Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 In a message dated 4/27/2006 5:34:22 P.M. Eastern Daylight Time, bswatson@... writes: From YOUR experience, would you aid a child with MILD (hearing in 20-40db range) loss? Even if she's not " EDUCATIONALLY " delayed at this point, 3 years old??? I want to be armed with as much info as possible, she has not qualified for EI preK because she's not educationally delayed at this point. Robin, I think you have a two-part question. First is whether or not to aid and the second is a whether or not to fight for services. As for aiding -- our opinion would be to aid that loss. We DID aid that loss. Our Ian's loss was in that range when we learned of it -- but he was older, he was 7. It was a unilateral loss with his right ear being the " bad " one (30-35 dbs) and we aided him as soon as we possibly could. He wore one aid for between six and nine months, at which point we aided his " good " ear which had deteriorated down to about a 25 db loss. We definitely saw the difference that aiding such a " minor " loss had on our son. He was able to follow conversations, able to follow classroom discussions ... he was able to whisper again. He could hear water running and leaves rustling in the wind. Sounds he'd forgotten he'd known. He could hear music again without distorting it by turning it up all the way. What may have seemed minor to us was quite significant to him. I've kicked myself often for not realizing he had a loss and aiding him sooner. But several moms have told about how their kids did just fine without aiding. Ian didn't. He was lost in school, lost in social settings, and really responded to having his aids. He loved them and wanted to wear them even when he was sleeping. We were so thrilled that he'd wear them that we'd go in and take them out after he was asleep. But that didn't last long -- I was too afraid we'd forget and he'd lose them. As for services, I'm not sure about that. If your child is not currently behind and you don't request services, it doesn't mean that you've missed the boat and can never make the request in the future. So don't panic if services aren't started now. I don't know if you can argue for services based on the disability (504/ADA) instead of being delayed (IDEA). We never had experience with EI programs, so I am not sure that our family's argument for services can be used until the child is school age. Ian's services are based on his physical disability and his right to be able to access his education, not because of a learning disability or academic delay. But I don't know if you can argue for services the same way when dealing with EI programs. On that I'd have to defer to others who have dealt with EI programs. But I do know that if my gut said that Ian needed something to support him, whether it was aids or an FM or a TOD to help with language acquisition, then I would fight for it. I'd find a way to make it work. So, what does your mommy-gut say about your child's need for services? <<Do you think in noisy places such as the zoo, dance class, the mall.. Using an FM would work rather than aiding her all the time?!? I guess after this ENT appt in a month I may ask to trial some HA's, if we pay for the molds they would fit any brand of HA's correct? I guess as someone said I'd like to see if we notice a huge difference in what she's missing.>> Ian does better with his aids in all of those settings. The only place which is impossible is gym class where everyone seems to be screaming in an echoing din. And honestly, I don't think even the hearing kids hear well in a gym class. Honestly, I would aid first and then add an FM, not chose an FM in lieu of aiding. I don't think an FM can replace the service/support that aids provide, since it only sends the sound of the speaker's voice into the ear. And yes, once you have molds that fit, you can trial a variety of aids and see which of them suits her best. The only thing I can think of that might need adjusting are the little tubes from the mold to the aid, and those are easily changed when you try a new aid. Perhaps all she needs right now is the aids. Maybe she'll never need anything more. Maybe she'll need more but not until school gets more difficult, like in 2nd or 3rd grade. That's a hard call for any of us to make. But don't feel that if you don't get a bunch of services now, that Breanna will never be able to get them. You can ask for services later on when you're sure of the need and have the support of your doctors/professionals to help prove it. I wish you luck! Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 In a message dated 4/27/2006 5:34:22 P.M. Eastern Daylight Time, bswatson@... writes: From YOUR experience, would you aid a child with MILD (hearing in 20-40db range) loss? Even if she's not " EDUCATIONALLY " delayed at this point, 3 years old??? I want to be armed with as much info as possible, she has not qualified for EI preK because she's not educationally delayed at this point. Robin, I think you have a two-part question. First is whether or not to aid and the second is a whether or not to fight for services. As for aiding -- our opinion would be to aid that loss. We DID aid that loss. Our Ian's loss was in that range when we learned of it -- but he was older, he was 7. It was a unilateral loss with his right ear being the " bad " one (30-35 dbs) and we aided him as