Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Hi Laurie and Alice, Do you remember the name of the lady on our list who is a friend of Jack Black? I think he did some fund raising for the Southern California UMDF Chapter. I am sure she would know why his sister is now *UNdiagnosed* . Ann-Marie Ann Marie That is how I interpreted it. laurie > > Reply-To: > Date: Thu, 2 Sep 2004 18:05:26 -0400 > To: > > Subject: Re: UMDF Conference: Jack Black > > Hi Alice, > > When I read this, I too wondered how that could be. I have been thinking about > this all day now, and I am wondering if she was " MISdiagnosed " in the > beginning as having Mito, and now they found out that she has another > neurological/muscular disease. > > That's the only thing I can think of for her becoming " undiagnosed " . > > Ann-Marie > ----- Original Message ----- > From: A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Dear Ann-Marie, I may be mistaken, but I think the lady in question is Sharon Shaw, from California. She was at the convention, and spoke. I have also read her story in People magazine a while back. She headed the California UMDF chapter. S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Dear Ann-Marie, I may be mistaken, but I think the lady in question is Sharon Shaw, from California. She was at the convention, and spoke. I have also read her story in People magazine a while back. She headed the California UMDF chapter. S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Dear Ann-Marie, I may be mistaken, but I think the lady in question is Sharon Shaw, from California. She was at the convention, and spoke. I have also read her story in People magazine a while back. She headed the California UMDF chapter. S. Quote Link to comment Share on other sites More sharing options...
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