town in Tennessee, the closest school for the deaf is 65.3 miles away.

> > I know this because I have been driving to the school twice a day

> > (261.2 miles per day) 4 days a week since January. I have been humbled

> > and I must stand up and proclaim.... I Am Not SuperMom!!! anyhoo all

> > kidding aside...We have been having problems with the board of

> > education.. they don't like to fork out the mileage reimbursment

> > money...they want to send to the pre-school here in our

> > county..she went there before we started the school for the deaf but

> > she hated it... they didn't know sign (we use signed english)and they

> > had never seen a deaf child with a cochlear implant. ( I picked her up

> > one day and they had her earhook hung on her left ear, coil dangling

> > [she's implanted on the right])... I know that I could probably make

> > them keep her at the school for the deaf but I just don't know that I

> > can handle it. My family is suffering ( I have a husband and 2 other

> > girls 11 and 14. My house is suffering and my mental health is

> > suffering. I almost hate to post this because it sounds like it is

> > all about me... that is not true..I just don't want to put the needs

> > of one child above the other. I am wondering if maybe I could home

> > school ? I know it wouldn't be easy because I am not a teacher,

> > I am a doer...but... I just need options...Please please help!!!!

> > Tina (mother of (nucleus 24,nov 04)Krista 11 and Cady 14

(hearing)

> >

> >

> >

> >

> >

> > All messages posted to this list are private and confidential. Each

> > post is the intellectual property of the author and therefore subject

> > to copyright restrictions.

> >

> >

> >

> >

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In a message dated 5/4/2006 11:36:40 P.M. Eastern Daylight Time,

tanya@... writes:

Here in

Florida, because Caleb is registered with the county, I could bring him

to our local public school for speech therapy and to work with a teacher

of the deaf - on the school's schedule. There are also enrichment

programs offered. As far as books and curriculum, we are responsible for

purchasing these materials ourselves. I must notify the county each year

of Caleb's progress.

From what I understand this is very similar to NY's rules. However, our home

schooled kids are required to take all the standardized testing that the

kids in the regular schools are required to take. Their progressing through the

grade levels is contingent on passing these exams with appropriate grades. I

don't know what the ramifications are for a home schooled child who doesn't

pass these tests, I only know that they are required of all children here in

NY. the home schooled kids I know have all passed the exams at appropriate

levels.

These tests start in 3rd grade and continue yearly through high school. We

also have Regents exams here in NY -- state level final exams for all high

school courses. In order to get a NY State HS diploma, there are very stringent

rules about which exams have to be passed.

I would ask your state about the rules involved with the standardized exams

when making the decision to home school. Better to be informed at the

beginning than to learn it later on and try to scramble to meet the

requirements at

the last minute.

Best -- Jill

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In a message dated 5/4/2006 11:36:40 P.M. Eastern Daylight Time,

tanya@... writes:

Here in

Florida, because Caleb is registered with the county, I could bring him

to our local public school for speech therapy and to work with a teacher

of the deaf - on the school's schedule. There are also enrichment

programs offered. As far as books and curriculum, we are responsible for

purchasing these materials ourselves. I must notify the county each year

of Caleb's progress.

From what I understand this is very similar to NY's rules. However, our home

schooled kids are required to take all the standardized testing that the

kids in the regular schools are required to take. Their progressing through the

grade levels is contingent on passing these exams with appropriate grades. I

don't know what the ramifications are for a home schooled child who doesn't

pass these tests, I only know that they are required of all children here in

NY. the home schooled kids I know have all passed the exams at appropriate

levels.

These tests start in 3rd grade and continue yearly through high school. We

also have Regents exams here in NY -- state level final exams for all high

school courses. In order to get a NY State HS diploma, there are very stringent

rules about which exams have to be passed.

I would ask your state about the rules involved with the standardized exams

when making the decision to home school. Better to be informed at the

beginning than to learn it later on and try to scramble to meet the

requirements at

the last minute.

Best -- Jill

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Guest guest

In a message dated 5/4/2006 11:36:40 P.M. Eastern Daylight Time,

tanya@... writes:

Here in

Florida, because Caleb is registered with the county, I could bring him

to our local public school for speech therapy and to work with a teacher

of the deaf - on the school's schedule. There are also enrichment

programs offered. As far as books and curriculum, we are responsible for

purchasing these materials ourselves. I must notify the county each year

of Caleb's progress.

From what I understand this is very similar to NY's rules. However, our home

schooled kids are required to take all the standardized testing that the

kids in the regular schools are required to take. Their progressing through the

grade levels is contingent on passing these exams with appropriate grades. I

don't know what the ramifications are for a home schooled child who doesn't

pass these tests, I only know that they are required of all children here in

NY. the home schooled kids I know have all passed the exams at appropriate

levels.

These tests start in 3rd grade and continue yearly through high school. We

also have Regents exams here in NY -- state level final exams for all high

school courses. In order to get a NY State HS diploma, there are very stringent

rules about which exams have to be passed.

I would ask your state about the rules involved with the standardized exams

when making the decision to home school. Better to be informed at the

beginning than to learn it later on and try to scramble to meet the

requirements at

the last minute.

Best -- Jill

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In a message dated 5/4/2006 11:48:50 P.M. Eastern Daylight Time, JillcWood

writes:

These tests start in 3rd grade and continue yearly through high school.

I forgot to mention, our district starts this kind of testing in 1st grade.

It is a reading proficiency test. Even the home schooled kids in our district

are required to take it.

Best -- Jill

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In a message dated 5/4/2006 11:48:50 P.M. Eastern Daylight Time, JillcWood

writes:

These tests start in 3rd grade and continue yearly through high school.