soon as we possibly could. He wore one aid for between six and nine months, at which point we aided his " good " ear which had deteriorated down to about a 25 db loss. We definitely saw the difference that aiding such a " minor " loss had on our son. He was able to follow conversations, able to follow classroom discussions ... he was able to whisper again. He could hear water running and leaves rustling in the wind. Sounds he'd forgotten he'd known. He could hear music again without distorting it by turning it up all the way. What may have seemed minor to us was quite significant to him. I've kicked myself often for not realizing he had a loss and aiding him sooner. But several moms have told about how their kids did just fine without aiding. Ian didn't. He was lost in school, lost in social settings, and really responded to having his aids. He loved them and wanted to wear them even when he was sleeping. We were so thrilled that he'd wear them that we'd go in and take them out after he was asleep. But that didn't last long -- I was too afraid we'd forget and he'd lose them. As for services, I'm not sure about that. If your child is not currently behind and you don't request services, it doesn't mean that you've missed the boat and can never make the request in the future. So don't panic if services aren't started now. I don't know if you can argue for services based on the disability (504/ADA) instead of being delayed (IDEA). We never had experience with EI programs, so I am not sure that our family's argument for services can be used until the child is school age. Ian's services are based on his physical disability and his right to be able to access his education, not because of a learning disability or academic delay. But I don't know if you can argue for services the same way when dealing with EI programs. On that I'd have to defer to others who have dealt with EI programs. But I do know that if my gut said that Ian needed something to support him, whether it was aids or an FM or a TOD to help with language acquisition, then I would fight for it. I'd find a way to make it work. So, what does your mommy-gut say about your child's need for services? <<Do you think in noisy places such as the zoo, dance class, the mall.. Using an FM would work rather than aiding her all the time?!? I guess after this ENT appt in a month I may ask to trial some HA's, if we pay for the molds they would fit any brand of HA's correct? I guess as someone said I'd like to see if we notice a huge difference in what she's missing.>> Ian does better with his aids in all of those settings. The only place which is impossible is gym class where everyone seems to be screaming in an echoing din. And honestly, I don't think even the hearing kids hear well in a gym class. Honestly, I would aid first and then add an FM, not chose an FM in lieu of aiding. I don't think an FM can replace the service/support that aids provide, since it only sends the sound of the speaker's voice into the ear. And yes, once you have molds that fit, you can trial a variety of aids and see which of them suits her best. The only thing I can think of that might need adjusting are the little tubes from the mold to the aid, and those are easily changed when you try a new aid. Perhaps all she needs right now is the aids. Maybe she'll never need anything more. Maybe she'll need more but not until school gets more difficult, like in 2nd or 3rd grade. That's a hard call for any of us to make. But don't feel that if you don't get a bunch of services now, that Breanna will never be able to get them. You can ask for services later on when you're sure of the need and have the support of your doctors/professionals to help prove it. I wish you luck! Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 From YOUR experience, would you aid a child with MILD (hearing in 20-40db range) loss? Even if she's not " EDUCATIONALLY " delayed at this point, 3 years old??? I want to be armed with as much info as possible, she has not qualified for EI preK because she's not educationally delayed at this point. Thanks, Robin Memphis Mommy to Constance 6, Breanna 3, is 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Honestly, that is a VERY hard question to answer. I don't think I could tell you because all though my daughter is not " educationally " delayed she does have speech issues (although minor) that are directly related to her hearing loss. But there are people who chose not to aid - it is what you feel is best. Hope you get an answer! bswatson wrote: From YOUR experience, would you aid a child with MILD (hearing in 20-40db range) loss? Even if she's not " EDUCATIONALLY " delayed at this point, 3 years old??? I want to be armed with as much info as possible, she has not qualified for EI preK because she's not educationally delayed at this point. Thanks, Robin Memphis Mommy to Constance 6, Breanna 3, is 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 I'll chime in, though reluctantly. My daughter was 3.5 when we discovered her mild loss (and we only tested her because of her newborn brother's loss). At the time, her speech and language were off the charts; her vocabulary was pretty amazing. Now, her loss is primarily in the lower frequencies; her hearing rises to normal in the higher frequencies, which probably explains why she does so well. We chose not to aid her at the time, given her