preventing re-occuring plagio

[Guest guest]

My son is 7 months and was born with plagio and torticollis. He started

STARband therapy

last week. I'm new to group and have noticed many parents coming back to the

group

because their child needed to be banded a 2nd time. I'm wondering what

suggestions people

have for preventing relapse. We are doing physical therapy for the torticollis

but I don't see

much change in him (he's more flexible but still holds his head in the same

position most of

the time). Are there products you'd really recommend for repositioning (both

while banded

and after)? Are there things people wish they had done differently?

Thanks!

[Guest guest]

Hi ,

I want to stress the fact that regression is very uncommon. Most children do not regress at all. However, I think that it is important to keep following those "rules" they give us before our kids are banded. For example, still do everything you can to keep them off of their backs. I know that this alone will not stop regression in some cases, but it is bound to help. As far as the Tort goes, I also have a 7 month old working thru. She is also more flexible, but we are not yet at the point where she has full ROM. From what I understand, it can take a very long time to reach that goal, but it's worth it to avoid surgery.

As a side note. . . .many parent's have to band a second time merely because their child outgrows their first helmet.

Sam (Mother of , 7 mo.--1 mo in Starband)

preventing re-occuring plagio

My son is 7 months and was born with plagio and torticollis. He started STARband therapy last week. I'm new to group and have noticed many parents coming back to the group because their child needed to be banded a 2nd time. I'm wondering what suggestions people have for preventing relapse. We are doing physical therapy for the torticollis but I don't see much change in him (he's more flexible but still holds his head in the same position most of the time). Are there products you'd really recommend for repositioning (both while banded and after)? Are there things people wish they had done differently? Thanks!

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[Guest guest]

I have only seen a few babies who have regressed since being on this

board. some need a 2nd band to continue getting correction after

outgrowing a first. From what I know regression isn't that

predictable. Factors can be very young child & unresolved tort, but in

some cases they really don't know why.

I think the regret I've read most often is that people waited too long

hoping plagio/brachy would improve on its own, or in a few cases going

with an inexperience band provider and not gettting good correction

(in some cases the head got worse). Most of those people re-band with

an experience ortho/clinician.

As for repo you don't need it while in the band. Depending how long

your child is in the band you may want to minimize time on the head

when your baby is out of the band, but assuming he wears it a few

months I don't think you'll need to worry too much when you're done.

-christine

sydney 2 yrs starband grad

>

> My son is 7 months and was born with plagio and torticollis. He

started STARband therapy

> last week. I'm new to group and have noticed many parents coming

back to the group

> because their child needed to be banded a 2nd time. I'm wondering

what suggestions people

> have for preventing relapse. We are doing physical therapy for the

torticollis but I don't see

> much change in him (he's more flexible but still holds his head in

the same position most of

> the time). Are there products you'd really recommend for

repositioning (both while banded

> and after)? Are there things people wish they had done differently?

> Thanks!

>