I forgot to mention, our district starts this kind of testing in 1st grade.

It is a reading proficiency test. Even the home schooled kids in our district

are required to take it.

Best -- Jill

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Guest guest

Okay, here I am at almost 1 am, after working far too long, with far too

much adrenaline and not yet ready to sleep.

The one thing that immediately comes to mind is that your child is currently

attending what you feel is the appropriate placement. This is a plus in

several ways. You have a support in place in that this school is already doing

what is needed for your child. You can ask that they do an assessment of her.

Many kids on this list have traveled to their local D/HOH school in order to

be evaluated by people who actually have experience with D/HOH kids. Those

results and recommendations have to be considered by your local school district

when discussing and deciding your daughter's LRE (least restrictive

environment) and appropriate placement.

You mention that they don't like to reimburse you. I would tell them they

can stop reimbursing me just as soon as they provide daily transportation to

and from the school. Ask what their plans are for transporting your child in

order to eliminate the reimbursement cost. And simply moving her to a local

program is not an acceptable solution.

A few questions: Is this school placement in your child's IEP and is the

local district paying for it? Does your child have an IEP in place (or whatever

an Early Intervention plan is called in your state)? How is her placement

described in it?

If the school has agreed to place her in this program, then they need to

give VAILD reasons why they intend to alter her placement. Her LRE has been

established, they must now demonstrate how that has changed -- how have HER

NEEDS

changed? And them paying for transportation is not a valid reason for

changing the placement unless they can prove that the expense is placing an

undo

hardship on the district's financial health. (I doubt they can do that)

Simply saying they have a local program available isn't enough. They have

already demonstrated it is insufficient in that 1) it cannot support her

communication mode and 2) can't even keep her processor on the correct side of

her

head!

They need to show how this local program can match the quality and services

of the school that is 65 miles away. If they cannot provide the equivalent

services, then they don't have a case for moving her.

Here's where you daughter's placement is helpful to you. You can easily find

out what services are available at the school. Are the classroom teachers

all TODs? Is there a nurse on staff who is knowledgeable with CIs and their care

and maintenance? Are there SLPs on staff? What are their teachers special

qualifications? Is there an audiologist nearby? What do they have available at

a moment's notice that you don't even think about -- and make yourself a

list. Your local district probably cannot provide those services and supports at

a reasonable price.

If you want to keep this placement for your child, it is doable. But you

have to decide a few things, including if the commute is acceptable. If you

decide that is indeed what you want, then you can fight for it.

However, if you decide that you prefer to force the local school to provide

for your daughter's needs within the local district, then you need to show

what those needs are and get them listed in her IEP. Once her needs are spelled

out in that document, it is legally binding and the district has to follow

it. If they don't, they are breaking the law.

Once again, you have an advantage in your child's current placement. You can

probably get the information you need from the current school. They can

write letters of recommendation as to what the appropriate services and supports

should be. Unless the local district agrees to meet those needs, then her

appropriate placement (and LRE) will still be the D/HOH school. I don't know

what the needs are for an implanted child, but others here do and your child's

current school obviously does. Get them to spell it out for you.

When we learned of our son's hearing loss, it was only 35 dbs. The D/HOH

schools required a loss of 50 dbs or more for a child to be admitted. Even if I

could convince our district to place him there, the D/HOH school would not

have accepted him. Instead, we had to force the local school to accommodate and

support Ian. I had to determine what he needed and how it could be provided.

And I knew absolutely nothing about hearing loss, TODs, FMs or anything else

a D/HOH child might need or could get.

You have an advantage over many parents -- you already know so much and the

current school can help you with it all. Your child is already receiving

services, so make a list of what they are. I mean a literal list, with

everything

you can think of. You can take things off later if you decide they aren't

needed. But little things can matter a great deal -- like being able to tell

which side of a child's head has been implanted. (oy!) Or how to change a

hearing aid battery, or trouble shoot an FM system to see if it's working.

Little

kids can't be expected to tell the adults when things aren't working -- the

adults need to be in charge of the maintenance of the equipment. I'll bet that

many people at that D/HOH school can perform these everyday tasks. Our

school nurse couldn't even open the battery compartment door on Ian's aids --

he

showed her how to do it. (sigh)

There are many parents here whose kids are appropriately supported in their

local schools. Our state has a county-based educational service provider

called BOCES. Through BOCES the local districts can hire the services of

specialists that would be very expensive to hire for only one child. Our son's

TOD is

on staff at BOCES and travels to different districts to work with different

kids. Ian's the only kid in our entire district who has or needs a TOD. But

there are a few scattered throughout the county, so BOCES has TODs on staff.

They provide a variety of services from TOD to PT to OT and more.

Is there a similar agency in your state? Call your State Ed Dept and ask.

We also have a department within the State Ed Dept called the Dept for

Communication Disorders. When I dealt with them, the lady at its head was also

deaf. She and her staff were very helpful and informative and gave me tons of

information about how to deal with many things. Make some calls and find out if

such a department exists in your state. If there is, they could be very

helpful wit procedures an letting you know how tings are done in your state.

The

D/HOH school can also help with those procedures.

I know this is really hard and incredibly overwhelming. I also know that

there are times, sometimes several times in a single day, when you want to give

it all up and go hide in a closet. But it is all doable by simply taking it

one step at a time. First you get your information together that supports the

choices you are making and then you move on from there. One step at a time.