rising loss and the fact that she was so far ahead. She still is unaided, though she has always had a soundfield FM in her classroom, and is currently trialing an EduLink personal FM, for use in middle school next year. I do think it depends on the individual child, and you would want to take into consideration whether your daughter's speech or language are at all lagging. You can also trial hearing aids to see how they work with her, and can return them during the trial period if you decide they aren't working for her; however, you would have to pay for ear molds, and those can't be returned. Good luck, I know this is a tough decision. Stefanie Mom to Ben, 7, severe/profound HOH, and Isabella, 10, mild loss on 4/27/06 5:54 PM, Sara Chaddock at saraandchadd@... wrote: > Honestly, that is a VERY hard question to answer. I don't think I could tell > you because all though my daughter is not " educationally " delayed she does > have speech issues (although minor) that are directly related to her hearing > loss. But there are people who chose not to aid - it is what you feel is > best. Hope you get an answer! > > bswatson wrote: From YOUR experience, would you aid > a child with MILD (hearing in > 20-40db range) loss? Even if she's not " EDUCATIONALLY " delayed at this > point, 3 years old??? I want to be armed with as much info as possible, > she has not qualified for EI preK because she's not educationally > delayed at this point. > > Thanks, > Robin > Memphis Mommy to Constance 6, Breanna 3, is 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 I'll chime in, though reluctantly. My daughter was 3.5 when we discovered her mild loss (and we only tested her because of her newborn brother's loss). At the time, her speech and language were off the charts; her vocabulary was pretty amazing. Now, her loss is primarily in the lower frequencies; her hearing rises to normal in the higher frequencies, which probably explains why she does so well. We chose not to aid her at the time, given her rising loss and the fact that she was so far ahead. She still is unaided, though she has always had a soundfield FM in her classroom, and is currently trialing an EduLink personal FM, for use in middle school next year. I do think it depends on the individual child, and you would want to take into consideration whether your daughter's speech or language are at all lagging. You can also trial hearing aids to see how they work with her, and can return them during the trial period if you decide they aren't working for her; however, you would have to pay for ear molds, and those can't be returned. Good luck, I know this is a tough decision. Stefanie Mom to Ben, 7, severe/profound HOH, and Isabella, 10, mild loss on 4/27/06 5:54 PM, Sara Chaddock at saraandchadd@... wrote: > Honestly, that is a VERY hard question to answer. I don't think I could tell > you because all though my daughter is not " educationally " delayed she does > have speech issues (although minor) that are directly related to her hearing > loss. But there are people who chose not to aid - it is what you feel is > best. Hope you get an answer! > > bswatson wrote: From YOUR experience, would you aid > a child with MILD (hearing in > 20-40db range) loss? Even if she's not " EDUCATIONALLY " delayed at this > point, 3 years old??? I want to be armed with as much info as possible, > she has not qualified for EI preK because she's not educationally > delayed at this point. > > Thanks, > Robin > Memphis Mommy to Constance 6, Breanna 3, is 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Robin, We have not yet aided our soon-to-be Kindergarten daughter who is severe in her left ear and moderate in her right ear. She has never been the least bit delayed . . . we never knew she had a problem until a first and only ear infection in her better ear kept her from hearing much of anything for a week. Our Sydney is smart as a whip. We might aid her some day if we see her hearing change, but it has not so far in over a year, and she does great. Robin T. > > From YOUR experience, would you aid a child with MILD (hearing in > 20-40db range) loss? Even if she's not " EDUCATIONALLY " delayed at this > point, 3 years old??? I want to be armed with as much info as possible, > she has not qualified for EI preK because she's not educationally > delayed at this point. > > Thanks, > Robin > Memphis Mommy to Constance 6, Breanna 3, is 2 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Robin, We have not yet aided our soon-to-be Kindergarten daughter who is severe in her left ear and moderate in her right ear. She has never been the least bit delayed . . . we never knew she had a problem until a first and only ear infection in her better ear kept her from hearing much of anything for a week. Our Sydney is smart as a whip. We might aid her some day if we see her hearing change, but it has not so far in over a year, and she does great. Robin T. > > From YOUR experience, would you aid a child with MILD (hearing in > 20-40db range) loss? Even if she's not " EDUCATIONALLY " delayed at this > point, 3 years old??? I want to be armed with as much info as possible, > she has not qualified for EI preK because she's not educationally > delayed at this point. > > Thanks, > Robin > Memphis Mommy to Constance 6, Breanna 3, is 2 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 That is very tough! But I am going