And remember, you don't have to sign off on anything you don't want. Those

IEP meetings make you feel like you have to decide right then and there. Lots

of pressure. But if what the school is suggesting is not what you know to be

right, then don't sign off on it. Don't agree. Instead, hand them a

pre-written letter requesting a date for the next meeting to discuss things

further. I

use to carry a pre-written letter into all my meetings because just knowing I

had it made me feel empowered. I knew that if things weren't going well, I

could call a stop to the non-productive meeting and instantly request a new

one without fumbling to hand-write one or needing to write it when I got home.

(I used them quite often for a while.)

You don't have to be bullied into anything. Quote Mrs Reagan and just say NO

(grin)

Hope this helps a bit. Ask more questions .. let us know how things are

going. We're here to help.

Best -- Jill

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Guest guest

Okay, here I am at almost 1 am, after working far too long, with far too

much adrenaline and not yet ready to sleep.

The one thing that immediately comes to mind is that your child is currently

attending what you feel is the appropriate placement. This is a plus in

several ways. You have a support in place in that this school is already doing

what is needed for your child. You can ask that they do an assessment of her.

Many kids on this list have traveled to their local D/HOH school in order to

be evaluated by people who actually have experience with D/HOH kids. Those

results and recommendations have to be considered by your local school district

when discussing and deciding your daughter's LRE (least restrictive

environment) and appropriate placement.

You mention that they don't like to reimburse you. I would tell them they

can stop reimbursing me just as soon as they provide daily transportation to

and from the school. Ask what their plans are for transporting your child in

order to eliminate the reimbursement cost. And simply moving her to a local

program is not an acceptable solution.

A few questions: Is this school placement in your child's IEP and is the

local district paying for it? Does your child have an IEP in place (or whatever

an Early Intervention plan is called in your state)? How is her placement

described in it?

If the school has agreed to place her in this program, then they need to

give VAILD reasons why they intend to alter her placement. Her LRE has been

established, they must now demonstrate how that has changed -- how have HER

NEEDS

changed? And them paying for transportation is not a valid reason for

changing the placement unless they can prove that the expense is placing an

undo

hardship on the district's financial health. (I doubt they can do that)

Simply saying they have a local program available isn't enough. They have

already demonstrated it is insufficient in that 1) it cannot support her

communication mode and 2) can't even keep her processor on the correct side of

her

head!

They need to show how this local program can match the quality and services

of the school that is 65 miles away. If they cannot provide the equivalent

services, then they don't have a case for moving her.

Here's where you daughter's placement is helpful to you. You can easily find

out what services are available at the school. Are the classroom teachers

all TODs? Is there a nurse on staff who is knowledgeable with CIs and their care

and maintenance? Are there SLPs on staff? What are their teachers special

qualifications? Is there an audiologist nearby? What do they have available at

a moment's notice that you don't even think about -- and make yourself a

list. Your local district probably cannot provide those services and supports at

a reasonable price.

If you want to keep this placement for your child, it is doable. But you

have to decide a few things, including if the commute is acceptable. If you

decide that is indeed what you want, then you can fight for it.

However, if you decide that you prefer to force the local school to provide

for your daughter's needs within the local district, then you need to show

what those needs are and get them listed in her IEP. Once her needs are spelled

out in that document, it is legally binding and the district has to follow

it. If they don't, they are breaking the law.

Once again, you have an advantage in your child's current placement. You can

probably get the information you need from the current school. They can

write letters of recommendation as to what the appropriate services and supports

should be. Unless the local district agrees to meet those needs, then her

appropriate placement (and LRE) will still be the D/HOH school. I don't know

what the needs are for an implanted child, but others here do and your child's

current school obviously does. Get them to spell it out for you.

When we learned of our son's hearing loss, it was only 35 dbs. The D/HOH

schools required a loss of 50 dbs or more for a child to be admitted. Even if I

could convince our district to place him there, the D/HOH school would not

have accepted him. Instead, we had to force the local school to accommodate and

support Ian. I had to determine what he needed and how it could be provided.

And I knew absolutely nothing about hearing loss, TODs, FMs or anything else

a D/HOH child might need or could get.

You have an advantage over many parents -- you already know so much and the

current school can help you with it all. Your child is already receiving

services, so make a list of what they are. I mean a literal list, with

everything

you can think of. You can take things off later if you decide they aren't

needed. But little things can matter a great deal -- like being able to tell

which side of a child's head has been implanted. (oy!) Or how to change a

hearing aid battery, or trouble shoot an FM system to see if it's working.

Little

kids can't be expected to tell the adults when things aren't working -- the

adults need to be in charge of the maintenance of the equipment. I'll bet that

many people at that D/HOH school can perform these everyday tasks. Our

school nurse couldn't even open the battery compartment door on Ian's aids --

he

showed her how to do it. (sigh)

There are many parents here whose kids are appropriately supported in their

local schools. Our state has a county-based educational service provider

called BOCES. Through BOCES the local districts can hire the services of

specialists that would be very expensive to hire for only one child. Our son's

TOD is

on staff at BOCES and travels to different districts to work with different

kids. Ian's the only kid in our entire district who has or needs a TOD. But

there are a few scattered throughout the county, so BOCES has TODs on staff.

They provide a variety of services from TOD to PT to OT and more.

Is there a similar agency in your state? Call your State Ed Dept and ask.

We also have a department within the State Ed Dept called the Dept for

Communication Disorders. When I dealt with them, the lady at its head was also

deaf. She and her staff were very helpful and informative and gave me tons of

information about how to deal with many things. Make some calls and find out if

such a department exists in your state. If there is, they could be very

helpful wit procedures an letting you know how tings are done in your state.