to have to say 'go with your gut.' That doesn't help, I know, but really and truly I think that is what you should do. If your child is not delayed and doesn't qualify for EI then I would have to honestly say no. You know your child best and if she's functioning normally then just keep an eye on her. You will know what to do and when. Good luck! Alison mom to Lucy - mild-mod --- bswatson wrote: > From YOUR experience, would you aid a child with > MILD (hearing in > 20-40db range) loss? Even if she's not > " EDUCATIONALLY " delayed at this > point, 3 years old??? I want to be armed with as > much info as possible, > she has not qualified for EI preK because she's not > educationally > delayed at this point. > > Thanks, > Robin > Memphis Mommy to Constance 6, Breanna 3, is 2 > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 That is very tough! But I am going to have to say 'go with your gut.' That doesn't help, I know, but really and truly I think that is what you should do. If your child is not delayed and doesn't qualify for EI then I would have to honestly say no. You know your child best and if she's functioning normally then just keep an eye on her. You will know what to do and when. Good luck! Alison mom to Lucy - mild-mod --- bswatson wrote: > From YOUR experience, would you aid a child with > MILD (hearing in > 20-40db range) loss? Even if she's not > " EDUCATIONALLY " delayed at this > point, 3 years old??? I want to be armed with as > much info as possible, > she has not qualified for EI preK because she's not > educationally > delayed at this point. > > Thanks, > Robin > Memphis Mommy to Constance 6, Breanna 3, is 2 > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Go with your gut is the best advice, but if I had to lean one way or the other, I'd go with aiding. was aided at 5 for a mild - severe loss and also had no delays. However, it was only in retrospect, after he was aided, that we realized what he was missing. He really flourished in ways we couldn't imagine after he received his aids. Good luck with your decision. Cherie bswatson wrote: From YOUR experience, would you aid a child with MILD (hearing in 20-40db range) loss? Even if she's not " EDUCATIONALLY " delayed at this point, 3 years old??? I want to be armed with as much info as possible, she has not qualified for EI preK because she's not educationally delayed at this point. Thanks, Robin Memphis Mommy to Constance 6, Breanna 3, is 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Go with your gut is the best advice, but if I had to lean one way or the other, I'd go with aiding. was aided at 5 for a mild - severe loss and also had no delays. However, it was only in retrospect, after he was aided, that we realized what he was missing. He really flourished in ways we couldn't imagine after he received his aids. Good luck with your decision. Cherie bswatson wrote: From YOUR experience, would you aid a child with MILD (hearing in 20-40db range) loss? Even if she's not " EDUCATIONALLY " delayed at this point, 3 years old??? I want to be armed with as much info as possible, she has not qualified for EI preK because she's not educationally delayed at this point. Thanks, Robin Memphis Mommy to Constance 6, Breanna 3, is 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 I have to agree with this one as well; I would aid if possible. I can't imagine, for example, saying, " Oh my daughter's vision is only fuzzy from the back of the classroom, so I won't get her glasses. " I know I can see if I have to without my glasses, but I also know how tired it makes me. I understand as a teacher and from parents on this list that dealing with school and life can be exhausting for a child with hearing loss. I would want to give my child any tools to help her succeed and make things less difficult. I know there is expense involved, but taking a chance and trying out hearing aids to see if there is a difference would be a good idea so you could make a decision based upon changes you do or don't see in your child. In addition, just because your child did not qualify in your district for EI preK does not mean she would not qualify somewhere else if you were living elsewhere. Some EI programs feel crunched by budgets and seem to find it easier to get rid of some of their clients. We had this experience when our daughter was four months old; they wanted to close her case since she was not delayed yet. It is kind of difficult to have objective proof of speech and language delay at four months old, but they said she did not have any. We fought that because we knew with her loss that she would need some assistance. She is currently receiving speech services twice a month, up from once a month during the first year. in Manassas, VA > Go with your gut is the best advice, but if I had to lean one way or the other, I'd go with aiding. was aided at 5 for a mild - severe loss and also had no delays. However, it was only in retrospect, after he was aided, that we realized what he was missing. He really flourished in ways we couldn't imagine after he received his aids. > > Good luck with your decision. > > Cherie > > bswatson wrote: > From YOUR experience, would you aid a child with MILD (hearing in > 20-40db range) loss? Even if she's not " EDUCATIONALLY " delayed at this > point, 3 years old??? I want to be armed with as much info as possible, > she has not qualified for EI preK because she's not educationally > delayed at this point. > > Thanks, > Robin > Memphis Mommy to Constance 6, Breanna 3, is 2 > > > [ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 I have to agree with this one as well; I would aid if possible. I can't imagine, for example, saying, " Oh my daughter's vision is only fuzzy from the back of the classroom, so I won't get her glasses. " I know I can see if I have to without my glasses, but I also know how tired it makes me. I understand as a teacher and from parents on this list that dealing with school and life can be exhausting for a child with hearing loss. I would want to give my child any tools to help her succeed and make things less difficult. I know there is expense involved, but taking a chance and trying out hearing aids to see if there is a difference would be a good idea so you could make a decision based upon changes you do or don't see in your child. In addition, just because your child did not qualify in your district for EI preK does not mean she would not qualify somewhere else if you were living elsewhere. Some EI programs feel crunched by budgets and seem to find it easier to get rid of some of their clients. We had this experience when our daughter was four months old; they wanted to close her case since she was not delayed yet. It is kind of difficult to have objective proof of speech and language delay at four months old, but they said she did not have any. We fought that because we knew with her loss that she would need some assistance. She is currently receiving speech services twice a month, up from once a month during the first year. in Manassas, VA > Go with your gut is the best advice, but if I had to lean one way or the other, I'd go with aiding. was aided at 5 for a mild - severe loss and also had no delays. However, it was only in retrospect, after he was aided, that we realized what he was missing. He really flourished in ways we couldn't imagine after he received his aids. > > Good luck with your decision. > > Cherie > > bswatson wrote: > From YOUR experience, would you aid a child with MILD (hearing in > 20-40db range) loss? Even if she's not " EDUCATIONALLY " delayed at this > point, 3 years old??? I want to be armed with as much info as possible, > she has not qualified for EI preK because she's not educationally > delayed at this point. > > Thanks, > Robin > Memphis Mommy to Constance 6, Breanna 3, is 2 > > > [ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 I LOVEEEEEEEEEE that analogy I never thought of it that way before. THANKS so much! -Robin Re: bottom line and your opinion I have to agree with this one as well; I would aid if possible. I can't imagine, for example, saying, " Oh my daughter's vision is only fuzzy from the back of the classroom, so I won't get her glasses. " I know I can see if I have to without my glasses, but I also know how tired it makes me. I understand as a teacher and from parents on this list that dealing with school and life can be exhausting for a child with hearing loss. I would want to give my child any tools to help her succeed and make things less difficult. I know there is expense involved, but taking a chance and trying out hearing aids to see if there is a difference would be a good idea so you could make a decision based upon changes you do or don't see in your child. In addition, just because your child did not qualify in your district for EI preK does not mean she would not qualify somewhere else if you were living elsewhere. Some EI programs feel crunched by budgets and seem to find it easier to get rid of some of their clients. We had this experience when our daughter was four months old; they wanted to close her case since she was not delayed yet. It is kind of difficult to have objective proof of speech and language delay at four months old, but they said she did not have any. We fought that because we knew with her loss that she would need some assistance. She is currently receiving speech services twice a month, up from once a month during the first year. in Manassas, VA > Go with your gut is the best advice, but if I had to lean one way or the other, I'd go with aiding. was aided at 5 for a mild - severe loss and also had no delays. However, it was only in retrospect, after he was aided, that we realized what he was missing. He really flourished in ways we couldn't imagine after he received his aids. > > Good luck with your decision. > > Cherie > > bswatson wrote: > From YOUR experience, would you aid a child with MILD (hearing in > 20-40db range) loss? Even if she's not " EDUCATIONALLY " delayed at this > point, 3 years old??? I want to be armed with as much info as possible, > she has not qualified for EI preK because she's not educationally > delayed at this point. > > Thanks, > Robin > Memphis Mommy to Constance 6, Breanna 3, is 2 > > > [ All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Robin- Carol Flexer has written extensively about kids with mild hearing losses and its educational impact. I would also look at the " frequently heard sounds audiogram' (do a google search and you'll get a bunch of links if you don't already have a copy). That will show you the speech sounds she is missing or not hearing very clearly, plus some environmental sounds. Hadley's loss is severe, so there is no choice but to aid her (given that our goal is spoken language). However, she