The

D/HOH school can also help with those procedures.

I know this is really hard and incredibly overwhelming. I also know that

there are times, sometimes several times in a single day, when you want to give

it all up and go hide in a closet. But it is all doable by simply taking it

one step at a time. First you get your information together that supports the

choices you are making and then you move on from there. One step at a time.

And remember, you don't have to sign off on anything you don't want. Those

IEP meetings make you feel like you have to decide right then and there. Lots

of pressure. But if what the school is suggesting is not what you know to be

right, then don't sign off on it. Don't agree. Instead, hand them a

pre-written letter requesting a date for the next meeting to discuss things

further. I

use to carry a pre-written letter into all my meetings because just knowing I

had it made me feel empowered. I knew that if things weren't going well, I

could call a stop to the non-productive meeting and instantly request a new

one without fumbling to hand-write one or needing to write it when I got home.

(I used them quite often for a while.)

You don't have to be bullied into anything. Quote Mrs Reagan and just say NO

(grin)

Hope this helps a bit. Ask more questions .. let us know how things are

going. We're here to help.

Best -- Jill

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Okay, here I am at almost 1 am, after working far too long, with far too

much adrenaline and not yet ready to sleep.

The one thing that immediately comes to mind is that your child is currently

attending what you feel is the appropriate placement. This is a plus in

several ways. You have a support in place in that this school is already doing

what is needed for your child. You can ask that they do an assessment of her.

Many kids on this list have traveled to their local D/HOH school in order to

be evaluated by people who actually have experience with D/HOH kids. Those

results and recommendations have to be considered by your local school district

when discussing and deciding your daughter's LRE (least restrictive

environment) and appropriate placement.

You mention that they don't like to reimburse you. I would tell them they

can stop reimbursing me just as soon as they provide daily transportation to

and from the school. Ask what their plans are for transporting your child in

order to eliminate the reimbursement cost. And simply moving her to a local

program is not an acceptable solution.

A few questions: Is this school placement in your child's IEP and is the

local district paying for it? Does your child have an IEP in place (or whatever

an Early Intervention plan is called in your state)? How is her placement

described in it?

If the school has agreed to place her in this program, then they need to

give VAILD reasons why they intend to alter her placement. Her LRE has been

established, they must now demonstrate how that has changed -- how have HER

NEEDS

changed? And them paying for transportation is not a valid reason for

changing the placement unless they can prove that the expense is placing an

undo

hardship on the district's financial health. (I doubt they can do that)

Simply saying they have a local program available isn't enough. They have

already demonstrated it is insufficient in that 1) it cannot support her

communication mode and 2) can't even keep her processor on the correct side of

her

head!

They need to show how this local program can match the quality and services

of the school that is 65 miles away. If they cannot provide the equivalent

services, then they don't have a case for moving her.

Here's where you daughter's placement is helpful to you. You can easily find

out what services are available at the school. Are the classroom teachers

all TODs? Is there a nurse on staff who is knowledgeable with CIs and their care

and maintenance? Are there SLPs on staff? What are their teachers special

qualifications? Is there an audiologist nearby? What do they have available at

a moment's notice that you don't even think about -- and make yourself a

list. Your local district probably cannot provide those services and supports at

a reasonable price.

If you want to keep this placement for your child, it is doable. But you

have to decide a few things, including if the commute is acceptable. If you

decide that is indeed what you want, then you can fight for it.

However, if you decide that you prefer to force the local school to provide

for your daughter's needs within the local district, then you need to show

what those needs are and get them listed in her IEP. Once her needs are spelled

out in that document, it is legally binding and the district has to follow

it. If they don't, they are breaking the law.

Once again, you have an advantage in your child's current placement. You can

probably get the information you need from the current school. They can

write letters of recommendation as to what the appropriate services and supports

should be. Unless the local district agrees to meet those needs, then her

appropriate placement (and LRE) will still be the D/HOH school. I don't know

what the needs are for an implanted child, but others here do and your child's

current school obviously does. Get them to spell it out for you.

When we learned of our son's hearing loss, it was only 35 dbs. The D/HOH

schools required a loss of 50 dbs or more for a child to be admitted. Even if I

could convince our district to place him there, the D/HOH school would not

have accepted him. Instead, we had to force the local school to accommodate and

support Ian. I had to determine what he needed and how it could be provided.

And I knew absolutely nothing about hearing loss, TODs, FMs or anything else

a D/HOH child might need or could get.

You have an advantage over many parents -- you already know so much and the

current school can help you with it all. Your child is already receiving

services, so make a list of what they are. I mean a literal list, with

everything

you can think of. You can take things off later if you decide they aren't

needed. But little things can matter a great deal -- like being able to tell

which side of a child's head has been implanted. (oy!) Or how to change a

hearing aid battery, or trouble shoot an FM system to see if it's working.

Little

kids can't be expected to tell the adults when things aren't working -- the

adults need to be in charge of the maintenance of the equipment. I'll bet that

many people at that D/HOH school can perform these everyday tasks. Our

school nurse couldn't even open the battery compartment door on Ian's aids --

he

showed her how to do it. (sigh)

There are many parents here whose kids are appropriately supported in their

local schools. Our state has a county-based educational service provider

called BOCES. Through BOCES the local districts can hire the services of

specialists that would be very expensive to hire for only one child. Our son's

TOD is

on staff at BOCES and travels to different districts to work with different

kids. Ian's the only kid in our entire district who has or needs a TOD. But

there are a few scattered throughout the county, so BOCES has TODs on staff.

They provide a variety of services from TOD to PT to OT and more.