typically tests in the 15-20 dB range while aided. When her hearing changes and her aided results are in the 30-40dB range, her speech and comprehension is markedly different. I work very hard to make sure her aid program keeps her in the 20dB range. It is that much of a deal. I've met lots of young kids with mild hearing losses who are aided and receive therapy or some kind of observation. Given the technology out there and the importance of good sound quality to our kids, I would not hesitate to aid a mild loss. Kerry bottom line and your opinion From YOUR experience, would you aid a child with MILD (hearing in 20-40db range) loss? Even if she's not " EDUCATIONALLY " delayed at this point, 3 years old??? I want to be armed with as much info as possible, she has not qualified for EI preK because she's not educationally delayed at this point. Thanks, Robin Memphis Mommy to Constance 6, Breanna 3, is 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Robin - I read your post and have to say I feel the same way. And re: the expense of hearing aids - any hearing aid company offers a trial period (usually 30 days) so you can 'test drive' and see what you think. Good luck! Barbara Letiecq wrote: > I have to agree with this one as well; I would aid if possible. I can't > imagine, for example, saying, " Oh my daughter's vision is only fuzzy > from the back of the classroom, so I won't get her glasses. " I know I > can see if I have to without my glasses, but I also know how tired it > makes me. I understand as a teacher and from parents on this list that > dealing with school and life can be exhausting for a child with hearing > loss. I would want to give my child any tools to help her succeed and > make things less difficult. > > I know there is expense involved, but taking a chance and trying out > hearing aids to see if there is a difference would be a good idea so you > could make a decision based upon changes you do or don't see in your > child. > > In addition, just because your child did not qualify in your district > for EI preK does not mean she would not qualify somewhere else if you > were living elsewhere. Some EI programs feel crunched by budgets and > seem to find it easier to get rid of some of their clients. We had this > experience when our daughter was four months old; they wanted to close > her case since she was not delayed yet. It is kind of difficult to have > objective proof of speech and language delay at four months old, but > they said she did not have any. We fought that because we knew with her > loss that she would need some assistance. She is currently receiving > speech services twice a month, up from once a month during the first > year. > > sc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Robin - I read your post and have to say I feel the same way. And re: the expense of hearing aids - any hearing aid company offers a trial period (usually 30 days) so you can 'test drive' and see what you think. Good luck! Barbara Letiecq wrote: > I have to agree with this one as well; I would aid if possible. I can't > imagine, for example, saying, " Oh my daughter's vision is only fuzzy > from the back of the classroom, so I won't get her glasses. " I know I > can see if I have to without my glasses, but I also know how tired it > makes me. I understand as a teacher and from parents on this list that > dealing with school and life can be exhausting for a child with hearing > loss. I would want to give my child any tools to help her succeed and > make things less difficult. > > I know there is expense involved, but taking a chance and trying out > hearing aids to see if there is a difference would be a good idea so you > could make a decision based upon changes you do or don't see in your > child. > > In addition, just because your child did not qualify in your district > for EI preK does not mean she would not qualify somewhere else if you > were living elsewhere. Some EI programs feel crunched by budgets and > seem to find it easier to get rid of some of their clients. We had this > experience when our daughter was four months old; they wanted to close > her case since she was not delayed yet. It is kind of difficult to have > objective proof of speech and language delay at four months old, but > they said she did not have any. We fought that because we knew with her > loss that she would need some assistance. She is currently receiving > speech services twice a month, up from once a month during the first > year. > > sc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Another thing to keep in mind Robin, is that the cut off for a lot of EI programs is 2 standard deviations below the mean in one area, or 1 standard deviation below the mean in two areas. This is a huge delay. Like what you would expect if your child's IQ was 70 or less. Just because she didn't qualify for EI doesn't mean she might not need some help. Doesn't mean that she couldn't benefit from technology or therapy, just means they can get out of providing it. Can you do a trial of hearing aids?? One thing to think about is that kids at three will accept hearing aids alot easier than trying to get them to start at age 6 or 7. And I would second the idea of reading some Carol Flexer. Here is a link to an article that tells about kids with minimal loss, which is less than mild. This will give you an idea of what your child is dealing