Is there a similar agency in your state? Call your State Ed Dept and ask.

We also have a department within the State Ed Dept called the Dept for

Communication Disorders. When I dealt with them, the lady at its head was also

deaf. She and her staff were very helpful and informative and gave me tons of

information about how to deal with many things. Make some calls and find out if

such a department exists in your state. If there is, they could be very

helpful wit procedures an letting you know how tings are done in your state.

The

D/HOH school can also help with those procedures.

I know this is really hard and incredibly overwhelming. I also know that

there are times, sometimes several times in a single day, when you want to give

it all up and go hide in a closet. But it is all doable by simply taking it

one step at a time. First you get your information together that supports the

choices you are making and then you move on from there. One step at a time.

And remember, you don't have to sign off on anything you don't want. Those

IEP meetings make you feel like you have to decide right then and there. Lots

of pressure. But if what the school is suggesting is not what you know to be

right, then don't sign off on it. Don't agree. Instead, hand them a

pre-written letter requesting a date for the next meeting to discuss things

further. I

use to carry a pre-written letter into all my meetings because just knowing I

had it made me feel empowered. I knew that if things weren't going well, I

could call a stop to the non-productive meeting and instantly request a new

one without fumbling to hand-write one or needing to write it when I got home.

(I used them quite often for a while.)

You don't have to be bullied into anything. Quote Mrs Reagan and just say NO

(grin)

Hope this helps a bit. Ask more questions .. let us know how things are

going. We're here to help.

Best -- Jill

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Hey Tina,

Yes. I am out numbered; even our cockatiel is a boy. ;-)

Homeschooling requirements are different for each state. Here in

Florida, because Caleb is registered with the county, I could bring him

to our local public school for speech therapy and to work with a teacher

of the deaf - on the school's schedule. There are also enrichment

programs offered. As far as books and curriculum, we are responsible for

purchasing these materials ourselves. I must notify the county each year

of Caleb's progress, but all in all, our state is pretty lenient when it

comes to homeschooling.

Last year, Caleb attended our church preschool (mainstream) 3 afternoons

a week, and we did Auditory Verbal Therapy with a AVT-cert. two to three

times per month.

This year, Kindergarten, Caleb takes classes two mornings a week at a

church that provides homeschool enrichment courses, and I homeschool him

the rest of the week. There is also a support group for homeschoolers

offered as a ministry of the same church, and there are fieldtrips and

other social gatherings.

There are a lot of options for you. You just have to find out what

works. We make decisions one year at a time around here.

I do agree with the person who posted about getting your daughter's map

checked. It is sort of strange that she doesn't want to wear the implant

more often. I spent a lot of time last year with the audiologist

reviewing, re-evaluating, and learning to better manage Caleb's hearing

issues. That's the first thing that must be done no matter what

schooling option you decide.

Hope this info. helps you a bit.

God bless,

Tina wrote:

> Hi ,

> Thanks so much for the reply...Sounds like you are outnumbered by males.:)

> has a severe to profound sensory neural hearing loss... she was

> implanted in her severe ear. We still have trouble making her wear

> the implant. She will wear for a couple of hours at a time.

> If the board of education monitors the homeschooling would they not be

> required to help with the cost of teaching material?

> Thanks again,

> Tina

>

>

>

>

>

>

> >

> > > Hi, My name is Tina and I have a almost 4 yr old daughter who was

> > > implanted in Nov. of 2004. I desperately need feedback from mothers

> > > and fathers who " know " where I am coming from. We live in a small

> > > town in Tennessee, the closest school for the deaf is 65.3 miles away.

> > > I know this because I have been driving to the school twice a day

> > > (261.2 miles per day) 4 days a week since January. I have been humbled

> > > and I must stand up and proclaim.... I Am Not SuperMom!!! anyhoo all

> > > kidding aside...We have been having problems with the board of

> > > education.. they don't like to fork out the mileage reimbursment

> > > money...they want to send to the pre-school here in our

> > > county..she went there before we started the school for the deaf but

> > > she hated it... they didn't know sign (we use signed english)and they

> > > had never seen a deaf child with a cochlear implant. ( I picked her up

> > > one day and they had her earhook hung on her left ear, coil dangling

> > > [she's implanted on the right])... I know that I could probably make

> > > them keep her at the school for the deaf but I just don't know that I

> > > can handle it. My family is suffering ( I have a husband and 2 other

> > > girls 11 and 14. My house is suffering and my mental health is

> > > suffering. I almost hate to post this because it sounds like it is

> > > all about me... that is not true..I just don't want to put the needs

> > > of one child above the other. I am wondering if maybe I could home

> > > school ? I know it wouldn't be easy because I am not a teacher,

> > > I am a doer...but... I just need options...Please please help!!!!

> > > Tina (mother of (nucleus 24,nov 04)Krista 11 and Cady 14

> (hearing)

> > >

> > >

> > >

> > >

> > >

> > > All messages posted to this list are private and confidential. Each

> > > post is the intellectual property of the author and therefore subject

> > > to copyright restrictions.

> > >

> > >

> > >

> > >

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I take it you aren't anywhere near Vanderbilt then? I hear they have a very

good school there (but I think it is Oral). Maybe they can help you with

curriculum, training, etc?. I know at least one family that's there who I

did a bilateral implant appeal for.

Sheri

>Tina wrote:

> > Hi, My name is Tina and I have a almost 4 yr old daughter who was

> > implanted in Nov. of 2004. I desperately need feedback from mothers

> > and fathers who " know " where I am coming from. We live in a small

> > town in Tennessee, the closest school for the deaf is 65.3 miles away.

> > I know this because I have been driving to the school twice a day

> > (261.2 miles per day) 4 days a week since January. I have been humbled

> > and I must stand up and proclaim.... I Am Not SuperMom!!! anyhoo all

> > kidding aside...We have been having problems with the board of

> > education.. they don't like to fork out the mileage reimbursment

> > money...they want to send to the pre-school here in our

> > county..she went there before we started the school for the deaf but

> > she hated it... they didn't know sign (we use signed english)and they

> > had never seen a deaf child with a cochlear implant. ( I picked her up

> > one day and they had her earhook hung on her left ear, coil dangling

> > [she's implanted on the right])... I know that I could probably make

> > them keep her at the school for the deaf but I just don't know that I

> > can handle it. My family is suffering ( I have a husband and 2 other

> > girls 11 and 14. My house is suffering and my mental health is

> > suffering. I almost hate to post this because it sounds like it is

> > all about me... that is not true..I just don't want to put the needs

> > of one child above the other. I am wondering if maybe I could home

> > school ? I know it wouldn't be easy because I am not a teacher,

> > I am a doer...but... I just need options...Please please help!!!!

> > Tina (mother of (nucleus 24,nov 04)Krista 11 and Cady 14

>(hearing)

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Guest guest

I take it you aren't anywhere near Vanderbilt then? I hear they have a very

good school there (but I think it is Oral). Maybe they can help you with

curriculum, training, etc?. I know at least one family that's there who I

did a bilateral implant appeal for.

Sheri

>Tina wrote:

> > Hi, My name is Tina and I have a almost 4 yr old daughter who was

> > implanted in Nov. of 2004. I desperately need feedback from mothers

> > and fathers who " know " where I am coming from. We live in a small

> > town in Tennessee, the closest school for the deaf is 65.3 miles away.

> > I know this because I have been driving to the school twice a day

> > (261.2 miles per day) 4 days a week since January. I have been humbled

> > and I must stand up and proclaim.... I Am Not SuperMom!!! anyhoo all

> > kidding aside...We have been having problems with the board of

> > education.. they don't like to fork out the mileage reimbursment

> > money...they want to send to the pre-school here in our

> > county..she went there before we started the school for the deaf but

> > she hated it... they didn't know sign (we use signed english)and they

> > had never seen a deaf child with a cochlear implant. ( I picked her up

> > one day and they had her earhook hung on her left ear, coil dangling

> > [she's implanted on the right])... I know that I could probably make

> > them keep her at the school for the deaf but I just don't know that I

> > can handle it. My family is suffering ( I have a husband and 2 other

> > girls 11 and 14. My house is suffering and my mental health is

> > suffering. I almost hate to post this because it sounds like it is

> > all about me... that is not true..I just don't want to put the needs

> > of one child above the other. I am wondering if maybe I could home

> > school ? I know it wouldn't be easy because I am not a teacher,

> > I am a doer...but... I just need options...Please please help!!!!

> > Tina (mother of (nucleus 24,nov 04)Krista 11 and Cady 14

>(hearing)

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Guest guest

I take it you aren't anywhere near Vanderbilt then? I hear they have a very

good school there (but I think it is Oral). Maybe they can help you with

curriculum, training, etc?. I know at least one family that's there who I

did a bilateral implant appeal for.

Sheri

>Tina wrote:

> > Hi, My name is Tina and I have a almost 4 yr old daughter who was

> > implanted in Nov. of 2004. I desperately need feedback from mothers

> > and fathers who " know " where I am coming from. We live in a small

> > town in Tennessee, the closest school for the deaf is 65.3 miles away.

> > I know this because I have been driving to the school twice a day

> > (261.2 miles per day) 4 days a week since January. I have been humbled

> > and I must stand up and proclaim.... I Am Not SuperMom!!! anyhoo all

> > kidding aside...We have been having problems with the board of

> > education.. they don't like to fork out the mileage reimbursment

> > money...they want to send to the pre-school here in our

> > county..she went there before we started the school for the deaf but

> > she hated it... they didn't know sign (we use signed english)and they

> > had never seen a deaf child with a cochlear implant. ( I picked her up

> > one day and they had her earhook hung on her left ear, coil dangling

> > [she's implanted on the right])... I know that I could probably make

> > them keep her at the school for the deaf but I just don't know that I

> > can handle it. My family is suffering ( I have a husband and 2 other

> > girls 11 and 14. My house is suffering and my mental health is

> > suffering. I almost hate to post this because it sounds like it is

> > all about me... that is not true..I just don't want to put the needs

> > of one child above the other. I am wondering if maybe I could home

> > school ? I know it wouldn't be easy because I am not a teacher,

> > I am a doer...but... I just need options...Please please help!!!!

> > Tina (mother of (nucleus 24,nov 04)Krista 11 and Cady 14

>(hearing)

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Guest guest

In Florida, we have two standardized tests: F-CAT, and Florida Writes.

Homeschoolers are not required to take either of them - even in high

school; although, the public school offers them to homeschoolers who

wish use the results as their annual evaluation for the county. We are

required to hand in either an assessment written by a certified teacher

(usually the teacher reviews a portfolio, and interviews the child), the

results of a some sort of standardized test given by a certified

teacher, or an evaluation from a child psychiatrist at the end of each

school year. We are also required to keep a portfolio that the county

can request to view as long as they give at least fifteen days notice.

As I said, Florida is pretty lenient. Each state is different.