with. http://www.totalhearing.net/child_faq_management.htm Kerry brings up a great point. There are audiologists who believe in aiding very conservatively. For instance, they might aid a child to the levels of 20-40 dB, which is where your child is naturally. (and so this type of audiologist probably wouldn't suggest aiding your child) Our audiologist believes in aiding children more assertively, to 15 - 20 dB. The audies at our ENT's office are more conservative and always act amazed at her aided results. And they always act amazed at her language and academic success. But they somehow fail to put the two together. And since our daughter is used to hearing well, she advocates for herself with the audiologist. She always wants a lot of very clear sound. In the first few months after her diagnosis (age 4) we got a second audiological opinion. Turns out that person was much more conservative and I didn't know the difference yet. Our audie made the suggested changes and my daughter threw a screaming hissy fit on the floor and screamed at the audiologist " you ruined my hearing aids " . Needless to say, we gave her more sound and she was happy again. Our audie was laughing and crying at the same time. (BTW, the audie's son has a mild loss in one ear and he is aided while at school.) We found after diagnosis (mod-severe) that my daughter's language was like swiss cheese. She had a lot of verbal language but she had holes in both vocabulary and usage. Not to mention social skills. All of which were directly related to her hearing loss. This is also typical of kids with a mild loss. So you are in the same boat we were 10 years ago, the " system " says your child is fine and they won't provide help, but your child probably does need help and you will have to go elsewhere to find it. And you'll probably have to pay for it. So find an audiologist who knows kids and who is more assertive. You can find these folks at chidlren's hospitals, auditory oral schools, auditory verbal centers. Sometimes they are out in the community (like mine is) and you just find them by word of mouth Or trial and error. in GA bottom line and your opinion > > >From YOUR experience, would you aid a child with MILD (hearing in >20-40db range) loss? Even if she's not " EDUCATIONALLY " delayed at this >point, 3 years old??? I want to be armed with as much info as possible, >she has not qualified for EI preK because she's not educationally >delayed at this point. > >Thanks, >Robin >Memphis Mommy to Constance 6, Breanna 3, is 2 > > > >All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Another thing to keep in mind Robin, is that the cut off for a lot of EI programs is 2 standard deviations below the mean in one area, or 1 standard deviation below the mean in two areas. This is a huge delay. Like what you would expect if your child's IQ was 70 or less. Just because she didn't qualify for EI doesn't mean she might not need some help. Doesn't mean that she couldn't benefit from technology or therapy, just means they can get out of providing it. Can you do a trial of hearing aids?? One thing to think about is that kids at three will accept hearing aids alot easier than trying to get them to start at age 6 or 7. And I would second the idea of reading some Carol Flexer. Here is a link to an article that tells about kids with minimal loss, which is less than mild. This will give you an idea of what your child is dealing with. http://www.totalhearing.net/child_faq_management.htm Kerry brings up a great point. There are audiologists who believe in aiding very conservatively. For instance, they might aid a child to the levels of 20-40 dB, which is where your child is naturally. (and so this type of audiologist probably wouldn't suggest aiding your child) Our audiologist believes in aiding children more assertively, to 15 - 20 dB. The audies at our ENT's office are more conservative and always act amazed at her aided results. And they always act amazed at her language and academic success. But they somehow fail to put the two together. And since our daughter is used to hearing well, she advocates for herself with the audiologist. She always wants a lot of very clear sound. In the first few months after her diagnosis (age 4) we got a second audiological opinion. Turns out that person was much more conservative and I didn't know the difference yet. Our audie made the suggested changes and my daughter threw a screaming hissy fit on the floor and screamed at the audiologist " you ruined my hearing aids " . Needless to say, we gave her more sound and she was happy again. Our audie was laughing and crying at the same time. (BTW, the audie's son has a mild loss in one ear and he is aided while at school.) We found after diagnosis (mod-severe) that my daughter's language was like swiss cheese. She had a lot of verbal language but she had holes in both vocabulary and usage. Not to mention social skills. All of which were directly related to her hearing loss. This is also typical of kids with a mild loss. So you are in the same boat we were 10 years ago, the " system " says your child is fine and they won't provide help, but your child probably does need help and you will have to go elsewhere to find it. And you'll probably have to pay for it. So find an audiologist who knows kids and who is more assertive. You can find these folks at chidlren's hospitals, auditory oral