God bless,

JillcWood@... wrote:

>

> In a message dated 5/4/2006 11:48:50 P.M. Eastern Daylight Time,

> JillcWood

> writes:

>

> These tests start in 3rd grade and continue yearly through high school.

>

>

>

>

> I forgot to mention, our district starts this kind of testing in 1st

> grade.

> It is a reading proficiency test. Even the home schooled kids in our

> district

> are required to take it.

>

> Best -- Jill

>

>

>

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Guest guest

In Florida, we have two standardized tests: F-CAT, and Florida Writes.

Homeschoolers are not required to take either of them - even in high

school; although, the public school offers them to homeschoolers who

wish use the results as their annual evaluation for the county. We are

required to hand in either an assessment written by a certified teacher

(usually the teacher reviews a portfolio, and interviews the child), the

results of a some sort of standardized test given by a certified

teacher, or an evaluation from a child psychiatrist at the end of each

school year. We are also required to keep a portfolio that the county

can request to view as long as they give at least fifteen days notice.

As I said, Florida is pretty lenient. Each state is different.

God bless,

JillcWood@... wrote:

>

> In a message dated 5/4/2006 11:48:50 P.M. Eastern Daylight Time,

> JillcWood

> writes:

>

> These tests start in 3rd grade and continue yearly through high school.

>

>

>

>

> I forgot to mention, our district starts this kind of testing in 1st

> grade.

> It is a reading proficiency test. Even the home schooled kids in our

> district

> are required to take it.

>

> Best -- Jill

>

>

>

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Can you tell me more about auditory-verbal therapy?

Re: Re: desperate in tennessee

Hey Tina,

Yes. I am out numbered; even our cockatiel is a boy. ;-)

Homeschooling requirements are different for each state. Here in

Florida, because Caleb is registered with the county, I could bring him

to our local public school for speech therapy and to work with a teacher

of the deaf - on the school's schedule. There are also enrichment

programs offered. As far as books and curriculum, we are responsible for

purchasing these materials ourselves. I must notify the county each year

of Caleb's progress, but all in all, our state is pretty lenient when it

comes to homeschooling.

Last year, Caleb attended our church preschool (mainstream) 3 afternoons

a week, and we did Auditory Verbal Therapy with a AVT-cert. two to three

times per month.

This year, Kindergarten, Caleb takes classes two mornings a week at a

church that provides homeschool enrichment courses, and I homeschool him

the rest of the week. There is also a support group for homeschoolers

offered as a ministry of the same church, and there are fieldtrips and

other social gatherings.

There are a lot of options for you. You just have to find out what

works. We make decisions one year at a time around here.

I do agree with the person who posted about getting your daughter's map

checked. It is sort of strange that she doesn't want to wear the implant

more often. I spent a lot of time last year with the audiologist

reviewing, re-evaluating, and learning to better manage Caleb's hearing

issues. That's the first thing that must be done no matter what

schooling option you decide.

Hope this info. helps you a bit.

God bless,

Tina wrote:

> Hi ,

> Thanks so much for the reply...Sounds like you are outnumbered by males.:)

> has a severe to profound sensory neural hearing loss... she was

> implanted in her severe ear. We still have trouble making her wear

> the implant. She will wear for a couple of hours at a time.

> If the board of education monitors the homeschooling would they not be

> required to help with the cost of teaching material?

> Thanks again,

> Tina

>

>

>

>

>

>

> >

> > > Hi, My name is Tina and I have a almost 4 yr old daughter who was

> > > implanted in Nov. of 2004. I desperately need feedback from mothers

> > > and fathers who " know " where I am coming from. We live in a small

> > > town in Tennessee, the closest school for the deaf is 65.3 miles away.

> > > I know this because I have been driving to the school twice a day

> > > (261.2 miles per day) 4 days a week since January. I have been humbled

> > > and I must stand up and proclaim.... I Am Not SuperMom!!! anyhoo all

> > > kidding aside...We have been having problems with the board of

> > > education.. they don't like to fork out the mileage reimbursment

> > > money...they want to send to the pre-school here in our

> > > county..she went there before we started the school for the deaf but

> > > she hated it... they didn't know sign (we use signed english)and they

> > > had never seen a deaf child with a cochlear implant. ( I picked her up

> > > one day and they had her earhook hung on her left ear, coil dangling

> > > [she's implanted on the right])... I know that I could probably make

> > > them keep her at the school for the deaf but I just don't know that I

> > > can handle it. My family is suffering ( I have a husband and 2 other

> > > girls 11 and 14. My house is suffering and my mental health is

> > > suffering. I almost hate to post this because it sounds like it is

> > > all about me... that is not true..I just don't want to put the needs

> > > of one child above the other. I am wondering if maybe I could home

> > > school ? I know it wouldn't be easy because I am not a teacher,

> > > I am a doer...but... I just need options...Please please help!!!!

> > > Tina (mother of (nucleus 24,nov 04)Krista 11 and Cady 14

> (hearing)

> > >

> > >

> > >

> > >

> > >

> > > All messages posted to this list are private and confidential. Each

> > > post is the intellectual property of the author and therefore subject

> > > to copyright restrictions.

> > >

> > >

> > >

> > >

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Hi everyone,

Thanks so much for all the feedback.

We live in Counce,TN... about 5 miles from the Pickwick Dam for those

familiar with TN.. it is a little town right in the corner on the TN,

AL ,MS line.

is going to school in , at the West TN School for the Deaf.

was diagnosed with moderate to severe hearing loss at birth

after spending a week in NICU. She was fitted with hearing aids and we

were told that she would do fine. We moved (from MS to TN) and

decided to have her reevaluated in TN since we didn't feel like the

aids were helping. That was when we found that she had severe to

profound sensorineural hearing loss with auditory neuropathy.

It was an emotional roller coaster from then on. They said she was a

candidate for a cochlear implant and she was implanted just 3 months

later at Vanderbilt childrens hosp.. I barely had time to accept that

she was deaf much less get comfortable with making that kind of

decision for her.

The speech therapist they sent to our home was a joke... she would

come in and let pull out her toys to play with while she sat

and talked to me and wrote in her little book. She had never worked

with a child with a CI and I think she was more interested in finding

out about it than teaching speech.

I told them to find us someone else... but they just let it ride until

she fazed out at 3.

During this whole time we had been having problems with getting

to wear her " ear " (that's what we call her CI). She would fight and

scream and cry like her heart was broken every time we put it on.

We made several trips back to Nashville for remapping until they

finally told us that we would just have to make her wear it...she was

enrolled at the WTSD at the time and her CI Dr told us that she didn't

need to be there because in his words " she is not deaf anymore " !!!

huh? I was just coming to terms with her being deaf and now she's not?

OK I can change my mind..

She's not deaf, so we pull her out of WTSD and put her the dreaded

preschool I talked about in an earlier post.

I finally get someone from the Cochlear Corp to come out and they map

her processor. we finally start to see some progress.We decide to just

let her learn at her own pace while we work on teaching her sign..

during this time it finally dawns on me " is deaf... I don't

care what that Dr said.. she is a deaf child with a cochlear implant.

Well I must go for now... the princess is awake.. does anyone else

have that problem? she has not slept a whole night in her entire

life. she wakes up crying between 1:30 and 3:00 every night.

Best wishes

Tina

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Re: Re: desperate in tennessee

>

>Can you tell me more about auditory-verbal therapy?

I will try, but also please look at http://www.auditory-verbal.org/

AVT is therapy that teaches a child to use their residual hearing, however much

they have or don't have, to learn lanugage and speech. It stresses

mainstreaming. Also it is a real parent partnership because most of the

" therapy " is teaching the parent how to teach the child. Language and speech is

usually caught not taught. So when there is a hearing loss it has to be taught

but in AV it is taught developmentally. Kids hear for close to a year before

they talk and the hearing builds the auditory and language " input " centers of

the brain. When that is done, babies start to talk - " output " . They are

usually opposed to signing while kids are learning auditory skills but some AVTs

are more open to sign than others. It is very different than " speech " therapy

you might get at a school, they aren't interested in pronunciation as much as

building the brain's auditory and language centers.

I've described AV as coaching parents through systematic teaching of listening,

language and speech. It is like homeschool for language but the parent is the

teacher, but every week your coach makes sure you are on track, and gives you a

detailed lesson plan for the next week. The coach also makes sure the child is

on track, so if there is a problem with their hearing, CI or HA, they usually

pick up on it. My daughter called it " hearing aid school " and she thought it

was great FUN. It is all done through play. Got to go, in GA

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Re: Re: desperate in tennessee

>

>Can you tell me more about auditory-verbal therapy?

I will try, but also please look at http://www.auditory-verbal.org/

AVT is therapy that teaches a child to use their residual hearing, however much

they have or don't have, to learn lanugage and speech. It stresses

mainstreaming. Also it is a real parent partnership because most of the

" therapy " is teaching the parent how to teach the child. Language and speech is

usually caught not taught. So when there is a hearing loss it has to be taught

but in AV it is taught developmentally. Kids hear for close to a year before

they talk and the hearing builds the auditory and language " input " centers of

the brain. When that is done, babies start to talk - " output " . They are

usually opposed to signing while kids are learning auditory skills but some AVTs

are more open to sign than others. It is very different than " speech " therapy

you might get at a school, they aren't interested in pronunciation as much as

building the brain's auditory and language centers.

I've described AV as coaching parents through systematic teaching of listening,

language and speech. It is like homeschool for language but the parent is the

teacher, but every week your coach makes sure you are on track, and gives you a

detailed lesson plan for the next week. The coach also makes sure the child is

on track, so if there is a problem with their hearing, CI or HA, they usually

pick up on it. My daughter called it " hearing aid school " and she thought it

was great FUN. It is all done through play. Got to go, in GA

Link to comment
Share on other sites

Guest guest

Re: Re: desperate in tennessee

>

>Can you tell me more about auditory-verbal therapy?

I will try, but also please look at http://www.auditory-verbal.org/

AVT is therapy that teaches a child to use their residual hearing, however much

they have or don't have, to learn lanugage and speech. It stresses

mainstreaming. Also it is a real parent partnership because most of the

" therapy " is teaching the parent how to teach the child. Language and speech is

usually caught not taught. So when there is a hearing loss it has to be taught

but in AV it is taught developmentally. Kids hear for close to a year before

they talk and the hearing builds the auditory and language " input " centers of

the brain. When that is done, babies start to talk - " output " . They are

usually opposed to signing while kids are learning auditory skills but some AVTs

are more open to sign than others. It is very different than " speech " therapy

you might get at a school, they aren't interested in pronunciation as much as

building the brain's auditory and language centers.

I've described AV as coaching parents through systematic teaching of listening,

language and speech. It is like homeschool for language but the parent is the

teacher, but every week your coach makes sure you are on track, and gives you a

detailed lesson plan for the next week. The coach also makes sure the child is

on track, so if there is a problem with their hearing, CI or HA, they usually

pick up on it. My daughter called it " hearing aid school " and she thought it

was great FUN. It is all done through play. Got to go, in GA

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