schools, auditory verbal centers. Sometimes they are out in the community (like mine is) and you just find them by word of mouth Or trial and error. in GA bottom line and your opinion > > >From YOUR experience, would you aid a child with MILD (hearing in >20-40db range) loss? Even if she's not " EDUCATIONALLY " delayed at this >point, 3 years old??? I want to be armed with as much info as possible, >she has not qualified for EI preK because she's not educationally >delayed at this point. > >Thanks, >Robin >Memphis Mommy to Constance 6, Breanna 3, is 2 > > > >All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 I'm a little behind in answering emails but wanted to share a thought. Mild losses I'm sure can be deciving. To me it's much easier for a child to seem like they understand when they may not. Their speech and development may be much more on track so they don't display a " need " . If I was in your position I would take a copy of her audiogram and plot is out on a speech banana. If any of the speech sounds happen above her ability to hear them, then I would aid her. I believe that someone already gave you the link to an article by Carol Flexar about minimal hearing loss. It's a great article and will also give you a little more food for thought. Debbie, mom to , 6, moderate SNHL and , 3 hearing bswatson wrote: From YOUR experience, would you aid a child with MILD (hearing in 20-40db range) loss? Even if she's not " EDUCATIONALLY " delayed at this point, 3 years old??? I want to be armed with as much info as possible, she has not qualified for EI preK because she's not educationally delayed at this point. Some men see things as they are and ask why. Others dream things that never were and ask why not. G.B Shaw --------------------------------- Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Thanks for the suggestion, I sorta plotted it out (using the computer and the audiogram copy), any thing under 250 we have no results on (only started her at 500hz), with the zig-zag that they’ve plotted her at she’s not getting the F, S, TH according to the speech banana. I will do this again if we get another one done the 24th at the ENT. Depending on the results of that I think I’m going to push for a 30 day trial of HA’s to try and compare it and see if I notice what she WAS missing before. Thanks, Robin Mommy to Constance 6, Breanna 3, is 2 Re: bottom line and your opinion I'm a little behind in answering emails but wanted to share a thought. Mild losses I'm sure can be deciving. To me it's much easier for a child to seem like they understand when they may not. Their speech and development may be much more on track so they don't display a " need " . If I was in your position I would take a copy of her audiogram and plot is out on a speech banana. If any of the speech sounds happen above her ability to hear them, then I would aid her. I believe that someone already gave you the link to an article by Carol Flexar about minimal hearing loss. It's a great article and will also give you a little more food for thought. Debbie, mom to , 6, moderate SNHL and , 3 hearing bswatson wrote: From YOUR experience, would you aid a child with MILD (hearing in 20-40db range) loss? Even if she's not " EDUCATIONALLY " delayed at this point, 3 years old??? I want to be armed with as much info as possible, she has not qualified for EI preK because she's not educationally delayed at this point. Some men see things as they are and ask why. Others dream things that never were and ask why not. G.B Shaw --------------------------------- Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Thanks for the suggestion, I sorta plotted it out (using the computer and the audiogram copy), any thing under 250 we have no results on (only started her at 500hz), with the zig-zag that they’ve plotted her at she’s not getting the F, S, TH according to the speech banana. I will do this again if we get another one done the 24th at the ENT. Depending on the results of that I think I’m going to push for a 30 day trial of HA’s to try and compare it and see if I notice what she WAS missing before. Thanks, Robin Mommy to Constance 6, Breanna 3, is 2 Re: bottom line and your opinion I'm a little behind in answering emails but wanted to share a thought. Mild losses I'm sure can be deciving. To me it's much easier for a child to seem like they understand when they may not. Their speech and development may be much more on track so they don't display a " need " . If I was in your position I would take a copy of her audiogram and plot is out on a speech banana. If any of the speech sounds happen above her ability to hear them, then I would aid her. I believe that someone already gave you the link to an article by Carol Flexar about minimal hearing loss. It's a great article and will also give you a little more food for thought. Debbie, mom to , 6, moderate SNHL and , 3 hearing bswatson wrote: From YOUR experience, would you aid a child with MILD (hearing in 20-40db range) loss? Even if she's not " EDUCATIONALLY " delayed at this point, 3 years old??? I want to be armed with as much info as possible, she has not qualified for EI preK because she's not educationally delayed at this point. Some men see things as they are and ask why. Others dream things that never were and ask why not. G.B Shaw --------------------------------- Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.